Starting chemo Sept 05

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  • Pegk
    Pegk Member Posts: 389
    edited July 2007
    Linny,
    I'm so sorry to hear about your sister. It's so difficult to see someone you love in such anguish. It sounds as if she's got great care and a lot of loving support. That should help a little.
    I'm glad the rest of your news is good. It seems as though Isaac is making incredible progress. I've mentioned that the son of a co-worker has had the implants. He's about 9 years old and he came to visit us at work this week and except for those little devices behind his ears, one would never know that he was born deaf. He was playful and charming and most of all very articulate!
    I'm sure your daughter will be sharing all of her travel adventures with you. What fun! Continue to enjoy your weekends at the lake.

    I'm sorry Aug 05 stopped posting but I'm glad you joined us. People move on in different ways, but I especially like to come back here and see how everyone is doing.

    My news this week is that I had my MRI and the results are all good. Phew!
    I can breathe again.
    Have a great weekend.
    Peggy
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  • txred9876
    txred9876 Member Posts: 392
    edited July 2007
    It has been particularily rough around here. I had a bad bout of Vertigo after my last chemo....

    and now my ex husband is causing more issues. My youngest Pam may be staying in oregon but she will not talk to me so I think there is more to the story then meets the eye.

    I will be so glad when I am done with Herceptin....six more doses!
    tina
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  • Liezel
    Liezel Member Posts: 192
    edited July 2007
    Tina, (((((((BIG HUG))))))

    I also suffered from Vertigo with my last few Herceptin Treatments. Nobody believed it was from the Herceptin, but it cleared within 4 - 8 weeks of my last tx. Good luck. Hang in there and look after yourself.

    I hope you can get to speak to Pam soon. This summer really has not been good for you, has it? Hang in there. Thinking of you.

    Linda, sorry to hear about your sister. Such good news about Isaac. I think he is very special to all of us, and we are all rooting for him!!

    I am busy detoxing for my recon surgery next week. I am really feeling great. Missing my glass of wine every evening though! I am having my "good" breast removed as well, and I am quite scared. What if they find something during the surgery? If I remove the breast, won't the cancer just go into another organ if it comes back? I am being silly I know, but can't help it.

    Otherwise all well. Working hard ans still trying to sort out the new house. Bitterly cold here at the moment and bad storms on the way. Enjoy your sunshine...

    Liezel
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  • Calico
    Calico Member Posts: 1,108
    edited July 2007
    Liezel,
    it's awful to be scared, hope all is well and they find zilch, nix, nada....I will pray for you.
    Tina,
    sorry about your troubles....life is testing you now...I hope you will be able to speak with Pam soon.

    Linda,
    I am so sorry about your sister....it is so hard, feeling helpless and not being able to help.

    Maxine,
    hurra for recon....glad you're doing well.

    Peggy,
    thank you for the awesome pictures, soooo neat to visit Hawaii!!! I love the crater (but would be to chicken to visit I think...craters scare me)
    I am so happy for your good MRI results!!!

    Hope everyone else is hanging in there???

    Had my onc visit, potassium is a bit high...I want to repeat but am to chicken to go in....bone pain too, have another PET for Sept/Oct., I sure hope it's the Femara.

    Gina's MRI is not great....she has water around the joint again, just don't know what to do....it makes me sick to see her in pain when she is a "normal" teenager, walking a bit faster than she should and it results in pain.

    Mom starts radiation next month, just before her 70th birthday.

    I am sheduling another appointment with my therapist, hate to go on meds but seriously consider it...

    God Bless
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  • txred9876
    txred9876 Member Posts: 392
    edited July 2007
    I have a challenge for everyone....

    I need to come up with a caption for the calendar Pam and I are going to be in...
    you can see the cover of the 2007 one at www.alisamurray.com

    I need 2-3 sentences....about breastcancer and being a mom. I am not literary and need more then 2-3 sentences...

