Starting Chemo in May 07

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    Happy Sunday everyone...
    image

    LeeAnne - I SO understand the "waves" of chemo! I sometimes feel a little bi-polar! When I feel krappy physically - I tend to visit the dark side a little and wonder how I can continue to do this (like I have a choice!) but when I feel good or strong, I just KNOW I am going to be "myself" again and that I will make it through this journey and live a long and healthy life! Talk about extremes huh? You're right - neither is permanent...that is just life! So, I really try to extend the good times and celebrate them as much as possible and try to remind myslef that the bad times don't last - that's all we can do! I'm so glad to hear you're feeling better!

    I hope everyone has a great Sunday!

    Thanks for the anniversary wishes everyone!
    Mandy
  • VirginiaNJ
    VirginiaNJ Member Posts: 634
    edited August 2007
    Wow, ladies... I have felt all you have felt. I told my onc a few weeks ago (I didn't see her every time I had chemo...sometimes I saw my physicians assisant...) I said my bad/down days were the darkest days of my life. As I got sicker with the 3rd and 4th treatment I didn't think I could do it anymore...but somehow we find the strength...

    I had my last AC treatment on 6/21... My hair is FINALLY starting to peak out... My dad said to me yesterday, "You have quite the 5 o'clock shadow going on up there..."

    I am still mourning my hair. I have been resigned to being bald since my sister shaved my head on Memorial Day, but DANG, I MISS MY HAIR AND I'M SICK OF BEING BALD. I love it when everyone says, oh, it will grow back...or don't worry, hair grows fast. All these folks mean well, but have a full head of hair...

    I have to say that after 2 months, I MIGHT have a little less than a 1/4 inch. I took more than a full month after my last AC for it to start growing. I have been taking my picture every month. (I hold the camera out in front of me with my long arms and snap the picture!! LOL It's a funny sight). Anyhow, I will be truly tracking the progression.

    I don't envy you ladies with your HUGE decisions on reconstruction, although I kind of think this will all be in my future some day... (I think those dour thoughts of when the cancer will return)

    Chin up and good health to all those who are suffering. There surely is a light at the end of the tunnel.

    I have been feeling pretty good these days and I ALMOST (read, ALMOST) forget how horrible the darkest days are. I've never had a baby, but they always tell me that the pain kind of minimizes itself once you hold your baby... Can't relate to that, but I assure you there is a light...with hair on it...at the end of the tunnel.

    Best,

    Virginia
  • lizzzy
    lizzzy Member Posts: 285
    edited August 2007

    Has anyone had a skin sparing mastectomy? I would like to know how these work?

  • VirginiaNJ
    VirginiaNJ Member Posts: 634
    edited August 2007
    Cindy - how are you feeling? Please give an update when you are upt to it. Been thinking of you...

    Mandy - love the pics. They put a smile on my face.

    Liz - I took Sex and the City Season 1 out of the library last week (LOL). I am going to work my way to the season where Samantha pulls that wig off...although I did actually see it on HBO. It will have a whole new meaning for me now, though!!

    LeeAnne- hope you are feeling better. I've decided to join the ranks of the "Chillow" owners. I cannot believe the hot flashes I am having... Didn't have them on the chemo, but jeeze...they come in waves! I guess maybe it's the tamoxifen, although when I was on it pre-chemo, I didn't have any... Does anyone know if Herceptin give hot flashes??

    Hope all are hanging in there!!!

    V
  • kimvidito
    kimvidito Member Posts: 105
    edited August 2007
    Hi Ladies
    I am done with my tx. This is day 5 and I feel weak and tired. Stupid hemorhoids and constipation kept me up all night. I just don't want to end up in the hospital again as I'm approching that time of the week again. I am having such ANXIETY. No fever please. I am taking neupegon shots so hopefully I will not. I feel weird like last time. I must just be getting at that bad place. Hope everyone is OK out there. We are all almost done. Let's keep encouraging each other.
    take care
    Kim
  • lizzzy
    lizzzy Member Posts: 285
    edited August 2007
    Kim, Hang in there--you are done and will start feeling better soon.

