If you have just been diagnosed....

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  • gizmodog
    gizmodog Member Posts: 51
    edited August 2007
    I got a copy of my biopsy report. I am trying to figure out what all of this means.
    Infiltrating Ductal Carcinoma, Estimated Histologic Grade 1
    Not sure what this grade 1 means.

    Duct Carcinoma in Situ, Nuclear Grade 2, associated with microcalifications.

    Pathologist's Comments
    The invasive componenet is at least 6mm. Receptor studies will be reporte in an addendem.
    This 6 mm doesn't sound good.
    Can anyone comment on any of this ?
    thanks
  • iodine
    iodine Member Posts: 4,289
    edited August 2007
    Hi Marie, go to the home page and look on the far left, you'll see a place to click re: path report. Go there and it will help you understand your path and all that's in it.
    The 6mm. just means that it moved beyond the duct into the breast that far., not that it has moved far about your body.
  • Molly2001
    Molly2001 Member Posts: 10
    edited August 2007
    Hello all... I am sitting here so scared and upset. I found out yesterday from mammogram, ultra sound, and exam that there is 80 percent sure my lump is cancer. I have 2 lumps actually close together ... 2.4 cm and .6mm right beside the nipple. My underside of breast is red so I am afraid it might be inflammatory breast cancer... I do know the radiologist said there was a node found so I am so afraid it is aggressive. They took a core biopsy and I won't have those results until Thursday. I haven't told my kids yet. They are grown children with families. My husband and I are currently living in England and my family is in the states. My hubby retires in a couple years so I was sure hoping I would be ok until I got back to Tn. I don't think as I don't have insurance back home I could go there for treatment?? I tried to get blue cross blue shield couple years back but because I had been diagnosed psoriatic arthritis and had past basal cell skin cancers they wouldnt insure me so I thought I will wait until I get home to pursue it farther. I can have treatment here in England, but I would rather be home with my family.

    Could any other breast cancers make your breast red? They didn't tell me alot because they are waiting for the core biopsy results. I know reading stuff online has been frightening to me. Maybe I should wait to research after I know more.
    thanks for listening
  • iodine
    iodine Member Posts: 4,289
    edited August 2007
    Hi Molly, Another TN. Vol here, sorry you are so far from home with this to go thru. There could be a lot of reasons your breast is red that have nothing to do with bc, but I would make sure they ruled out the inflammatory type for sure. Many docs have never seen it.
    Due to the great cost of bc treatment, you will do well to stay in UK, I would think, for your treatment, but that is up to you.
    RE:research, please limit your research to sites like this or other valid ones, and yes, wait till you have some good info about YOUR pathology before overloading yourself with information that will certainly keep you up nights!
    I hope you will start a thread down below where more gals will ck in with you. We don't usually stop in on this one.
    Be sure to come and let us know what you find out about your bx.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    Molly,
    Iodine is right...try not to scare yourself by doing research until you know YOUR specifics...I did that and scared the living daylights out of myself....

    Also she is right about your treatment in the UK...it is really hard to get insurance in the USA if you have a pre-existing condition and now that you have BC results Im not sure you would be able to get insurance...I know I also would want to be home with my family too....Im soooo sorry you have to do it this way ....

    I have never stopped in at this thread before because I think it is more informational for new ladies than a place to ask questions...Im not sure others stop here either....I think if you start another thread with your questions you will get better response from ladies in your situation...

    Hugs
    Jule
  • gizmodog
    gizmodog Member Posts: 51
    edited August 2007
    How soon after surgery, either mastectomy or lumpectomy do you have to start chemo or radiation ?
    Is there a time frame where you could wait ?
    For instance can you wait 8 weeks after surgery for the first treatment ?

    Thanks
  • Traci40
    Traci40 Member Posts: 41
    edited August 2007
    Hi Marie0224,
    I was diagnosed on Feb 21st, had a double (bi) mastectomy on March 21st and started my chemo on May 4th.
    By the way, I had my last chemo treatment today.
    Good luck girl. You can do it.
    Traci
  • gizmodog
    gizmodog Member Posts: 51
    edited August 2007
    Thanks Traci.

