I am starting chemo in July 07. Anyone else?

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  • gshoemate
    gshoemate Member Posts: 190
    edited August 2007
    I thought I made a good decision about not doing a wig. It just didn't fit in. I live in Florida and it's bad enough that I have head sweats, I couldn't imagine wearing a wig in this heat. We do alot of swimming and going to the water parks and a wig just didn't seem like a good idea. And my co-workers have been very supportive so I go to work with nothing on (work in software tech support and my headset would just get tangled in a wig). However, last weekend I had a meltdown. I went out shopping and almost decided on getting a new kitten at the local PetSmart. They looked at me oddly while I was there playing with the kittens (it was probably all in my head) then I started thinking about maybe they wouldn't let me adopt because it was odvious that I was going through chemo, then it just spiraled from there. I went to Wal-Mart and then the grocery store and just felt like everyone was staring at me. I wear a bandana and a hat when I go out shopping and I either get people that stare at me or that do the quick look and then look away and don't make eye contact. Every once in a while I get someone that will smile at me, but not very often. So now I feel awkward when I go out shopping. My husband thinks maybe I should try a wig just for going out and about and then go bare when I feel comfortable.

    Sorry, I don't know the purpose of this message but to vent. I thought I was going to be so strong for this and go out and be bald to show the world that this is real, this is happening and we need to find a cure. Now I feel like a failure because of my own hangups. Maybe the taxol is effecting my mood more then I thought:(

    Thanks for listening
    Ginger
  • mmcp
    mmcp Member Posts: 69
    edited August 2007

    Sweetie don't think you're a failure if you get a wig!!! I just had an almost identical experience to yours the other day and went & bought a wig. I don't wear it all the time but now I have it for days I don't feel as strong. Many people wear them throughout and I don't think they are any less strong than someone who never wears one. You need to do what's best for you.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    Hi Ginger

    I thought I would never go anywhere without my wig. I didn't even want my dh to see me without it. However I live in Los Angeles and in 100+ temps it's just too darn hot. I do wear it to the Dr and stores but 99% of the time it's my bandannas. The way I tie it, no one can see my bald head, at least I don't think they can.

    The other day I wore my wig to the Dr and had the bandanna waiting in the car. As soon as I got to the car I tore off that "heater" and put on the bandanna, never giving a thought to who may have seen my bald head. Three weeks ago, I could not imagine ever doing that. In fact, during my last tx (#2) I went to the hospital infusion center with the wig. After they started my IV I went to the ladies room and replaced it with my bandanna. I guess I have some a long way in a little under 3 weeks, from bathroom to the car driving down street in Beverly Hills.
  • gshoemate
    gshoemate Member Posts: 190
    edited August 2007
    Now i'm going through a hormonal breakdown or something....or maybe it was just watching the Crazy Sexy Cancer show put me into a mood. First I want to say thank you all for being here. I couldn't imagine going through this alone. My husband is wonderful but it's just not the same as talking to all of you. Second, I so hope I didn't offend anyone when I said I felt like a failure for wearing a wig. I meant that I personally had a plan of how I was going to deal with cancer, chemo and hair loss and now that plan has gone way off course. I thought I could handle the looks and the stares but find it is harder then I thought it would be. When I was diagnosed I was determined to turn it into something positive. To show people that you can't just turn a blind eye to this. More and more women are diagnosed with this and they are getting younger and younger...we have to do something. I somehow feel that by covering my head up, I am hiding the fact that I have cancer and maybe that young women that I pass on the street won't know what I have gone through and she may put off getting her yearly mamm. because she doesn't have time. I thought if I could just make one person take notice, maybe I could make a differance. So I hope in my vent I didn't offend anyone.

    Ginger
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    Ginger

    I am proud of you and wish I could be as brave. I am getting a little more nerve, I did turn the water on in the front yard without a wig or bandanna. I know that doesn't sound like much but it was for me.

    I hate for my dh to see me without at least a bandanna, but he appears not to care if I am bald or not. (Funny because I was getting a little concerned about him losing his hair prior to losing mine. Now it sounds so silly and unimportant.)

