So, who else is sick of this whole routine?

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abbadoodles
abbadoodles Member Posts: 2,618
Okay, girls, I am going to dump on you. It's just my day, I guess.

I am sick of this whole cancer thing. Sick of having no hair, sick of this expander, sick of the doctor visits, sick of arguing about insurance issues, sick of planning around surgeries, sick of not being able to wear my regular clothes, sick of being a bit overweight, sick of thinking about managing SE of one sort or another, sick of this whole boring deal.

There, I've said it. I'm just sick of it.

Tina
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Comments

  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited August 2007

    Join the club. We all go through times when we just want to get it over and be healthy again. That is what we are here for, to help each other through the tough times and rejoice over our small victories.

  • rumoret
    rumoret Member Posts: 685
    edited August 2007
    I'm sick of it also. Today I go to the lab for blood work.....next week is my 3 month checkup. I'm sick of pills.......I hope to be pill free someday.

    Love,
    Terry
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    Wow, Tina, your post is so timely for me! I was scheduled for my 3-month follow-up next week and discovered that it would just be a clinical exam and some bloods (no mammogram, etc.). I am just so sick of this drill and, so, I called and cancelled and said I'd see them in another 3 months when we'll be able to actually see something.

    I'm so sick of being a patient. Do you realize that there are people our age walking around who have never been to a doctor, an ER or been hospitalized? How does THAT feel?

    Marin
  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited August 2007
    Tina, we have been there. First your scared, they you are in survival mode..but once you get through that one gets so sick and tired of doctor appointment. Tired of getting felt up poked and prodded.

    Until you have a medical issue, no one can truly relate. It bites. It is what it is. We should do it, to keep on top of things. But it sucks.

    Janis
    who has another dr appointment in 2 weeks. Blech!
  • LuAnnH
    LuAnnH Member Posts: 8,847
    edited August 2007
    I don't know if I could find anyone who is not sick of it! One thing I did which really helped me though was this. I bought some sweat pants and comfy shirts when I had my orginal bc. I wore pretty much these sweats and shirts for that year during my tx. When rads were over and my hair had come in well enough to do something with it I pitched those clothes in the trash! You know how things remind you of things, I wanted nothing to remind me of my bc journey that wasn't necessary and clothing was part of it. It may sound strange but it really helped me move past that part of my life. I also repainted my bedroom and my comforter to change that appearance also. Sometimes doing things that give you a fresh start will make things fade into the past quicker.

    LuAnn
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    Who's sick of doctor's appointments? ME!
  • wallycat
    wallycat Member Posts: 3,227
    edited August 2007
    I hate going...but I am such a worrier, it is a comfort when they say all is well.
    Blood work?? My docs said no blood work necessary, just physical exam. Great, one more thing to worry about....sigh.
  • JoanofArdmore
    JoanofArdmore Member Posts: 1,012
    edited August 2007
    Quote:"I'm so sick of being a patient. Do you realize that there are people our age walking around who have never been to a doctor, an ER or been hospitalized? How does THAT feel?"

    Marin, I'm much older than most of you, and until I was dx with my idc, I was like that.
    Wait:I DID see my gyno every year,and I WAS in the hospitsal twice--when I had my babies.

    It's QUITE a change.

    My yearly mammo is in July 18 or so.
    This year I told my onc I'll be in the midst of packing for a move(next week!).And if they FIND anything, it will have to wait till after my move anyway, so I will POSTPONE my blessed rite for a month.
    He mulled...and agreed.

    So my move on 15, my mammo the 20, my onc check-up the 22.
    And what irks me is that, consciously or not, I plan my life around the possibility of this devil ccming back!
    My bs said to me "Hope for the best, but prepare for the worst", and I guess that's been my motto ever since.
    But, yeah, I'm sick of it.I used to be so free.
  • Lynn12
    Lynn12 Member Posts: 1,008
    edited August 2007

    yep, I'm sick of it too...sick of so many Drs...Med Onc, Rad Onc, PCP, Wound specialist, gyn, PS, breast surgeon...blah!

  • roseg
    roseg Member Posts: 3,133
    edited August 2007
    I got a miserable letter from my hospital today.

    They're following up on their cancer patients to be sure the quality of their care is good AND they'd like to know if my phone and Dr. are the same.

    Are they lining me up as a future customer? Probably they're looking to start ringing my phone asking for donations. I think that letter might just go in the trash!
  • Dar1
    Dar1 Member Posts: 146
    edited August 2007

    Me too - there's something wrong with you if you're not sick of it!

