Flunking Out of "Moving Beyond"
Hey, ladies,
I haven't been around these parts much recently, but I sure know where to come when I need some support.
My love affair with NED is over. I have a new primary in the "other" breast to contend with now.
Long story short: 2/2002 dx with IDC 1cm, ER/PR+, node negative. Age 44.Did lumpectomy and radiation. Yanked out the ovaries. Problems with Tamoxifen, so I took 4 years of AIs before stopping last year (side effects, plus onc agreed I probably had gotten all the benefit I was going to get.)
Fast forward to last month. Thickening in a scar from a biopsy 12 years ago. Pain behind the nipple. Yesterday's core biopsy of the scar area shows ILC 3mm, ER/PR+. Well differentiated.
So, here we go again. I imagine I'll be seeing a surgeon next week, getting an MRI, and deciding what to do about my "girls."
I'll be heading to other categories for a while--the ILC and the 2nd time around ones. It just goes to show you how tenuous life can be. I had "moved on" quite well, now I have to "move out" for a while, till I can move on again.
One thing's for sure--I can handle this new thing way way better than I did the first time. I have learned so much about cancer and how to accept support from others.
I'll keep y'all posted.
Anne
Comments
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I'm so sorry to hear about having a new primary. I do believe this is "better" than a recurrence, although that might be the same as saying a hurricane is better than a tornado. I love your spirit and your attitude. Can't you stay here as well as the ILC section? It sounds like you've moved on from allowing cancer to hold you hostage.
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Anne, this is unsettling news for you to say the least. As Amy said, I love your spirit and attitude...it obviously was a large part of your first experience with breast cancer and it is going to be a huge part of this experience. I love that you've decided already how you will approach this...from the perspective of having learned so much about the disease, from what you've learned from others and accepting support and what you now know about yourself.
If ever I have heard hope, motivation and inspiration, not just for yourself but something for all of us to remember, it is these words of yours,
"I had "moved on" quite well, now I have to "move out" for awhile, till I can move on again."
And you'll do it with much hope, positive thoughts and prayers from your loved ones and the support of the sisters you have met along the way.
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((Anne))
I am here for you sister!
I was first dx'd in 2001 with tripleneg IDC, no nodes, lumpectomy.
Then this past Feb was dx'd with ER/PR +++ LOBULAR in the other breast with 4 + nodes..
I had a bilateral mast in March and am still in chemo. I would be glad to help you any way i can.
You have still moved beyond-- you have moved beyond being that newbie you were the first time and not knowing anything. NOW you know what questions to ask and what you have to do and how great it is to be NED.
That is my goal- I see NED on the dancefloor right now and I am working my way towards him.
Love and hugs to you,
g
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Anne...I can only say how sorry I am that you'll have to go another round with this f***ing disease! We're saving your place here in 'Moving Beyond...' though!!!
Hang in there, hon, and just do the deal. You certainly know how, as we all do....Our thoughts stay with you.
~Marin
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This has been on my mind since first thing this morning. Anne, you're not "flunking out"....you're taking a summer school course!!
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That's crummy.
You did all the right stuff too.
I hope it goes well, as you say - at this point you're experienced with it all and can cope.
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Anne,
As everyone has said, it is beyond crummy for you to have contend with this again....but, that said, I do admire your spirit and determination. You are a fighter and now know how to fight!!
Take care and let us know what is what.
Tina
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Best wishes dealing with your new decisons and getting an all-clear again soon. Warmly, Jody
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if there is a silver lining, it is your attitude...do what you got to do.
i am still with ned but always have one eye looking over my shoulder and keep telling myself, having cancer is like child raising in that there are so many new tools out there now then when i did it...
hope this proves true for you...
best!
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i hate reading this news on so many levels, Anne. I'm so sorry you have to head down this damn road again...it's a crappy battle...but as you well know, it's doable....and soon it shall be behind you once again.
take care-
patrice
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Anne: Im sorry you have to go through this again. Just sending some love, hugs, and encouragement your way.
Me? I dont think I wil ever move on. I think Im just moving along.