    I have not spoke to pam ....she is supposed to be staying with her dad instead of coming home..still am in the dark for the most part...it has been rough and I am trying hard to give it up to him and let him take care of it in his own time...

    tina
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  • susan_02143
    susan_02143 Member Posts: 7,209
    edited July 2007
    Tina,

    I have to admit I can't always follow the story lines of your family, but I can feel that those you love most are omitting you from their lives and that your feelings are hurt. It must be so hard to be so far away from your daughters.

    As to the caption for the picture: given the current circumstances I wonder about using the cliche about blood/water.

    Love across Generations
    Mothers and Daughter. Forever.

    Please take care. I send you best wishes that you are happy.. and that your daughters realize how much they need you.

    *susan*
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  • sholroyd
    sholroyd Member Posts: 288
    edited July 2007
    2 years today since my Op – my hubby’s birthday.

    Tina – hugs you are going through such a tough time. I cannot just think of 2-3 sentences right now. I like Susan's though.

    I have just returned from 3 nights in North Wales – needed the wellies and the raincoats for some of the time, however a good time had by all.

    I now have a Spanish student staying with me for 3 weeks; thankfully she is lovely and has fitted in well with our family. First time I have done this – might do it again.

    I have had a problem from my eye test; I am told I have high pressure behind my eyes which could indicate Glaucoma, Optician said “would you like this to be monitored by the hospital or me” – my reply was “you”. I do not want more hospital appointments right now. I will have another test in 6 months so it is not anything that needs immediate attention – what a nuisance.

    Peg, I am so relieved to hear your MRI was clear and thanks for sharing your photographs – you pack so much in Peg.

    I haven’t made any decisions on reconstruction as yet. Maxine how are the girlies doing? Liezel, best wishes to you.

    Calico, hugs to Gina and your mum, and of course you.

    Isaac – news of his progress really cheers us, thanks Linda. Hugs to your sister and you.

    Well I had best go and see what we have for tea and hopefully Elena will like it (Spanish student).

    Speak soon.

    Sandra from the UK.
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  • foxxf
    foxxf Member Posts: 171
    edited July 2007
    Hi all,

    I have been doing well, very busy in the new canteen job but am seeing positive results.

    It has been bloody freezing here! - 4 celius the other morning but the days are starting to warm a little.

    I have a cold at the moment and can't talk much, lucky for you lovely ladies I can still type though..lol

    thinking of you always
    Nicole
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  • Calico
    Calico Member Posts: 1,108
    edited August 2007
    Nicole,
    hard to believe you are freezing, it's hot in Colorado

    Susan,
    very nice suggestion for the calender, I like that.

    Tina,
    sorry you still don't have this resolved

    Sandra,
    congratulations on your cancerversary.
    Sounds like a lovely trip....but how was the weather?? I hear it was pretty bad for a while?

    Hope everyone enjoys the rest of the summer.

    God Bless
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  • txred9876
    txred9876 Member Posts: 392
    edited August 2007
    Well all I finally got to talk to Pam on the phone and she is going to stay in Oregon wtih her dad for the time being. She really does not know him and her words were "I am almost 15 years old and I have always lived with you mom and I do not even know my dad at all. I think it is time to get to know him". How can I argure with that she will see soon enough and this will give me time to just worry about ME! I am not a ME person so to speak so this is all very new to me. I did find a few sentences to write: ( I like susans better but I had to come up with something)
    Life is to short; live each day as though it is your last because no one ever told me I could get breast cancer without having a lump. My faith in God and the support of my family and friends helped me make it through.

    I especially want to thank my wonderful daughter Pam, who made sure I was taken care of even though it was a huge role reversal.
    …Faith, hope and love. But the greatest of these is Love. 1 Corinthians 13:13.

    My oldest daughter Naomi, who will be 17 in Sept is coming down for 10 days with my dad to visit. I am so excited.

    Thank you EVERYONE....for all your love and support as well as prayers in this time of crisis.

