Radiation & Tattoos
Please tell me about the tattoos. Are they applied in the same manner as tattoos? Is it painful? I'm still very sore from the lumpectomy, second surgery for wide excision and lymph nodes removal. Surgery was July 13. Wide excision and lymph nodes were negative. Original lumpectomy on July 6 showed invasive and nonivasive cells.
Comments
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Mine were one pop of the tattoo needle for each - it took only seconds and was painless.
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I think it depends on who does the tattoo and how sensitive you are. Mine hurt me.
Some women say they need a magnifying glass to see the dots but I can see mine really well looking in the mirror without my glasses on. I think this is why it hurt.
Maybe it would be best to ask women in your center where you are getting it done if it hurt them and if they can see the dots. I didn't ask and assumed it would not hurt so I was surprised. Oh..it only hurt for a split second though.
Don't mean to frighten you..just want to be realistic. -
Again, not to frighten you, but the staying absolutely still is harder than the tattoos. I took an ativan prior to my rads set-up and was glad that I did. The tattoos were like pin pricks ... they hurt, but just for a second.
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My tats didn't hurt at all. But - I have 3 real tattoos so maybe that's why. I have to look really hard to find hte teensy blue dots...
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I asked for a butterfly, but since they all had no sense of humor, they just glared at me, I thought it was funny.
Hugs, Shirlann -
I asked for a star shape, your right they have no sense of humor! After all the needle sticks from chemo, tattoos were almost painless
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teehee...you ladies crack me up!!
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Funny tat requests! LOL My rad techs are pretty humorless, too -- is it the nature of the job?
I have six tats in a wide rectangle. Four of them are tiny, but wouldn't you know the one in my cleavage and one right over the diaphragm are bigger. I'm having those two lasered off when I can stand to get one more treatment. Those two also hurt the most, but like everyone else's, just for a second or two. -
tatoo by four...stuck a nerve...tears, but i was not crying.tatoo tech 's 4rd weekand just graduated from the technical 2 year school. still hurts where she stuck the hokey-pokey.
indi -
Maxgirl, you mentioned that you're having your tatoos lasered off. Are the rad tatoos permanent?! I thought they were some kind of semi-permanent tatoos.
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Yes, my rad tattoos are permanent. I had 3 pink dots to be followed by 5 or 6 brown dots. I had to ask for the brown as they wanted to give me black or blue -- not too attractive on my lily white skin!! I agree that they hurt. It wasn't just a stick, it was a stick with a grinding motion. The one on my breastbone hurt the most. But the pain doesn't last.
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I was only 32 so the women that did the tats did them very small. She said she didn't want anything large showing when I was wearing a bikini. She was very funny. The techs giving me my daily radiation use to cuss her out daily because they were so small and hard to see! They were actually all a really good group and about my age at the time. We use to do a lot of joking and laughing. I can barely see them and I know they are there. Someone else wouldn't even notice them.
Sharon -
My mom refused the tattoos and they said that if she could keep the perminent marker on her chest for the entire time, they would not tattoo her. When she took her showers, my dad would use surgical tape and tape plastic wrap over the area to keep the heavy water pressure off of it. Then she would take a damp wash cloth and gently wipe the area. It worked and she does not have the tattoos.
This spring the Breast cancer group toured the new cancer center at the hospital and they now say that tattoos are required.
Sheila -
I refused the tatoos, had no problem with the markers washing off, did not do anything special to protect them even, although I did not scrub that breast with soap anyway, why would you?
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Motherbear -- One of my oncs -- rad? clinical? -- said I could get them lasered off, and I've always assumed they were permanent. They look like it.
lisette -- I wish I'd thought to ask for brown ones -- I have plenty of moles they could have blended in with.
Susie -- One of the rad techs told me not to scrub off the markings for my boosts. I told her I haven't "scrubbed" that boobie in several months. -
I was told that the tats are permanent, cause once you've had rads on one part of your body, you cannot have it again. Thus, the tats tell another doc you've had rads
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The tattoos weren't too bad. The one between my breasts was okay but the one on the side of my breast between the lumpectomy site and the lymph node extraction site was more painful but it's over quickly.
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I just had 4 tats today and they really hurt me although only for a second or two. It's not too bad really. I'm just glad it's over.
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I have four. They didn't really hurt much. Sort of like a shot.
They're very small; I had to point them out to my husband before he saw them.
I'm thinking about getting a tattoo after I finish healing. I have two incisions very close together (from two different lumpectomies) and now a tatt right next to them. I think it might be kind of cool to get a tattoo that incorporates all three things. Kind of a celebration of my victory over cancer. :-) I'll worry about that later, though...
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You know you can say no to having the tattoos. They did the two on my side and then I said no more. I did not want a permanent reminder and this is done to make the lives of the techs easier, not yours. You can say no, and they will give you a little sticker to stick over the ink marks, which wash away immediately. If worse comes to worse, if you are Jewish it is prohibited!! (A good reason to covert if there ever were one!!) Plus, they CANNOT make you do what you do not want to do. If your rad geeks won't work with you if you dont want them find someone else. I said no to half their requests and got first class treatment anyway. (and I have real tattoos. It was just the point of it. I'm gouging my other two out with a sharp pocketknife and I won't be asking anyone's permission to do it either. Fuck them.)
