For those starting chemo in June

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  • janie44
    janie44 Member Posts: 1,460
    edited July 2007
    Thank God it is not cancer Mary! Having said that, I will say I wish you did not have to go through the pain and deal with all the problems your son is going through. It is unreal how unkind so many people are, whether it be actually inflicting pain or trying to scam everybody. Man's inhumanity to man I guess. At least there are some good souls left to ward off the evil ones. Again, so happy it is B9. I have thought about you all day. Relax and have your own little celebration tonight. Here's to Mary. Hip Hip Hurray! Hugs,

    Janie
  • PJB
    PJB Member Posts: 2,615
    edited July 2007

    Hear that big sigh of relief? Thank goodness, Mary. I hope they can get them out of there, tho, if they're causing pain. Back later, I'm getting kicked off.

  • PJB
    PJB Member Posts: 2,615
    edited July 2007
    Sorry, I was rudely interrupted.

    Mary, I'm so glad it's not cancer. I hope they figure out what to do quickly. I know you don't need this on top of what happened to your poor son. That's awful and so scary. I hope his procedures go well.

    Speaking as a newspaper person, if the cops really don't get anywhere, you might consider just talking to a reporter there. If there's a known guy that the cops aren't getting to and these thugs are out there doing that sort of thing, well, seems like the paper might do something and work to protect your identities. It would really piss off the cops, tho. But maybe that's just too much to even try to take on right now.

    Janie, I hope your house is going great. And thinking of Nancy and all of the rest of the folks out there.

    Off to bed, sending positive thoughts your way, Mary,
    PJ
  • mary1220
    mary1220 Member Posts: 1,246
    edited July 2007
    It is sooo good to have such a great bunch of friends. Thought I was going to sleep but maybe in a while. That Keestone cops is Keystone Cops. I am such an airhead and I don't even know it sometimes. Our newspaper is just a small town paper with reporters that aren't actually reporters, just high school grads. Some may have gone to col. but there are like 3 reporters for the whole paper. It is a gossip paper mostly. Not much news so it is arrest, marriage lic. divorces and small claims. Theres a good one. They print everyone who is going to court over bills so everyone can bad mouth them. They publish speeding tickets, squeeling tires, yea, it is pretty national stuff. Well thanks for all your thoughts girls. You guys are the BEST! Nighty, Night, Mary
  • PJB
    PJB Member Posts: 2,615
    edited July 2007
    Mary, that doesn't sound like much of a newspaper, for sure. Thinking about of you guys up there today....

    Janie, are you packing? Are you sick of it yet?


    Just wanted to check in this morning. Everything's going well. Guess what? More rain. It's beautiful and green in Texas and it's nearly August. I'll have to keep an eye out for flying pigs...


    Paula
  • mary1220
    mary1220 Member Posts: 1,246
    edited July 2007

    Good Morning girls, Catch one those pigs and you will have ham and baccon for a year P.J. Have a good day everyone. On my way for my shot then to hospital for sons surgery. Later little gators, Mary

  • janie44
    janie44 Member Posts: 1,460
    edited July 2007
    Mary, hope all went well today.

    PJ, I am tired of packing, but more tired of being put on hold or told I will be called back later from all the people involved in my moving and connecting and disconnecting. I would handle it online but there always seems to be questions the computer cannot answer so I have to wait for a real live person.
  • mary1220
    mary1220 Member Posts: 1,246
    edited July 2007

    Just wanted to say hi. My shoulder is very sore so I have been laying around. I will check in tomorrow. Have a good evening girls. Hope N.L. is doing fine. Mary

  • janie44
    janie44 Member Posts: 1,460
    edited July 2007
    Hey Mary, Did you get the shot? Maybe it will start feeling better shortly. Hope it does.

    Thinking of you Nancy.

