Distended Abdomen-liver mets

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tos
tos Member Posts: 376
Did anyone who has liver mets have/had a distended abdomen?
I've been told I have 3 lesions all over 1 cm a few months ago and now my abdomen has blown up like nothing else.
I've lost my appetite and can't get into my clothes.
My Onc is concerned about this and I am having another CT in a couple of weeks.
Some places online I read this is a symptom and other places don't mention it.
Thanks for any help,
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Comments

  • LuAnnH
    LuAnnH Member Posts: 8,847
    edited July 2007
    you will need to get the fluid drained and you will feel much better. That is called ascites, usually it will stay down once they drain the fluid off.

    LuAnn
  • nosurrender
    nosurrender Member Posts: 2,019
    edited July 2007
    Pam, Luann is right. I have a friend who had that happen and had it drained and she felt so much better.
    (((Hugs to you)))
    Love,
    g
  • tos
    tos Member Posts: 376
    edited July 2007

    Thank you both sooo much!

  • wallan
    wallan Member Posts: 1,275
    edited July 2007
    HUGS to you....

    Wendy A
  • tos
    tos Member Posts: 376
    edited July 2007
    Luann and G, the ladies you knew who had this happened and got their bellies drained, did they have liver mets?

    Wendy thank you for the hugs, I sure can use them right now!
  • LuAnnH
    LuAnnH Member Posts: 8,847
    edited July 2007

    yes I believe they did

  • omacar
    omacar Member Posts: 19
    edited July 2007
    have liver mets and a month ago belly filled up. I go 2x a week to get drained and it is a pain. I cannot seem to get any answers as to why. most say when the chemo kicks it it will get better. are u on chemo. I was on abraxane weekly and got very sick and ended in hospital when this all started. I also had a port put in my belly so the fluid is easy to drain. now he started me on the abraxane again but every 2 weeks . After a month the first dose seemed ok but the fluid did not go down. keep in touch omacar@msn.com hugs and prayers
  • luvcats
    luvcats Member Posts: 24
    edited July 2007

    I have been worried about this also, my abdomen is very distended and I hardly eat anything due to complete loss of appetite. So I know the big belly is not due to overeating. Thanks for asking this question.

  • tos
    tos Member Posts: 376
    edited July 2007
    I am on Taxotere w/3 treatments to go. My first CT when dx again with BC earlier this year showed the 3 lesions on my liver but when they went to biopsy they couldn't find them. The Radiologist and surgeon said they were there, they don't go away and no they weren't someone elses's films, I asked, so did another CT later on and they didn't show on the film. The radiologist insisted I have a liver mass but felt the CT results were a technical thing so I went along thinking I was just being treated for the second primary.
    Then my Onc tells me last week he is treating me for stage IV liver mets but thinks the Taxotere will fix that. So another CT coming in 2 weeks.
    This has all has been going on since February and I'm about at my brink, are they or aren't they????
    I have been on diuretics for a week but the belly continues to grow, I look very pregnant, feel so full and nothing will button anymore so I'm into housedress type things or moo moo things. My Onc says my belly is hard and distended and he is worried about that so I'm just sitting here once again worried about the outcome and what in the world is going on.
    I had heard Taxotere could give you swelly belly but this is ridiculous. It's up high under where I used to have boobs.
    Anyway thank you all for your comments, thank heavens for this board and all of you ladies willing to share and listen.
  • omacar
    omacar Member Posts: 19
    edited July 2007

    I was drained using ultrasound guidance and they got out over 3000 cc...why won't he drain you to give you some relief?

  • Fllorik
    Fllorik Member Posts: 1,351
    edited July 2007

    My heart goes out for you. Please try as hard as possible to keep your spirits up. I know it's difficult but you will soon get the answers you so desparately deserve. If not, change doctors!

  • tos
    tos Member Posts: 376
    edited July 2007

    I'm making notes for my Onc and when I see him next I will ask him about the draining. Thank you all again for your help and hugs.

  • boobbuster
    boobbuster Member Posts: 204
    edited July 2007
    Pam-
    I pray you leave your appointment armed with good information and lots of options. I know several women who have had the same challeges and have go through just fine. God is able. Stephanie
  • PamsPromise
    PamsPromise Member Posts: 97
    edited July 2007
    Pam just keep asking questions until you get answers. I can only imagine how frustrated you are. My thoughts and prayers are with you.

    Take care,
    Another Oklahoma Pam
  • tos
    tos Member Posts: 376
    edited July 2007
    Thank you Stephanie, I hope I can get all the questions that I need written down. I don't want to do like last time and walk out and think "I wished I had asked that"!

    So we have another Oklahoma Pam! That is terrific.
    Thank you for your thoughts and prayers. This has been such a long year, so many of us have those but this one is finally getting to me, I've had enough.
  • sandy62
    sandy62 Member Posts: 1
    edited July 2007

    My daughter also has cancer that has metastisized to her liver. Her first complaint was the distended stomach. She said she looked pregnant. If pregnacy were only the issue, we'd be ecstatic.

