June 2007 Chemo

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  • whatalife
    whatalife Member Posts: 24
    edited September 2007

    Terry - My peach fuzz is still growing.  What is funny is that it is filling in as well and also sticking straight up.  However, not anywhere near going commando on my head.  Although, the fuzz is growing on the top of my hair and not so much on the sides of my head!

    Kathleen - I believe that you cannot dose Neulasta every week as it has not been approved to be dosed daily.  "The recommended dosage of Neulasta® is a single subcutaneous injection of 6 mg administered once per chemotherapy cycle. Neulasta® should not be administered in the period between 14 days before and 24 hours after administration of cytotoxic chemotherapy (see PRECAUTIONS)." I got that information from: http://www.rxlist.com/cgi/generic/neulasta_ids.htm

    Take care,

    Denise

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  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited September 2007

    I'm so jealous of those of you who have hair, lol. I have no new hair at this point, but I never lost all of mine. I still have eyebrows and eyelashes, some hair on my arms, some facial fuzz. But I want my hair back on my head, lol. Oh well.



    One more taxol to go on the 24th, I'm so glad that a few of us have finished, and more of us will finish next week.



    Sorry I haven't posted much. I had to take a break from breast cancer. But I think of all of you all the time and always keep you in my prayers. I wish some day we could all get together and really meet each other, and have one GREAT BIG group hug :)



    Blessings,



    Gracie



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  • garnetann
    garnetann Member Posts: 158
    edited September 2007

    Bonnie, I started the l-glutamine a couple days after my first taxol shot because I did not get it until then. But I thought you just took for like 5 days or so, 1 day before taxol, then for 4 more days.  I have not tried the b6.

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  • TerryNY
    TerryNY Member Posts: 603
    edited September 2007

    Whoa, what about us ladies who are doing the dose dense chemo and having the neulasta every two weeks?   Mine definitely falls within the 14 day period.    Am I misunderstanding? 

    Hi, Gracie!   Isn't that light at the end of the tunnel SO bright?   I never lost my leg and arm hair or my eyebrows and eyelashes.  Just on my head, under the pits and ah, er..ahem....*there.   

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  • garnetann
    garnetann Member Posts: 158
    edited September 2007

    I think that is why they want the neulasta shot exactly 24 hours following your chemo, to fit in that window where it is 24 hours after treatment, but 14 days before the next one.  Actually, I think it really ends up being 13 days between treatments, but I suppose they have taken that into consideration. It has to do with not getting the shot when the white cells are at a certain point in the reproduction cycle. 

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  • TerryNY
    TerryNY Member Posts: 603
    edited September 2007

    My onc insists on giving it 48 hours after.  I've heard it can be given 24-72 hours but surely that would be for those on the three week cycle?? 

    At any rate, I've not had problems...knocking wood. 

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  • kath11
    kath11 Member Posts: 102
    edited September 2007

    Hi Everyone,

    Denise and Dawn, thank you for the info on the ANC.  I had forgotten about the chemocare website.  What great information they have! 

    My mom has offerred to pay for the shots upfront if they don't get authorized by Thursday.  I know they are really expensive, so we are researching that right now.   Of course I don't want treatment delayed, but I could deal with it if I had to, but if it does get delayed it means I can't take my trip to Italy to see my daughter.  I am really looking forward to it so I sure hope it works out.

    My eyebrows are crazy right now.  I've lost most of them, but what are left are long and wirey, but I don't dare pluck them.   Then there are new ones growing in, lots in places where they shouldn't be, but I don't dare pluck those either since I could lose the long ones that haven't been lost and then I'd have nothing.  Luckily my wig has heavy bangs (something new for me) and when I wear my beloved baseball hat, it gets pulled down as low I can wear it!   It sure will be nice when I begin to feel a little less self-conscious. 

    Oh, one thing I want to share...a little upsetting, but I had to laugh.  I was shopping for a purse to take on my trip and I found a Fossil bag.  I had a 20% off coupon for the store today and I asked the saleswoman if the coupon could be used for a Fossil bag.  She said, "No, that coupon can't be used.  But you can use your senior discount."  I'll be 51 in December, but I never thought that I was considered a senior.  I just said "Okay.  Thank you," with a big smile and walked away.  Oh, well.  I had to become a senior some day.  