    Hey to the rest of you ladies.
  • mary1220
    mary1220 Member Posts: 1,246
    edited July 2007

    Hey girls, Janie, Yea, I got the shot. It is the one you can get every 3 months. I had a resident do it(teaching clinic with S.I.U.) he isn't even going into Ortho., only me. He was scared and shook so bad while the needle was in I think he wore a whole in my arm. It was very painful. I had 2 grandkids with me as son was getting surgery done a few blocks away. I got up and blood pressure dropped and I about went out. My B.P. was 58/48. I went back in the room and laid down and got better then went to hosp. to wait on son. I got very sick at my stomach a couple days but am better now. My neck pain has increased but I hope it gets better. I called about the stomach but they said the shot shouldn't do that. Some of my pain is gone but some is worse. I hope it will calm down soon. I won't do that again. Hows the move? You must be excited. I bet you can't wait to get to decorating. I get sooo many ideas going through my head about a house. I think of colors and curtains and wall hangings. P.J. you must be getting ready to go. The humidity up this way is really bad. Are you flying? Hope N.L. is recovering well and will be back soon. Mary

  • janie44
    janie44 Member Posts: 1,460
    edited July 2007
    Mary, That is unreal about the resident. Especially since he is not even in training to do such. The few times I have had the shot, the M.D. was very persnickady and gave it himself. Wow! It is a wonder you did not pass out with that BP! The whole ordeal and worrying about your son to boot was enough to make you sick.

    Yes, as I pack, I am thinking this could go in that room etc. As you may remember, I only had 4 days when I moved back here two years ago, to find a place to live and move before going to work. So I moved in this apartment that has served its purpose. Knowing I was not staying, I did not hang pictures or anything. A lot has to do with having a landlord and having to do so much when moving out in order to get the deposit back so I did as little as possible. NOW I can do whatever I freakin' well please. I also have a lot in storage that has not seen the light of day for 2 years and will be glad to be reacquainted with my "stuff." It was good to have the apartment during the rough treatment/recovery times, but now I am ready to take on a house again. I think I am as back to normal as I will ever be. If it were not for the LE and Parkinson's, I would pretty much be back to my pre-BC days.

    Well I had better hit the shower as I have so much to do and little time to do it.

    Later June Bugs,
  • PJB
    PJB Member Posts: 2,615
    edited July 2007
    Mary, I swear, if you didn't have bad luck you wouldn't have any luck at all! I can't believe they let Joe Training do that! I hope it hurries up and takes care of some of that pain. No wonder you almost passed out with all that's going on. And how's your son?

    Janie, I don't envy you the move. That's hard work. But I can't wait for you to be able to hang pics again!! Having your own place can be such a joy (OK, until something breaks in my case). I'm very happy for you.

    Hoping Nancy is well.

    Not much up here today, as usual. Just cleaning and a little shopping. Mary, we don't actually leave for a couple of weeks. I just get excited way ahead of when I should.

    Paula
  • mary1220
    mary1220 Member Posts: 1,246
    edited July 2007

    Hey girls, I have a question to throw out here and see if I am too anxious or not. I talked with my "other" Onky today and I asked about the fact I had a spine tumor back in 05 and no one told me. He was very babbly and I said well how sure are you that these 2 tumors are b9? He said it is low that they are cancer. But are you sure, again he said well it is low that they are cancer. I made an apt. with the spine Dr. already(yesterday) because I am not excepting "low" I want for sure. If they are not cancer they can get into nerves etc. and be very painful and may need ramoved early as late, I have a lot of back pain, Duh....I don't think I should except possibilities I think if a biop. is the only way to tell then I need a biop. Am I over reacting? I don't want a Dr. to say "well if they had been treated early you might have a better chance" ya know? Besides it is too late when they tangle in nerves and I can no longer walk. He should of told me that. Just for my peace of mind, Thanks girls, Mary

  • PJB
    PJB Member Posts: 2,615
    edited July 2007
    Could they do a bone scan and tell anything? Or did you already have one? Isn't it an MRI they did most recently?

    Given what we've been through, I don't think you CAN overreact. I would want to know one way or another. You're right, they SHOULD have told you that.

    And if the spine guy says they need to come out to keep you from having worse problems down the road and think the surgery is likely to avert that, then, well, I guess I'd do it.

    How's your son?