  • Chattypatti
    Chattypatti Member Posts: 241
    edited August 2007
    It's a lot to go through. Your whole world gets turned upside down in an instant after the diagnosis. I also wish people would realize it's not over when treatment is over! It never leaves us. At least we are in this together and have "sisters" we can count on that "get it". Hang in there!
    Patti
  • LemonDrop
    LemonDrop Member Posts: 18
    edited August 2007
    Count me in as being totally sick and fed up with the whole world of "cancer". I never dreamed my life could be changed this much from my "before breast cancer days". I was diagnosed at age 45 in February of 2006 and have not been NED at all. I go from chemo to radiation to chemo to surgery to chemo and more chemo. My weeks are filled with doctor appointments, writing checks for copays, filling prescriptions, being stuck, poked, prodded, questioned, etc. It is tough road, ladies. I am so thankful for this website and contact with people in the same situation as me. Sick of the whole routine? I HEAR YA!

    Sandy
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited August 2007

    Now I'm getting sick of the bill that comes afterwards......

  • Bugs
    Bugs Member Posts: 1,719
    edited August 2007
    Amen, Sisters! This is my main reason for not pursuing reconstruction, yet. ANOTHER dr? More appts? And (yikes) MORE surgery? Ugh!

    Take care,
    Bugs
  • magsandmattsmom
    magsandmattsmom Member Posts: 424
    edited August 2007
    Completely sick of it! And to top if off I just found out that because of an abnormal pap - regardless of how my test results come back - I'll need to get a pap every 4 months for a year! Yet more dr appts.
  • SWANKETTEGAL
    SWANKETTEGAL Member Posts: 26
    edited August 2007

    I loved reading this...............I have recently just befun feeling this way too....I am just tired of being reminded every day that I really will never be "normal" again.............just go from one check up to another and I feel like I plan everything around what if.........I am sick of it and would just like to take a vacation from me!!!!!

  • threadbear
    threadbear Member Posts: 50
    edited August 2007
    SICK, SICK, SICK!!

    Good news- Seeing my onc every 6 months now, and the rad onc put me on 1 YEAR last week! Also am finished with Herceptin.

    Bad news- Still seeing my surgeon every 3 months, even after he promised me 6 month appointments last March. Mammos every 6 months, the next one due in December, but I informed my surgeon "No tests in December ever again!" so I'll be there after January 2! AND, this Monday I'm having a total abdominal hysterectomy because taking Tamoxifen made my fibroids double in size, and I don't want them to get so big that I end up on the evening news!

    Come September, I plan to enjoy the fall as much as I can, because even though I like most of my docs- I'm sick of them!!!

    Laura
  • Jorf
    Jorf Member Posts: 498
    edited August 2007
    I sure was going through it. Then I had "withdrawal" afterward - felt lonely and shot out of the system, thought "who's taking care of me now??". I go to the hospital where I had chemo to do research and I used to always use the bathroom outside of the chemo unit just to know that they were still there. I felt so taken care of by them and appreciative feeling they saved my life.

    Now it's not so bad. I go every 3 months or so to one or the other surgeon or onc. No one seems overly concerned and neither do I. I can't control if or when it might come back, I can only hope for good surveillance and know I have to stay on top of weird things instead of ignoring them like I have all my life.

    Next week is regular yearly with PCP and the week after 6 mo f/u with plastics.

    All I can say is that the intensity of it will be over before you know it. I never would have believed it if someone told me that even at the end of treatment but it is actually the truth. The problem then is getting on with life!

    Jorf
  • nofear123
    nofear123 Member Posts: 3
    edited September 2007
    I am sick of it too!!! My 21 yr. old son was in a terrible car accident a little over a month ago and I've been the major care giver for him. Here he is...a handsome, young and healthy man and he almost lost his life. My focus is off of me and has been on him.

    I struggle with aches and pains and frustrations over what the tamoxifen and zolodex is doing to me physically. I got married a little over a year ago and I feel like my husband is being cheated. I have absolutely "zero" libido (even with a small dose of testostoran cream. I am weighing the odds. I am about ready to just get off all of the medication and see what happens.
  • LisaSDCA
    LisaSDCA Member Posts: 2,230
    edited September 2007
    Week before last I had three doctor's appointments and a surgery.
    Last week I had three doctor's appointments.
    This week, I have three doctor's appointments, one of which requires a 3+ hour drive each way!!!
    And this is supposed to be my post-chemo rest & rebuilding time.
    Yes, I'd say I'm getting pretty freaking sick of this whole routine - and no end in sight. Bilatreral mastectomies w/immed. bilat. DIEPs coming up, and as soon as I am recovered from those. . . the oophorectomies!
    Anybody for Bora-Bora in January?!?

    Lisa
  • Harborwitch
    Harborwitch Member Posts: 124
    edited September 2007
    I've been putting it off too. There are no reconstructive surgeons in my medical group - so I have to investigate that. My daughter has been living with us - and I figured that I'd have it done this fall - so that she could be my support system. Well; that may not fly - her father (my ex) has been diagnosed with lung cancer and she's trying to figure out how to be his care giver.