    Hope you are all having a good day.

    xoxo

    Kathleen 

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  • garnetann
    garnetann Member Posts: 158
    edited September 2007

    I do my neulasta just about exactly 24 hours later. So far, my white counts have been good and I have not (knock on wood) been sick with anything since chemo started except a UTI and they gave me bactrim for that and it cleared right up. But I am prone to UTIs, so that was nothing unusual. 

    Kathleen, I wonder if you can trim eyebrow hair?  So far, (again, knock on wood) my brows and lashes are pretty good, a little thin, but nothing major.  I don't know if they will start doing something when I get taxol #2 or not. Not dreading it as bad as AC, because I know I won't be really sick, but not looking forward to the body aches. 

    And, not to unload on everyone, but do you sometimes think your family forgets you are going through chemo?  2 of my grown sons don't understand I just don't have the energy to do everything. One is leaving for active duty and needs a hundred things done and expects me to do them because I always have.  And yes, I did it all too. But, I will miss him, but won't miss some of the stress he gives me.  And my house is looking terrible, but I just don't have the energy to do some cleaning after work.  Oh well, it will be there later. 

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  • dville
    dville Member Posts: 55
    edited September 2007

    Hi, I want some peach fuzz too. I am completely smooth bald except for my 100 hairs that I never cut. They have not grown and are still falling out.

    The B6 is supposed to be for the hands and feet. I take it twice a day. The l-glutamine is more for the aches I think. The Taxol SE's seem cumulative, but I don't know with only 2 to compare. Debbie K and Bonnie, you ladies have had the most Taxol experience. What do you think?

    Cyndi, I am so sorry about your pain. I've heard that you can also try Claritin to help with Taxol.

    Good luck with your white count Kathleen. The difference with from Neulasta is you take neupogen every day.

    Garnetann, that is scary about the 14 day window. Sometimes I think the docs are not careful enough. They gave me my first neulasta shot at 21 hours and I really had terrible pain that time. Now I always make sure it is 24 hours and the pain is bad but bearable. What will having it every 13 days do? That's definitely what I'm doing and I would love to not be taking that darn shot at all.



    Debbie M.



    ps--I'm trying not to send this 3 times, but it's acting crazy.

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  • dville
    dville Member Posts: 55
    edited September 2007

    Trimming the brows will work. Mine have always been crazy and now I can pluck and trim and they still look normal a few days later. But they are starting to get spotty and I'm not sure if I should draw them in or just leave them. I have no peach fuz, but would love some.

    I'm sorry about your pain Cyndi. I've heard Claritin helps with that as well as the l-glutamine.

    The B6 is supposed to be for the hands and feet. I take it twice a day and have had very

    little trouble. That neuropathy stuff sometimes actually gets worse after treatment and can last for a year.

    Some people recommend B6 twice a day while in chemo and 1 a day after.

    .

    Debbie M

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  • garnetann
    garnetann Member Posts: 158
    edited September 2007
    Peach Fuzz alert!!!  My son is leaving for active duty, and he wanted his head shaved  before he left and he looked real closely at my head and said it looked like brown dirty spots, but then he said it did look like hair coming in, dark, dark.  So, we will see.  Kiss
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  • burquie
    burquie Member Posts: 129
    edited September 2007

    I thinke the taxol se's might be culmulative, it seems as tho the fatigue lasts a little longer for me. I think it all depends on the person.I have been taking the B6 and the L-glutamine everyday, twice a day since I started the Taxol. I know some people only take it around treatment time.

    Garnetann: Congrats on the peachfuzz!! Lucky you if it comes in dark, my hair regrowth has gone the grey way..... hopefully it will start to come a little darker. I had some grey before I lost my hair, but this is a more all over grey. Oh well, I'm just happy at the prospect of having hair again!

    Hope you are all well!

    Bonnie

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  • mikeysmom
    mikeysmom Member Posts: 137
    edited September 2007

    thanks for your concern DebbieM...I am doing much better now and I'm curious to see how I feel after just herceptin tomorrow (taxol is every 3 wks). I hope the effects aren't cumulative.