    Virginia, I would like to watch those episodes again too. Everything has more meaning after you've been through it yourself. My hair growth is very random right now. I have a few strays that are about half inch but for the most part they are very short -- it seems there are a few more every day. And my eyebrows seem to have started growing too. I hadn't realized that they had thinned so much until I saw the new growth. My eyelashes are kinda pitiful right now though. It's been over a month since my last chemo and every day I have fewer eyelashes. Anyway I am trying not to worry about my hair right now because I'm going back for the taxol in another few weeks and I don't know what that'll do to my hair.
  • chemo072
    chemo072 Member Posts: 682
    edited August 2007
    Quote:

    Hi Ladies
    I am done with my tx. This is day 5 and I feel weak and tired. Stupid hemorhoids and constipation kept me up all night. I just don't want to end up in the hospital again as I'm approching that time of the week again. I am having such ANXIETY. No fever please. I am taking neupegon shots so hopefully I will not. I feel weird like last time. I must just be getting at that bad place. Hope everyone is OK out there. We are all almost done. Let's keep encouraging each other.
    take care
    Kim




    ((((Kim)))) - when you say done do you mean all done? as in the last one?!! If so, CONGRATS!! and celebrate in a few weeks when you really do feel better...

    being in the middle of that recovery period sucks...and I can say that, as I'm 10 days out from my last chemo now, and so much better than a week ago.

    re: constipation & hem. - lactulose was what finally worked for me, thank goodness....
    and witch hazel pads and prep. H, but ow, ow, ow.... what a drag it is!

    hope things get better...
    and that you don't end up in the ER!
  • kimvidito
    kimvidito Member Posts: 105
    edited August 2007
    Hi Amya
    Yes I am done with all the tx. I know that I will soon feel much better. I just have to keep going. Thanks for the info on the constipation. I will definately try. Lizy thanks for the encouragement.
    Watched some good movies today and had a good nap. I feel a little more human tonight
    take care everyone out there
    Kim
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    Kim,


    image

    I'm glad to hear you're feeling better...just think you will only feel better and better from now on!!

    I am good to go for my final treatment on Wednesday (my neutrophils were 7 times higher than they were last Monday!) I'd be lying if I said I was happy about another treatment but I sure am happy that it is my last one!

    I want my hair back...I don't care if it's grey or short or curly or whatever - I just want to blend in with the crowd again and not have to wear something on my head!!!!! If there is anything I am to "learn" in this journey - it is definitely PATIENCE!!

    Have a great evening everyone - I hope you are all well!
    Mandy
  • lizzzy
    lizzzy Member Posts: 285
    edited August 2007
    Yeah for you too Mandy--you're almost there. Won't it be nice to run without a scarf! I got so hot today at the gym and I'm pretty sure it was the bandanna I was wearing. (Or the hot flashes)
  • aimster1123
    aimster1123 Member Posts: 200
    edited August 2007
    Hi girls,

    Mandy, we both finish this week!!! YAY!!!!!!!!!!!!

    I'm SO with you all on the hair thing. For a while in the beginning it wasn't that bad, then it was sort of annoying, now I full out am SO TIRED OF BEING BALD. I've taken to wearing my wig more and more these days, because I can sort of pretend like I have hair. And I don't have to have anybody stare at me. In the beginning the stares didn't bother me, but now they're much harder to take for some reason. I don't know why that is--the novelty wore off or something?

    Anyway, just trying to enjoy these last couple of days of feeling good before one more yucko period. At least this time, though, I know this is the LAST TIME I have to feel this way.

    I'm sure I'll be driving you all nuts next week, posting every day while I lay around in bed, LOL!

    Amy

    P.S. Mandy, I bought a bracelet that says "patience" on it and when I look at it I remember that I'm hopefully gaining some during all this.
  • Bernadine
    Bernadine Member Posts: 49
    edited August 2007
    Hi girls ,

    Finally I'm done with Taxatere and done with chemo they've took my pic line out that's a big releif. He gave me my prescription for Tamoxifen in a month's time to take and I was out a there. I finished last tuesday aug.14 and I ran.

    Since then I haven't felt good I got diahrea and fatique big time my muscle are sore and aching don't have any energie to spare it's my 7th day and I'm not peppy at all, waiting for that treamtment to let go of me but it's not.

    But now it's all done I can't beleive it's time to get back on track to walk my mile a day and get back in shape.

    For those who are not done yet do not despear time goes fast and if I made it so can you. Kick some cancer butt.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    Nadola,

    I'm a little jealous of you because I was supposed to have my last treatment last Tuesday also but was delayed due to low neutrophils...oh well, I go tomorrow and hope that the extra week gave my body a chance to get really strong and hopefully the SE's won't be as bad?

