I am starting chemo in July 07. Anyone else?

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  • brst26
    brst26 Member Posts: 155
    edited September 2007
    Abbi...hope you have some luck with the new script...jeesh you poor thing Frown
  • mmcp
    mmcp Member Posts: 69
    edited September 2007

    Abbey, it was about 3 cm from what we could tell from the mammogram & cat scan.  I don't know for sure if I have lymph node involvement but there were a couple that were quite enlarged, one in my armpit & one in my chest.  I'm hoping for a lumpectomy & rads, but may possibly need to have a mastectomy.  I'll know more when I talk to the surgeon again.

  • mmcp
    mmcp Member Posts: 69
    edited September 2007

    Abbi, feel better soon.  You're right, cancer really sucks!

  • brst26
    brst26 Member Posts: 155
    edited September 2007

    Hey Margie...thanks for sharing.  Mine was 2 cm.  My onc said at my last appt right before chemo #3 that he couldn't even feel it anymore...so chemo is doing it's job.  They said that their hopes were that it would shrink down to nothing by the time chemo is over.  When I had my core biopsy, they put in a breast marker into my tumor so they could tell where it was when surgery time came...because if there's nothing left, they wouldn't know where to go remove a margin from. Did you also have an MRI done?  I was already diagnosed with breast cancer when they sent me for a mamm and MRI to check for any additional cancer. You couldn't even see the tumor on my mamm because my breasts are so dense. The MRI results were really cool to see...they gave them to me on a cd...my tumor was bright white. That's were they saw the lymph node under my arm that was 1.5cm...so they went ahead and did a needle biopsy on that.

    Have a great weekend, everyone!

  • mmcp
    mmcp Member Posts: 69
    edited September 2007

    He couldn't feel it?  Abbey, that's awesome!  Mine is shrinking but you can definitely still feel it.  They did the tumor marker thing on me too.  I didn't have an mri though.  I'm in Canada, they don't seem to give as many tests here as in the US.  Having free medical has its benefits for sure but sometimes I'd rather be able to pay and get the tests I want done.

  • brst26
    brst26 Member Posts: 155
    edited September 2007

    Wow, that's interesting to hear how different things are in Canada, Margie.  Yeah...he was extremely happy...which made me really happy.  I can still kinda feel it...but it's nothing compared to what it was.  It was very obvious when I was first diagnosed...you couldn't miss feeling it.  Did you happen to ask your onc about getting shots of either Neulasta or Neupogen for your wbc count?  I get them every cycle so my counts don't go down the toilet...like they did the first time when they didn't give me a shot.

  • mmcp
    mmcp Member Posts: 69
    edited September 2007

    I did ask, I think we're going to go ahead with it next round.  The reason he didn't start it right away is only half of people on chemo have wbc issues, and I was fine the first 2 rounds.  It costs a fortune here, 3300.00 per treatment.  Is it that much in the US?  Luckily I have a drug plan that will cover 80%, a lot of people have no coverage.  It makes me sad to think people are missing out on lifesaving drugs all around the world because they can't afford them.

  • brst26
    brst26 Member Posts: 155
    edited September 2007

    Neulasta shots are pricey here too...I want to say my benefits statement said something like $2400.00.  It's all covered in full by my insurance though, so I don't pay a penny for it.

    How are people feeling this weekend?  Watching plenty of football today!  I don't think anybody else if from Michigan...but thank goodness U of M finally won today!

    Abbi...how are you doing?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007

    mmcp



    Question: was the $3,300 for your entire chemo, or just the Nuelastia shot?



    I have been on TC followed by a shot of Nuelastia the next day. My entire treament runs $30,000 EACH.



    I have had 3 pre-surgerical treatments to shrink any cancer remaining after my excisional biopsy. (It now apears to be in my lymphnodes, so it hasn't worked as planned).



    The total for the 3 pre-surgerical chemos is over $90,000.



    My son has been on and off chemo for the last three years. His treatment is now close to a million dollars, and he has had no surgery except for 2 small office biopsies. I have no idea what someone would do without insurance, even with it the co-pay or precentage due could, and often does, bankrupt some families.