    I guess Janie is just about moving. Hope NancyLee is doing ok.

    Not much up here.

    Paula
  • mary1220
    mary1220 Member Posts: 1,246
    edited July 2007

    Hey P.J. Janie must be busy moving. Hope N.L. is good and recovering well. They are doing a bone scan Wed. they can tell if it is bone in the scan and MRI but if it is soft tissue then they need a MRI with contrast. I am seeing the spine guy because he deals with this a lot and knows more than the Onky so if he says it is nothing then I will accept that. When I asked about the former tumor from 05 that my real Onky didn't say anything about this Onky seemed nervous and said maybe it is the same tumor and the radiologist just can't count. Thats strange huh? One is in the thoracic and one in the lumbar. Theres a good distance between them. Maybe I am over reacting wanting a second dx. but I have worked with Drs. and I now how things get mixed up unintentionally. My son is doing better, thanks, and he had his nose job and eye socket fixed. He has to go to Chicago the 23rd. and get his shoulder surg. again. Some kid went down his street and keyed all the cars parked in the road so yea, his car has a nice long scratch. The guy next door just bought a pretty red truck 2 wks. ago. That has to suck. Why do people do that stuff? The cops haven't done anything yet about my sons beating but I really hope they get these guys. They have admitted it to people but thats here say. Well hubby has to have surgery so he goes the 29th.(his birthday) to see about it. He is excited, it only took 3 years to find out he has spurrs digging into his nerves and tendons in his shoulders. Maybe things will start looking up. Hows Mom? does she like Texas? I better get, Later, Mary

  • PJB
    PJB Member Posts: 2,615
    edited July 2007
    Mary, well, I hope they get you some answers. I'd keep asking the next doctor til you're sure you're getting the straight scoop. Doctors... Glad your son is doing OK. Man, you guys are just going through it....

    Mom's doing pretty well. Her house is pretty much up to snuff and she's getting into some fitness and tennis stuff, which is what she lives for... (SOMEone in our family had to be that way, I guess).

    Dang, it finally got "hot" here today, altho I'm sure worse is coming. I was so pleased that we've had such a great summer so far.

    Let me know how you're doing. Is the shot they gave you last week working yet?

    Paula
  • janie44
    janie44 Member Posts: 1,460
    edited July 2007
    Mary, I do not think you are over-reacting. You do not need that possibility hanging over your head, even if remote. Like Paula said, we cannot over-react, given all that has been handed us.

    Yes, I am in the middle of moving. Some stuff there already, some here. I will be there tomorrow with all of it. Then I probably will not be able to be on here until around Thursday.

    Well, better run. Good night all.
  • NancyLee13
    NancyLee13 Member Posts: 496
    edited August 2007
    Mary, I agree that's you can't overreact. That's why I kept pushing over that little pain in my side and if I hadn't--they would have never kept looking and found the cysts on my ovary. I think that we all know our bodies best and we just KNOW when something's not right. I'm finally back home and somewhat recovering. Not much stamina. I can't drive for 2 weeks and need to limit my activities for a month. That's not hard considering my get up and go got up and went!! Got the path report back yesterday and they got it all. I shouldn't have to have any treatments. I'm going back in 6 weeks for more blood tests and to see both the oncologist and my ob/gyn surgeons. At that time, I hope this little part of my drama is over at last. Best go back to bed--sitting up makes me a little dizzy--Life is Good-Smiles--NancyLee
  • mary1220
    mary1220 Member Posts: 1,246
    edited August 2007

    Hey N.L. it is really good to have you back and recooping. We have missed you. Take it easy and enjoy it. Thank goodness you don't have to get anymore treatment. You rest and pamper yourself. Janie, you be careful moving or we will be waiting on you to get out of traction. Stay cool P.J. and didn't you get a little different job recently at the old job? Gosh, your mom makes me feel guilty for not exercising. Should I really? I really think about it once in a while, long while. Well maybe not but I think I might someday think about it. Mary