Nicki
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You all are so wonderful. What a boost--you make me smile and laugh and reflect. EachDay--your comment about "summer school" cracked me up!
Let me share with you all one thing that really helped me this week. I was having a mini-meltdown as I was driving to get my biopsy. So anxious, pissed at my husband for something petty, and making myself feel worse by the minute. I finally yelled out, "Stop it!" I realized that I could not change what was happening in my breast, I could only change how I responded to it. So, I made a conscious choice to let go of most of the stress. I don't remember everything I said to myself--out loud--but the affirmations were along these lines:
I CHOOSE to release all this negative energy.
I CHOOSE to be calm.
I CHOOSE to not over react or dwell on bad things.
I CHOOSE to remain in the light and avoid the dark places of my brain as much as possible.
Anyway, you get the drift. After giving myself permission to accept and move forward, regardless of the biopsy results, I felt the weight of the world lift off my shoulders. And I knew I would be okay. And I am.
But I wonder when I'll cry about this...I haven't even choked up yet. I suppose it will come when I least expect it. And that's okay, too, because I can come here and tell you all about it, and you will understand.
Anyway, I'll stay here in Moving Beyond. Because that is what surviving is all about.
Anne
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Anne,
I can't believe how this happens to so many. Your attitude made my day and I thank you for that. Please, please don't leave the "moving beyond" thread.
I also choose to go through this journey just as you. I've been to the dark place once while in the throws of my second chemo treatment and I don't ever care to go back there. Your words of positive thinking are just what will get you through anything that may come along and they will help many of us who are just reading your post.
Bless you girl, I know your chin is up and in the forward direction.
You are Awesome Anne!
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I'm so sorry you have to do this crummy thing AGAIN. Makes me mad! You have a great spirit. Hang on to that! We are all praying for you.
Barb
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Anne, if this should ever happen to me again (GOD FORBID!) I hope I can have the same attitude as you. It's rough. And like you said, you may cry again. That's normal.
I loved your affirmations. I need to write those down. Got anymore that you can remember?
Shirley
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Hi Anne, I am so truely sorry for this. You just remember even though this has come about again. You are a true survivor. You have been there, and done that. And, your going to jump back on that
saddle and go. Life is weird. Sometimes, we have to jump backward again, before moving forward. But, you know you are stronger than ever before. You are a true survivor in this. And, your going to continue to be that survivor.
God Bless,
Kaloni
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Yeah for Anne who is staying in Moving Beyond!!!!
And "yeah" for Anne who is choosing and making so many great choices!
Gosh girl you will cry...you'd better...it's normal/natural and if you don't you aren't doing yourself any favours. Have some wine, get a little mellow, or have a shower (like Glenn Close did in the Big Chill) and let it go!!!
But you making the choices you've said? You "own" this Anne..you are not letting cancer own you.
And I have to tell you how much I admire this spirit and attitude. I'm filing it away for the day that I might need your attitude.
And I'm proud to walk beside you in moving beyond and call you sister.
You're going to do just fine in "summer school"!!
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Anne you spirit mirrors my own. Was 1st dx 01/97 with 6+ nodes and had moved on only to be hit with a new primary in other breast july 06, this time with 29+ nodes where did they all come from? Have had all the tx and am starting to put my life back together.
I love your affirmations. I feel you will be back on top before long and looking for NED.
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Anne,
I'm so sorry to hear that you have to get back on the roller coaster. I think what you're telling us is that you know that you have moved on - you know that this is survivable. You know that the end of treatment will come and you will move on again - an even more wonderful, wise, experienced woman than you are now.
Love to you,
Julie
(who wishes I had a buck for every time I've screamed "STOOOOOOOOP IIIIIIITTTTTTTTTT!!!!" to my yattering brain at the top of my lungs over the past 18 months!)
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This really sucks, but your attitude is great. I'll keep you in my thoughts and prayers.
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Aw, Anne, rats! Sorry NED's stepped out on you for the moment, but he'll be back, you'll see. Who could resist you? And he knows where to find you, too -- right there on your avatar mountain top!
(((((Hugs))))) and prayers while you sort out the details.
It'll be good!