    Anyways - way to go Nadola! Hope you are back to your self again really soon!!! Woo Hoo!
    image

    Mandy
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    Do any of you have "hair dreams"? I dream quite regularly that I have hair again (feels so good) or that my hair all grows back in like, 2 hours (talk about wishful thinking). I feel a little ashamed at how this whole hair loss thing has affected me...I mean, it's hardly a priority if you think about the disease we are fighting...but it is just so difficult emotionally to look like Cancer Woman (aka Uncle Fester's sister) when you are trying to live a normal life. When people would stare at me, I'd always smile - now I feel like sticking out my tongue or saying "What the **** are you lookin at?" Mature huh? Honestly, I have about 3mm of hair and I have lost 2 lbs (both of these "gains" could hit the toilet after this next treatment) but I feel so happy!!! Patience....patience...patience! Oh by the way, LeeAnne - I forgot to thank you for posting that link to the website with simulated bald celebrities. It was fun - also made me think that if I had their beauty - I'd probably feel better being bald because some of them truly were still stunning! Geez - listen to me...whine whine whine! I really am in a good mood and feel great physically (calm before the storm) I think I will leave the pity party I've thrown myself and do something with my kids this afternoon!

    Have a great day everyone!
    Mandy
  • chemo072
    chemo072 Member Posts: 682
    edited August 2007
    Mandy - having hair shows up in my dreams all the time.....i miss seeing it framing my vision, and first thing on waking I forget, and then am surprised, and dismayed to discover it gone...it happens again and again and again....Like Amy, I've been thinking about wearing my wig, but due to hot flashes that'll have to wait for cooler weather! I have to admit hot flashes and being bald are a good fit
  • lizzzy
    lizzzy Member Posts: 285
    edited August 2007
    Yikes! This time next week I'm looking at bilateral mast, sentinel node biopsy and expanders. I think I'm going to become familiar with the effects of Vicodin real fast. I hope it keeps me in a happy fog for about a week or two.

    All you women finishing up your chemo, come back and visit me, ok?
  • aimster1123
    aimster1123 Member Posts: 200
    edited August 2007
    Oh gosh, Liz, I'm TOTALLY sticking around, don't worry! I figured I would keep posting here during rads, too, since so many of us are doing that too. Lots of us are staying, right??

    Forgot to say that my onc has a totally new office building, and they now have wireless--yay!! That means I can surf during chemo on Thursday, which I'm hoping is a good way to pass the time for me.

    Amy
  • lizzzy
    lizzzy Member Posts: 285
    edited August 2007
    I know everyone said they were sticking around. I am just feeling sad because I am so far from being done. I have another two months of chemo to go and y'all are finishing up and will be going on with your lives. Feeling sorry for myself tonight. I'll get over it!

    Enjoy your surfing on Thursday, Amy. I bet that will make the time go by faster!
  • chemo072
    chemo072 Member Posts: 682
    edited August 2007
    Quote:

    I know everyone said they were sticking around. I am just feeling sad because I am so far from being done. I have another two months of chemo to go and y'all are finishing up and will be going on with your lives. Feeling sorry for myself tonight. I'll get over it!





    Oh I wish treatment were really over and I truly got to go on with my life, but....I go on to decide about rads (leaning towards no, rads onc said he'd be fine with that), and decide about plastic surgery... so am far from done! that day will be when reconstruction is done and I have cute hair that's my own. you'll be ahead of me on the reconstruction phase of it all!

    also, the mast. surgery had me so panicked within the core of my being that I took xanax. And had company the whole week before, else I might have bolted - I threatened to run away to the Bahamas several times! One thing an anesthesiology nurse told me that helped - think of the breast as external, not as a core organ....sounds odd maybe, but somehow the psychology of that thought was comforting....

    anyways, the point is - even when you choose it, the surgery is scary so BIG BIG HUGS to you m'dear!!

    PS quick practical note - I didn't have many shirts that buttoned up the front, and needed them desperately for many weeks after surgery. Friends sent a ton. And the softie camis rocked, I wore them for months - and my health ins. paid for them
  • PDXLeeAnne
    PDXLeeAnne Member Posts: 119
    edited August 2007
    It's 2:00 in the morning and I had a hot flash and couldn't go back to sleep.

    Liz, be brave my friend you can do it! Easy for me to say, I only had a lumpectomy back in April. But at least you have all of us to support your through surgery/recovery. I'm not going anywhere and I don't consider this journey anywhere near over. I have chemo recovery (which judging by how I feel now, nearly 2 weeks from the last one, is going to take a freaking MONTH!)and then radiation. I hope to hold off start rads until mid-October which means I won't be done until Thanksgiving.

    Mandy, today's your last, right? Yeah you!!! I can certainly relate to losing the good attitude about being stared at because of being bald. I'm so sick of it. SO sick of it. I just want to blend. Btw, I forgot to tell you how touched I was that you are still so in love with your husband after 18 years. That is way cool.

    Amy, you and I and who else are up on Thursday?