  • tos
    tos Member Posts: 376
    edited July 2007
    Oh Sandy I am truly sorry your daughter is going thru this cancer and I hope she is doing well.
    I have a daughter too who is just started her radiation, she was dx in Jan. 07 Stage III. It's horrible having this happen to a child of yours, hugs to you,
  • PineHouse
    PineHouse Member Posts: 416
    edited July 2007
    Pam,
    I'm so sorry this happens to you. I thought you were getting water retention on Taxotere, but apparently based on the stories from other ladies here, the ascites probably need to be dealt with differently.

    I wonder if you can call the oncologist's office right away instead of waiting for an appointment??

    I hope they can solve your problem so you don't have to suffer too long.

    Sending you more hugs...
  • tos
    tos Member Posts: 376
    edited July 2007
    Hi Pinehouse and thank you for the hugs, boy do I need them right now.
    Maybe the swelling is from the taxotere, there is that possibility.
    I will have my scan Thursday so hope that will wrap things up one way or another.
    Just so sick to my stomach with worry, don't want to wish my time away but I sure wish this ct was over with so I'll know something.
  • rumoret
    rumoret Member Posts: 685
    edited July 2007
    When I got Taxotere by my fourth treatment my stomach was distended a week later and then I started to throw up. I was admitted to the Emergency with and obstructed bowel (this can occur by your 5th Taxotere treatment according to their own label). I read the label after being released from the hospital and went searching on the internet. The fourth TAC chemo treatment was my last one.

    Terry
  • PineHouse
    PineHouse Member Posts: 416
    edited July 2007
    Terry/rumoret,
    I'm just glad that you're through with your treatments and now working on feeling like yourself again. That must be a scary experience. I didn't know that could happen on Taxotere, and I did Taxotere in 2004.

    Pam/galnok,
    Yes, sometimes I hope we can just fast forward and get results. I'm not good at waiting either. My next scan is not for another 7 weeks, and I'm already nervous about the result.

    I am confident though, that you, being an intelligent & meticulous researcher (I see your links to articles and you keep taking notes of suggestions) and an advocate for yourself, will be able to make right decisions for treatments etc.

    What you can't do is hug yourself. And that's what we're here for!

    Hugs..hugs
  • tos
    tos Member Posts: 376
    edited July 2007
    Terry I didn't know about what you experienced either. Were you in the hospital a long time and were they able to fix your problem?
    You poor thing sounds like you had an awful time. Thank you for telling me this, I'm so sorry it happened to you.

    I am getting ready for treatment 4 of 6 of Taxotere but have been distended like this for quite awhile.

    Pinehouse thank you again for your kind hugs,do you remember what it was like for you on Taxotere?
    You'll have to be sure and tell us how your scans come out, fingers and toes crossed and hugs to you too,
  • rumoret
    rumoret Member Posts: 685
    edited July 2007
    Galnok,

    @S on my severe state including my oncologist. When I was entered into the hospital I had a tube put down my nose. I had a CAT SCAN and a Heart ultra sound of somekind. I had fluid around my heart which can also happen with Taxotere. I was released after a week. Ended back in the hospital 3 days later with hospital induced pneumonia. The bowel was inflamed and after about 4 days another test was done and the bowel was working again. They were thinking about surgery if it was still blocked. After that.......I had enough of KAISER and in January 2007 I transferred over to my mother's oncologist that I love. He originally asked where I was going because he wanted to treat me. He always asked my mom how I was doing....because I sat with her on every chemo treatment she had. She had 5 other daughters...and she only wanted me by her side because I am very calm and patient. Anyway.......I will check to see if I still have the taxotere article.

    Love Always,
    Terry
  • rumoret
    rumoret Member Posts: 685
    edited July 2007
    http://products.sanofi-aventis.us/Taxotere/taxotere.html#Patinfo

    Fluid Retention – This means that your body is holding extra water. If this fluid retention is in the chest or around the heart it can be life-threatening. If you notice swelling in the feet and legs or a slight weight gain, this may be the first warning sign. Fluid retention usually does not start immediately; but, if it occurs, it may start around your 5th treatment. Generally, fluid retention will go away within weeks or months after your treatments are completed.??Dexamethasone tablets may protect patients from significant fluid retention. It is important that you take this medicine on schedule. If you have not taken dexamethasone on schedule, you must tell your doctor or nurse before receiving your next Taxotere treatment.??Gastrointestinal – Diarrhea has been associated with TAXOTERE use and can be severe in some patients. Nausea and/or vomiting are common in patients receiving TAXOTERE. Severe inflammation of the bowel can also occur in some patients and may be life threatening.


