Starting Chemo in September?? where are you ladies

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  • Methusala
    Methusala Member Posts: 285
    edited September 2007

    I'm going to rain on someoens's parade I'm sure but I am sick as a dog.  Th. was OK, til TH night, it hit, and it hit hard.  This is the first I've been on and 48 hours of no laptop is ALLOT for me.  I am in so much pain all over, nausea, and dizzy, ugh.  All I do is sleep.  and cry.  and sleep.  It's 9:18, hubby went to  a football game, he's been wonderful, I got my 5 year old to sleep, and my 16 year old is, well, doing whatever.  WHEN DOES THIS END?  I won't do another single does if this is only going to get worse.  please make it go away. pleeeeeeeeeeease.  I had two shots, too.  One the day of, TH, and I had to go back Fri. for another, and sit for an hour.  I think it's Sat. but I"m not sure.  Sojmeone tell me it's going to get easier or I'll die now.

  • mariettaj
    mariettaj Member Posts: 179
    edited September 2007

    Hi guys!

    Methusala, I promise it will get better. I know where you are right now, I was there my first chemo. My second chemo is this Wed and my onc assures me that it will be better. The first one is the learning curve...Sorry you are so miserable.

    Welcome trigeek! Are you a triathlete? Which ones do you do? I've done two here in Santa Barbara, had to skip it this summer...

    MaryJo you sound fantastic! Glad you're feeling good.

    Marietta 

  • mariettaj
    mariettaj Member Posts: 179
    edited September 2007

    Oh my gosh, I forgot to mention...I got my hair buzzed off last night!! It is so weird. The hair on my legs is almost all gone as well.

    My scalp hurts alot, I wonder when the pain will go away. Does all the hair have to fall out for it to stop itching and hurting?

    Marietta 

  • SusanB12
    SusanB12 Member Posts: 54
    edited September 2007

    Hello,

    I had my first neo adjuvant chemo Friday Sept 7th and am due to go back for a second tx Friday Sept 28th.  I was diagnosed with ILC and because of the tumor size at 6cm they recommended chemo first, then surgery, then radiation, and probably then more chemo. Anyone else having neo adjuvant chemo? They are giving me three drugs, Cytoxan, Epirubicin, and 5-Fluorouracil.  I had no idea what to expect. I took Emend, Zofran, and dexamethasone.  I thought I was pretty well hydrated but the night of my chemo it was like all of a sudden I had a really terrible hangover and the nausea began.  The nausea lasted for 4 or 5 days or so along with fatigue for about a week and horrible constipation.  I also have a few sores in my mouth.  If there's a side effect I'll get it.  My hair started thinning on Friday 14 days out, so I got it cut shorter but not buzzed or shaved. Now everytime I touch my head a few hairs come with it.  The back of my scalp is aching.  Have been back and forth with the nurse a few times but waiting until Friday to see if there's anything more they can do to help with the side effects or I'm just gonna have to tough it out. 

    Susan

  • Methusala
    Methusala Member Posts: 285
    edited September 2007

    ladies,

    I hope more people will help me.. I'm so sorry to wine, but my Lord am I sick.  I can't handle it.  I've had a headache for so long now.  Do the treatments get easier or worse??  Should I call them tomorrow and tell them I haven't eaten since Th and according to my scale I've lost 6 pounds in less than 4 days??  What would happen if I quit chemo?? 

  • delachaum
    delachaum Member Posts: 7
    edited September 2007

    Hi Everyone,

    I haven't been online in a while, typical for me.  The first week seemed to be a week of learning what to do for each new thing that came up.  Fortunately, my doc was very helpful with drugs when needed.  The second week has been really not bad at all except for being tired.  Saw the doc after one week and he said I should expect each chemo dose to affect me pretty much the same as the first week.  At least now I know what to expect and how to combat it. 

    Monday I get my second dose and I'm pretty sure my hair will soon be a thing of the past.  I have head sores and it's coming out in handfuls (10 hairs or so).  I know this doesn't seem like much hair coming out, but it's still disheartening knowing it's inevitable.  I don't plan to use a wig, it's just not me (she says while she still has hair!).