    I'm so emotional leading up to this last one. Still so weak from the last one so I dread how far down this one will take me. Champagne tonight though, to toast the end of the chemo journey. Last time I had champagne was the night my hair was buzzed, which was May 31, the night before chemo #2. What a long summer it has been...and in some ways I feel like I haven't even HAD a summer.

    Off to try and go back to sleep,
    LeeAnne
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    Mornin' everyone! image

    Liz - we would NEVER leave you! (I still have more surgery and rads to follow so won't be done active treatment until I think, the first week of December!) Have you checked out the Surgery forum? There is probably lots of info regarding your surgery. We will all be "with" you next week when you go into the OR - I promise!!

    Amy - surfing soulds like a great way to pass the time! I would like to sleep during chemo (my favourite way to pass the time when I'm in an uncomfortable situation) but A) when I'm anxious, I usually don't sleep and B) I refuse to have my treatment in a bed - I always choose a chair! I don't know why - I guess 'cuz I'm not "sick"! I'm amazed at all the mind games I play with myself now!

    AmyA (Amanda)- How are you feeling? When do you go for your reconstruction surgery? One of the other boards I've been on - the women suggest getting your fills every 2-3 weeks instead of every week and to do stretching exercises regulary - apparently it really helps with fills. I'm not sure what kind of surgery you're having but if it's relelvant, it sounds like good advice.

    LeeAnne - Enjoy your champagne tonight (I can't wait to have several good stiff drinks!!) I'll be thinking of your tomorrow. You know people have said to me 'Wow - you're done already? Boy it's sure gone fast hey" NOT to me it hasn't!

    Well, I guess I should get to work. My appt. is at 1:15 today but I need to go into the office for a few hours.

    Have a wonderful day everyone! image
    Mandy
  • kimvidito
    kimvidito Member Posts: 105
    edited August 2007
    Hey everyone
    I was complaining my last post but I am hear for support. Most of us are done with chemo but we all have either surgery or rads next. The journey is almost done but I think that the journey will be lifelong. We have all changed, for the best. We know about suffering but overcame it with our strength and great support of our sisters here. My son is a great inspiration about this. We feel that we are not sick but he was very ill. He had a stroke and almost died last year. Every day he is a testamony of the strength that we can all muster up to go on. It has been a long 2 years for him but we can see that he is definately pushing through. I see normalcy in his life. He even has a girlfriend and a job now. We will all get to this place but we will be better people when we get there. My son is the nicest most giving and compassionate person I know and it's because he lived through his ordeal. Our daughter is the same way as all of this affected her too. She is a great person and makes me laugh every day. She sees the good in everything. Going to high school in a few weeks. (My Baby!!)LOL
    I will be on the rads posts but will pop in to see you all the time. Don't forget that my son will have his book out there soon to buy. It will be on I Universe in the fall. He donated most of his profits to starlight foundation and will be donating books to the cancer society and sick kids hospital in Toronto. Your kids will love this book. It's a fantasy like Harry Potter.
    take care
    Kim
  • aimster1123
    aimster1123 Member Posts: 200
    edited August 2007
    Hi girls!!

    I love you all! I was just figuring that even though this is a "chemo board" we would just stay and go through the rest of treatment and recovery together. At least, that's my plan! Sounds like a lot of us (if not ALL!) are on that page.

    How's THIS for cool: my very best long-time friend, with whom I played string quartets for 15 years (that was my job before I started staying home with the kiddos) has organized a year-long project of concerts, fundraisers and other events for cancer. She still plays in our quartet, which is quartet-in-residence at U of Iowa--they just replaced me with another violinist. They're dedicating their Oct. concert to breast cancer awareness, and have all sorts of other stuff planned throughout the year, and I was apparently the inspiration. This speaks more about THEM (esp. my friend, who is the organizer of all of it) than about me. I'm so very touched by it.

    AND I'm SO SICK of being bald!!! Was it Mandy or somebody else who said that in the beginning the stares were no biggie, and now you want to ask what the &#$^%@%$! they're staring at?!! LOL, I TOTALLY resonated with that one!!! I was wearing a scarf today, though, and a sweet older man came up and told me how much he liked my "hat"--I know he was wanting to support me, so that was really nice.

    So, Manday gets her last tx today, LeeAnne and I tomorrow. After that do we have any finishers coming up? Liz will do more later, and CindyKS (or is it CindyMN??) is on weekly? Anybody else still having chemo?

    I'll be back in a few days, girls, after I come out of my hideous post-chemo drug fog. Prayers are always appreciated!

