Positive Girls Club
Comments
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Hi gals, I need in this club. I had a quite easy time, once I got past the 2 years of being told, "nothing is wrong", when it was.
But my lumpectomy was small, the axillary thing was much worse, and I have numbness in my underarm, but aside from rib pain when I turn sharply to the left, I seem fine.
As far as getting out of the hospital goes, get out as quick as you can. Some have no choice, with little ones or no help at home, but I do volunteer work with my therapy dog at Mercy Hospital in San Diego and the head of volunteers tells me they cannot keep the patients well. One germ is MRSA, or, Methycillin Resistant Staph Aureus. She tells me they get people out as fast as they can.
This is a great idea! Positive vibes, all around.
Hugs, Shirlann -
I thought I posted but it must not have gone through. It has been a while. I was caught up in dramas, both here and at home. Anyway, I am back to work. An old, dear friend has a dollar store and needed some part-time help. So I said yes and they understand I cannot lift heavy things. I also need the money.
The left implant came out after a long bout with staph infection. One of the dramas and I felt bad posting about it here. Teh stitches just came out of the skin flap that is left behind. But my 4 year old grandson felt just right falling asleep on my right side that has the implant. I go to see the ps on the 26th and we can map out what is next. he will either put in a new implant or expanders, fills then an exhange. It all depends on how much damage was done by the staph infection.
Shirlann, the ps was afraid of my having MRSA back in May when I was back in the hospital with a high fever, two weeks after my prophy bilat mast. Turns out I battled a staph infection ever since then.
One positive is that my 14 y.o. ds is actually saying things like, "yes, please" and doing chores without grimacing (at least as far as I can see) and not needing too much reminding. Now if he can stay off of the Xbox for a little bit....
And my Avon business is picking up. Word spread in the neighborhood and I got 3 new orders today.
See y'all later in the week!
Beth
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Hi all...
Now to comment on some positive things:
* well I had my ooph and hyster on Thursday the 13th and was out first thing the next morning.
* a dear friend came from out of town and stayed with me for 5 days.... it was nice visiting
* My son has registered and started courses at college this week.... he seems enthusiastic about that
* Just received a letter from my disability benefits organization that they are conducting a thorough investigation to see if I will require benefits after the end of November and I don't want to think about going back to work til the new Year.... I have to come up with some psychological reasons for not being ready for work. Any suggestions???
I'll look forward to coming back to this topic.
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Hi to everyone,
Shirlann, I have followed your posts on other threads for a while and you are always positive. You are welcome to post here anytime you like.
Beth, it is amazing with teens, just when you think you know them, they start using good manners. I raised my son by myself for 10 years and everyone said that he had good manners while he was growing up. Now he is in the Navy, he has to have good manners.
Hi5, Welcome to this topic. Glad you came through your surgery successfully and your friend came by to see you. Good luck on your disability.
Last week I posted about the rain in the foothills of NC, well we only got 2 inches in 24 hours. We could stand to have 10 to 15 more inches to get us out of the drought. Some cities are talking level 3 water restrictions, disposible plates and cups at restraunts, no watering the lawn (ha-ha), and no washing cars at all. They are getting rain in the Eastern part of the state from the tropical system over Florida but it is not coming far enough west.
Positives for me, I am enjoying the yoga class that I started taking this summer, I am organizing a team for the NC Foothills Race for the Cure in Hickory October 20, and I am having fun designing new pocketbooks for my Church's bazaar October 13.
Sheila
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Hi, everyone. Welcome, Shirlann and hi5, come back and post anytime.
I've had a great week. Tuesday, I went for my first massage since before I started radiation on July 17. My RMT is wonderful; he was able to do most of the massage with me laying on my back, then I turned on my sides for him to treat my back. My hubby gave me a certificate for 12 massages last December. Boy, have they come in handy this year during my treatment!