  • NancyLee13
    NancyLee13 Member Posts: 496
    edited August 2007
    Morning!!!! My little barn kittens are out in front of the house by the garage playing on the wheelchair ramp that is lying on the basketball cement. They're running up and down knocking each other off onto the ground--really cute--3 of them. Their mother is sitting off to the side taking a dim view of the proceedings and my dog is in the yard gate barking at the whole thing. They're just ignoring him much to his displeasure!! I'm feeling pretty perky this A.M. Drugs are a wonderful invention!! I bought this cute little bowl at K-Mart that has M&M's all over it so I put it on my coffee table and filled it with dark chocolate M&M's. They are calling to me!!! Hope everyone has a super end-of-the-week day!! Life is Good Smiles NancyLee
  • mary1220
    mary1220 Member Posts: 1,246
    edited August 2007

    Glad to hear your up and around N.L. Hope everyone is having a great wk. end. I had grandkids lastnight and they are sleeping yet. Janie must be excited and busy. Are you getting ready for your trip yet P.J. Well I have to get some coffee so have a great day girls. Mary

  • janie44
    janie44 Member Posts: 1,460
    edited August 2007
    Hey June Bugs,

    I am at my son's doing online banking and taking the chance to say hey. It will be a few days before I am connected. Cannot believe how long it takes to get set up where I live now. Love my new digs. Hugs to all,
  • PJB
    PJB Member Posts: 2,615
    edited August 2007
    Janie, glad that you're in your new place and loving it. It is amazing how many little things there are to get done to get back to "normal" life when you move.

    NancyLee, hope you're feeling better and relaxing.

    Mary, how're you feeling? Did your shot help? How's your son feeling?

    Not much up here. Mom's with us as she had another calamity at her house. (AC leak, wood floors damaged pretty badly) I feel so bad for her. She was just getting settled in and found some new friends closer to her age and now this..... A week from today, I'll be headed from Omaha to the Black Hills. Can't wait...

    Later,
    PJ
  • NancyLee13
    NancyLee13 Member Posts: 496
    edited August 2007
    PJ--Rapid City and the Black Hills are very close to where I live. We just take a back road down through Camp Crook and are there. My brave little tiger kitten came right into the front yard this morning. Dash made a run at him and scared him away. Cute, cute, cute. I shut off my phones yesterday and left them all in a box on the floor. This morning I checked them and they are full of text messages and voice mail. It was all stuff that could wait so I'm glad I was out of touch. It gave me a good chance to rest and relax. Hope you're all having a good Sunday too. Life is Good Smiles NancyLee
  • mary1220
    mary1220 Member Posts: 1,246
    edited August 2007

    Hey Girls, everythings o.k. here. My son is getting all jettery for his shoulder surgery the 23rd. His face surgery went very well, he is back to normal almost. I get my spots on my spine checked tomorrow and I think they will be fine, I just want to make sure. Went to the Ear Nose and Throat Dr. and my voice change is from my denture being too long on the roof of my mouth. Can you imagine? The bad gruff voice is from the Thyroid which is out of control. I go to the Endocronologist the 28th. so that will take care of that. She said the Thyroid "may" have to come out because it doesn't seem to be responding to treatment but she doesn't know that much about treatment just taking them out. She seemed to think the node they didn't biop. should have been. I wonder now what that means and I didn't ask at the time. I guess I will find out the 28th. My shoulder is worse now than before. I am going to an Ortho the 14th. (and a good one) so maybe I will find out whats up then. I know there is nerve problems because I get numbness in my hand and fingers and burning pain in my arm and tenderness very bad in my elbow. Since the shot, my left hand shakes bad when I try to do little things like my jewelry. I didn't have any shaking in my left hand before(just a little in my right hand). I will find something out soon I hope. Have a great day. Mary