Binney -
Anne,
You don't have to cry, we'll cry for you. Your posts touched my heart and I'm so glad you are continuing to be so positive. The very thought of what you are going thru makes me shudder. But you are so strong and proactive. We are always here for you.
{{HUGS}}}
Karen
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So sorry to hear your news Anne. Yes, you are much more prepared for this go round. Sending you positive thoughts and prayers.
(((Healing hugs to you))) -
Hey Anne, you didn't flunk out of anything. This "Moving Beyond" thread is where the "other" breast belongs, and when the second breast catches up, you will be here forever!
When I was diagnosed, one of my friends was also diagnosed in the other breast after 8 years of NED. She was so upset, well cutting to the chase, she is just fine, just like me. Now we are BOTH NED and that was 9 years ago.
This is very discouraging, but you can do it and you will be back in no time.
You are loved, Shirlann
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Great encouraging word, Shirlann!
Ann, we are all pulling for you and with your determination, I know you'll fight this with all your might!
Prayers,
Miss S
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Hi Anne,
Just wanted to add my best wishes. I was in exactly your boat last summer. After a lumpectomy and radiation for stage 1 IDC in my right breast three years earlier, I was diagnosed with a new primary in my left breast--"luckily" this time around, it was "only" extensive DCIS. Still, I had to have a mastectomy, so I decided to have bilateral mastectomies, with no recon. The only way to get through it all was with a positive attitude, which you clearly have.
Regarding crying, I honestly didn't cry once. I was anxious as all get-out, lost eight pounds in about two weeks, but never shed a tear. That just wasn't my way of dealing with the fear and sadness. Instead, I'd crack jokes--especially with my breast surgeon. I wanted to make sure she was in a good mood when operating on me!
My experiences have led me to start a non-profit website, BreastFree.org, that presents non-reconstruction as a positive alternative to reconstruction. So, the unhappy experience of a second bc has given my life a whole new direction.
Barbara
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Shirlann, great to hear from you! I do expect to be with NED again soon, and for a long, long time.
Barbara, I will check out your website. I am strongly considering bilateral mastectomies without immediate reconstruction. I want to see how I feel about being "flat" before I go having more surgeries. I've done lots of reading about different surgical options, and given that an implant may not be successful on my irradiated side, I'm just not sure I want other body parts cut into for the sake of having breasts. We'll see.
I nearly lost it today in the rock gym. (Still haven't cried, nor feel a big need to.) But one of the routesetters--an adorable young man with the prettiest smile (I'm old enough to be his mom!) set a new route and named it in my honor. My climbing buddy was in on it. I saw it in front of a few friends whom I hadn't told yet, and between them and the route, I really choked up. So much love from people I only know from the gym.
Just goes to show, you find support in the most unusual places.
I get my MRI Tuesday. The following week I see my surgeon to set up a plan. Things are moving forward, but never as quickly as one would like. But, I'm keeping busy and am relatively at peace.
Except for those darned "night demons" who lurk and spin the brain at 3 o'clock in the morning. No amount of Zoloft keeps them at bay!
Anne
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Dear Anne,
I've just seen this.Not that I have a lot of wisdom to add.But plenty of empathy and support.I'm so SORRY you have to be experiencing this.
You know, in your heart, it will be over in a forgettable blink of an eye.But the time now?The damn "eyeblink"?Not fun.
We are with you 200%, and someone will always be here for you.You dont need us to get you through because you're doing wonderfully well.But we will walk this walk with you.
And so will your friends and family.And then it will be over.And you've bested the devil again.
Thanks for teaching your affirmations.And God bless you for being sanguine and completely wise.
Only action will make the night demons go.But all too soon you'll be in motion.
Sending white light, insouciance, and lots of love.
joan
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I am so sorry you have to go through this again. But wow, only 3 mm, I'm sure this is a result of your vigilance. As crappy as this is to go through, you have taken great care of yourself.
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Well, I'm not holding on to the 3mm size. This is invasive lobular. It could be the tip of the iceberg or part of multi-focal disease. Hopefully the MRI Tuesday will shed a little more light on the situation.
Anne
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