On Wednesday, my Aqua Angels group from my water aerobics class had their monthly lunch. I was surprised to win a door prize yet again. Then after lunch they gave me a Congratulations card that they all had signed. The hostess wasn't finished, yet, she also gave me a $50 gift certificate for the new restaurant that opened at a small winery near here. My husband and I had one of the best meals we've ever had there earlier this afternoon. If you are ever near Driftwood, TX, this is the place to eat unless you want BBQ at the Salt Lick.
On Thursday, I met up with a friend from an on-line group of Sue Grafton fans. These ladies, and a man or two, have been my support system during my diagnosis and treatment for the past almost ten months. I was surprised when she handed me this huge flat box. I'd expected only small "happy to see you in person" gifts. It was a poster-sized picture of my face with little pictures of all of them forming a heart around me. The message read, "Angels transcend every religion, every philosophy, every creed. In fact angels have no religion as we know it, their existence precedes every religious system that has ever existed on earth." The person who made it up on her computer included a little gift card of a Persian Cat in curlers. She wrote that won't be long before I'll be in curlers. We had such a nice time chatting for nearly two hours. One of the pictures of me came out so well I may change my avatar.
In other normal positive stuff, I made it to my water aerobics class all three times this week and had a good workout each time. The skin in the boost area is nearly filled in and the pain and redness is pretty much gone.
On Monday I go to my med onc for a follow up to all the treatment I've been through so far. I expect to discuss when I'll start taking one of the AIs. Then on Oct 4, I have the follow up with the rad onc. Moving ever upward and onward.
I almost forgot that I found my favorite bottled green tea in a diet version went I went to the store yesterday. I practically lived on the regular version all during Chemo. It was the only thing I felt like drinking. Now I can have it and stay within the allowance of carbs on my food plan.
See you all again next week.
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Boy Debbie, you did have a very positive week. I wish I had half of your luck.
I am still going to the yoga class every week but the woman leading it will be having surgery in November and will not be able to lead it for several weeks. She is looking for a replacement.
My race team has grown larger this weekend, one of my co-workers and his mother are joining my team. My team is registered as a church/community team and we are just that, people from my church and friends from the community.
Sheila
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Hmmmm....positive events in the past couple weeks since surgery:
My son is adjusting well to going full time to his College Upgrading courses
I advertised on the Teacher's Swap and Shop that I was looking for a small, reasonably priced freezer and someone replied and said I could have hers for free. ( However, I will send her a gift certificate/coffee card)
I explained my medical situation to my prof and she is so understanding and willing to bend over backwards to support me
I am enjoying my full time course at the College... 19 women making life altering career changes... I know that I will soon leave the teaching profession
Spoke to my friend's daughter's fiancee who owns several real estate offices and got some helpful advice
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My positives for this week,
I went to PS yesterday and scheduled my exchange surgery for November 2. He agreed to throw in a little lipo on the area under my arms.
I nearly knocked him over with removable tattoos on my breasts. He could not continue the exam with a straight face.
Glad to hear you got the great deal on the freezer Hi5 and prof understanding your situation.
Sheila
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Hi everyone,
Sorry I have been MIA this past couple of weeks but have had alot going on...
I was getting ready for my trip to the Oregon coast when I realized I had messed up and my 6 months bilateral mammo was scheduled for a couple of days b4 leaving....that lead to a meeting with my onco the evening I was going
....the have found a 3mm cluster of something or other in my "good" side....
I have since had a spot compression and ultra sound....the cluster showed up on the ultra sound and from my research I have discovered that if it was pure calcifications it would not have shown in the US only in the mammo.....so met with onco yesterday and he thinks it is DCIS
...will meet with surgeon on Monday to discuss bisopy options and removal/testing to see what it actually is....
So as you can see I havent really had anything positive to post this past couple of weeks....
Ive been in a pretty good slump over all this and "I just plain DONT like it!!!!!!!!" so decided that if I look hard enough there has to be a positive in here somewhere.......
