Do you remember your first post?

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newter
newter Member Posts: 4,330
I was trying to remember what finally caused me to de-lurk and post something. From what I remember I think I asked a stupid question regarding Muga scans and Adriamycin (sp?).

I did not have the guts to post until after I was done with chemo, I might even have been done with rads too.

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007
    I lurked for about 2 months because I was terrified to join this 'club' and make the cancer even 'realer' than it already was for me. But desperation led me to ask a question I dreaded and I asked if there was 'anyone out there' who had had a positive lumpectomy experience and not needed to go on and have a mastectomy. Well, women seemed to come crawling out of the woodwork and over 50 responded with positive, upbeat stories of their experiences. I was overwhelmed with relief and gratitude! And I was hooked on this site. Now, y'all can't shut me up!

    ~Marin
  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007

    I posted as soon as I found this board. I'd just been diagnosed and was absolutely terrified. I spent a lot of sleepless nights here and I can't even begin to put into words how much support and comfort I found. I remember one of the first threads I read was one of those "I hate pink..." topics just when I was feeling especially angry at pink ribbons.

  • sjoc
    sjoc Member Posts: 133
    edited September 2007

    I didn't post until after I was done with tmt. either. Didn't really want to be a "member" of the club. I don't post often, but am always grateful when I have a question how quickly everyone responds. I read posts almost daily and actually feel like I know some of you personally,really an amazing grouop of women (and a few men, too).

  • junie
    junie Member Posts: 1,216
    edited September 2007
    bc.org didn't exist when I had my treatment--surgery, chemo, rads--but, I had a question about Tamoxifen and backed into this wonderful world of cyber sisters! I've met so many of you in person at various get-togethers, and I don't post a lot these days, but I read as often as I can to keep up with what's going on.....even now, I learn something new every time I access the boards.

    hugggggsssssss to all
  • fd411
    fd411 Member Posts: 398
    edited September 2007
    I was desperate!

    I was up at 2am after my first neulasta shot in some serious pain.

    The women on the board told me it was common to have this pain. I was very relieved to read that, and had a standby vicodin prescription all ready for the next time.

    Thank you ladies!
  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007
    Yes I remember it was almost a year ago now...I had just been dx'd two or three weeks prior...I was so very scared and didnt want to talk to my family about how terrified I was...I found this web site and you ladies here helped me so very, very much!!!!!!

    I cant believe it has been almost a year...
  • newter
    newter Member Posts: 4,330
    edited September 2007
    I was dx'd in Jan 06. Found this site in the summer of 06 but was way too freaked out to post. I would only read the Inspirational Stories thread. Finally, I think I finally started branching out and posting after the new year.

    This board has been a godsend to me. I have learned so much and "met" so many wonderful supportive women. I would love to meet someone in person some day.
  • MargaretB
    MargaretB Member Posts: 1,305
    edited September 2007
    I believe I found this site right after diagnosis and it didn't take me long to post. This site was a godsend to me as well. I hope I can give back what I got from here. Newter, I have been able to meet a few in my area, and it's been great.

    Margaret
  • badboob67
    badboob67 Member Posts: 2,780
    edited September 2007
    I found this site right after discovering my lump in September 2005.I lurked and I waited until January 2007 to make my first post. I had just received my first lymphedema wrap and was freaking out because it HURT and there was no one in the office. I thank God for this site and the wonderful, caring, and helpful people here. I have learned so much and received so much support. I still marvel at how most of us have never met in real life, but are able to share so much and care so much for each other.

    (((hugs))) and prayers for all my sisters!
  • nowheregirl
    nowheregirl Member Posts: 894
    edited September 2007
    Although I had to do 2 days worth research, I was lucky enough to join in here a couple of days after I was dianogsed.
    I still do remember my first post. Even though I knew every woman on this site had the same disease as I did, it took me a lot of courage to hit the submit button. I was really afraid that I wouldn't be welcomed and that I wouldn't make sense as it appeared that I was the only one that was from Japan and didn't have English mother tongue. But I was betrayed in a good way. So many women reached out to me and responded to my post. My thread went 2 pages and no one ever made me feel isolated. You just never know how much that helped me.

    Hugs,
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited September 2007
    Yes, posted on 11/11/05 on chemo Nov 05 thread. And I'm still there! I love my sisters, and had no idea what I was about to go through.