    Sorry to hear about Paxton and Marietta going to the hospital.  Hope you are both OK now. 

    I've been thinking of ways to cuten up the little hats that the chemo center gives away (some wonderful people make and donate them).  I think they need something to give them some height and am thinking about adding flowers or ribbons to the top for that effect.  Will let you all know how this works and also if I get lots of laughs at their look.

    A little about me:  I live in Wisconsin, retired at 62, now 63.  We sold our home in 2004, and are living in an apartment.  This spring we started building our new home up north and hope to have it completed next summer.  I was up there most of the summer before I had to return to the Milwaukee area for chemo.  I am very thankful that God has shown his love and direction in so many ways along this journey - I couldn't have gotten this far without Him. 

    Sharon 

  • delachaum
    delachaum Member Posts: 7
    edited September 2007

    Hi Methusala,

    Sorry to hear about the headaches.  I'm a person who gets migraines, so have some experience.  At first sign of a headache try Excedrin for Migraines, if that doesn't work, you need the hard stuff like Zomig or Imitrix (both Rx).  Another wonderful help is "Head-On".  I've been using it for the sinus problems I have with chemo - it works great!  It comes in either a migraine type med, or sinus type med.  You just apply it to your forehead and it does give relief.

    Definitely call your doc about these side effects - they have lots of different options to help make you feel better.

    Good luck and I hope you get relief soon.

    Sharon 

  • paxton
    paxton Member Posts: 577
    edited September 2007

    Gosh, a lot to catch up on since I left.  My trip was AWESOME.  I survived the 7 hour drive.  We settled into a little shack at a bear wcamp.  It had a bed and heater so I was thrilled (my bf wanted the camping experience-told him he could go right ahead and set the tent up and I'd be in the shack).  The trees are changing so the scenery was absolutely amazing.  A local drove us all around to get us familiar with the roads so we could scout.  I was impressed how well I did.  I put in full days scouting; even did some hiking into the deep parts looking for moose signs.  I stayed with the vehicle one morning while they walked because I woke up with a bit of a cold or something and didn't want to get sick.  Anyway, I had a great time. 

    I have my 2nd tx tomorrow which I'm not looking forward to.  I, like methusala, was quite ill for about 6 days.  I'm hoping this time it will be more like 4 if I stay away from certain foods that I think caused the horrible diarrhea. 

    I hope you start to feel better, methusala.  I remember thinking if the whole 2 weeks was going to be so bad, I didn't know how I'd cope.  But this whole 2nd week I've felt good so I can get through this.  It sux though. 

    My head is starting to get tender and the hairs are coming out a bit so in the few days it will be buzz day.  I have a wig, a hair fall that goes under hats to look like hair without wearing the full wig, scarves, hats, and turbans.  I'm just worried about my poor bald head when I go back up to hunt.  I thought maybe I'd wear bandanas under whatever winter hats I wear and then I can change them periodically when they're damp. 

    My bf is going back up this Friday.  I'll wait to see how I feel, but I'm going to wait until I'm over the crappie stuff and the day or two after where I couldn't walk upstairs without sitting down.  After that I perked up quick so I'm gonna wait until that time so I don't get sick. 

    I talk to the onc tomorrow to see if I can go 3 weeks between this next tx so I can hunt the full season (oct 14th).  It'd be nice to feel better for an extra week, too.  And if we get a moose early, I can always go duck hunting. 

    Well, I'm blabbering on.  I can't help it cuz its been 4 days.  Anyway, welcome to the new people.  Hope I haven't confused you (I'm sure if you were bored by this point, you've stopped reading anyway:) And I hope everyone's doing their best.  I got my first two letters from my chemo angels. 

    In case u dont' know about chemo angels, go to their website which is probably www.chemoangels.com though I'm not sure.  You sign up and they assign you two people to write and send things while you're having chemo to brighten up your day.  Its kinda cool. 