For now I will start with the positive that there is still a small chance that this finding could be b-9.....secondly I will say that if it is something it is very small and should be easily managed.....I am determined that I will stay positive as this past couple of weeks has taken its toll....Ive never felt so on the edge before and I think if I come to this thread that has meant so much to me in the past that it will make me stop to think each day that there "IS" a positive even if I now have to think awhile to find one.....
Sorry but I have a feeling you ladies are going to get tired of seeing me post here because I intend to take full advantage of the friendships I have made here and push to find a positive daily to tell you about.....
Jule
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Jule, don't worry about us getting tired of you. Post whenever you feel like it. Sorry to hear about your test results so far, maybe this next procedure will set your mind at ease. You can get through it, even if you need to do more. A few months ago at my fitness club, a lady was telling me everything she went through. To make a long story short, they found more cancer 2 or 3 times after her initial treatment, and she had more surgeries and treatment, but now she's been cancer free for several years. Just get through it the best way for you.
My positive is that I've learned how to use a new DVD recorder and new TV. Three of our video entertainment devices decided to bite the dust with in the last month. About a month ago, the old VCR started eating tapes. No sooner than I had removed it from the hook ups, the DVD player started popping when we played rented movies. Off to Best Buy we go to see the DVD recorder/player they had advertised. After a few days I get it hooked up to the TV and the old DVD/VHS (the tape part of it still worked), and the TV picture started doing funny things. Back to Best Buy to get the last large non-HD TV set they had. After they got it into the trunk and we were driving home, we thought about how we were going to get it into the house. Some workmen were putting up new siding about 3 houses down so my hubby went down to ask if they could carry it in for us. Thanks heavens they did it(for the tip my hubby offered); it was one huge, heavy TV. Everything seems to work fine. For the last few days I've been testing all the buttons to see what they do, or more like figuring out why they didn't do anything when I pushed them. Once I get used to all the features, I can really have a ball. This new DVD machine will play all kinds of things even the SD cards from my camera. I just know I'll learn about all sorts of things that I never knew existed. Now I won't be able to do without them.
On other fronts, My skin is healed over in all the radiated areas. I haven't noticed any really bad side effects from the Aromasin. I started it last Monday after I saw my med onc. Thursday, I'll see the rad onc for the follow up visit.
Catch up with you again in a few days.
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Jule, I was wondering what happened to you. I am sorry for your problems with possible return. You can post here any time and we will boost you up with positive thoughts. Let us know how things turn out.
Debbie, Wow new DVD player and TV! My mom recently got a tv with dvd/vcr and I had to go to her house and explain how the things worked! she still calls me to ask about some electronics in her house. I guess I am the resident help desk.
Sheila
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Where is everyone?
I have a couple of positives.
It rained about an inch last night. but we are still in extreme drought conditions.
I have 15 people registered for the NC Foothills Race for The Cure and I pick up the t-shirts and race numbers this afternoon.
My husband will be home at a decent hour and we can have supper together. (he is a long haul trucker and only home on weekends.) Sometimes he does not get home until Saturday afternoon and back on the road either Sunday afternoon or monday morning, based on where he has to go on the next trip.
Positive thought to all.
Sheila
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Good to see you, Sheila. As you said where is everyone? I hope they are having so much fun that they haven't had time to check in with us. I hope you have a good weekend with your husband. You and your team seem all set to have a great race. I hope you all cross the finish line. I haven't decided if I want to sign up for the RFtC here, yet.
Glad to hear that some areas that need the rain are getting a little. My husband and I are taking his mom to see her sister and brother-in-law in southern Tennessee later this month. When we called his uncle, he said that they have been really dry this year. He lives about 30 miles north of Florence, Alabama. We are looking forward to seeing his uncle and his cousin and her husband who are coming in from Knoxville. His aunt is in a nursing home so we don't know what to expect from her. We thought it would give his mom a chance to visit with her only remaining sister while she still can.