    I have weird peach fuzz that's either white or clear and superfine. I also have stubble left from when I shaved my head but really, an objective person would say I'm baldCry. I think I might be getting some new eyelashes in though. Also, I've had to shave my legs and I think that is just not right!! I want hair on my head, not my legs. But I'm preaching to the choir here...we all want hair! Two women in my "live" support group are at the stage where they have really short hair and aren't wearing wigs anymore. I have to say it looks so cute but I tend to think any hair looks good right now...

    Cyndi

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  • DebbieK
    DebbieK Member Posts: 116
    edited September 2007

    Dear Ladies,

    I made my trip fine! Hah! No fevers.  However, I have developed a real pain in my neck and back of my head.  It could be because I wore my wig (which I never wear) for two days straight and I realize I was hold my head different.  By the end of the second day the neck and head thing had struck.  Oh well, just another little bump in the road.

    I am sure hoping that my hair notices no treatment on Monday and decides to venture out!  I wonder how long it will take; I am so excited for it to start growing.

    I agree with some of you that Taxol does take more out of you as time goes by.  I noticed more fatigue as I went through it.  This coming week I know TerryNY is finishing; who else?

    I have been reading about risks of recurrence and found two top risk factors are being over weight (which I am!) and drinking alcohol (which I do!).  I don't mind having the motivation to lose weight but I can't see completely cutting ou alcohol.  I plan to cut way down on it, but it doesn't sound fun.  We typically go out on the weekend and have a few drinks with friends but not much the rest of the time.  I wonder how dangerous that is.....

    Well, hope this finds you all doing well.  Take care,

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  • dville
    dville Member Posts: 55
    edited September 2007

    That's great news Garnetann! I'm still bald under my hundred hairs. I went to the thread where they have hair growth one year out pictures and it was very encouraging. My mom always said patience is a virtue.

    I guess it's required in this situation.

    Glad to hear you're better, Cyndi. Bonnie, do you have to do rads and how soon do they start? I've heard they are nothing much compared to the chemo and I'm hoping that's so. I'm red haired so I burn pretty easy, but I'm already stocking up on ammunition in the form of aloe,etc.



    Debbie M.



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  • DebbieK
    DebbieK Member Posts: 116
    edited September 2007

    Forgot to tell you something that happened with my grandson the other day.  He was looking at my bald head; he likes it, at 6 he thinks it is cool.  Anyway, I asked him how many dark hairs he could see, and he said none.  I said to come on and look harder, and he said 2.  Then I really laid it on and told him to really look hard.  Well he went over my head thoroughly and said there were 8 dark hairs! I had to laugh, the poor kid was really trying but most of that fuzz up their is white, blond or gray!  This should be fun as real hair finally starts up.

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  • burquie
    burquie Member Posts: 129
    edited September 2007

    Debbie K, glad your trip went good! I finish up with the taxol next week and I can't wait!

    Debbie M, I go for my consult with the rad onc tomorrow morning, so I should know what my status on rads is..... I know it's supposed to be easier than chemo, just hoping that I don't have to do them.

    I'm running a little fever tonite...... just had that whole "my body doen't feel right" feeling, took my temp and it's running about 100. So I think I'll take a tylenol and go to bed.

    Hope everyone is well!

    Bonnie

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  • TerryNY
    TerryNY Member Posts: 603
    edited September 2007

    DebbieK, great about your trip news, I'm so glad you did well even though you experienced 'wig head'.   Maybe treat yourself to a nice, relaxing massage!  

    I'm overweight as well but had already started changing my diet and exercising due to being dx with Type 2 Diabetes last fall, almost 6 months before my BC dx.   Well, the BC shot all my good intentions to h*ll but I am determined to get back on track after chemo.  

    Too funny about your grandson!  I love hearing about everyone's families. 

    GarnettAnn, anymore new peach fuzz appearing yet?   I do understand what you're saying when family members don't quite 'get it'.   My oldest lives in another town and rarely calls me to see how I'm feeling.   It's like out of sight, out of mind.

    I am sending them all that article I linked earlier from JohnsHopkins stating concerns about breast cancer survivors and why we don't automatically revert back to our old selves, if ever.   Hopefully it will give them all insight as to the emotional toll this disease takes on our pysches.  