    Has anyone made a comment to you when you were not wearing your wig? It does give us an opportunity to talk about BC or yearly mammos. I did that at my dentist's office. I told 2 or 3 of the women working there to make sure they did their monthly self-exams and get yearly mammos. Hopefully by doing this, we can save someones life.
  • lthigpen143
    lthigpen143 Member Posts: 45
    edited August 2007
    Please don't worry about offending us. This is a safe place to vent. We are all going through similar experiences but are dealing with these in our own ways. Every path is different and it helps me to see your path even if it is not the same as mine.
    Actually, I am struggling with baldness outside the house.
    I am mostly bald inside. The kids think nothing of it and I am single so no hubby to consider (although I would hope that I felt comfortable with him seeing me bald). But, other than watering the lawn once I have not gone bald in public. I have always thrown on a scarf or hat. I kinda like my head and am not depressed about it but I like my wig and scarves so....
    Don't judge your choices. You are doing a great job and don't need to feel badly that your way of dealing is different from someone else's.
  • diag061307
    diag061307 Member Posts: 14
    edited August 2007
    Hi--I tried to watch that "Crazy Sexy Cancer" show, too, but turned it off after about 10 minutes. It just wasn't what I expected, and was way too depressing. I had my third AC treatment on Tuesday and I gotta say, so far, so good. Because my last treatment gave me such a bad reaction, this time they switched me to Emend ($$$$$$$). I took it Tuesday, Wednesday and this morning, and I'm also taking some sort of Ginger pills (or placebos) as part of a drug study. I was a little nauseous last night so I took a compazine just to stay ahead of it, and so far I haven't thrown up once this week, and more importantly, I haven't had a headache yet. At this point I'm walking on eggshells thinking I'm going to get sick any minute, but I gotta say, if that Emend is what's making the difference, then I'm glad he prescribed it. I don't leave the house without ginger ale, ginger tea bags, pepto bismol tablets, ativan, anti-depressants and water. The inside of my purse looks like a pharmacy! As for alcohol, I still had a taste for it up until a week or so ago, but haven't had anything since. My stomach's way more sensitive at this point and I think a beer or two would be pushing my luck now.
    I'm now halfway through chemo, with 3 treatments left to go. I'm hoping that the Emend is gonna turn things around and I'll get through the rest of the treatments feeling the same way I've felt the past few days.

    I hope everyone else is also feeling well. Have a good day!
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    Diag061307

    I received an RX for Emend on my last tx (#2) and it helped a lot, the only issue was convincing my insurance to pay for it. My dh was still fighting with thme as we were driving to the hospital for my infusion. Finally they gave in, and said pick it up at 3:15 and my chemo was set for 3:30! (it would have cost us almost $600 for 3 pills, so without approval I would have gone without). Tomorrow is tx #3, final one before surgery. I have changed my onc and my new one ordered the first dose of Emend to be added to my IV, then gave me the two other pills....I wish I had started with him. He also told me there is a special Zofrain that can be put into the IV and lasts for 6 days. He will be giving me that also. I hope these two knock out the nausia for this tx. I discovered a new lump, under my arm, yesterday and the thought that this chemo may not be working in of itself, is enough to make me vomit.
  • diag061307
    diag061307 Member Posts: 14
    edited August 2007
    Hi, Jean--I'm so sorry that you're going through the discovery of a new lump at such a horrible time. I'll definitely keep you in my prayers and hopefully it will be just a swollen gland or something--maybe something brought on by the stress of the whole cancer thing. I'll keep checking for your next post to make sure that everything turns out well. As far as the Emend, I have to say that the amount that they charge for that drug is insane. It should be agains the law to charge hundreds of dollars for three pills. I'm so fortunate to have health insurance. Even the $40.00 copayment was a stretch for me, but if I had to pay the full shot, I'd probably be on my way to bankruptcy court when this whole thing is over!

    Good luck with everything, and please be sure to post again with an update.
  • lthigpen143
    lthigpen143 Member Posts: 45
    edited August 2007
    Jean, Please keep us updated. My thoughts are with you.

    Ammend - I have had it from treatment #1 and I have had no vomiting and no real nausea. I can't be sure that these are related. I have taken an anti-anxiety pill a couple of times (4) during these 3 treatments so far when I felt like I may be feeling a little queezy but it never turned into anything more.