My positives this week are that, yesterday, during my visit with the rad onc, she said I could quit using the silvadene cream. I'm healed well enough to switch to Aquaphor alone.
Also, my hair is really filling in. It is going to be darker than I thought at first. My Chemo fuzz was mostly gray, but it looks like I'm going to have my dark brown with a little gray sprinkled in. The last few years I kept it dyed to a light ash brown so I wasn't sure what it would be like after treatment.
I'll check back with you soon.
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Sheila and Debbie,
It sounds like the two of you have had very positive weeks....I as well am hoping that as time has gone by and this bc goop has passed through lives that the others that use to post here have moved on and are living thier lives and are wonderfully happy!!!!!
This past few weeks have been rough for me but things are somewhat better now and I wanted to post that I too feel that I have a positive for this past week...
I had surgery to remove whatever it is that was found on my mammo this past Thursday....why the docs insist on talking to a girl 20 minutes after surgery I will never understand!!!!! Anyway the surgeon came in after surgery and said that he took the liberty of poking around in the goop that he removed and felt that he is 90% sure what he removed is fibro-something or other....I was so dopey from the surgery meds that I dont remember what he said...I just remember a huge sigh of relief when he said 90% sure that I dozed back into that after sugery dreamland for a bit longer....I will see him again Tuesday to check the incision site is well and potentially have the pathology report back too...
So my positive is: 90%
Hope everyone is heading into another wonderfully positive week!!!!!!!
Hugs
Jule
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Hi gals!
Glad everyone is okay! I'm back at work and feeling great. I have several heart tests coming up and visits with the oncs, but don't expect any more news!
So my positive is: I feel great!!
Love you all!
Miss S
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My positives for the week start last weekend when we had our Florida Get together. It was wonderful to finally meet the women I have been visiting with for the past 2 years! My second positive is that I made it through a week of practicums for my teaching certifications! Sometimes I think I'm a nut...stage 4 mets and I am back in college starting a new career! oh well! That's what life is all about!
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Lori that's amazing. You go girl and get that new career off to a flying start. We are hoping to have a get-together in NYC in May with some of the Oct and Jan ladies - I can't wait even though I will be coming from the UK
I'm so glad you enjoyed yours.
Good to see you posting again Jule. Definitely feeling better then!
My positive is that I attended a close friend's 60th birthday bash and everyone told me how well I looked. And instead of my feeling like something the dog left behind, I really did feel great! I have lost a few pounds, against all advice about dieting - I just eat salads now or very light bites, and sometimes a little treat! - and bought a new outfit. It was a bit lower than I would wear since mast but my new bra with its own lacy camisole trim gave me a pretty appearance and the confidence to forget about the low neckline. I felt like a million dollars!
Big hugs everyone
Valerie S
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By the way - has anyone heard how Lori Cordini is doing?
Hope she is okay
Valerie S
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Valerie,
I live within 30 miles of Lori and I have sent her several PM to try and set up a meeting but she has not replied to any of my messages. I just sent her another message, maybe I will hear something. I will let all know if anything comes about.
Sheila
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Hey ladies "ITS FRIDAY!!!!!"
I havent read back to see where everyone is at because Im at work this morning and its a little busy but I will read about all of you as the day goes on and try to post a little to each of you....
My positives for the week?
1) got test results back from the goop they removed from my "good" breast and they were good....no malignancy found are wonderful words to hear!!!!!
2) Sons ankle surgery went well and he isnt driving me nuts yet!!!!!
3) tomarrow is opening deer season here and my nephew and I will be hunting together and spending some much needed time together....I feel bad that I havent had time for him this past month or so
....
4) just being plain happy today and hoping that it continues
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Hoping this find you all well and having very positive days too!!!!
Hugs
Jule
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Well here is is Friday again!!!
My positives?