    K, I'm done for sure now :)

  • bluewillow
    bluewillow Member Posts: 779
    edited September 2007

    Hey Paxton,

    I was just thinking about you and hoping to find you here tonite-- so glad you had a great time!!!  I think you were wise to take it a bit easy, especially with the accommodations and not over-doing things.  I'm so happy you had fun and were able to enjoy your trip!! I got excited just reading about your adventure!  I know the trees were just gorgeous and I'm sure that fresh air did you a world of good!  I hope you keep feeling well and the best of luck to you tomorrow!!!  I think I may be in my ground blind soon if I keep feeling this good.  I truly don't mean to boast about how good I have felt, because goodness knows everything could change in the next minute, but hopefully my nurse was right about the rest of the tx's being about the same, just as Sharon's doctor told her.  

    And hello to you other nice ladies---

    Sharon, best of luck to you on your next tx.  God has sure helped me through this too.  Glad you've had a decent time with it all and do let us know what you come up with for the hats!  I think my hair is about to leave me too and I don't plan on using a wig-- just scarves and caps.  As you have probably figured out, I am a lady hunter and I must have at least 50 caps and hats, but they're mostly camo-- might not work at the office though!   

    Marietta, I hope you're still feeling good and good luck on Wednesday!  

    Methusala, I'm hoping and praying that you get some fast relief soon.  I'm so sorry you've been so sick, but please hang in there.  Please do call your doctor, but no, you cannot quit chemo-- gotta keep blasting those mean cells out of there Wink 

    And Susan, I hope you feel better soon too and take care of yourself.

    Good luck to everyone on the new week ahead!  We're getting there and will have all this behind us before we know it!

    Hugs and best wishes,

    Mary Jo

  • paxton
    paxton Member Posts: 577
    edited September 2007

    Tx was a breeze today.  I brought my laptop and worked on organizing the pictures I took up north.  I'm going to make a slide show with music when the trip is over and burn it on dvd.  It gives me something to do and I enjoy it.  I did that with our trapping pictures from last year and it was pretty cool to watch.  I haven't figured out all the features yet and might invest in a better program that lets you edit footage. 

    Other than that, I sat and chatted with an older man who has to sit for 5 hours for his tx.  This is like his 4th time getting cancer. 

    I haven't been approved for the program to get that Emend paid for so this time I have to go without.  I was able to use a one time voucher last time.  They should know by the middle of this week whether I'm qualified, which I should be.  We did the full dose of decadron this time and I do feel kind of shaky but so far I can deal with it.  We switched from Zofran to Kytril also just in case that had something to do with the diarrhea.  But insurance only covers 2 days at a time, if that isn't the stupidest thing you've ever heard of.  And then I can use more decadron, campazine and ativan.  I'm going to drink a lot and eat bland foods and hope that I don't get as sick this time.  It's only been 2 hours and I feel good but it was about 4 hours after last time when I started to feel yucky. 

    Oh, my onc said absolutey not on the waiting 3 weeks instead of the scheduled 2 weeks so I get to hunt one week.  I can live with that.  I had a wonderful trip scouting and I'm happy just about that.  So whatever.

    Hang in there everybody. 

    Here's a quote that's got me through some tough times before.  Its from the movie The Castaway.

    "I know what I have to do now. I gotta keep breathing. Because tomorrow.. the sun will rise. Who knows what the tide could bring?"

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  • Methusala
    Methusala Member Posts: 285
    edited September 2007

    so how do we know which side effect is from which drug?  I did call today, they are supposed to call in or have delivered something that starts with a Z.

    I can't get this crappy taste out of my mouth.  It's like eating starch or something.  Thank God my headache is gone, but I could have slept ALL darn day and my brain will not work right.  I ate a banana today! This morning, I even attempted an egg, but hubby did his best. lol  it was just too cold to eat, and too salty.  The toast had lumps of something in the middle.  At least he tried. sigh.  I guess this is turning into my person bitch thread.  sorry I'm not more supportive to anyone.  I don't want to do this anymore.  not one more day. 