    I was told that if you have been pregnant and had morning sickness, it is more likely that you will have the same probs here. I had none with child 1 and mild & brief with child 2.

    For what all of that is worth.

    And I will drink tons on chemo days and those following and get up every two hours to pee that stuff out of me. I do this for the first two nights and then get up every 3 hours for the next two. I drink a glass of water every time I get up. I think this helps flush the stuff out and I don't like the idea of it sitting in my bladder.
  • lori5
    lori5 Member Posts: 75
    edited August 2007
    hi ladies!

    I had my second tx a wk ago mon. and was really wiped out for the whole week took my temp and it was 100.5 (wow) call the onc and went in the next day they put me in the hospital (that is where I am now) my boob with the tissue expander is infected. my wbc is too low to due surgery so I am on antibotic drips every six hours and getting those shots to bring your wbc up everyday (oh the leg pain). My pc doesnt feel comfortable doing the surgery until mon or tues. when my counts are higher so I have to stay here. I was so excited today when I found there was a computer I could use because I really was missing the daily reads on here you guys give me so much strengh! I don't post much but I am always reading what you guys are up to.
    I'll keep you informed on my progress

    hugs and prayers
    lori
  • LottaQuilts
    LottaQuilts Member Posts: 212
    edited August 2007
    (((Jean))) Sending positive thougthts your way. Keep us up to date.

    Good to hear you Taxol ladies are doing pretty well.

    I've just come home from my LAST A/C !!! Happy dance, Happy dance. So I'm enjoying a couple hours of steroid high before the nausea hits. I'll be pretty much down until Sunday/Monday. So much for my exciting Labor Day weekend!

    My Onc told me what to expect with weekly Taxol:

    Possible mild nausea (nothing compared to the AC)

    Sleep problems from the steroid. They start me out the a huge doze the night before and morning of and then taper it off after a few weeks if it seems I'm not having any reaction.

    Tingling in the fingers and toes. Joint pain (this is from the steroid he says, not the Taxol itself)

    And the good one...... my hair should start growing back. But he says it'll be purple (ha, ha, doc). I told him I could care less what the hell color it is. I JUST WANT HAIR!

    Alright.... I'm off to drink some more water so I can pee pink and get this crap outta me.

    Abbi
  • figsgirls
    figsgirls Member Posts: 253
    edited August 2007
    I just typed a long post and it disappeared. So here we go again: I finished my A/C on Monday! HOORAY! No more A/C, no more Neulasta! No more expensive Emend! Gingre, I'm really glad to hear you've found the Taxol easier to deal with. I will start the 12 weeklies on Sept. 10. The nurses and the onc. keep saying it will be easier. Boy do I hope they are right. They said I need to have somebody drive me because of the benedril (sp?) they will give me, so my DD arranged her work and class schedule to have Mondays free so she can be my driver. She's a pretty great kid, by the way.

    As happy as I was to be finished with the A/C, that bottle of celebratory champagne I wrote about in my last post still sits unopened in the fridge. I just didn't have the desire for it. Maybe this weekend I'll feel more like it. Right now I'm cooking some bowtie pasta for lunch. I, too, have the white food thing going on. Toast, pasta, cereal, crackers, pancakes, etc. And flavored seltzer water.

    Hey, my hair has started to grow in already! When I go to put on a scarf, it makes the scarf stick like velcro!

    Jean, I'll be hoping and praying that your lump turns out to be nothing. Please let us know.
    And Jane, good luck with managing your tx and teaching. I was a high school counselor until my position ended in June and I really wonder how I would have managed to work and do this chemo. Each tx finds me more fatigued.

    Have a great long weekend ladies. I think I'll be spending mine resting............. Boy I can't wait until December when this whole chemo thing is behind me!

    Donna
  • Gagal
    Gagal Member Posts: 42
    edited August 2007
    lori5, so sorry to hear you're in the hospital hope your counts go up soon.

    Jean, sending happy thoughts your way.

    Hope everyone has a great weekend.

