I am starting chemo in July 07. Anyone else?

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  • mominpa
    mominpa Member Posts: 17
    edited July 2007
    Thanks! I'm back from my first tx (A/C)...not too bad. I do feel a little fuzzy-headed and eyes and nose burn a little bit, but all-in-all pretty manageable! I guess tomorrow is the real test. They gave me Neulasta to inject tomorrow. I have Compazine to take later today, and will take Kytril the next 3 days. It feels good to get one of those out of the way!
    Vickie, good luck on Thursday!
  • klwinsa
    klwinsa Member Posts: 34
    edited July 2007
    I'm so glad your first treatmemt went well, I'm scheduled for #1 on Thursday and I know what you mean about getting one of these treatments behind us!

    Kim
  • lthigpen143
    lthigpen143 Member Posts: 45
    edited July 2007
    I had my first treatment 5 days ago and am starting to get more energy. I felt fuzzy and strange the first two days and then very fatigued the next two. Not much nausea but tired and "weird" feeling. I am trying to walk around the block each day. I hear that helps with the fatigue. I am hungry a lot and am TRYING to eat healthy. Keep drinking that water, Ladies!
    I am having trouble sleeping at night. I am tired but restless. I did not want to take the nausea meds for sleep aid so I got my doc to prescribe Lunesta for me. Tonight is my first try at this. I just want to get a good night sleep.
    Mominpa - what are you injecting? Hmmmm. Does it help your white blood count? I don't have any injection. Are lots of you all using an injection?
    Hang in there everyone! The weather here was beautiful today and that always helps. Hope your days are good ones.
  • kkelsey
    kkelsey Member Posts: 8
    edited July 2007
    Hello Ladies,

    I go in tomorrow for my 2nd AC treatment. I felt ok the first week. I just did not have enery. I also got very constipated and had heartburn. But, the 2nd week I felt great. I still have not lost any of my hair yet, but am assuming I will lose it this week just from what everyone says. Has anyone lost there hair on there 1 or 2 treatment. I do get heartburn and feel that I am hungry all the time as well gr8DazeAhead. I will keep you all posted on how it goes this week. Good luck to everyone else going in this week.

    Talk to you all soon.

    -
  • liven42day
    liven42day Member Posts: 76
    edited July 2007
    Hi Ladies,
    I am also starting ACx4 chemo July 30, 2007, followed by Taxol x4, right now trying to recover from port surgery that went very wrong. We will all get through this together, this website is awesome.
    Take Care Ladies, Charlene
  • Gagal
    Gagal Member Posts: 42
    edited July 2007
    Kkelsey,

    I've also been having heartburn I take an over the counter generic I got at costco it seems to help. My hair started to come out on day 14 so day 16 I went ahead and shaved it probable could've waited a bit longer but just didn't want to deal with it. Good luck with your 2nd treatment tomorrow.
  • mominpa
    mominpa Member Posts: 17
    edited July 2007
    Day 2 after 1st tx and still manageable. I had some indigestion last night and woke up with a headache and a bit queasy...still kind of feel a little queasy, even after the Kytril, but I will try to eat a little something throughout the day.
    The Neulasta is for my white blood count, to help keep it up. I could have them do it, but since it can go in the thigh, I said I could do it at home. I will get my blood count checked next week before my 2nd tx, to see how I'm doing.
    Kkelsey, good luck tomorrow.
    Karen
  • LottaQuilts
    LottaQuilts Member Posts: 212
    edited July 2007
    KKelsey - I'm the same as Gagal. My hair started coming out on day 14. By day 16 I was so stressed out about it that I had DH shave me. Best thing I could have ever done. I still have a little bit of hair here and there, but mostly bald patches.... it would have been a mess had I not shaved it off.