  • bluewillow
    bluewillow Member Posts: 779
    edited September 2007

    Hi Paxton,

    What a great photo!  You look like you're truly in a little spot of heaven out there in the woods!  Did you all see a lot of moose sign? I'm glad your dr. didn't budge about your tx schedule-- that way you can enjoy your hunt and know you are getting the proper tx as prescribed, even if it does mean cutting your hunt short a bit.  And how neat that you could organize your photos.  Maybe you can post more here soon! I hope you are still feeling ok after your tx and will do great this time.  Did your dr/nurse tell you could take Ativan at any time?  Mine did, and told me that although it is normally an anti-anxiety drug, Ativan also works extremely well for the nausea, and I've been taking it pretty regular.  Maybe that's kept me from being nauseated, so hopefully it will work for you, and at least it's cheap compared to the Zofran and others.

    I am still feeling good, except the bone pain has started in, at precisely 5:30 this afternoon on the drive home.  It really scared me at first and I'm thinking oh no the "c" has spread to my bones, then I remembered the nurse telling me about the bone pain from the Neulasta.  It is weird-- it jumps around from my knee to my upper leg and to my arms and all around, but the pains are brief and not too bad.  I have taken Tylenol and hopefully it will help soon.  Other than that, no other s.e.'s yet.  I haven't remembered to drink a lot today, so I'd better catch up on that before bedtime (so I can get up and down to the potty all night Embarassed)

    Take care and have a great evening.  Let us know how you are doing tomorrow!

    Mary Jo

  • Gillkath
    Gillkath Member Posts: 149
    edited September 2007

    Hi all,

    I had my first treatment of taxotere/cytoxan on September 6, and am facing my second tx on Thursday, September 27.  The first time I did pretty well with the transfusion but, on Sunday and Monday, I felt really lousy.  I had aches everywhere and bone pain (probably part of it was due to the Neulasta shot).  I did also get tingling in my hands and feet for a few days.  Now, I have swelling in my hands and feet and my onc has put me on a dieuretic (sp?).  Last Thursday, I noticed that my arm hair was missing ..... now the hair on my head is rapidly disappearing.  I had gotten my hair cut really, really short so it is not as shocking that my hair is going away.  Recently, at my daughter's soccer game, I could totally picture all of my hair blowing off in the wind -- very much like a dandelion that has gone to seed with its seed pods blowing in the wind!  My brain goes into these silly thoughts since the chemo -- it was still funny to picture this.  I wore a wig for the first time to work today and I could barely get through the day because it itched so badly.  I'm not sure what I'll do to get through these next few months -- I don't know if I can tolerate the wig!  I guess you never know how you are going to handle the baldness --

    I wish you all well.

    Laurie

  • bluewillow
    bluewillow Member Posts: 779
    edited September 2007

    Hi Laurie,

    I wish you the best for your next tx and I hope your side effects are very minimal.  And thanks for your dandelion story-- that's funny!  My 2nd tx is next Monday and I've been wondering if my hair will just all of a sudden fall out on my desk and into the floor at work.  I work with a bunch of guys and they would get a kick out of that, for sure!  I've already told them it's ok if they laugh at me...  I haven't cut mine short-- I'll probably regret not being wise like you.  My hubby is going to buzz mine when it really starts coming out.  I've decided against a wig but I have ordered some really cute scarves from a place called CJ Hats, and they are sewn by a lady who is a BC survivor-- really good quality stuff.  If you need the link to the website, email me, since I'm not sure if we can put links here.  I'd sure hate to do something to get kicked off this great board!

    Take care and be well,

    Mary Jo

  • trigeek
    trigeek Member Posts: 916
    edited September 2007

    Hey Marietta,

    Yip I am a triathlete and actually I did the Big Kahuna tri up in Santa Cruz 2 years ago ( was in SF for business and was able to squeeze that one in lol) it was awesome !

    The last one I did was   Ironman Austria 3 weeks before my dx what a shocker !