    Pat
  • liven42day
    liven42day Member Posts: 76
    edited August 2007

    HI Ladies,
    I am with you on the fatigue, it is cumulative.
    Lori I am so sorry to hear you are in the hospital, get well soon! I hope all goes well for you, your in my prayers.

    Abbi congrats on your last A/C, I am hoping you get through this one better than last time.

    Figs Hooray Hooray on your last A/C!
    I have my last A/C same day you start Taxol, Good Luck Girl!, they still have me signed up for 4DD Taxol, i wonder why they don't consider 12 x taxol since I am trip neg.
    Champagne for all if you feel up to it!

    Oh well Ladies we are all getting through this, Chins up and keep moving forward! SOunds good!.......Take Care all Have a great long weekend Charlene
  • Gagal
    Gagal Member Posts: 42
    edited August 2007
    liven42day,

    I'm trip neg also, and just had my first DD Taxol, I talked with the Doctor before my infusion about 12 x taxol, and he wasn't budging. I tried to find some trials to show it was more effective but he wasn't convinced. Good luck with your treatments, and cheers.
  • lthigpen143
    lthigpen143 Member Posts: 45
    edited August 2007
    I had AC#3 on Wednesday and I am still feeling ok because of the dex and Amend. I finish with all of that today so expect to sink tomorrow and stay down for 5 - 7 days. But it seems a little better this time than last (did I dare say that out loud?!) ONE MORE AC!!!
    Abbi and Figs - I am SO happy for you!
    Lori - how are you doing? I am so sorry for your set-back. Please know that we are all thinking of you!!!

    It seems like almost all of you are trip neg. I am going the hormone route after the rads. Is anyone else in this group going that route? I know nothing about it other than I am headed there. It has been hard to think past chemo but now that I have just one more, I am starting to look to the rads and hormone steps.
  • jbw3843
    jbw3843 Member Posts: 46
    edited August 2007
    Finished AC #3 on Thursday. I did better than the previous two. First time I slept reasonably well after a treatment. Hope the next few days go well.

    I also feel I get looks when I wear a head scarf. I think I also feel that people at work who know I have a wig on look at my wig when they are talking to me. Maybe it's just me, but I'll be so glad to be done with the bald routine.

    Lori, hope your hospital stay is short and wishing you a speedy recovery.

    Jean, sending prayers and caring thoughts your way. Hang in there.

    Yes, teaching is tiring, but at least I have Labor Day off to help with recovery from AC #3.

    Hormones? Yes, I will also do them after rads.

    Congrats to everyone for getting through their treatment this week and next.

    Jane
  • figsgirls
    figsgirls Member Posts: 253
    edited September 2007
    Lori, hope things are coming along for you and that you'll soon be on the upswing.

    I'm ER/RP+ and will be doing Tamoxifen after my Taxol. No rads, as I had a bilateral mast. My onc. also suggested I think about having my ovaries removed if my period comes back within the next year. Apparently permanent menopause is a good thing?

    Enjoy the long weekend everyone.

    Donna
  • diag061307
    diag061307 Member Posts: 14
    edited September 2007
    Hi--Lori, I hope you're home from the hospital, and Jean, I hope you've received good news from your doctor so that you can enjoy the weekend.

    I'm only halfway finished with chemo (3 out of 6 treatments), but I'm starting to panic that my hair might not grow back. Obviously, with 3 treatments left, I'll continue to lose whatever I still have, but I'm having terrible anxiety attacks that I'll be bald for the rest of my life. Also, I'm starting to get dark areas on my nails and skin. Anyone else having these concerns? I know it's all just vanity, and I'm grateful for everything that I have, but every time I look in the mirror I wonder if I'll still be without hair at this time next year!!
  • Harley44
    Harley44 Member Posts: 5,446
    edited September 2007
    Oh Abbi,

    CONGRATULATIONS on your last AC!! How many Taxols will you have?

    Sorry I didn't post before, but this week, I've just been so TIRED!! I had my 2nd TC treatment on Tuesday, and have been alot more tired this time!! Just starting to feel back to normal, I hope...

    But, I am halfway FINISHED!!! YIPPEE!!

    Oh about the hair... will it REALLY be PURPLE?? Mine is coming in WHITE!! TOTALLY WHITE, just like I have been dreading!!