    Amy
  • lizzzy
    lizzzy Member Posts: 285
    edited August 2007

    Thanks everyone--for being here and being so awesome!

  • chumfry
    chumfry Member Posts: 642
    edited August 2007
    I'm on weekly chemo, so I've got a treatment this Friday and then my last treatment is Aug. 31! No rads for me, but I'll stick around just to keep in touch. We did that after my 2005 chemo and now a bunch of us Rocktober Girls are getting together in Chicago this weekend!!! Woo-hoo!

    It's a reunion of close friends who have never met in the flesh. Should be interesting and emotional.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    Hello everyone!
    image

    I'm home! I'm done! My husband kept saying to me "one more no more" and now we're saying "no more no more!"

    I feel elated and exhausted! I think keeping cheerful and positive throughout chemo was more draining than I thought! Now that I'm done (this part anyways) I just kind of fell apart in the car on the way home. Relief, disbelief, elation, gratitude...so much emotion - it all had to come out!

    Anyways, now I just get to feel better and better (although I know it gets worse before it gets better but it is going to get better FOR GOOD!

    Enough about me (I am the most self centered person in the world these days! Me, me, me, me, blah blah me, me me!)

    CindyMN - Your gathering sounds wonderful - I hope you have an AWESOME time - you so deserve it!

    Liz - You couldn't get rid of us that easily!! How is the running these days? I clocked my best time in a long time yesterday...of course that will all go to shit for awhile now but it was great to see that my body will recover from this!

    Amy - That sounds like an amazing group of fundraisers/awareness raisers!

    Well - I hope everyone is feeling good today!
    (now back to me! )
    I was quite nauseated during treatment (first time that's happened - mind you, I could have barfed just walking in the door - so I think I may have worked myself up!) I'm feeling better now but I do feel like I've been through the ringer - so I'm going to change into my jammies and cuddle up with my kids and watch a movie. I'm craving homemade chicken noodle soup (some vegetarian I am hey?) and amazingly enough, my husband is going to make it (yikes!) He never cooks so we'll see how that turns out!
    image

    Talk to you guys again soon. I think you are all awesome women!
    Mandy
  • Bernadine
    Bernadine Member Posts: 49
    edited August 2007
    Hey Mandy by now you've got your last chemo!!!!!~~~WooHoo to you to.
    Finally we can say "AMEN" to that.
    But for my dreams I so dreams of my hair growing like every two minutes, and hate to be "bald" like I said to a lady the other day "Take a picture it last longer" I could'nt hold it anymore so I said it. It's starting to grow a little bit but not fast enough. I'm so sick of it,sick of it I want my life back and it's like right NOW.

    I'm on my 9th day and I'm not back yet my shoulders still hurst and my fingers are sensitive and my throat hurts.

    But I'm done so it's going to take a little bit more time this round. O.K. I'll wait

    Anyone going this week stay positive......all the way!!!!!

    If I can do it so can you girl kick some cancer butt!!!!!
  • Traci40
    Traci40 Member Posts: 41
    edited August 2007
    That Jim Carrey pic cracked me up! How do you do that?????
    I'm day 7 after my last treatment and my back is still killing me but .... it was better today than it was yesterday!
    Good luck girls!
    Liz, I'll be thinking about you and your bi-mast. I had mine on March 21st. The expanders are a pain in the butt ..uh..chest but, they don't "hurt". They are just uncomfortable.
    I was miserable after my bi-mast for only about 4-5 days. After that, it was just uncomfortable. You can do it girl! And stretching is awesome advise. Crawl your fingers up a wall just as far as you can...then hold it, then crawl back down. Stretching really, really helps. I didn't know this at first. I was sooooo stiff. Then, my doc gave me the stretching exercise and in only a couple of days, the stiffness and tightness went away.
    I'll be thinking about you girl. For me next, my consultation for my hysterectomy is Sep 6th. I have a reprieve until then. Well, except for blood work and tissue expansion! After hysterectomy, I get my implants.
    I should be all done with everything.............by Christmas. WOO HOO!!
    I'm so thankful for this site too. Don't know how I would have handled the last 6 months without it. Man, it's hard to believe it's been that long.....
    Take care girls.
    Traci
  • chemo072
    chemo072 Member Posts: 682
    edited August 2007
    Mandy - congrats and can I just say how much I adore the graphics you've been posting? they put a smile on my face every time!

    congrats to those who will be done with chemo by the end of the day tomorrow! woohoo!
  • lizzzy
    lizzzy Member Posts: 285
    edited August 2007
    Traci- Thanks so much for your kind thoughts and great advice.

    I'll be thinking about you when you go in for your next surgery.

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