    Guess no more long distance tri's for me, don't want to stress the body that much anymore since we are all in an ultra endurance event called bc anyways Frown 

  • Negative3Grade3
    Negative3Grade3 Member Posts: 111
    edited September 2007

    I am in the same boat myself. The odd one out to do neoadjuvant (triple negative, grade 3, 1.7 cm tumor) but I'm content with my decision and I'm glad to hear that there are some of us out there who decided to do something different since the studies out there can only report major trends but they will never offers us qualtitative evidence about how we will respond or not to the treatment we decided to go with.

  • Gillkath
    Gillkath Member Posts: 149
    edited September 2007

    Hi Mary Jo,

    I have visited that website for CJ hats.  I ordered some hats from Sparklecaps and I will be ordering some items from the hatandhair website.  If you want these websites, let me know.  The hats and hair product is very cool.  A group of my friends got together and opened a bank account for me to buy wigs, scarves, etc. -- I have had such great support from everyone.

    What chemo regimen are you doing?  With TC, I was told that I would lose my hair around day 17 -- that is almost exactly when my hair started falling out.  I think I am going to have my husband shave off the rest of it this evening.  You know, your scalp hurts a little bit when your hair is falling out.

    Good luck to all of you.

    Laurie

  • mariettaj
    mariettaj Member Posts: 179
    edited September 2007

    hi all!

    Does anyone know when the scalp stops hurting? I have it  buzzed down really short now, but I still have that wierd "pony tail in too long" feeling. Last night sleeping was so uncomfortable. Maybe once It's totally gone...my wig was pretty itchy yesterday. A mom at my son's school was saying "wow, what a great haircut!"...I just had to laugh. I have to say, this wig really looks like my old hair.

    I just want to say hi to everyone. I was glad to see Sharon back on the board. Paxton, glad you had a great hunt. Mary Jo you sound wonderful as ever.  Methusala I hope you're feeling better.

    Trigeek, wow you're an iron man...I'm impressed, I barely get through a sprint!

    You guys I have my next tx tomorrow and I am so nervous. I really hope things go better this time. Anybody retaining ridiculous amounts of water?

    I spoke to the Onc nurse yesterday and she said they are putting a really strong anti-nausea med in my IV tomorrow. I will start the Emend as well. I can't believe how much we paid for that...$233 for 3 pills. I think it's criminal.

    Have a great day all!

    Marietta 

  • mariettaj
    mariettaj Member Posts: 179
    edited September 2007

    Hi again!

    I just found the website for CJ hats. Very nice, I ordered 2. She mentions that it's helping her dig out of debt from medical bills, so I felt good supporting that. Thanks for the tip!

    Marietta 

  • bluewillow
    bluewillow Member Posts: 779
    edited September 2007

    Hi Laurie,

    How wonderful of your friends to open up the account for you!  I am sure that has really helped out with the expense-- I think I've already sunk over $100 in scarves, along with scarf fabric and patterns that I think I'm going to sew for myself.  I'd love to have the websites if you don't mind PMing me-- thanks!

    I am doing 4 DD Adriamycin/Cytoxan, then start Taxol on Nov. 12 and the Herceptin for one year.  As of this morning, I still have my hair, but it is just so flat and kinda oily feeling, even though I wash it every single day... yesterday my forehead twitched and made me wonder if something is about to happen...  I'm wondering if my hair will start to grow back when I start the Taxol or will I have to get thru that before regrowth?  Here I am worrying already and it's not even gone yet Wink

  • bluewillow
    bluewillow Member Posts: 779
    edited September 2007

    Hi Marietta,

    Glad you found the CJHats website.  She ships very, very fast too. Which ones did you order? I got the Halloween one and the Autumn leaves one a few weeks ago, then just ordered a couple of the Batik hippie-looking ones the other day... they still fit right in with my fashion mode at age 51 Laughing  I have several pairs of interesting artsy looking gemstone earrings that I'm trying to coordinate with my headwear-- hope it all works.  At least you know your wig looks great by the other mom's comment!  Best of luck tomorrow-- I'll be thinking about you and hoping it goes better and better with each passing tx!  We will get through this!! 