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For some reason, I ended up with 8 or 9!! 3 for lining me up to the machine, 2 or 3 to line up the plastic cup that I had to wear, and 3 more when I got my boosts. The ones for the boosts I could watch her doing, since I was lying on my side. It thought they used some special tattoo doodad to do them, but it was just a regular needle dipped into ink.
The only one that really hurt was the one over my ribs, on the side. Don't know why. I was glad when they changed from a black color to a pretty blue. I don't mind them. I've got a big honking scar that stands out more than they do!!
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I just started my 2nd. treatment today. They tried to convince me to have tats. I refused. One was going to be on the nipple. They had already placed one on each side of my body, the size of a pencil eraser. Three tech. tried to convince me. I still said no, that I will live with the tape and careful bathing. What part of no do these people not understand. I had a medical person tell me last week that I did not have to have tatoos, if not wanted.
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I refused tattoos. For me personally, it simply was not negotiable. They used markers and covered the markers with small clear adhesive patches (Tegaderm). They remarked/replaced one or two a week during my 7 weeks of treatment. With the patches, they don't come off with water; but if you're using lotion like Eucerin or Aquaphor, you need to avoid the marked areas as something in the lotion will dissolve the adhesive.
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Said yes every test, every procedure, every appointment, everything drs said, but for some reason, I found my voice when it came to this, and said "no" to tattoos. Something about that permanent reminder, no matter how small, just was not OK with me -- everyone needs to make peace with this awful process, and for me, this little bit of control made it easier to get through. Oh, that and requesting to being prone (face down) for rads, since I was getting treatments to the left side. So I guess 2 things I voiced opinion about, both worked out well given the circumstances.
Was extremely careful (!!!) not to need touch-ups (only baths in shallow water, min.sweating, lots of tape, but I was overly careful) because I knew that techs and dr. were being nice to let me not get permanent tattoos.
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I elected not to accept the tattoos, and I continued to swim, work out, and bathe throughout my 7 weeks of radiation treatment. The techs refreshed the marks every Monday and re-taped them each week. I had been offered blue or black ink, but honestly, I don't have blue or black freckles anywhere. The tech said they really aren't that visible and that she had some on her hand. I quickly identified all four of her tattoos. I didn't want any more marks, and it gave me a sense of control over a process that was difficult in every respect. I also refused the greasy Aquaphor and instead used a clear aloe vera gel that was very cooling and dissolved quickly. Now I'm heading into year 3 and hope this horrible experience will be a distant memory in due time. Good luck everyone!
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New to radiation- starting July first with set up. A little scared but I am finding this site good/helpful, as was/is the chemo site as well. Grateful to all who write and share.
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When I met with my ROnc, she made it totally clear to me that the tattoos would be my decision. she said "If you don't want them, it will make no difference in treatment at all." I thought the sim was terrible. It was worse for me than anything I have had done. the tech TOLD me that they would be doing tattoos when they were done, and I said, Whoa. "Dr. Taylor said that would be my decision." They looked at each other and said well you have time to think about it. My arm was in excrutiating pain, and when I aske to rest it, they said they couldn't do it or would have to start over. I finally said, "I am getting sick because of the pain. I think I'm going to throw up." The male tech said "Stop everything and let her rest her arm." they did, but one of the female techs acted ticked. As they were getting close to the end, (I guess, who knows, when it's going on?) She said, "Are you going to let us do the tattoos? I said, "I don't know. I have just about reached my limit." Then when thy were done, she said with no warning, "Ok, I'm going to do the tattoos real quick."She did the first one so fast that I jumped. She said something about, "Now you have to lie still. Don't move." The next day, I talked to my Rad Onc's nurse by phone for a different matter, and she asked how the sim went. When I told her about the pain and feeling sick, she said, "Let me get this straight. They knew you were in pain and they didn't give you a break." I told her they said they couldn't and she was furious. She started asking me a lot of questions about how I was treated, and I told her about the tattoos. She said, "This will be addressed before the end of the day. Dr. taylor will be furious." She went on and on, about how they need to know this, and I didn't call to complain, and that made it the best criticism they can get. I detest the ink markings all over my body and am surprised that no one complains about that. Am I the only one who has that road map?
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Pollyagain,
Your sim sounds like a nightmare. Sorry for your pain and the inconsiderate techs. Thank goodness the onc nurse was sympathetic. My sim was awful, too. Everyone was all right, but I just wanted to cry during and after the procedure. I hated being marked up and I was not given a choice of anything but tattoes. I know I am supposed leave them on forever, but I just have to get them removed once the treatments are over. It is necessary for my mental health if that makes any sense.
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I didn't think the the tattoes were bad. It was quick and I only have 3 or 4. Every center must be different. Mine are small and black. I did think the sim was bad. I was in a lot of pain and was there for an hour. It was so impersonal. I walked out and started crying
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Mammalou, When I was talking to Susan, the nurse, I said, "I don't want to give you the wrong idea, no one was rude, just impersonal." She saidI understand that, but in that situation, impersonal is rude."
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