    Bald is beautiful, right! (Well, ok.. maybe not.... but you do the best with what ya' got KWIM)
  • Marie853
    Marie853 Member Posts: 45
    edited July 2007
    My hair has started it's shedding today..day 13. I have a company meeting to get through today. Ugh! Then, I will see how it does tomorrow. I bought so many cute hats and of course, have my wig. Maybe I'm just not ready to shave it yet.
    I have a question. I read that sometimes the surgery areas start to hurt because of the chemo. I woke up one night because I was hurting under my arm where my nodes were removed. It was just that one night. Now, it kinda comes and goes. Just wandering if anyone else has had anything like that? I think I tend to use that arm more than I should, too.
    Just one more week until AC #2 is history!
    Take care everyone!
    ~Barb
  • TINAMAE
    TINAMAE Member Posts: 106
    edited July 2007
    W ell I had my first chemo yesterday and wouldn't you know I got sick about 8pm last night and started taking my phenegran , went to work this morning still don't feel to good,will have my nulasta shot today at lunch anyone know what it will do?

    Thanks Tina
  • Marie853
    Marie853 Member Posts: 45
    edited July 2007
    Hi Tina,
    I was told to take Claritin the day before, day of and for about 3 days after the Neulasta injection. I was also taking Advil and Motrin (Ok by the Doctor). I had some bone pain, but not too bad. I did OK on Neulasta.
    Goodluck!
    Barb
  • LottaQuilts
    LottaQuilts Member Posts: 212
    edited July 2007
    (((Tinamae)))

    Bless all of you that work. I'm very fortunate to be an at-home mom through all this.

    No good advice, just thinking of you!
  • figsgirls
    figsgirls Member Posts: 253
    edited July 2007
    Hey Barb, what is the purpose of taking the Claritin? I'm curious because I have had a headache on and off since the day after my Neulasta shot (a week ago today). It feels almost like a sinus headache so I have been wondering if an allergy medicine will help.
    Does anybody else have any suggestions for dealing with the headache? I don't feel like Ibuprophen or Tylenol is doing much. It seems to be worse in the evening.
    Aside from a headache and some fuzziness that also seems to come and go, I haven't been doing too badly. I'm in my off week and almost feel like my old self. Next treatment (#2) is Monday 7/30 so I expect I will be losing my hair soon.
    My free wig looks really good. I took it to my hair stylist and she trimmed it for me. She said it is a really good brand and was very enthusiastic about how it looked. I hope she wasn't lying to make me feel good!! I wanted to pay her but she just said "Give me a hug and let me know how you're doing once in a while". I've always had my hair cut every 4 weeks, and I'm going to miss her!

    I had trouble staying asleep for 3 or 4 nights after my treatment. I found that if I moved to the couch and turned on the TV it would somehow put me back to sleep. Nick at Nite is as good as a sleeping pill for me!

    Thursday evening I'm going to an "Ask the Expert" presentation on chemobrain at Gilda's Club. I'll let you all know what I learn.

    Donna
  • gshoemate
    gshoemate Member Posts: 190
    edited July 2007
    BarbMAz, I thought I was crazy because a few days after treatment my node removal area hurt like crazy. Felt like I just got out of surgery. I'm not sure if it's from the chemo or the Neulasta.

    I am 8 days out from my 2nd A/C and I just can't seem to get into the swing of things. I am so tired I can barely make it through the day. Hubby thinks I am not eating enough so I need to increase my food intake, I just don't have an appetite.

    As far as hair, on day 16 during one of my few waking moments of the day, my daughter came into my room and told me not to panic and to look at my pillow, there were hair pieces everywhere. The next day they were falling out and getting into my food and my mouth so I had hubby shave it. I still have some stubble but also have some bald patches. I'm to the point where I don't where a hat to and from work and at work no one pays any attention, we're a small company. I think to the mall or grocery store, I would wear something. I'm going to try the gym tomorrow and that where I have a big issue. I went Monday and felt like everyone was staring at me in my scarf. Just another minor issue I need to get over.

    Kelle - Good luck with #2 tomorrow. 2 down 6 to go!!!!!