    Love tina
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  • txred9876
    txred9876 Member Posts: 392
    edited August 2007
    I am ok and so is the other car...just a minor fender bender. I have been having vertigo symtoms along with this my oncologist is very concerned and they ordered a stat MRI of my head for this evening. We should have the results on Monday. They fear the cancer may have spread (prayers are needed....). I will let everyone know as soon as I know,

    tina
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  • susan_02143
    susan_02143 Member Posts: 7,209
    edited August 2007
    if you want prayers, you get them Tina, even though I am not much a prayer person. I too have vertigo occasionally, but the doctors blame it on aromasin. I will hope that your vertigo is drug related as well.

    *susan*
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  • Calico
    Calico Member Posts: 1,108
    edited August 2007
    Oh Tina,
    I will definately pray really hard.
    Susan has a point...it could be the AI...my blood pressure is really whacky low lately, pulse slow like molasses,

    cheech....I hope hope hope that you are okay...maybe it's the stress from not seeing your daughter anymore....

    God Bless
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  • Pegk
    Pegk Member Posts: 389
    edited August 2007
    I'm so sorry Tina...you are going through so much.
    Count your blessings that you weren't hurt.
    I hope there's a simple explanation for your vertigo...the drugs.
    You're in my prayers.
    Peggy
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  • lynellb123
    lynellb123 Member Posts: 69
    edited August 2007

    Tina so sorry to hear about your car accident. As Peg said thank god you weren't hurt. I will send prayers out that your scan shows nothing out of the ordinary. You have had a lot of stress lately & that can't be good. Sending love & light your way!

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  • Liezel
    Liezel Member Posts: 192
    edited August 2007
    Tina, lots of prayers going your way. Also had problems with the vertigo, but that stopped after I finished herceptin. Glad you weren't injured....

    I am back home from my left mast. and reconstruction last Wednesday. I am still very sore, specially the mast side, but trying not to take too much pain killers. Just feeling very low and nauseous still. Don't understand. PS very confident that there is nothing on the left side, but I am seeing him on Wednesday and will hopefully have the path report then. Can't believe I did this to myself - willingly. I know it was the right decision, but damn it is sore.....

    Keep well everybody
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  • linny
    linny Member Posts: 204
    edited August 2007
    I just lost a long post!!! I'm so upset.

    In any case, I am not going to redo it. Just wanted to say that I am thinking of you Tina - I am glad the accident was minor and pray for your good results tomorrow. Liezel, I hope you feel better quickly. How do you manage with your young son?

    Linda
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  • leannem
    leannem Member Posts: 137
    edited August 2007
    Prayers coming your way Tina. Please post when you can.

    oxo
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  • Calico
    Calico Member Posts: 1,108
    edited August 2007
    Tina,
    any news yet??? Thinking about you!!!

    God Bless
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  • sholroyd
    sholroyd Member Posts: 288
    edited August 2007
    Add me to your list Tina, very much in my thoughts.

    Liezel, I am sorry you are so sore - it will get beter daily though.

    I am off to London for the weekend - going to theatre to see Sound of Music.

    Speak soon.

    Sandra from the UK.
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  • hopeful1
    hopeful1 Member Posts: 54
    edited August 2007
    Tina - my prayers are with you and all of my September sisters.

    Hopeful1
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  • Calico
    Calico Member Posts: 1,108
    edited August 2007
    Tina,
    checking in on you....

    Liezel,
    it will get better, nausea could be from steroids maybe? They do use them I think, I am nauseous after every surgery.

    Try to take it easy.

    God Bless
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  • Calico
    Calico Member Posts: 1,108
    edited August 2007
    Sandra,
    enjoy your trip!

    God Bless
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  • marg1
    marg1 Member Posts: 73
    edited August 2007
    Hi Everybody, its me Marg

    Peggy, love the pic of you and your family in California. Looks like you had tons of fun.

    Sandra - Enjoy London. My kids LOVE the sound of music. Hope you have a great time.

    Tina - hope all is well and you post soon. Anxious to hear from you.

    Hi Leannem. Hope you are doing well.

    Lots of reading and just catching up with you all.

