How do you tell your child?

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nrs
nrs Member Posts: 5

I'm getting ready to go in for a mastectomy (after 2 failed lumpectomies - dirty margins) and have been able to pacify my 5 year old's concern by sharing with him that I needed to have an "owee" taken off.  My chemo is scheduled to begin 10/8 and I need to share more with him - any advise?  Is it as easy as telling him that I need to take some medicine that will make me tired and bald??  I don't want to scare him.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007

    I do wish I had a fantastic answer for you.  I know this is such a hard process.  My son was only 15 months when I was diagnosed, so my approach with him was a lot different than yours will be with a 5 year old. 


    While I was going through tx, a friend from church was going through tx for thyroid cancer.  She has 4 kids from ages 15 months to 18 years (at the time).  She told the middle kids, "Mommy has some yucky in her that needs to be taken out."  I thought that was just right.  No need to get too in depth-kids gloss over pretty quickly.  They especially gloss over if they sense your fear and sadness. 

    I'll be thinking of you and praying for you.  You can do this. 
    Love and prayers, Deb

  • nrs
    nrs Member Posts: 5
    edited September 2007

    I like the idea of just keeping with the thought that how you present it to them is how they'll handle it - we'll keep it pretty low-key:  something needs to come off/out of my body and then things will be good.  I think we'll let him know that I'm going to be taking medicine that will make my hair come out, but that it's no big deal and, in fact, make it fun....

    You're right:  don't go too deep...I'm just afraid of how he'll react because he's so close to me.  I want to protect him from fear, etc. as best I can.

    Thanks for the advice!

  • KimRI
    KimRI Member Posts: 35
    edited September 2007

    Hi,

    Here's what I did.........I had a daughter that was 2 1/2, but very aware of things.  I also had a 9mth. old daughter.  I was petrified that my oldest would be scared of me with no boobies & no hair.

    Every day, I would go on the computer to IVillage.com(I didn't know about this web site yet).  There was a girl that posted her picture of herself bald.  She was my age.  I would tell Meghan, "This is my friend Amy."  I did this every day for a few weeks.  When the time came and I lost my hair, I came downstairs with a baseball hat on.  My husband shaved my head at 5am before she woke.  I went over to her and said, "mommy is going to look like Amy, is it okay to take off my hat?"  She said yes.  I took it off, she didn't say a word for a second, then said, "Mommy you look silly!!!!"  She then turned back around and started watching tv.  It was one of the best days of my life.......

    As far as the mastectomy, as odd as it sounds, she looked forward to draining my drains after the operation.  It was "her" job.  My plastic surgeon got a big kick out of it when I told him.

    To this day, my 2 girls(7&5) don't know that mommy's got/had cancer.  I even had a recurrence to my spine & liver last Jan.(since in remission for 10mths!!!" and to this day go for weekly chemo treatment.  I just tell them that I need this medicine to make my back better.  I don't believe at this age they should know about cancer.....that's just my opinion.....unless God forbid I were to get worse........

    Kim 

  • KimRI
    KimRI Member Posts: 35
    edited September 2007

    Oh, just wanted to add something cute that happened while I was bald.

    We were sitting on my front stairs and my husband wanted to take a picture of us(my 2 1/2yr. old at the time & me).  I didn't have my wig on.  The next thing we knew, she put both hands on her forehead to pull her hair back and my husband took the picture.  We asked what are you doing and she said,"I want to look like you mommy!!!!"

    Kim 

  • nash
    nash Member Posts: 2,600
    edited September 2007

    One thing our pediatrician said was to talk about how Mommy being sick was going to affect (or not affect) the kids. Like, although Mommy is sick, you can still be on the soccer team, go to ballet, take piano, etc. Or not. He said at a young age, kids are egocentric, and it's important to address how all of this will affect them. So that's what I've been trying to do.

    My 9 year old is having a hard time with my hair loss. My 5 year old doesn't seem to care. How they react has a lot to do with their personalities, I think.  

  • jsims2
    jsims2 Member Posts: 27
    edited September 2007

    I also have a 5 year old daughter and a 2 year old daughter and I just told her that the doctor is going to give mommy some medicine that will make me loose my hair and when they are all done my hair will come back.  At first I was worried about what she would think, but now it is just an every day thing and she just keeps guessing what color it will be when it comes back.  As far as the masectomy I still have not let either one of my daughters see me since the surgery.  I personally do not want to tramatize them with the scares.  The 5 year old just knew that I was REALLY tired sometimes and she knew that Mommy needed some quiet time.  You will be amazed of how well your 5 year old will take it.  I also let mine help me pick out hats and they played with the wigs too.  Lots of hugs and just take care of yourself. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007

    It's so interesting how children at different stages in their little lives react to/deal with things.  Daniel (my 3 year old) has seen my scars from the moment I came home from the hospital.  I can totally understand your mindset, Janet, but I guess since Daniel is a boy, I'm not as worried about traumatizing him that this would possibly happen to him.  I also want him to just make his Mommy's "owwies" a normal part of his life. 

    Therefore, my son has grown up with a slightly skewed view of how to handle certain situations.  He tries to examine my breast when I am at the doctor's for a check-up.  He reaches out and pokes at different women's chests because he is fascinated that they don't feel like mine.  He says, "Cancer sucks!"  I'm slightly embarrassed by this, but I don't want him to react like others do, and have him afraid of a person just because they have/had cancer.  I'm proud that when he sees one of those blasted pink ribbons, he points and shouts, "Look, Mommy!" 