    I'm still feeling great but I'm home from work today resting and waiting on a call from the cancer center-- aside from the Neulasta pain, which has eased off a lot since last night, I have this weird stabbing, prickly pain in my right breast near my nipple and the area where I had my first drain 07/28.  Don't know if it would still be related to my lumpectomy and all that or not after all this time, but it's got me scared and thinking "more cancer"!  Gee, I did say that we will get through this, right?  Undecided

    And I agree with you about the costs being criminal.  I can't believe my Neulasta shots are $6400 a piece!!!  Thank goodness for my great insurance plan.  Somebody is getting a nice beach house and new Jaguar out of all this.

    Have a great day and take care!

    Mary Jo

  • paxton
    paxton Member Posts: 577
    edited September 2007

    I still feel pretty good.  Its been 22 hours since tx.  I didn't get the emend but the full dose of steroid must have made a difference or something.  I've been taking ativan because the steroid does make me my heart pound and I'm jittery, and it helps with nausea by itself.  I'm just so thrilled its still going well.  I could pull chunks out in the shower today so tonight or tomorrow will be shave day. 

    I get sharp pains around my lumpectomy scar.  The radiologist told me to expect that.  I had some joint pain and body aches for a few days, too.  Ill get the neulasta shot today.  I didn't get bone pain last time, but my skin turned red and it felt tender for a few days.  It was tolerable.

    I haven't worn a wig yet, but I'd say make sure to wear a nylon cap or some protecting cap under it.  Maybe that would help with the discomfort.  I also bought what's called a "fall."  You can either get ones that velcro into a hat or they come sewn onto a ring that fits on your head.  It basically lets hair stick out the side of your hat, scarf, or turban.  Might not be so itchy. 

    Well, talk to EB later..... 

  • nanc512
    nanc512 Member Posts: 98
    edited September 2007

    My first chemo is Thursday and I am getting anxious.  I have been making my list to go shopping tomorrow.  I am doing 4 AC treatments every two weeks, followed by 4 Taxotere treatments every two weeks.

    I have my wig, ordered a few caps and scarves.  I work at home, so I can wear the same thing and not worry about it.  I am hoping to continue to work since I can rest and spread my work throughout the day.  I am wondering if the doctors' theory that any side effects we have with the first treatment will kind of predict the following treatments.

    I see the nurse practitioner for my chemo Thursday and I have a list of questions for her.  I get sinus headaches frequently this time of year, so I need to find out what I can take.  I am packing my chemo bag with a book, crackers, water and some ribbon headbands to work on while I am there.  The nurse said to count on two hours.  Then I go back the next day for the Neulesta shot.  My elderly mom is worried that I should have someone go with me, she doesn't drive. 

    I decided that books and tv shows don't depict chemo the way it is in real life.  People keep telling me attitude is a huge portion of the recover process.  I am confident I will beat this and am going to do my best to minimize the side effects!

    God bless all of you, He has blessed me.

    Nancy 

  • mariettaj
    mariettaj Member Posts: 179
    edited September 2007

    Mary Jo, I ordered a black ez chemo cap and a brown pillbox hat. I thought they both looked soft and comfy. I saw the halloween scarf, cute! I thought about that one but I had already ordered a do-rag off of ebay, it's black with red flames! My 7 year old son really got a kick out of it. I bought one of those falls Paxton mentioned. It looks great with a baseball cap. I thought it might be good to wear to the gym or with scarves.

    Wow I didn't know the neulasta was so expensive, no wonder I haven't had one yet...:)

    Nancy I want to wish you good luck on Thursday. I agree that tv shows don't depict chemo in a real life way. I love this new show on Lifetime called "side order of life", one of the characters is going through chemo and I kind of feel like they minimize it. Oh well, maybe they don't want to scare anyone :)

    I just rubbed baby oil over my head and it feels so much better...