  • mmcp
    mmcp Member Posts: 69
    edited September 2007

    Jean, the $3300.00 is just for the one Neulasta shot.  I don't know what the charge is for the chemo drugs.  Your's is 30,000.00 per treatment?  Holy smokes, I hope you have insurance! 

  • LottaQuilts
    LottaQuilts Member Posts: 212
    edited September 2007

    I'm doing alright.  Found that I can tolerate the Lexapro (yeah!).  Just a bit of a headache which should go away over time if I just hang in there with it.  No benefits from it yet, though.... it'll take 1-2 weeks to notice anything, 4-6 for full effect.  Like anything involved in this, it takes FOREVER.

    I am super tired.  Still having sleeping issues.  Sleep for a couple hours, wake up and panic for a couple hours.... repeat......

    Luckily, I don't have to work, so I figure I can just merely exist for the next few months.... living, well maybe someday.

    Sorry if I'm a downer today.... I'm having a rough time of it.  I'm hoping that after I go for my first Taxol on Thursday I'll settle down.  It's probably not going to be nearly as bad as I think, I just can't stop the worrying at this point. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007

    mmcp



    Yes the $30,044.55 was the cost of one chemo treatment. I do not htink it included my Nuelastia, as I recieved that the next day and this billing is one for the treatment day.

  • brst26
    brst26 Member Posts: 155
    edited September 2007
    Hang in there Abbi Wink
  • mmcp
    mmcp Member Posts: 69
    edited September 2007

    You're a strong woman and a fighter Abbi, I know you'll come through this.  I battled post partum depression after both my boys (actually just went off meds 1 month before cancer diagnosis) and I know how terrible it is.  For me everything was a superhuman effort, some days even breathing.  So far with the cancer it has stayed away but I certainly have my bad days.  The trick to beating it is to find meds that work for you.  Mine was Celexa, I tried a bunch before settling on it.  I hope this latest drug works out for you, cancer is hard enough to fight without depression weighing you down.  Love & hugs.

  • rspayne
    rspayne Member Posts: 49
    edited September 2007

    This routine is getting old!!!  This treatment was the worst yet.  After the first two tx.  I had two bad days (day three and four) and then progressively got better each day.  The next tx., I had three bad days.  This time was the worst.

    I got my tx on Monday, and felt like I was on speed Monday and Tuesday.  At least I have learned to take advantage of this situation.  I work furiously because I know that I will soon be worthless.  Tuesday night I crashed about midnight and awoke about 6am, feeling like crap.  The bad taste and cotton mouth would not quit.  It was a bitch to force fluids.  I was nauseated, but not the way where you throw up.  In some ways I wished I could throw up because I felt so awful.  Cheese and eggs were the only thing I could swallow.  I had nasty heartburn despite the fact that I regularly take protonix for reflux, and I was eating tums like my life depended on it.

    For three days, I was tired, but could only cat nap, my stomach hurt and I had an unquenchable thirst.  Finally Saturday I felt somewhat better, but got tired very easily.  I spent Saturday night sacked out watching mindless television.  But finally Sat. night I slept!!!!

    I desire normalcy.  Today I went with my sis and daughter to a nearby town's Fall Festival.  We walked around for about an hour and shopped and stopped for an icecream.  That dip of coffee icecream was the best thing I  have eaten for weeks.  I sure hope that things get better this week, because I am so tired and have so much to do.  Thursday, I go to see my counselor.  I talked to her briefly when I was in for my Neulasta on Tuesday.  She is so helpful and encouraging.  I'm weary and am at the end of my rope.  I just don't know how I'll do this two more times.  It really sucks.  At least the rest of September is MINE!!!!!

    Sorry if I seem unconcerned about the other on this site.  I do care and do empathize, but I just don't have much energy to respond and inquire.  Hope you all are well.  Take care,  Rose

  • liven42day
    liven42day Member Posts: 76
    edited September 2007

    Rose, Sending you best wishes for a much better week or month of September. I also desire normalcy, I think we all just want our lives back. We are almost done, I keep telling myself. I hope your feeling better real soon!