    They held my hand, and still do

    Here is my post.....

    I had my port put in today. I will start my chemo next Thursday. I had a RMM on the L breast. I had a lot of drainage problems and had to have a home nurse for a few weeks.

    I'm going to try and work while going through this. I'm a people person and have been off work for six weeks now. I seem to obsess to much when I'm alone.

    I'm very glad to have found this board, and will update as I go.

    Thanks to all of you who have come here to share with others.

    I hope to make some friends here as well.


    Boy did I make friends!
  • livesstrong
    livesstrong Member Posts: 1,799
    edited September 2007
    I remember as well. I started treatment in October '06 and there was an October thread in the Going thru Chemo forum. It was a God send. Unfortunately, that thread disappeared into cyperspace. But most of us still post and we have planned a meeting in NYC next May!! To think if I didn't have the guts to post I would have never met these ladies.
    These boards are great!!

    Valerie
  • Shirlann
    Shirlann Member Posts: 3,302
    edited September 2007
    It has been so long ago, I truly don't remember what I said. But it was funny, one of my posts was to the famous Marci Beth, she is an executive director at CBS working on the Early Show. Well, somehow, and neither of us knows how, she got the message in Chinese. She PM'd me and said she did not speak Chinese. I was horrified and wondered if I had said something rude or racist or what.

    Of course, me dearest Fumi-san is very dear to me, FitChik, and so many more. Oh, Alaska Deb and Sierra. Too many to list, I wish we lived in a smaller country so we could see each other.

    Well we became fast friends and I have seen her twice in New York and she calls me her cyber-mom. Her real mom and I have the same birthday! Talk about coincidences.

    I have found so much help, love, compassion and tenderness on this board, I would be lost without it.

    Gentle hugs, Shirlann
  • iodine
    iodine Member Posts: 4,289
    edited September 2007
    I came here after I was dx'd by US and mammo on a Fri, bx'd the next Mon and told on Tues that it was bc, and scheduled my mast/recon for the following Fri. On that Tues at noon, I registered and was met with open arms.
    I don't remember what I said, but Lordy, I had been reading everything here all weekend and had already made up my mind about the mast.recon before the surgeon called because of the great info on this site.
    I've left a couple of times to take breaks, but always come back. This place has literally saved my life. I remember when I thought I had colon cancer, too. I posted: I don't want to play anymore. Everyone convinced me that I must contine to play, it was worth it. I am forever grateful.
  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited September 2007
    Yes, I am no stranger to chat boards. I was already searching the internet for everything I could find before I even had my biopsy. I had calcifications.

    My header was "Room for one more?".

    I received such a warm welcome. I felt so much more prepared than anyone I knew.

    Janis
  • myrenewal
    myrenewal Member Posts: 203
    edited September 2007
    My first post was on You Will Not Believe This, which is women telling their chemo-brain stories. Made me laugh many, many times and I finally got up the nerve to post. I was so sick during chemo I never posted but often came to the boards for the information all you wonderful ladies post and to feel less alone.

    In fact - I think I will bump up that thread again - maybe it will cheer someone else up today!
  • Blundin2005
    Blundin2005 Member Posts: 1,167
    edited September 2007
    ohhhhh it was "going through radiation therapy" and "campnukemboobie" class of Nov/Dec '05. I had long been lurky, reading, learning all that I could from this and other sites ... but when I found the courage to write my first post, I was greeted by so many wonderful women, helping, caring.

    Common answers were "sorry that you needed to find us...." how true these words then and still are ... but in fact, I'm so happy to have met so many women who I know only by their "handle" but more deeply than I know some of my own family now.

    I've been up and down the scales with this process .. but I hope that I'm able to give to someone else, all that I received from others here.

    Salute tutti!
    "Never run faster than your guardian angel can fly"
  • rumoret
    rumoret Member Posts: 685
    edited September 2007
    Actually I found this site.....read everything.....bookmarked the thread that was beginning TAC treatment in the summer of 2006........AND THEN AFTER CHEMO BEGAN....TOTALLY FORGOT ABOUT MY (TAC thread)! So when I got out of the hospital in September 2006 I clicked on this site and found my TAC thread that I had bookmarked........I was going to share my experiences along with everyone else receiving TAC that summer. So after reading the entire TAC thread.......I began to post. I do not remember what I said...but I hope that it was helpful for someone.

    Love,
    Terry

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