  • NancyLee13
    NancyLee13 Member Posts: 496
    edited August 2007
    Gosh, Mary, I hope you have all that written down because I'd never be able to keep all those appointments straight!! Last week when I went back for my checkup and bloodwork, I walked down the hall to my primary physicians office to tell his receptionist that I needed to cancel my Ortho appointment on August 1 because the pain was gynocological and not my hip at all and she was sitting in the hallway running high school kids in and out of the offices for free school physicals. She says, Nancy, are you here for your school physical--Funny, not!! So I hopefully don't have to go back to the doctors until September when I have the ob/gyn and oncologist on the same day. I only have to remember one day and I have that in my datebook, on two cards and on 3 calendars. Maybe that way I'll keep track of it!! Can they take your whole thyroid out?? OOOOH! I had a cyst removed from my thyroid some time ago and they were very careful not to nick my voicebox so I know problems with the thyroid can affect the voice. Well, Montana is on fire. We are full of wildfires and the governor has declared the state a disaster area so that the feds will hopefully help with the fire fighting. It makes the air outside all smoky although the fires are clear on the other side of the state. The air just looks red and it's hard for people like me to breathe. Good thing I'm confined to the house anyway, huh? Gonna go rest awhile. Hope you all have a super week--Life is Good Smiles NancyLee
  • mary1220
    mary1220 Member Posts: 1,246
    edited August 2007

    Hey Girls, Spine guy said it is highly unlikely my tumors are cancer but I need a bone scan anyway. I waited 1 1/2 hours for him, I was very antsey! My little pup got stung by a bee today and I had to take her to the Vet for a shot for reaction and pain. Shes got a low pain tollerance. Only us, we had a poodle that had seizures now a dog that is allergic to bees. How did she ever step on it anyway? I was walking her and she sat down and started to shake and I saw the paw pulled to her side and she yelped when I touched it so after about an hour she was still trembling bad so I hauled her to the Vet. Since she is such a baby with pain he gave her pain meds with the benadryl. She was high all day. I would of liked some of that. She looked very happy. I needed some after I cut that check. I think it is to get above 100 like 105 and 107 with the heat index the next few days. The humidity will make it miserable. Everyone I talk to feels sick because of the heat and humidity. You can't even breath, and you get so tired. Glad your getting better N.L. and P.J. start packing. Hope all is going smooth for Janie. Later girls, Mary

  • janie44
    janie44 Member Posts: 1,460
    edited August 2007

    I just realized my last post did not work so this is a brief version. Mary your little Mexican dog is so small to have so much venom from a sting. Hope everyone is feeling better.

  • mary1220
    mary1220 Member Posts: 1,246
    edited August 2007

    Hey Janie, hope your getting moved. Don't ya hate working when you are moving and you think of all the stuff you could be doing at home? Did I tell ya our little dog has a hair lip? She looks like shes smiling all the time. We call it her Elvis lip. She is too spoiled. We are doing a Farmers Festival Thurs. Fri. and Sat. With the 105 heat index it probably won't be crowded until after the sun goes down. We are doing another country fair next wk. end so maybe we will make some money. I better get my crap together so later little gators. Mary

  • NancyLee13
    NancyLee13 Member Posts: 496
    edited August 2007
    Just got back from the hospital--AGAIN--went up there because I felt like crap and it turns out I have a gastrointestional virus??? and how did I manage that when I've been holed up here in more or less isolation for the past 2 weeks?? She thinks that I picked it up last week when I went for my checkup and it took this long to get bad enough that I went back--my immune system still and probably forever leaves a lot to be desired so I can catch any little stray virus that happens to attach itself to me--anyhow I ended up back in the infusion room in my own big ugly green chair having IV fluids and anti-emedics pumped into me--the nurse said that she felt like she'd poked me more in the last 3 weeks than she ever did during my 18 months of chemo--she had a terrible time finding a vein and we both cheered the fact that I had that port during chemo--Lord, those things are one of the best inventions in the world in my opinion. Anyhow, I have a bunch of new anti-puke pills and strict instructions to drink fluids, rest and not go back to work. Like I've been doing anything else but laying around drinking tea and water. Sigh!! So that's what I did today--and since I drove myself up there--they couldn't put me in the hospital for a day or two of observation--AS IF--hospitals, we don't need no stinking hospitals!!! Janie, I got your new address in my e-mail--Thanks!! Life is Good Smiles NancyLee

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