    I see my doctor this morning to find out what type of surgery I need. I got the MRI results late yesterday and the good news is, it only showed something in 1 place and that matched the mammo and ultrasound results.
  • GinaBabes
    GinaBabes Member Posts: 3
    edited August 2007

    I was just diagnosed Wednesday, August 22, 2007. Invasive Ductal Carcinoma - appt with Oncologist on Monday and an MRI on Wednesday. I can't believe that this is happening to me. I have 3 kids, youngest is only 9 months and a wonderful husband...this STINKS!!!!

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited August 2007
    Gina,
    Sorry you have joined the club. Just keep your chin up and take everything one step at a time. You will make it through.

    Sheila
  • NurseCarol
    NurseCarol Member Posts: 2
    edited August 2007
    I was diagnosed last week, IDC grade 1. Although optimistic, I am as scared as the rest of you all. I am an ICU nurse and have tons of support, but it's wonderful to see a discussion forum like this one for the "quiet times" when I really can't bear to take another phone call answer any more questions! I'm sure you all can relate. Anyway, I look forward to chatting with you all....survivors from day one!

    Carol
  • gizmodog
    gizmodog Member Posts: 51
    edited August 2007
    Hi Gena and Carol. Welcome. Sorry you had to join this club. Hang in there. I know you are both scared. I have learned so much from this site and these boards. As Sheila said, take one step at a time.

    Here is an update on my status.
    This is as good as it can get. My MRI showed nothing different than the ultra sound or mammo so the doc did a lumpectomy this past Thursday. No cancer was found in the sentinel lymph nodes. I see my doc this Thursday to find out where we go from here.
  • livinginboji
    livinginboji Member Posts: 85
    edited August 2007
    I am waiting to start chemo next week. I am terrified!I've been reading different posts here for about a week and decided to get online. I am scheduled to have a porta cath in the morning of the 9/6 and then first chemo of A/C later that afternoon. I've done a lot of research which has helped but also terrifies me. I don't have a choice of switching doctos but after reading some of the posts I feel that my "team" is letting me down. Feeling really insecure.
    I am single, live alone and HAVE to work through all the tx.
  • livinginboji
    livinginboji Member Posts: 85
    edited August 2007

    Forgive me if I am repeating myself. I really don't know how to use message boards. I posted a message then read some other postings and it said to go to top of page and select thread. So that is what I'm doing. I am 51, single and live alone. I HAVE to work through all my tx. I am scheduled for a port a cath on 9/6 with first round of A/C chemo later that afternoon.I have been doing a lot of research and know what the standard treatment is, etc. I am really nervous (ie: terrified) about next week. I will say that this is an excellent site full of great advice, compassion, and support. I have 21 yr old son who just moved 2 1/2 hrs. away and a 25 yr old daughterliving close by. For anyone that is interested Mayo Clinic has an excellent book called Guide to Women's Cancers. It is full of easy to read info and has survivor stories and input. I would definitely recommend it. Any one got any tips on how to stay strong and sane during this next week?

  • Clessie
    Clessie Member Posts: 210
    edited September 2007

    I was diagnoised Aug. 30 and will have a lumpectomy Sept.24th 4th, of course I`m a little scared.

    You who have had the lumpectomy, how long before you were able to get back to doing and how did you feel afterwards?

    I`m concerned because I take care of my husband who was paralyzed by a stroke 7 yrs ago and I`m his sole caregiver, we will have help come in to care for him a few days after my surgery but am worried I may not feel up to par by than.

  • Clessie
    Clessie Member Posts: 210
    edited September 2007

    Excuse me that Sept 24 for surgery.

  • Determined1
    Determined1 Member Posts: 806
    edited September 2007

    Clessie,

    I had my first lumpectomy on August 17.  Only a lumpectomy.  My incision is from about 11:30-8:30 (if you see 12:00 as the top of your breast) on my left breast (I am right handed).  I carried my breast around for about 3 days as gravity was a killer.  Mostly I felt best when sitting with a pillow propping my breast up and with ice balanced on it (I swear by the ice!).  I could have gone to a desk job without too much trouble on Day 3 after surgery.  I was in the gym (I'm a bit of a gym rat, although my body doesn't show it!) for a light workout on Day 5.  On Day 6 I was moving my kid into her college dorm room.  Only took Tylenol 3 with codeine for the first three nights--no painkillers at all during the day.