    Ginger
  • figsgirls
    figsgirls Member Posts: 253
    edited July 2007
    I have been noticing little pains in my surgery area, too. I thought it was my imagination.

    I am amazed at those of you who are working through chemo. GShoemate, no wonder you're tired. And you have kids to take care of. To all of you with kids at home and/or are working through this, God bless you. I truly admire your strength!!!
  • lthigpen143
    lthigpen143 Member Posts: 45
    edited July 2007
    I am going to have to ask my doctor about Neulasta. My Doc said I would not see her until my second treatment unless I was sick. Today is 6 days after my first treatment and I am FINALLY feeling "normal." Did it take you gals that long your first time?! They say recovery takes a day or two longer each time. That means that chemo #4 will take me 12 days to get over!! Oh gosh, I hope that is not so.
    I need to stop complaining, though. We are making it through and this will be a distant memory before we know it!!
    Is anyone out there NOT taking Neulasta? Just curious if I am the only one. Hang in there, everyone! And thanks for sharing your experiences with the rest of us. It helps me so much to know that I am not alone.

    Anxious to hear about what you find on "chemobrain." (I don't like that expression and am going to avoid labeling myself with it even when I feel like I have it. There must be studies out there about short vs long-term issues.
    -Laura
  • lthigpen143
    lthigpen143 Member Posts: 45
    edited July 2007
    Ginger,
    I am sorry you are having trouble right now. Please just take care of yourself and keep hydrated. I read a study that said that a walk each day (even just around the block) will help your energy level. Easier said than done but I wanted to let you know. I am thinking of you!
    -Laura (My 11 year old daughter is sitting here and says to send this in PURPLE because it will make you feel better. Hope it works.) Bedtime stories now - this is what it is all about!
  • kkelsey
    kkelsey Member Posts: 8
    edited July 2007
    Well I survived my 2nd treatment....it went very well...I felt so good that I went to get a pedicure (no cutting of cuticles though..just parafin, massage and painting), went shopping and then went to purchase two more wigs...they are adorable (positive energy here ) I also noticed that my hair has started to shed a lot! I am thinking of having my husband shave it or at the very least cut it to my shoulders. Any thoughts here??? Tomorrow I go in for my Neulasta shot, they prescribe a "cocktail" to take an hour before I go that includes: Benadryl (25mg), Claritin (10 mg. non-drowsy), and Tylenol (2 x 350mg)..it has really seemed to help. I have yet to get queasy..go fight win...we can all beat this ugly stuff together...good luck to all!! I am from Southern California, is there anyone here local?

    Take care,
    Kelle
  • kkelsey
    kkelsey Member Posts: 8
    edited July 2007
    Ginger,

    I am so sorry you aren't feeling well....I have the opposite problem...I can eat everything in sight and believe me, it is not good I have put on 10 lbs. lol! During my first txt, I felt good on days 1 and 2 and very sluggish and tired for days to follow. Regarding your pain in your node removal area, I had the same exact thing happen,but it has subsided now. I also did get the headaches, not unbearable but there nevertheless. A pain in the booty huh??? Remember as Abbi said, "Bald is beautiful" and remember we are all going through this together sister!!!

    I will be thinking of you! POSITIVE ENERGY!!!

    Take care,
    Kelle
  • Marie853
    Marie853 Member Posts: 45
    edited July 2007
    Donna, the purpose of the Claritin is that the side effects are due to an allergic reation to Neulasta (I guess like chemo and benedryl)...thus, supposedly, no or little side effects with Claritin. Kelle, your "cocktail" from your Onc sounds great!
    Donna, also, maybe, try Aleve for your headaches.
    Do you have a history of headaches? Just seems that everything we might have a history of is flaring up with chemo. Embarassing as it is, hemorroids from childbirth have been starting to cause me problems....everything manageble before is making me think...ut-uh, surgeries for the future..ugh! This is not fun!
    I'm beginning to think..the way to manage..is water..rest and exercise. We are also very lucky to have the drugs and knowledge of 2007. My mom had BC almost 10 years ago. I mention things to her that she never heard of before.
    It's nite-nite time!
    YES....think positive everyone!
    ~Barb
  • LottaQuilts
    LottaQuilts Member Posts: 212
    edited July 2007
    Laura - I'm not taking Neulasta either. Sounds like you and I are similar in many ways. 14 days after my first tx, my white count was a little low, but they just told me to avoid sick people, wash hands lots, yadda, yadda....

