Hormone therapy vs natural

Options

Hi - I am new to this group - diagnosed with invasive ductal carc. in April.  I am pre-menopausal, cancer was ER+, had lumectomy (nodes negative), no chemo needed, now finishing radiation.  The next step would be Tamoxifen, yet I am reluctant to take it due to side effects, effect it has on the body long term, etc. I am considering taking supplements (IP6, SGS, flax, etc) and staying on a breast cancer diet instead of Tamox.  Yet, I also am concerned about not taking Tamox due to the fact that Tamox has been studied and proven to decrease risk of recurrence, while other supplements have not been through such rigorous studies.  Has anyone else gone through this decision with similar thoughts?  What did you decide?  Thanks for your input.

Comments

  • JoanofArdmore
    JoanofArdmore Member Posts: 1,012
    edited September 2007

    Sonrisa, excuse me for being blunt, but be glad you're young enough to take Tamox!The AIs give SEs that actually make life a living hell!They stop all supplimental estrogen(what we make AFTER menopause) We LIVE from that supplimental estrogen.It makes us hear, see, smell, taste, not have arthritis, have decent memory, have energy..

    Without it--quality of lie is VERY low.Yet we take it because it WORKS.Although many refuse it, in favor of QOL.

    Tamoxifen, on other hand, simp;ly blocks the estrogen receptors in the breasts, preventing recurrence.

    Take it, Girl!It's easy, and it works!

    Should you actually be one of the few who have unacceptable SEs from Tamox, you can always stop and take the natural suppliments.

    And the bc diet cant hurt anyone, on hormone therapy or not.

    Good luck!Be happy!

    Hugs from old Joan, croaking after 3 amd 1;2 years on FemaraFrown

  • roseg
    roseg Member Posts: 3,133
    edited September 2007

    I usually tell people to try it.

    If you had early stage disease -no nodes, small tumor- you're lucky.

    If you absolutely hate tamoxifen then discontinue it knowing you tried it.

    If you can live with it, and hot flashes are what most people suffer, then you'll know you're doing the right thing. 

    It takes around 6-8 weeks for it to build up to thearaputic strength. Most side effects diminish after 6-8 months. So try it for a year. If you are miserable then, then quit.

    But you can't be sure you won't like it. 

  • Urbie
    Urbie Member Posts: 154
    edited September 2007

    Sonrisa, I too will begin taking Tamoxifen very soon and have my concerns about the side effects, but the data is out there that it decreases recurrence considerably.  I will give it my best shot and pray for the best!  I meet with my Onc. next week to discuss next steps and I am fairly sure that I will opt out of Chemo and just do Tamoxifen.  I am basing this decision on my Oncotype DX score and all of the women for these trials have been on Tamox.  And, I think that my BS is the best doctor in the whole world and he says to do it - so I will.  Good luck!!

  • georgie
    georgie Member Posts: 2
    edited September 2007

    Hello, is anyone out there?  I have not done this before.

    I am a nutritionist and natural therapist and was horrified to find out i had breast cancer.  I asked "How could it have happened to me when I look after myself so well?"  I'm over that now!

    The first thing I did even before I had the cancer diagnosis, was to begin natural hormone reduction treatment. 

    You can have your good and bad estrogen levels checked through a urine sample.  They are supposed to be 2:1, good:bad.

    When I first had them checked they were 1:1. 

    After natural treatment I retested and found that I had over done the natural treatment.  The ratio was 6:1.  Being really please, I have been able reduce the natural medicine.

    Personally I would never take any artificial hormone treatment.

  • Lhunhen
    Lhunhen Member Posts: 96
    edited September 2007

    Georgie,

    Could you tell me what natural hormone reducing things you have done.  I would be very interested.  I too have been doing the natural way to reduce hormones.  It's a personal decission that I made and feel so much better for it.

    Cathy 

  • senorita
    senorita Member Posts: 3
    edited September 2007

    I made this decision also. Yes, you are lucky chemo wasn't needed and nodes were negative. One of my 3 sites was Estrogen+, so I was prescribed Tamoxifin.  After a couple months of my own research, I decided not to take Tamoxifen and go the natural route.  I have been taking Organic High Lignan Flax Seed oil every day. This also naturally binds the estrogen, and it has positive side effects. I will probably take this the rest of my life. If you "google" benefits of flax seed oil with relation to breast cancer, you will find lots of good information. I found that Tamoxifen is good only for Estrogen+ cells and has many negative effects. Please do some research so you feel comfortable with your decision.  I hope this helps.

  • Rosemary44
    Rosemary44 Member Posts: 2,660
    edited September 2007

    Well there are an entire list of things to eat and take, but because you had an invasive cancer you might want to think about taking tamox a little more.

    By the way, they say that diet doesn't work but you have to go with the research that was done for individual foods cause you really want to give yourself the best chance of success.  Here's the list:

    Calcium

    Magnesium

    B6 - low dose

    Vitamin C

    co Q 10

    D3 1000-2000 IU's

    Vitamin E TOS

    omega 3 fish oil

    ellagic acid

    grape seed or grape leaf extract

    resveratrol

    DIM or eat dim veggies.

    2 tbls of olive oil daily.

    turmeric/curcumin

    Don't supplement A, B1 and B12.  Hopefully, you'll get plenty of these vitamins in foods anyway.

    You'll have to drink a berry fruit smoothie every day or so, w/ 1 tsp of cinnamon, for their antioxidants.  It will be good to know the list of high antioxidant foods, it's good be eating them alot.

    ground flax seed 2 1/2 tbls daily

    cranberries, craisins

    broccoli

    spinach

    cauliflower

    fresh ginger or ginger powder

    kale

    broccoli sprouts

    barley grass and seaweed, I forgot the name of the other grass.

    melons

    avocado

    apple

    radishes

    bok choy and cabbage raw

    for dessert: dark chocolate 72+% cocoa

    Try to do as much organic as possible. 

    Then you really should give up meat and all white anything:  bread, pasta, and rice replacing them with brown.  Eating fish, because of the pollutants, should be kept to a minimum.  Wild salmon might be a better choice if you like, or any small fish like sardines.

    Eating high fiber 25-35 grams a day supposedly helps to escort the estrogen out of our bodies. 

    Juices:  pom, cranberry, concord grape.

    caffeine is still ok to do

    green tea 2-8 cups daily

    That's the short list of things to eat and take.  I'm sure there's more, but it's from memory.  Or, you can just take one tamoxifen daily.

  • sonrisa
    sonrisa Member Posts: 10
    edited October 2007

    Hi everyone,

    Thank you so much for your input.  Your comments and stories from your own experiences have been very helpful.  I am still in the decision-making process.  I'll be seeing a new oncologist this week.  I am sure she will recommend Tamox, but it will be good to hear the reasoning, the statistics, etc.   Senorita, I have had similar thoughts, as far as the flax binding to the estrogen receptors like Tamox.  If something natural without side effects does a similar work in the body, that really appeals to me.  Thanks, Rosemary for all the dietary info, and thanks to each of you who suggest taking Tamox.  It is a good point that it is pretty low-risk and worth a try.

    So many big decisions in this journey . . .

    Grateful to all of you,

    sonrisa

Categories