    Take Care Charlene

  • mmcp
    mmcp Member Posts: 69
    edited September 2007

    Got my chemo ladies, woohoo!!!  Half way there! :)  I'm starting Neulasta day after tomorrow also, so hopefully my wbc's won't be an issue again.

  • brst26
    brst26 Member Posts: 155
    edited September 2007

    I completely agree on the "normalcy".

    Margie...so glad that you were able to get your treatment finally...one more down!

    Anybody else have intestinal issues?  I just hurt today...I'm still regular, but it was like I had cramps or something...hmm. I also have issues with weird bleeding (I think it's from the Gemzar)...like every time I blow my nose.

    I ran with my classes a little bit today in PE...we are doing our track unit. My legs feel so weak lately.  I didn't run far...but I did run little bits of the track all 5 hrs.  I think that is the hardest part of chemo so far for me...not being able to do the things that I used to be able to do no problem because I just don't have the energy.  It's hard to describe the fatigue you feel to other people.  One day at a time ladies.

  • figsgirls
    figsgirls Member Posts: 253
    edited September 2007

    Hi everyone. I think I have to join you all in saying I am frustrated and tired and want my life back. Abbey, I can relate to what you're saying - Friday evening DH and I went to do some trail running. I wanted to do 5 min. jog/1 min. walk for 30-35 minutes, but when I got to 27 min. I just couldn't do any more and we walked the rest of the way. I could feel that my legs were tired, and I was really frustrated and told my husband I'm afraid I'll lose all my fitness and never get it back! I am happy that at least I can still do some running, but I hate that nothing is the same. Today I had to see the nurse practitioner before my tx, and we were talking about how I'm feeling and I almost cried when I talked about my running, but she swore it would all come back. So I'm counting on her to be right.

    Then I found out my red count was low - 10.5, so they gave me a shot of something to bring it up. So that's why I had an unusually hard time with my run. Now that my blood is doped, I'm sure I'll be way faster. haha. So I got Taxol #2 today and it was fine, once again. The benedryl makes me tired, but that's pretty much it. The NP said she would give me something to help me sleep but I said no. I just feel like I'm getting so many drugs already. She suggested Tylenol PM or benedryl if I want to try something over the counter.

    I got laid off from my job (school counselor) at the end of June and now I'm glad because I don't know how much use I'd be these days!

    Rose, are you doing A/C now? My 3rd and 4th were definitely harder, too. Will you have Taxol after? If so, take heart - it really truly is easier. No nausea, no funky stomach, no eating issues. It has been a breeze so far compared to the A/C. The only thing that bothers me about the Taxol is that it makes my eyes water all the time. But I'll sure take that over the nausea and headaches I had on A/C.

    Abbi - I really really really hope Celexa works. I took it several years ago, too, and it worked great. And read the above message to Rose about the Taxol. IT REALLY IS EASIER!!!!Smile

    I am going to end this post with something positive. My 20 yo. daughter is my ride to tx. and it has made it so much better. She gets us lunch and we eat and chat. We've always been very close and I find myself thinking how pleased I am with the young woman she's become. Of course, I pray every day that this doesn't happen to her.

    And my hair is growing back. very slowly. Boy I can't wait to have hair again.

    HANG IN THERE EVERYONE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

  • figsgirls
    figsgirls Member Posts: 253
    edited September 2007

    Margie, I forgot to say I'm glad you were finally able to get your tx. Hooray! Here's hoping the Neulasta keeps you on track from here on in.

  • lori5
    lori5 Member Posts: 75
    edited September 2007

    Hi ladies

    I can't believe all you girls that run.  I can barely walk around the block.  Chemo and me are just not a good match.  I did make it to by daughters parent/teacher confererence tonight.  It was really hard to go it seems like everyone was starying at me and I was the only one without boobs or hair.  When I got home I had a little pitty party for myself and my dh said at least you had the courage to go.  My daughter came up to me halfway though put her arms around me and asked if i was still ok.  I am so glad you guys are here for me to talk to and read about your experiences. 