    After tomorrow I think I start seeing the onc. every 6 months, my pcp every 6 months (not counting the bloodwork I have to go have done in 30 days), mamo every 6 months. Geeze. I told the nurse who was getting me ready for surgery that I felt like a porn star because of all the attention my boobs were getting! Sick of it doesn't even describe it.
  • topo
    topo Member Posts: 29
    edited September 2007
    For me, the hardest and saddest thing of all is that I will never have my life back as I used to know it. I have always been very active - gardening, remodeling, working - whatever. Now that the cancer's back, and only after a year of my first go round, I don't have the strength or the desire to do what I used to do. I find it very difficult to ask others for help. I'm used to taking care of things, myself. I, too, am sick of the pills. Everyone talks about the lack of insurance for all, but if you have insurance, which for me is Cobra and costs me nearly $500 a month, when I don't have any income at the moment, I still have all those copays for medicine, dr appointments, plus gas, hospital bills, etc. I, too, am totally sick of it all. But what is the alternative? I don't like that road, either. When I was done with treatment the first time, I was actually depressed because I knew my "cancer team" was looking out for me. I now wish it had stayed that way. Even though I'm grateful for all their work and care, it would suit me fine if I never had to see them again. And I don't care to take another pill, or a rinse for my mouth, ever again. Here's to you, ladies, may we all just hang in there.
    Topo
  • AliC
    AliC Member Posts: 1
    edited September 2007
    Add me to the list too. When I went to the orthopaedic surgeon for steroid injections for plantar fasciitis, he couldn't understand why I had waited 6 months in pain. He then didn't understand when I said I had seen enough of medics, and only went to him when I put on weight as I couldn't run post ooph. No matter how nice they are to me, I never want to see them again and I hate taking the tablets.
    The only good thing is that I've got braver about life, the universe and everything coz it has reminded me that you only get one go at it.
    So keep on keeping on ladies.
    Ali
  • Harborwitch
    Harborwitch Member Posts: 124
    edited September 2007
    We are really lucky - our medical insurance is great (knock on wood!) and since the bc journey began the company that my husband works for started picking up part of my medical ins. instead of giving DH a raise. I can live with that!

    Went to the onc. yesterday - I'm still going to be going to see him every three months. I am getting so sick of this! Geeze, now I have to schedule appointments with the dermatologist every year for head to toe skin checks. It just never ends.
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited September 2007
    AMEN to that....

    image
  • zarowny9
    zarowny9 Member Posts: 328
    edited September 2007

    I cant even type this with out crying......ME IAM SICK OF IT ALL!!!!

  • sueps
    sueps Member Posts: 2,266
    edited September 2007

    Awww hugs to you all. xxxx

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2007

    I'm sick of it too...and I've been NED for 2 years!  I go along just fine, then WHAM.  Something happens to put it all back in my face.  We try to "get over it" if/when we can.  But it's always there, isn't it...like waiting for the other shoe to drop.  A co-worker (diagnosed one year before me) was just dx with mets to lung.  And THAT has me back on these boards.  I've convinced my onc to let me have 6 month instead of 4 months check ups because I ended up in tears in her office last visit.  For no reason. Seems, if I say "I'm fine, no worries"..they just push and push until they find the button that makes you say "OK, so fine!  So I'm worried all the time.  So I STILL hurt.  So I don't WANT it to come back...is that abnormal!"   No, I didn't actually SAY those things, but she asks about my Tamoxifen symptoms and I tell her.  I'm not asking her to presribe the myriad of drugs she wants to pump in me.  I'm not interested.  But she just keeps offering, otherwise...she probably feels like I don't have a need to see her or something.  Anyway, last visit she says "You act like you want this to just go away" (guess I was short in my answers...dunno really).  I said "Well, isn't that the goal!?  Don't we ALL want it to just go away!?  And aren't we happy when it does...temporarily or permanently...go away!?  Why do you keep hounding me about more prescriptions!?"  So she says "well, I'm no psychologist but now it sounds like you're depressed".  Geesh!  I'm only depressed in this office when I have to address the situation over and over and over.  No one else in my life, who didn't already know about my cancer, would have a CLUE. 

    Yep...I'm sick of the routine, sick of the disease, sick of the treatment, sick of the fact that this beast keeps "getting" my peeps! 

    Best to you all!

  • RobinTN
    RobinTN Member Posts: 654
    edited September 2007

    I have been sick of it for a very long time.Maybe now i am in a routine.every 3 week herceptin,tumor markers ever 6 weeks cts every 12 weeks.now expanders fills.

    Dont know what i would do if i found out the ca is back.Doubt very much if i would do another go at chemo it has just taken so much out of me.but then it has given me a life also and new friends.

    So i am just trying to take it one day at a time.

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