    Hugs
    HARLEY
  • brst26
    brst26 Member Posts: 155
    edited September 2007
    Hi ladies. I started chemo July 26th, 2007. I'm 26 years old and was diagnosed with breast cancer on July 3rd. I am doing 6 months of chemo first, then surgery, then 6 weeks of radiation after that. I am taking part in a clinical study for my chemo. What drugs are you doing for chemo? My first 4 cycles are Taxotere, Gemzar, and Avastin...my second 4 cycles are Adriomyacin (sp?), Cytoxin and Avastin. I'm a high school PE teacher...so I am planning on only missing a half day for treatment every third Thursday. Is anybody else working during treatment? So far my biggest challenge has been major fatigue 2 days after treatment (which works out pretty well since that happens to be a Saturday). I haven't been sick or nauseated. My mouth does get really weird though..almost like extreme cotton mouth for about a week...it makes foods all taste like straw.
    -Abbey
  • diag061307
    diag061307 Member Posts: 14
    edited September 2007
    Hi, Abbey--I started chemo on 7/26 as well. I've had 3 treatments, and have 3 more to go and then I'll do 6 weeks of radiation. I've basically been working part-time since I started chemo, but even that's a stretch. My treatment is Adriomyacin and Cytoxin, and then they give me Ativan and Emend for nausea. Headaches, nausea and fatigue are all big problems for me. I'm usually sick for about 4 days after treatment, but I have to say that I started Emend this time, and it really helped. I'm sorry you've been diagnosed so young--I was diagnosed at 38 and THAT seemed young--I'm glad you were able to start treatment so soon after being diagnosed, though. I started chemo pretty quickly, and even though it was tough to start, it was definitely better that I didn't have a lot of time to think about it beforehand. I'm trying to drink a lot of water and tea every day because of the cotton mouth. I'm really impressed that you're able to work so much during your treatments--all I want to do is sleep!! Enjoy the rest of your summer, only a few days left!!

    Maureen
  • roh50773
    roh50773 Member Posts: 52
    edited September 2007
    Hi folks, I haven't posted for ages but was tempted into doing so because when the Abbey's post appeared on my email it specifically addressed me but I see on the website that you say 'Hi Ladies'. Strange. Anyway, I have been reading the posts but I find that my life has streamlined itself into work, trying to get my 2 teenagers sorted with accomodation etc before they start college this month and trying to get enough rest. Everything else has fallen off my 'to do' list for the present.
    To catch up - I am half way through my treatment and start with taxol next Friday. My treatment has been fortnightly throughout. When I finish the chemo I will be having radiation and then hormone therapy.
    I find I get very nauseated for the first few days after treatment and my brain is just in a total fog. I usually take a day's leave on the Monday after treatment but work is a particular struggle for a couple of days after that - partly because I still feel quite sick but also because my brain is in such a fog - last week I had to ring my husband because I just could not remember how to get to a place that I have driven to many times, it had just blanked itself from my mind. I dread having a crisis on those days because I am not sure that I would make good decisions. What I do is write myself a list just before chemo of things that need doing urgently because afterwards it just fades into a haze.
    I am definitely finding the fatigue is cumulative and that isn't helped by not sleeping - it's 3.10am as i write this.
    A few weeks ago I caught a cold from my husband and it just took hold. Ended up in hospital for a week, having blood transfusions, potassium infusions and all sorts of other treatments. Temperature high, blood pressure low. It frightened me a little - on the day they admitted me and told me I was going to a ward 3 floors below the one I was on I was thinking "how am I going to get there?" Even though my husband was with me I just couldn't imagine being able to walk. Of course they provided a wheelchair but I don't think I have ever felt so incapacitated before. Anyway, I did get better and it didn't throw me off my chemo schedule which I was thrilled about as it would have messed my diary up good and proper. The other issue I am having is weight loss - I hit below 8st a couple of weeks ago which is way too thin as I am 5ft 9ins. I seem to have managed to stabilise through this last cycle which I think is due to me finally recognising that on the sick days I have to abandon any idea of eating at meal times but to just graze whenever I can, even if that is in the middle of the night!
    But to answer Abbey's question -yes, I am managing to work but only by cutting more or less everything else out. I have hired someone to clean the house and forced myself to let go of other things like keeping weeds out of the garden. I usually get home, cook, eat and then go to bed.
    I am so sorry that you have been diagnosed so young Abbey - it does seem particularly unfair - I hope you have good support around you and at least I think youth will be on your side in terms of your body being able to cope with the treatments.
    One final thing - I have found that about a week after the treatment is the high risk time for my mouth getting sore. I have been amazed by how well the salt water mouth rinse works. I got the tip from this board and it is so much more soothing than the mouthwash they give you and seems to have an immediate effect. In any case my mouth has always recovered and never actually developed sores. The whole food thing is hard - I find even when I feel really hungry the idea of food can still be offputting but I have learnt that food nearly always makes me feel better. I never go to work without having some food close at hand - bananas, nuts etc. as if I get to feel that dizzy sick feeling it can fend it off immediately.
    My hair hasn't completely fallen out and although I have to wear bandanas I still have bits of hair poking out and still have something to wash! I bought a wig but it is really uncomfortable and gives me a headache so it's mainly used by my husband to give the kids a laugh - he looks like an aging rock star!
    I wish everyone well through all their trials and tribulations - when I was having chemo last week there was someone there who was having his final session. It hit me that that would be me too in a few months - and it will be you lot too! Can you imagine how fantastic that will feel!!!!
    Best wishes and strength to you all,
    Asia
  • LottaQuilts
    LottaQuilts Member Posts: 212
    edited September 2007
    Coming back from treatment #4. The nausea is gone, but I have anxiety like you wouldn't believe. Even the ol' Xanax doesn't seem to be helping me this morning.