    Hugs and Prayers

    Lori

  • LottaQuilts
    LottaQuilts Member Posts: 212
    edited September 2007

    The Lexapro is starting to kick in a bit.  Yesterday I actually had moments when I wasn't totally depressed and overwhelmed.  I know it'll take a couple weeks to totally kick in and THAT will be wonderful.  As good as I felt yesterday, I'll be feeling even better.  Gives me hope.

    Xanax is also my friend.  I've been having sleeping problems lately, waking in the middle of the night in a panic and not being able to go back to sleep.  Then of course, I'm a zombie in the day only adding to the depression.  My onc. didn't want to give me a sleeping pill so soon after starting the Lexapro.

    Someone on another thread suggested taking 2 Xanax instead of one at night (Duh... why didn't I think of that).  Tried that last night and slept great.  Woke up at 3:00, but was calm and went right back to sleep until the alarm went off.  And I feel soooooo much better after getting some rest.

    I think the thing I worry about most with the Taxol is the Decadron I have to take the night before/morning of.  5 pills each time.  Not only will I be wired all night, I'm afraid they'll make me sick. My biggest problem with any drug is always nausea.  I guess I can always take a compazine if they make me sick, though....

    See.... I think things through too much.  That's why I get myself so stressed out.

    I was talking to my mom's neighbor (a many year survivor) the other day.  She said he doctor told her from the beginning to not read anything about BC, etc.  He'd tell her what she needed to know.  She says to this day she doesn't read any articles on BC or anything.  Keeps her sane.  I guess I'm just not that personality.  I have to gather ALL the information I can.

    I can't believe you gals run either.  Of course, I was never much of an exercise person.  But most days, just getting through the daily chores is all I can handle.

    Have a great day ladies..... we're one day closer to done!

  • rspayne
    rspayne Member Posts: 49
    edited September 2007

    Hi Figs,

    I am currently doing Taxotere, cytoxin, and Adriamiacin.  Two more to go.  I will have Rads after chemo, and also 5 years of Tamoxifen.  I am sooo tired.  Today I am off to the Doctor's for a blood count.  The way I feel, something must be very low.  I try to get in my walks, but it is a struggle.

    I know what what you are saying about being with your daughter.  While she was home this summer, she took me for my treatments.  I now drive myself, but she has a break between classes, so she picks up lunch and comes to the oncology center and we spend her break together.  Daughters are such a blessing.  Having her there to spend time with me is such a blessing.

    She just turned 21, and is a college senior.  She is in ROTC and will be doing 4 years in the military when she graduates, and I will miss her immensely.

  • brst26
    brst26 Member Posts: 155
    edited September 2007

    Wow...I was really proud of myself today at school.  My kids were running one lap of our cross country course (1.5 miles)...I ran/walked it with them for 3 of the hrs...I think I am going to be sore tomorrow.  I hoped to do it with my 6th hour also...but I knew that I was too tired to do it again...I know my limitations.  I feel pretty darn good this week!  And I don't have treatment again until Sept. 27th.  Off to go help coach a swim meet at my school.  Ladies, take care...you are all in my prayers.

  • TINAMAE
    TINAMAE Member Posts: 106
    edited September 2007

    Well ladies, I just had my last ac on Monday and I can tell you this was the worst one, I dont know if its because they gave it to me even though my hemoglobin was way down or what , but I dont know if I had one more left could I do it or not, After surgery I will be having taxol sure hope it is easier than the ac, can anyone tell me?

    Thanks Tina

  • figsgirls
    figsgirls Member Posts: 253
    edited September 2007

    Hi everyone. I realized yesterday I am officially halfway through chemo! 10 weeks down, 10 to go! Hooray!

    Now, Tina - yes, Taxol is easier! I swear! I know what you're saying about that last A/C. I had a really hard time too. DH said it was really difficult watching me go through it, because of course there's not much he can do to make it any better. But the Taxol is better. Earlier I said my eyes water all the time from it, but today they're not, so go figure. Although I'm tired today. I went to sleep OK but woke up pretty early so I'm going to try to get a nap in this afternoon. Trying a Pilates class tonight - we'll see how it goes. I wanted to run yesterday evening, but when my husband came home I was napping so he talked me out of going, suggesting that perhaps I was overextending myself. Maybe he's right. I worked so hard to get my level of fitness where it was pre-BC that it's really depressing to see it all fading away. Hard to believe it will come back after chemo is over.