    More later, 

    Marietta 

  • bluewillow
    bluewillow Member Posts: 779
    edited September 2007

    Good evening all,

    Paxton, I'm glad to hear you're still feeling good-- hope it keeps up.  The steroids made my heart pound too-- a yukky feeling and the Ativan sure helped. 

    Nancy, sounds like you're well prepared for your first tx and I hope it goes very well for you.  Our moms worry about us no matter what age we are, don't they?  I could have driven home after my tx, but my hubby insisted on being there.  And yes, attitude is a huge important part in this.

    Marietta, I hope you like your hats.  Let me know how they are-- I am considering the ez chemo hat too.  And I'm sure your son thinks you rock in that doo rag!  Fun headwear has got to make this thing easier for us!  And thanks for the baby oil tip-- hadn't thought of that.

    The bone pain is a bit easier tonight.  I didn't realize it would start several days after the shot though-- is that everyone's experience?  I thought it set in right after the injection.

    Have a good nite, everybody!

    Mary Jo

  • trigeek
    trigeek Member Posts: 916
    edited September 2007

    Hey Nancy,

    I am also starting on Thursday and have 4 AC followed by 4 Taxol.. you are my chemo twin .. yey !!!

    I also work from home but am trying to delay that as much as possible lol ..

    Lets touch base Thursday evening and share war stories

    Cool

  • janiceb00
    janiceb00 Member Posts: 30
    edited September 2007

    Hi all

    Just got my first chemo on the 19th...I'm not sick or tired yet. I don't know if that is a good thing or bad? Is this stuff working? How do you know? Will I get tired or sick? Wake up every morning wondering is this the day I am going to feel the effects.

    Anybody else feeling normal after treatments? 

  • mariettaj
    mariettaj Member Posts: 179
    edited September 2007

    Wow Janice, what meds are you taking? Treatment, anti-nausea...

    That is so awesome!

    Marietta 

  • paxton
    paxton Member Posts: 577
    edited September 2007

    nancy and trigeek: good luck with your 1st tx's.  I took an antianxiety med before I went the first time, but I had my 2nd tx and didn't use one because its really not that bad.  Its more how your body reacts later with side effects. 

    I started feeling sick during the night.  I took some steroids and ativan which seems to curbe it some.  My stomach is also acting up some so I'm on alert; will go to clear liquid diet if it turns to diarrhea like that time and get it before it gets out of control.  Not too bad for day 3 I guess.  My goals for the day are to drink a lot and be up and about as I tolerated. 

    Janice: I read somewhere some people don't have any side effects and ask if the chemo is working.  My guess is yes and I'd say you're lucky as hell. 

    Methusala, on the other hand, has had a tough row to how and doesn't want to go back for the next tx.  We're thinking about you methusala and hoping you get relief.  PLEASE come on if you need support from us even if its to complain or whatever else sometimes comes up when we're in great distress.   Attitude is huge in this battle, but sometimes we beat ourselves up or judge others who are having a bad go of it.  Chronic pain is serious and it takes so much out of person.  And there's well meaning people who want to push you to do more or try to make you deny how you really feel in hopes you'll pop right back to normal. 

    Wherever you are is where you're at.  And that is ok.  Blessing to you all ladies.  May we find health and happiness through our journeys. 

  • bluewillow
    bluewillow Member Posts: 779
    edited September 2007

    Hey Janice,

    I am one of the lucky ones who have had very little side effects-- except for some bone pain yesterday, which is mysteriously but thankfully gone today-- and I too wonder if the medicine is even working for me!  And when I speak about my almost not-there SE's, I am not bragging one bit because who knows, the next tx may just knock me flat on my fanny!  I feel for those who have had a rough time, like Methusala, and hope it will get better very soon.  After I finish the A/C doses, I also do Taxol, and that may be the one thing that gets me.  I think Paxton said it all very well when she said no one should beat themselves up at all for feeling bad- this is some strong nuking meds we're getting!  Take care and good luck!

    Mary Jo 

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