    I'm really worked up over the Taxol treatments coming up - even though they're 3 weeks away. 12 treatments, once-a-week..... kinda freakin' me out.

    Everything I've read/heard tells me it'll be much easier than the A/C, but I'm still all worked up.

    Ever think there's no way you're going to make it through all this?

    BTW, I'm ER+, so I'll be doing the Tamoxifin too.. Onc says we start that about the same time as rads... gee, can't wait!

    Deep breaths, deep breaths.....

    Abbi

    (now we have and Abbi and an Abbey.... that should confuse things pretty well in our little chemo-brains, huh?)
  • brst26
    brst26 Member Posts: 155
    edited September 2007

    Hi Maureen...thanks for writing to me! Since I am having Adrio/Cytoxin next...would you mind telling me what you experience with those drugs? Are your treatments every three weeks? It sounds like my next drugs will be worse than the ones I'm getting now. I don't know if you believe in God...but I think it's amazing how you are able to cope with things when you face them...God gives you some extraordinary coping mechanism. Still to this day, I have never cried about any of this...it's just something I have to do in life. I've been an athlete all my life...so I kind of look at it like a race I have to cross the finish line on. Have a great rest of your Labor Day weekend!

  • brst26
    brst26 Member Posts: 155
    edited September 2007

    Abbi...my mom had Taxol once a week also when she had breast cancer 8 years ago. She said it was way easier than AC...she was able to drive herself to all of her treatments. Feel good!!

  • shrink
    shrink Member Posts: 936
    edited September 2007
    Abbi, I'm about a month ahead of you treatment-wise. I read posts from several months before and after my schedule to see what's ahead and if I can help someone following me. Anyway, I start my first tx with Taxol on Thursday and I'm a little frightened too. But I will let you know how it goes.

    Shrink
  • lori5
    lori5 Member Posts: 75
    edited September 2007
    Hi Ladies
    Just writing to say thanks for all the prayers and kind words. Im still in the hospital they have scheduled surgery for tomorrow to remove my tissue expander since my wbc are up. yea! Then I hope they will send me home because Im really missing my kids and dogs. My dh has been driving 1 hr to hospital everyday to see me. This is sure tough on everyone isn't it?
    Im glad to hear you guys are all doing well with your tx.

    Hugs and prayers
    Lori
  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007
    Lori
    I hope all goes well with your surgery tomorrow...your in my prayers!
    I hope you'll be able to leave for home soon. Have you dh bring a pillow for you for the long ride home.

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