    Bonnie, take care!  Good luck with the onc appt tomorrow.  

    I feel as though I'm coming down with a cold, darn it.   I'll be most upset if I can't get my last chemo on Wed.   I posted under this thread asking about that possibility....colds and chemo.    I'm waiting to see if anyone says it won't matter. 

    Other than that, it's been a good week, typical neuropathy in the fingers and toes but not too bad.  

    I wish the same for everyone! 

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  • kath11
    kath11 Member Posts: 102
    edited September 2007

    GarnettAnn and Terry, I have a couple family members who seem to forget what I'm going through as well.  I also sent them that JohnsHopkins link.  It was a great one to remind them it's going to be a long road, even after treatment. 

    Debbie K., it's funny you mention holding your head differently when you wear the wig.  I think I do that too.  I tend to get a very sore neck when I wear it!

    I thought the Neupogen shot was $2000, but it turns out it's only $200, so I was able to pay for it until the insurance authorizes it.  It's still expensive, but not quite so outrageous.  I got one shot today and I will get it again tomorrow.  Hopefully my counts will go up so I can get chemo on Monday.  Terry, I hope your cold resolves quickly and you're able to get chemo next week.  We don't want anything to stand in the way of that last treatment!

    Best wishes to everyone.

    xoxo

    Kathleen

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  • garnetann
    garnetann Member Posts: 158
    edited September 2007

    Hi all,

    #6 taxol down, 2 to go.  I go for my neulasta shot at 2:00 pm, exactly 24 hours after I finished my treatment yesterday.  I get the joint and muscle pain regardless, but it is much much worse on the taxol since it causes the pain as well.  I know by tommorow morning, I will be hitting the percoset.  My neulasta shots are $3000 per shot, but I only get them every 2 weeks.  My dr did not see much peach fuzz, so maybe my son was making me feel better.  But I can sorta see some dark spots on my head, oh well, it will come back in it's own time. 

    Thinking I might pick up the house today since I am off work and not feeling too terrible. 

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  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited September 2007

    Hi all,



    Garentann, I have no hair under the ones that were left when I buzzed it off either :( Kind of disappointed, wondering how long it's going to take for it to come back.



    Terry, and Bonnie one more treatment, girlfriends, you and I are DONE next week YAHOOOOOO....We need to party, lol. Bonnie, hope your fever is better today and Terry, hope you are feeling better too...dont' want to delay getting that last treatment...I've been so afraid of the same thing, but luckily I haven't come down with anything bad enough to do that.



    Kathleen, I get the Nuelasta and it's about $2000. I get the whole bone pain thing too, thank goodness for pain killers.



    Debbie K, lol. Your grandson sounds wonderful. Isn't it great being a grandma? My oldest granddaughter asked me the other day if I will have hair for Christmas, lol. I think she thought that's what I should ask Santa for, lol.



    Debbie M, good luck with the radiation. I can't have it as I have Lupus, so that kind of bothers me, I think I would rather have it and have that extra assurance...but oh well.



    Cyndi, I'm so jealous you have hair and EVEN jealous you shaved your legs, lol....thought I'd never make that statement.



    The kids are home this weekend, so I'll get to spend the weekend with my granddaughters...which is a wonderful way to spend the weekend. Then my last Taxol on Monday, Neulasta on Tuesday, Oh, yeah, forgot, Procrit on Monday too, I'm still anemic. I'm so ready to have this done, but am getting really worried about the port coming out, especially since they are doing it in the doc's office.



    Also, are any of you ladies wondering just HOW we get on with life? I didn't work before cancer, due to Lupus, and now I'm wondering....NOW WHAT? What do I do with all of this that I've been through? Do I just go on day to day without doing anything? What comes next? I want to help others, but I'm in a little tiny town, so there might not be much chance of that. Anybody have any thoughts on this?



    Blessings to all of you and I keep you all continually in my prayers.



    Gracie





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  • burquie
    burquie Member Posts: 129
    edited September 2007

    Happy weekend everyone!