My husband called me at 6:30 this morning to sing me the worst version of Happy birthday I have ever heard! My son called me at 11:00 to wish me a happy birthday (without singing).
Our next meeting of the Arm - N - Arm support group will be held in our new house !!! We lost our old space in March and have been waiting patiently since then to move into the new house. The house had been empty for at least 15 years and needed alot of repairs. It is not quite ready to open to the public but we are meeting there Monday.
Hope all have had a positive week and look forward to a positive weekend.
Sheila
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I have decided to tell you ladies what I did yesterday.....its a positive but I feel strange about it and not really sure about my feelings.
I went to the post office to ship something for work yesterday...Obviously with all the pink and hype going on Im more than aware of what month it is....heck I was originally dx'd this time last year.....
Anyway, the post office has stamps and such and are donating a portion of the money to BC....the postal worker asked if I would like to but the stamps, of course I said yes and made the purchase....she then hands me this bright pink paper with the bc logo on it and asks me to write my office information so that everyone donating will be posted....so I did.....
This next step is the part Im having a little trouble with.....they also had the pink papers for survivors and ones to remember someone....she made a comment to the effect that Im too young to be a survivor so maybe I would like to remember someone....I didnt have an issue with her comment as I kept my situation very quiet and limited to only those that needed to know....she had NO way of knowing and if she had the comment would not have been made....the comment didnt hurt my feelings....
What did??? thats the part I dont understand myself....I told her that "No, Im not too young and that I am almost at my 1yr mark." She asked me to put my name on the survivor one...I hesitantly did and she posted it on the wall....this made me very emotional as Ive never really been in those shoes before....I AM a survivor!!!!!!!Why did this hit me so emotionally???
Today I got a call from an organization locally that is having a fund raising banquet and all proceeds go to BC....they have asked me to be a guest speaker....I dont know if I can do it.
But I do believe this is all a very good positive for me....because now others know (not sure how I feel about that yet), and there is potential for me to help other local woman if I can make myself do this talk....I believe that this situation will force me to face something that I probably havent faced involving my bc dx....
Have any of you ladies done a talk like this? Im not very good in a group of people like that and I dont know if I can do a talk like this without crying.....Im actually thinking of saying no and maybe try next year...
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Have any of you ladies done a talk like this? Im not very good in a group of people like that and I dont know if I can do a talk like this without crying.....
Its okay to cry!
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October 7 I read a poem to the church about what the pink ribbon means and I choked up several times and wiped a few tears. When you cry, They know that it really means something to you. Several people at church keep tissues close at hand because we allow the tears to flow. (I'm one of them, keep tissues in the choir area and on the bench where I set.)
Sheila
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Hi again:
What does the pink ribbon mean Sheila? I have never known.
Lori... great to start a new career...I started grad school a few weeks post rads...has kept my mind off bc stuff.
Positives:
****** no complications and am healed from ooph and hyster on Sept. 13
****** have been bedridden for a couple days with dreadful cold but have been up for an hour or so now and not too bad
****** have Nov. 14 scheduled for nipples!!!!
****** I believe blood pressure has improved since meds
Take care
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the pink ribbon was started to represent breast cancer but this poem says it better than I can. I saw this poem on this site a couple of months ago but I cannot remember who posted it first.
Pink Ribbons: The Ties That Bind By Beth Thompson
I never realized the strength a tiny bit of ribbon can impart until I pinned a twist of pink above my heart to symbolize survival; until I saw acquaintances and friends and loved ones wear the same, in my name, to show their strong support. It's so hard to reclaim your life once the crisis ends. You're never sure it's really over. So courage begins with the pinning on of symbols in the face of lasting fears.
Once the illness touches you, you know you can't depend on cures to last forever, so you wear pink to show the world, and show yourself, you're still there, and you intend to stay. Courage is persisting in the face of fear, not waiting until it disappears to soldier on.
A pink ribbon twist to symbolize endurance with a bit of flair - you're still there!