    Upshot?  Two days down.  It really wasn't too bad.

    (I'll be asking the same type of question real soon about having a sentinel node biopsy as I have that and my 2nd lumpectomy scheduled for Monday.  The fun just doesn't end.)

  • Clessie
    Clessie Member Posts: 210
    edited September 2007

    Thanks Guys, feel a little more encouraged, I`m also having the sentinal node biopsy the same day, my Doctor wanted it all done at once, do you think that would require more recovery time?

  • Determined1
    Determined1 Member Posts: 806
    edited September 2007

    Good question, Clessie.  May I add to it?

    I, too, am having lumpectomy (2nd one) and SNB (My surgery is this coming Monday.  Yikes!).  Since I've had one lumpectomy already, I feel fairly confident that I know what I'm in for on that score, but the SNB is going to be a new experience.  I've heard that I should expect limited mobility in my left arm after the SNB.  Can anyone share from their experience how limited and for how long?  And does one require physical therapy afterward, or will strength and mobility return on it's own?

    So many questions, but I know I feel much better when I have some kind of understanding of what's ahead.

    Thanks.

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited September 2007

    I have had 2 lumpectomies over 2 years but this year DX with DCIS, Doctor did SNB with mast and did have limited mobility because of the surgery, don't know if it was because of the SNB or mast. Your under arm (axillia) will be tender from the SNB. You might want to take a small (baby size) pillow to put under your arm to prevent the weight of your arm on the incision while walking or sitting up. The cancer nurse at the hospital gave me some after my surgery.

    Sheila

  • lkc
    lkc Member Posts: 1,203
    edited September 2007

    sweetheart,

    Take a deep breath. You will be ok. Most of us woek through our tx. I was dxed in June 05 with Stage IIIC, and had to relocate to the states for tx, so I was alone.

    Anyway, This is the time for you to take care of yourslef. Ask your dtr or a good friend to come with you to take notes, beacuse you will probably be abit foggy ( we all are when recently dxed )

    Come here often for support and correct information. This board kept me sane when I was having my chemo & rads.

    There ae no stupid or insignificant questions. and out of all of us you will findthe answer and be reassured.

    Remmember, there are so many of us out here and the txs today are so much better.

    I graduated from nursing school in 1979 and did oncology so beleive me!

    Anyhow, I am fine now and you wil be too.

    If you get really anxiuos or depressed do not be afraid to get on some Rx at this time.

    God Bless,

  • portiasproudmom
    portiasproudmom Member Posts: 2,125
    edited September 2007

    Hello.  I was diagnosed with IDC on August 27.  Last Thursday (Sept. 6) I had a lumpectomy and SNB.  It's 8 days later and I'm doing really well.  I never had enough pain to even justify taking a Tylenol, let alone the heavy-duty pain killers the surgeon prescribed.  I'm a little disappointed with my margins (one is narrower than I'd hoped for--yet the surgeon is satisfied), but otherwise I'm great.  Hope this eases some anxiety for people who read it and are facing a similar experience.  Hugs, Karen

  • labhusky
    labhusky Member Posts: 177
    edited September 2007

    Hi all,

    I was just diagnosed Thursday night with DCIS.  Got the call from my Gyn. after getting home from work with the results of a stereotactic bio I had done.  Im sure you can imaging whats going thru my mind.  Its a bit overwhelming to say the least.  I posted in a different area of this board and some kind people said that thats the one to have if you have to have it at all.  I see a surgeon on Wed, 1st appointment.  Its nerve-wrecking, and I am high anxiety anyway.  If I had a lumpectomy (scared of Hospitals-only had my tonsills out prior), and radiation I think I can handle it.  Dont want to take pills for 5 years-afraid of side effects.  It took me awhile to take BP medication which I do feel fine and dont feel tired from. 

    Dr said something about being high nuclear grade and comedal?  Its at the 3:00 portion of my L. Breast.  I am big being a 38D. 