    Well I said that I would start a breast cancer support group someday and I did. I had my first one last month and it was great. I had 7 ladies there and it felt great. Lots of newbies -- we all were under 2 years except for one 10 yr survivor. I hold the meetings monthly. I love it and finally feel like I am doing something good for the women down here with bc. (so many of us so young, now I wonder if its all the crap they burn in Mexico that is affecting us all her in the valley- well that is my theory anyway)

    I am doing great -- still achy from Arimidex other than that great. I had a bone scan to r/p bone mets due to pain to rt hip but they were clear and now it turns out is my sciatic nerve that acts up every now and then. My bone denisty exam showed significant bone loss from one yr to the next so they doubled my fosamax. Heck - I need a pill box now with all the stuff I am taking. My crazy nursing job (the one I swore I was not going back to) is just that crazy and stressful but so much in debt that I need to work to get where I want to be -- photography. On vacation in 2 weeks to Disney Florida with my hubby and the girls. Cant wait. Pray for zero hurricanes

    God bless all you lovely ladies -- Marg
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  • foxxf
    foxxf Member Posts: 171
    edited August 2007
    Tina, thinking of you, hopeing for the best.

    Leizel short term pain, long term gain..just keep repeating...(doesn't feel that way at the time though!)

    Sandra enjoy your trip and the show too. We are in the process of purchasing tickets to see Sting and the Police in Sydney. I think it will be in January 2008. Woo Hoo can't wait.

    I am doing well still cold, big frost this morning. Bring on the sun!

    Love to all
    Nicole
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  • sholroyd
    sholroyd Member Posts: 288
    edited August 2007
    Just checking in for news - Marg, great to hear from you; I am trying to get my head around setting up some fundraising for research - news of your support group have given me a kick up the youknowhere to spur me on ;-).

    Sandra from the UK.
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  • leannem
    leannem Member Posts: 137
    edited August 2007
    Hi all

    Just checking in on Tina. Prayers to you.

    Liezel hope you are feeling better hon.

    Congrats marg on setting up your support group! That is awesome

    Nicole I am soooo jealous that you are going to The Police. I really want to go.

    I have to go and get ready to take the kids to kindy and myself off to herceptin (sigh) then work. Will check in again soon

    xooxo
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  • Calico
    Calico Member Posts: 1,108
    edited August 2007
    Tina,
    wish you would post....not hearing from you makes me think the worst.....

    Thinking of you and praying for you!!!

    God Bless
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  • txred9876
    txred9876 Member Posts: 392
    edited August 2007
    Sorry I did not post sooner but I have been exhausted this week taking the bus in the texas heat.

    MY SCANS CAME BACK CLEAN! THE CANCER HAS NOT SPREAD! OUR PRAYERS WERE ANSWERED!

    Now I have a whole bunch of tests to do the next few weeks to try to figure out whats up. The neurologist said that I could be having miniseizures due to nerve damage from the Taxol. As I have said before it has left me with horrible neurapathy in my legs especially.

    Sorry I did not post sooner but I feel like this whole week I have done nothing but work, doctors, cooked in the sun waiting for the bus and sleep. I had herceptin on Wed and stayed up most of the night achy then went to work thurs. Thursday was a 12 hour day once you added the bus trip.

    I am doing better though as far as it goes...I feel so wonderful to have such great "sisters" with all the prayers and stuff that has brought me through this dark time in my life.

    One the daughter front...I am ok with Pam staying with her dad for now....her sister has made the decision to move home with me. She made me promise I would not drive! She is almost 17 and said she wants to be my chaufer! As the day of her departure from Oregon nears (sept 1) she calls me more and more. I think she is just checking on me to make sure I am OK! It is like my kids switched bodies....I am not going to worry about it...I just tell both of the how much I love and miss them. I know in time pam will come home.

    My dad is coming down from sept 5-15th toooo....lots going on around my house!

    Thank you again...for all the prayers!

    Tina
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  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008
    Such wonderful news Tina! You are a true hero to push forward as you are doing. You'll remain in my thoughts as your doctors search for more insight to help you, and with family surrounding you.

    Tender
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