We've always decorated life with ribbons; pink or blue to celebrate the newborn gift of life, and later, bows for gifts to mark each birthday celebration. Christmas bows on boxes or wreaths, and loops of ribbon delicate as orchids for a first corsage or for an anniversary, counting many loving years.
Ribbons range from small reminding bows tied on fingers to giant rosettes of blue and gold to signify a prize-winning day. We hold together memories of life with ribbon ties.
But ribbons took on a deeper meaning as colors came to symbolize a cause. Those yellow ribbons tied on trees were hope and wishes for a loved one coming home. Ribbons pinned on uniforms, reminders of bravery long after wars have ended: deliberately colorful as if to triumph over conflict, over pain.
We wear what we want to say, our pledge, what we want others to remember and respect. So my small twist of pink becomes the symbol of a victory in my own small, terrifying war and helps me seek each day the courage to carry on. It tells the feelings I can't always speak aloud, from a heart grown strong, a thousand hearts grown strong, despite the delicate shade of pink ...
The courage to believe,
The courage to heal,
The courage to carry on.
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Sheila, that is a really inspirational piece. I know it was pink because it was usually ladies who got this disease, of course now we know men do as well.
Jule, this has been another hurdle that you have taken in your stride. Whilst you keep things close to your heart you have found the difficulty in facing this bc fact because it is on a board for all to see and this hits home. What you are feeling is perfectly normal, not nice but normal. But seeing it in this way should make you feel strong - you have been on this awful journey and you have come through. That's what this thread is all about - being and staying positive. As for speaking - you can do it and you'll do it beautifully even if you do cry. I'm sure there will be others who will cry too, but sometimes crying is healing, the tears are washing the grief of having this illness away.
You start with "I was diagnosed with breast cancer on ..... and.." and then you describe your journey, and you end on the hope that you have instilled into me and others on this journey, and of the joy of having survived. You will be inspirational, and as you say, it is a chance to help others. You do that already on these boards, so this is just another way to do it. Way to go, Jule
I suppose this is a way to become the rose and not just smell the roses
Love and hugs everyone.
Valerie S
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Hi Everyone-its Friday!!!!!!!-I have a positive
......
My daughter has been with her significant other for 6 yrs now....He decided to change careers and go from being a farmer to working in criminal justice (had college under him already)...yesterday my daughter called and said that he got the Maximum Security job he was after at the Washington State Correctional facility here.....HUGE pay and benefit difference!!!!!!
The next thing she informed me is: they are getting married Nov. 24th!!!!!! Im so happy for them....kind of weepy about it too, Ive never been the "mother of the bride" before.......
As time goes by, which Im certain it will quickly and Nov 24th draws near Im just as certain that i will be here asking advice from you who have done the wedding thing before.....any and all ideas are welcome!!!!!!
Its been a busy week at work and home alike as our weather has changed almost over night from summer to fall....leaves dropping like crazy, cool at night so need to make time to get everything ready for winter......
Will check back for your positives later this evening.....
Hope all is well with everyone!!!!!!
Hugs
Jule
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Hi everyone,
congrats Jule on being the 'mother of the Bride'. I was mother of the groom in December 2004. I also have helped my sister make and dress a few wedding parties over the years. It is best to start a list of what to do and when and get a wedding director to oversee the actual progression of the big day. We have several ladies at our church who are great at organizing the wedding ceremony and getting the people at the right spot at the right time.
Our weather is also changing, Tuesday it was high of 85 tomorrow high of 75. We are still praying for rain. They said it would rain today but most of it is going South and East from me.
Tomorrow is the local Race for the Cure and I have 15 people registered as Friends of Survivors Team members and they say the weather will be cool with no rain.
My husband will be home before 5:00 pm tonight!
Sheila
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Congrats, Jule on such happy news. Keep a good thought to what happens as I shall be doing some brain picking for next August
big hug
Valerie S
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