    I know, I know, TMI!!!  I just need to spill my little heart out.  I have friends who have had DCIS.  One is 45 now and she had rad.  The other is same age as me (51) and she got it in both breasts each one separate time.  Of course I worry about re-occurence odds cause my mind works over-time, and as silly as this sounds, I worry about touching my left breast too much in that I dont want to press too hard to spread it.  Am I a basket case or what?

    I sure have been taking walking up again these past days.  Been doing my 2.5 miles for 3 days.  Nothing like something like this to kick you in the you know where to get moving, and I want to get more active like joining a Y and personal trainer program. 

    I know I wont know much till Wed, but any idea on how long I might be laid up?  This is driving me nuts, and maybe I needed a mild(?) wake-up call since I tend to lay low and hibernate.

  • barrpa
    barrpa Member Posts: 1
    edited September 2007

    Hi,

     I am new to this but I got a letter from the Radiologist that said that I had a breast condition that requires more testing.  Not sure what this means but of course I assume the worst.  I don't what to expect.  I am finding comfort though in knowing that I am not alone.  I get up in the middle of the night and cannot sleep.  I look at my daughter and I am in tears.  I am thinking the worst! I don't kow how to go about finding a doctor.  What is the process?  I am so nervous yet I have to be strong for my eight year old daughter.  We survived her father going through leukemia and now if this is true, she has to go through it again.  I am scared for her.

  • v_clar
    v_clar Member Posts: 1
    edited September 2007

    Hi,

    I've just been diagnosed with Ductal Carcinoma Incantu (not sure if I spelled that right). My Surgeon says it's not-invasive, thank God. He also says it's early and totally curable. The secondary problem is that I have 2 seperate lumps and some "cloudy" tissue in between. They only biopsied the largest lump and I am waiting to have a second biopsy on the other.

    My surgeon told me that the lumps are 7mm apart and if the second lump comes back malignant, he recommends a mastectomy. Does this sound right?? He said with just a lumpectomy and radiation, there's a 30% chance of the cancer coming back. What do I do???

    Thanks

    Vicky 

  • jacosul
    jacosul Member Posts: 3
    edited September 2007

    I am 76 and thought all serious problems were behind me.  But I have just been diagnosed with infiltrating ductal carcinoma, moderately differentiated, grade 11/111.  Calcifications present, proliterative fibrocystic changes.  Greatest extent of tumor, 0.9 cm, lymphatic/vascular invasion - no.  My doctor has gone over all this and I think I understand.  I have surgery scheduled in 2 weeks, and am leaning toward a mastectomy, but now am wondering if I should just have both breasts removed at this time.  Some calcification is shown in the other breast.  This was discovered from a routine mammogram.  Any advice will be greatly appreciated.

  • Deese
    Deese Member Posts: 144
    edited September 2007

    Hello sweet sisters, yep, you are my sisters now! You will get alot of advice, 1st hand experience, comfort and understanding here. I was diagnosed with IDC in 2005. I got through it with the help of my beautiful sisters. I also highly recommend www.nosurrenderbreastcancerhelp.com . Unbelievable help and support!

    Deese

  • Deese
    Deese Member Posts: 144
    edited September 2007

    Hi jacosul!

    There just isn't one 'cut and dry' answer for any of us. It is very much a personal choice, based on each individuals circumstances, weighed out with your medical team and what you feel comfortable with after your research (which is what you are doing now!). We've all faced the tough questions and most will say "the only right decision is your decision"!

    Love,

    Denise

  • grace
    grace Member Posts: 1
    edited September 2007

    I have just been diagnosed with breast cancer. I am still trying to think through everything I have been told. It seems that there are so many questions I want to ask. My doctor told me that I will have sugery and then have radiation for 6 weeks. I am trying to deal with all of this. Any comments

  • countrygirl07
    countrygirl07 Member Posts: 2
    edited September 2007

    I have just been diagnosed with invasive  breast cancer and have to have a mastectomy done on October the 19th. I do not like my surgeon but a friend said that she thought he had  problems looking someone in the eye  but as a surgeon she thought he would be ok. I don't know if  I will have to have chemo or radiation yet. I don't know what stage I am in either. There is so much going on in my life already but I am a survivor and I am being positive on this. My Doctor that did the biopsy and found the cancer said that alot of it is based on our attitude. I know that by talking to others who are going thru this it will help me. Hugs.    

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