    Hope all is well with everybody. I had my rad onc appt yesterday. The Dr is very nice;( he was my FIL onc for 10yrs with prostate cancer). Anyways he spent like an hour and a half going over my path report and explaining everything to us. He said when he first looked at my reports he was on the fence about doing rads. Then the more he looked it over, he has recommended that I do 5 1/2 weeks of rads. He explained that I had some angiolymphatic plugs found in the pathology. If it was just my tumor and the mastectomy he would say no rads, if it was just the tumor and the 2 nodes he would have said no rads, but the combination of all 3 he feels I should do them. And seeing as its my body he left it totally up to me to decide.......... damn it! I KNOW what I should do and I Know that I will. But I just thought maybe this damn journey was going to be coming to an end. So today I'm a little depressed and discouraged. I know it will get better. I will be seeing him on Thursday when I go for my last chemo and will firm things up with him about when I start.

    Bonnie

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  • DebbieK
    DebbieK Member Posts: 116
    edited September 2007

    Bonnie, I so understand your frustration.  My radiologist told he I would have 3-4 weeks after finishing chemo before radiation started.  So I scheduled some out of town work and scheduled my appointment with him on Oct. 18th.  His nurse called me a few days ago and said he wanted me to come in sooner which I said I could not do because I would be out of town.  She said she would tell him, but I really felt like I just want to be left alone for a few weeks!  I am so tired of the treatment just running my life.  I think they forget how frustrated we can get.  My friend at work calls me "Chemo Deb" because I have significantly less patience than normal since I have been on chemo.  We laugh about it but there is really a lot of truth to it.  Everyone says the radiation isn't too bad so hopefully it won't disrupt your life too much.

    Take care,

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  • honeygirl
    honeygirl Member Posts: 1,718
    edited September 2007

    Hi everyone. My hair is growing!!!!!!Laughing I am 7 wks. out from my last chemo tx. And the last two weeks I can really tell. At first , it seemed all white. But now there is alot of dark all over. I can now feel the thickness of it. Before it just felt like peach fuzz. I went to the hair growth post and I picked a pic that I thought looked like mine and after I read how to read each pic , I was right at the 7-8 week growth pic. I am so glad mainly because my hair has always grown slowly. I was so afraid it would take longer than the average. I know alot of you ladies are still on chemo and are still at the peach fuzz stage. Take heart , in no time soon you will be seeing and feeling growth. I know it is still to early to tell , but as of right now it is straight. But all around my face my hairline is white! But as soon as I have enough to dye , I will be buying my"pomagrante red" hair dye!

    Well I have been on tamoxifen for a month. I am having hot flashes. Haven't really noticed and thing else.

    My SO just got home today from the hospital. He had surgery on his legs for PAD. He is in a lot of pain. But sleeping now. He took some percocets and I think that is helping. Walking is really hard for him. He got a walker from the hospital and that helps. But a couple of times he almost fell if I wouldn't have helped him. I am nervous when monday comes and I go to work. Maybe he will be more stable on his feet by then...

    I also hold my head , neck different when I wear my wig. Thats part of the reason I don't like wearing it. But I wore it last Sat. I went to see my son Adam. He is about an hour and 20 min. away. And it was a beautiful day for a drive. I took the seenic route. The fabulous fragrance of the grapes , the amish buggies , all the horses , cows , chickens , llamas it was great. I thanked God all day for blessing me with the beauty of His world. And I had such a great day with my boy. We had chinese and he surprise me with taking me to the movies to see Holloween  the remake! I always went all out on halloween when he was growing up. And we saw all the halloween movies over the years. I think the "Michael Myers" music was the first thing he learned to play on his keyboard!lol. That Sat. was a special blessing , because for the first time since bc , I finally felt normal. My , what fresh air and fun with your kids can do for ya!

    Well all , your always in my thoughts and prayers. I hope you all have a good week ahead and that something wonderful will happen in your lives to make you feel like you use to. Hugs , Melody

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  • lastminuteD
    lastminuteD Member Posts: 333
    edited September 2007

    Wow!  I've been so busy the past week or so and haven't been able to get here and there are so many posts!!!  I just read them all and I have everybody up to date and all mixed up in my head!!  Foot in mouth

    It sounds like all of us are examining our heads for hair these days!  It is much nicer to look in the mirror and see "something" up there even if it is barely there and clear!!!  I can tell mine is coming back and I can't wait to ditch my scarves!  Can't help but wonder how long that will be though..............................Undecided 

    My red and white counts are both below normal.  They said there really isn't anything I can do about the white counts but I am trying to eat more veggies and lean meat, exercise and take a B complex vitamin for the red counts.  Some days I just can't face that treadmill though. 