    The above article is what I read after getting out of the hospital. I had reacted to Taxotere when I got my first treatment. They CHALLENGED me and gave me more premeds the following day of my reaction. They dripped it in at the first bump, took 3 hours to get..........really threw off their schedule. On my 4th treatment someone decided to just push it through in 1 hour. I was not looking well when my husband picked me up. That week I started to feel nauseated, and one week later on a Sunday evening all hell broke loose. Major projectile throwing up.......lots of fluid....bowls full. When I came back to see my doctor after hospital stays...my husband asked who gave the nurse permission to push the drug through in 1 hour rather than the 3 hours. My oncologist fumbled with my file.....looking like she was trying to find out. She was so guilty.........I think she was either covering for the nurse or she herself gave the OK. My husband must of asked her everytime we went to see her.....until we changed our medical plan....and left KAISER. My hospital stay was the most exhausting ever.....and the constant rotation of doctors, nurses, and cleaning staff was disturbing. Thank God my husband and all of my sisters stayed each day at the hospital and making those nurses get my medicine on time and also question the medicine they were giving me. The whole experience started my POST TRAMATIC STRESS that today I am on Ativan to deal with anxiety from the experience. Not to count just the experience of dealing with surviving day to day with my breast cancer dx. I am not the same person.......everyday it seems I learn of another person getting cancer. Shakes my whole foundation......so I just LOVE my little grandson each day with as much love that I can pour out. He was conceived when I was dx with breast cancer, and he was born in January 2007, the same month I discovered my lump. My sister says GOD new I needed Ethan to help me through this experience.........and everyday I loose myself in his SMILE and his bright blue eyes.

    Hope this helps, love you all,
    Terry
  • rumoret
    rumoret Member Posts: 685
    edited July 2007
  • PineHouse
    PineHouse Member Posts: 416
    edited July 2007
    Wow, Terry, that was really scary. I got my Taxotere while at Kaiser too (in 2004). I didn't like my oncologist at Kaiser, but she was not as bad as yours. I don't think anyone should have to go through that. I'm glad you're now at the hands of better oncologist and better system.

    Pam/galnok,
    My experience with Taxotere is not as extreme. But my water retention started early, around 2nd week of 1st cycle. My feet were stiff and I had time breathing while walking. I didn't get the diuretic prescription (Lasix) until 3rd cycle. Lasix helped a bit but didn't completely solve the problem.

    What saved me from blowing up like a balloon was the decadron/dexamethosone. Every time I got the dex right around treatment, I lost weight and felt better.

    After 6 cycles were over, I kept taking Lasix but it wasn't getting rid of the water fast enough. I asked for another round of dexamethosone even if I didn't get Taxotere anymore. That helped a lot.

    I'm crossing fingers & toes as well for you Thursday & the result!

    Hugs
  • tos
    tos Member Posts: 376
    edited August 2007
    Oh wow Terry, what a awful situation you went thru, that is just horrible for you! I'm glad too that you have now found another Onc. Thank you for sharing your story and for sending the information. I think I will do some research on bowel obstruction.
    Now for two days my left arm and hand are twice the size they should be, I just don't understand what is going on.
    It is hard for me to type but I've got to connect with the world or go batty!

    Pinehouse I am so glad your Taxotere was not as hard on you. Yes the breathing problems are awful. I'm not finding the diuretic/lasix to be very helpful.

    I do take dexamethosone for the three days before during and after chemo and a little before chemo starts.

    Thanks to both you,
  • tos
    tos Member Posts: 376
    edited August 2007
    Hi ladies, well the good news is that the CT showed no liver lesions so they either weren't there in the first place or the Taxotere has taken care of them. I see my Onc tomorrow to discuss the scan results but the imaging place emailed me my results so I was able to see them the next day.
    The bad news, is that I just got out of the hospital, went in 3 days after my scan and was diagnosed with congestive heart failure so don't think I'll be doing anymore Taxotere although the doc says it was a separate issue and not the Taxotere that caused it, it still freaked me out. So if we do more chemo it will have to be something that isn't hard on the heart, my doc says my heart is too weak.
    This does explain the extra fluid and swelling, alot of the symptoms for congestive heart failure are similiar to Taxotere side effects I have found out.
    I can't thank you all enough for all your help and support getting thru this, big hugs to all of you,
  • LuAnnH
    LuAnnH Member Posts: 8,847
    edited August 2007
    Pam,

    Good news on the cancer front. Rest and heal up your heart. I know another lady that just had alot of heart issues with bcmets. She is starting to improve now. Maybe between chemo and the extreme heat this year it took a toll on your body. Rest and be well.

    LuAnn
  • tos
    tos Member Posts: 376
    edited August 2007
    Thank you LuAnn and I'm so glad your friend is starting to improve now with her heart issues.
    This crappy cancer is so complex with so many things going on, it's no wonder our emotions are all over the place and the stress, oh my.

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