hormone therapy

minuet
minuet Member Posts: 25
edited June 2014 in ILC (Invasive Lobular Carcinoma)

Is anyone doing hormone therapy longer than the traditional 5 years? I keep reading that hormone therapy is probabley the strongest defense for ILC and since it is one to recurr later rather than earlier that hormone therapy may be extended.

Mo

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  • Sandra1957
    Sandra1957 Member Posts: 1,701
    edited September 2007

    Hormone therapy wasn't recommended for me at all. 

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  • karen1956
    karen1956 Member Posts: 6,503
    edited September 2007

    Minuet - I'm only 19 months out since Dx. I have been on some sort of "anti-hormone" therapy since the end of July 2006. My onc said I would be on it for 5 years unless something better came along. I have not broached the subject of beyond 5 years as I am just not in that place yet. karen

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007

    minuet--my mom had ILC (stage one), lumpectomy, radiation, tamox for 5 years--is now a survivor of almost 21 years! I've been taking tamox for almost 4 years as a preventative (I have LCIS and the family history), not sure what they oncologist has in mind after next year (he has talked about arimidex or no hormonal at all, my pcp has talked about evista possibly).

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  • minuet
    minuet Member Posts: 25
    edited September 2007

    AWB....that is so great to hear about your mom being a longterm survivor. How did she find her ILC?

    I had read some article a few weeks ago about women who did  5 years tamox followed by an AI for another 5 had better outcomes than those just doing tamox for 5years. Haven't heard that this is going to be standard treatment though.

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