    Does that make any sense?  I'm so bad at expressing myself at times. 

    Oh, and NRS, I totally understand the total need and urge to protect your baby (if I am substituting at Daniel's school I want to jump in any time I see someone bully him!!!).  That makes you a very special mommy. 

    Love and prayers, Debbie

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007

    Oh, and as far as going bald....I was TERRIFIED of showing my bald head to Daniel and wore a hat for three days while around him.  Finally, I said, "Daniel, can I show you my head?"  He nodded (he wasn't verbal yet), and I took off the hat. 


    He giggled, rubbed my head, and continued on playing blocks. 
    humpfh.......

    Love and prayers, Debbie

  • sharebear
    sharebear Member Posts: 332
    edited September 2007

    My girls were 5 and 9 when diagnosed the first time. Their grandfather passed away 16 mos before from a brain tumor. My oldest new more about his brain tumor than most adults (they were very close). So when my diagnosis came in we just took them to the Onc. with us and he sat them down explained things and told them he was going to make me better. He gave them a business card and told them they could call him if they had any questions. My funniest thing was when after my mapping for radiation, my 5 year old asked if she could draw on the other side! She liked the dr. and staff so much she asked if the could go there when she got bc.

    My truth was less scarry than their imaginations and they have some big ones. Now 12 years later, they are 17 and 21. They helped shave my head this time, matter of fact, so did their friends. I don't have to pick up their toys and they even do their own wash. Sometimes, I can even get them to remember to clean their rooms!!!!!  Oh and nobody wants to draw on my other boob this time!

    But they still rub my head!

    Sharon

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007
    Oh Sharon, the statement about your daughter wanting to go there when she got bc is just so innocently sweet. 

    Daniel told me the other day he wanted to get his port flushed since I was getting mine done. 

    So innocent, so sweet. 
    Love and prayers, Deb
  • luvn2kids
    luvn2kids Member Posts: 12
    edited September 2007

    I just have to add:

    Like you, I was worried about scaring my children. THEY were (and are) my top priority.

    So I really downplayed everything. Made it all sound like no big deal. And I always got up every day and got dressed. Never stayed in bed. Never hung out in my jammies. For all they knew, I was fine. Just had to sleep a lot.

    I told them I had an owie too. And about the medicine that would make me lose my hair. But I also emphasized that the medicine would make me ALL better.

    Today, they think I'm 100% fine. They don't know how terrified I am. They don't know how serious my illness was. They just know mommy always has been there for them.

    Oh, and my tip for getting through chemo: spend a lot of time watching videos with them and reading to them! 

  • nrs
    nrs Member Posts: 5
    edited September 2007

    Thank you all for your perspectives - I feel much better about the approach that I plan on taking with my son...and I'm glad to hear that the children handle the news and experience well (they're pretty resiliant aren't they?). 

    Keep me in your thoughts as I go in tomorrow for my 3rd (and final surgery) - mastectomy of the right breast.  I'll be back soon to share how he handles the news!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007
    NRS-blessings to you and your family.  Recover well, and take care of yourself!  Love and prayers, Deb
  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007

    crazy boards!  Posted my response a zillion times!!!!!!!!!    

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007
  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007
  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007

    Oh, I give up on trying to edit all of these repeated messages!!!!!    I'm leaving the rest!!!!!!!!!!!!!!!!!!!!!    Deb

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007
  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007
  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007
  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007
  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007
  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007

    crazy boards!!!!!!!!!!!!!    

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2007

    My girls were 5 and 2 when I was diagnosed. For the mastectomy I told them that I had some bad cells growing in my breast that the doctor was going to take out. That I would feel bad for awhile and then get better.  My 2 year old was obsessed with looking at my "boo-boo" after surgery and asking if it hurt. My 5 year old never showed much interest.

    When I found out I needed chemo I told them that the doctors needed to give me some very strong medicine. That the "crazy - I mean really it's funny" thing about this medicine is that we would know it was working when it made my hair all fall out. I actually managed to say this like I tought it was funny. They thought it was funny too. My 2 year old didn't like me being bald, but my 5 year old was never bothered by it. 

  • 1965sally
    1965sally Member Posts: 113
    edited March 2008

    Thanks for these tips.  I was looking for advice for explaining a mastectomy to a 2 year old.  She already knows what breasts are and I told her once that she will have them when she grows up.  If she remembers that, I'm afraid she'll associate breasts with illness and pain.  Any further advice is appreciated!  I haven't scheduled my surgery yet but it will be in a few weeks.

  • SpunkyGirl
    SpunkyGirl Member Posts: 1,568
    edited March 2008

    My boys were 1 and 3 when my husband was diagnosed with brain cancer (he's doing fine now, even after a recurrence), and 3 and 5 when I was diagnosed with BC.  I think it is very important to remember that they are always looking to us, even at a young age, as examples of how to deal with life's adversities.  That doesn't mean we have to be superheroes, but to show them that even in adversity, life goes on, and we will have good days and bad days.  My boys know that mom and dad have had bad boo boos, and yucky medicines to treat them, and I hope that's all I'll ever have to tell them.  I remember once, after I had my second mastectomy, my five year old asked "Mommy, are you going to get new buttons?"  It took me a few minutes to figure out what he was talking about, and then I thought it was hilarious.  I'm still here and the new buttons are coming in May!  Peace be to you all.

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