    My cousin came by today with some books about nutrition and alternative kinds of stuff, specific to cancer, that she had from some classes she took (she's an RN) so I'm going to check them out.

    Abbi- great to hear that the Lexapro is starting to work!!!!!!! And the Xanax is helping you sleep. I have a friend who's been taking Xanax for anxiety for years and she swears by it.

    And to Lori and the rest of you with younger kids, you are the ones I admire! And those of you who are going to work through all of this! That is way harder than getting out for my little jog/walk thing a couple of times a week! I often think that if I had kids to take care of or if I was still working, I would be really exhausted.

    And when your husband said at least you had the courage to go to the thing at your daughter's school, he's right. Sometimes I hate the thought of going out to the store even, because I feel like people will be looking at me, feeling sorry for me, or whatever. They look and then they look away really fast, KWIM?? And I've avoided more than one social function where there will be a lot of people either that I don't know or haven't seen in a long time because I don't want to have the conversation about my BC. And I don't feel particularly interesting lately since my whole life pretty much revolves around treatment.

    But, this weekend one of my very dearest friends will be in town for a visit and that will lift my spirits. And my daughter tells me she loves me every single day, so at least a little good comes out of all this. You begin to appreciate what you have a little more. Oh and yesterday my husband was telling me about a woman he spoke to while at work: He is a personal injury attorney, and the woman had called because she wanted to file a medical malpractice suit. She had just been diagnosed with BC, but she had had clear mammograms for a number of years (just like me!). She was very upset so after telling her she really didn't have a case, DH spent a long time talking with her about her diagnosis and shared a bit of my story (he is a very nice lawyer!). She didn't even know what kind of BC she has, so he encouraged her to have a long talk with her surgeon and to bring someone with her to listen as well, and to visit this website! Hopefully he helped her a little.

    Anyway, wish me luck at Pilates tonight! I'm going to nap now in preparation........

    Donna

    P.S. Abbi, good luck with the Taxol tomorrow. And with the Decadron tonight. I'll be thinking of you.

  • mmcp
    mmcp Member Posts: 69
    edited September 2007

    Hi ladies!

    Quick question for anyone doing Taxotere - what have you found the side effects like?  I'm told there's less nausea than FEC or AC, but I know it's different for everyone.  Also, what does the Neulasta or Neupogen do to you?  Is there much pain & fatigue involved?

  • brst26
    brst26 Member Posts: 155
    edited September 2007

    Taxotere makes me tired...that's my only side effect really.  I've had no nausea with it (I do take my anti-nausea drugs for two days afterwards).  Side effects from Neulasta can be achy bones and joints....again, I haven't experienced that either.  I bet you will tolerate them both really well too with your age.  Everybody is different.

  • mmcp
    mmcp Member Posts: 69
    edited September 2007

    Thanks Abbey, I hope I do ok on them.  When do you start on the AC (that's what you're doing next right?)  Great job btw on running with your students!  You're doing so well keeping up with such a physical job through this!

    Update on my little guy, he's feeling much better.  We had him to the dr. today for a follow up after the pneumonia & he's doing much better.  Thank goodness!  One less thing to worry about.

    I went in to my work today to help shave a few heads.  A girl offered to shave hers if we raised over $5000.00 for the Run for the Cure, and we did it!  She had hers done, then two of the guys decided to join her for moral support.  It was pretty great, she made an extra 150.00 on charging people to take a turn with the clippers.  Pretty cool! 

  • brst26
    brst26 Member Posts: 155
    edited September 2007

    I have one treatment left of Taxotere (Sept 27th)...then I start A/C Oct. 18th.  I'm nervous for that...it sounds like it's going to be worse.  I've decided to start taking the Fridays after treatment off to recover a little more.  It was pretty hard to go teach the next day on my last treatment. 

    That's awesome on how much money you guys raised!  Also, good to hear your son is doing better.  How old is he?

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