    I had #5 of 12 taxol/herceptin yesterday.  Got them to halve the decadron since I'm gaining weight and feeling like a cow!  No reaction with the lesser dose!! YEAH!!  The benedryl seemed to hit me harder this week since the steriods weren't fighting back as much so I was more tired the rest of the day.  Oh well - I'd rather be sleepy than getting chubbier.

    So far I've lost about 3/4 of my brows and lashes.  Hopefully the rest will hang in there so I have some kind of guide for my pencils!!  I never really stopped shaving my legs - but the time between sure was nice and now it's getting closer and I'm growing everywhere else again too.  Oh well.

    It is so nice to hear family stories and about how everyone is doing.  Thank you all for continuing to share and being there.

    I wish everyone a good week with treatments, side effects and the first week of Fall!!

    Dawn

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  • TerryNY
    TerryNY Member Posts: 603
    edited September 2007

    Good luck to all of those starting radiation soon.   At least chemo will be over, keep a good thought! 

    Dawn, hope your blood counts rise.   Is the neupogen shot out of the question on weekly dosing?   I know you can't have the neulasta.  Ha, on the steroids, I seem to be eating and eating and eating too.  

    I looked at my head and saw several actual hairs, long hair...well, longer than the peach fuzz!   My daughter was laughing at me because I was soooo excited.    I think my family has grown accustomed to seeing me bald.    :-) 

    What is the hair growth post, Melody?   I'd like to see much longer I have until it all comes in.   It seems to be coming in very uneven and in fits and starts.  

    Good luck to your husband on his recovery.   The outing with your son sounds fabulous and I get the feeling you're rejuvenated from the trip, wonderful! 

    I am feeling better, no more signs of a cold so hopefully I've escaped it. 

    We are celebrating my daughter's 21st birthday and our 23rd anniversary this weekend.   She was born on our anniversary.  We're taking her and her boyfriend to dinner and the casino today, no corruption in our family!  LOL  She went out with friends last night for her first legal drink.  

    Hope everyone has a good week treatment-wise.   Celebration wishes to those finishing up this week...HOORAY!!!  

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  • honeygirl
    honeygirl Member Posts: 1,718
    edited September 2007

    Hi Terry , to see the hair growth pics go to moving beyond cancer scroll down to hair growth pictures and click on the link in the first post.

    Congrats on your anniversary! Happy birthday to your daughter and I hope you all had fun at dinner and the casino. Take care , Mel

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  • dville
    dville Member Posts: 55
    edited September 2007

    Hi Everybody, I missed the John Hopkins post. Will someone post it again? I'm still borrowing a computer to get here and I hate to take up too much time on it. Bonnie, I'm sorry you have to do rads, but hopefully they won't be too bad.

    I too am trying to think of ways to help people because I've recieved so much love and help through this thing. I already volunteer at the school a bit and sometimes the library, but I could do more.

    Have a good week everybody. I'm glad that a lot of you are counting down the days to the end of chemo.



    Debbie M.

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  • kath11
    kath11 Member Posts: 102
    edited September 2007

    Hi Debbie,

    I think this is the link.   Let me know if it doesn't get you there.  The last time I tried to post a link it didn't work.  I hope you don't have to type the whole thing in!

    http://www.hopkinsbreastcenter.org/library/diagnosis_treatment/post_treatment.shtml

    xoxo

    Kathleen

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  • burquie
    burquie Member Posts: 129
    edited September 2007

    Hi all,

    Well my last taxol is supposed to be this thursday;however I think there might be a problem with my port. I noticed over the weekend that my arm was feeling a little stiff, and when I looked yesterday it was starting to get swollen. I called the surgeons office this morning, and they are sending me for an ultrasound of my arm tomorrow morning. Why can't things just be easy in this whole ordeal??? GRRRR........ hopefully  everything will be good to go on Thursday...keep your fingers crossed, please!

    Bonnie

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