    As far as I'm concerned, the less drugs they pump into me, the better... side effects... they ALL have some kind of nasty side effect, don't they?

    I'm now 6 days out from my 2nd treatment and I feel really good. Appetite is back. My perception is that I tire more easy physically, but my brain is on overdrive. I'm having trouble sleeping at night and dragging my butt out of bed in the morning. Luckily, life isn't too demanding of me at the moment... so I can take it easy!

    I'm even used to being bald. At times I actually forget that I had a scarf on. I still have moments of being self-conscious too, though. But what do I care if people look at me....that's their problem. God knows I have enough of my own. So, Ginger... put on your scarf and go to the gym and who cares what they all think. They should admire you for even showing up at a gym while undergoing chemo treatments!

    Have a great day everybody.
  • figsgirls
    figsgirls Member Posts: 253
    edited July 2007
    Barb, thanks for the suggestions for the headache. This forum is such a help! Last night I took Excedrine for Sinus, because it's what I happened to have in the house, and it worked. I haven't really been prone to headaches, but when I was just starting my period as a kid I got a few migraines. My sister did too, and our mother had them from puberty until menopause, and then they miraculously stopped. So with all the hormone business related to BC and treatment, I wonder if that is what's going on. Anyway, I'm definitely going to talk with the chemo nurses on Monday about that"cocktail" of Claritin, etc.

    And Ginger, I agree with Abbi about the gym. Go with your scarf on and get your workout in. If they want to stare, it's their problem. But it might also help make people less uncomfortable around us to see us going about our lives as best we can during chemo. Not that we have to be poster children for anybody's discomfort with cancer patients.
    Anyway, someone else on an old thread suggested buffs to wear on the head, and I think it's a great idea for working out. You know, like they wear on "Survivor". They come in a ton of different patterns and solids, and you can wear them a couple of different ways to cover your head (It comes with directions, and there is a video on the website) and they are cool and stay secure. And when your hair grows back you can wear them as a hairband. Or like the skinny chicks on Survivor, you can wear them as a tube top! I don't think I'll be going there, though....even with my perky new boobs.......

    I ordered them from the internet. It was either wellnessmarketers.com or wellnessmarketing.com. They have free shipping. There is also the website for the Buff company, but they charge for shipping.

    My friend's mother has her last chemo today. I'm so jealous! But happy for her of course. She has weathered it really really well.

    Donna
  • TINAMAE
    TINAMAE Member Posts: 106
    edited July 2007
    Well ladies I got my nulasta shot yesterday and last night I felt like I could have died I hurt all over ,cant eat much first chemo was on monday will this pass

    Thanks Tina
  • lthigpen143
    lthigpen143 Member Posts: 45
    edited July 2007
    Hey Tina,
    If your body responds as mine did, you should start feeling better tomorrow or the next day. Hang in there! Try to sleep at night, drink water, and walk around a little. I had trouble sleeping so got Lunesta. It is helping me sleep and I feel better during the day. I am so sorry you are at a low point right now but it will get better. Ask friends and family for whatever you are needing (quiet, certain foods, whatever).
  • rspayne
    rspayne Member Posts: 49
    edited July 2007
    I'm having my second tx on the 30th(TAC every 21 days) Other than one day of extreme fatigue and a yucky taste in my mouth, it has been tolerable.
    My white count and platelets were dangerously low(even after neulasta.) It took about a week to get back to normal levels.
    But then two days ago, I got pink eye(said it could be caused by the tx.) I feel like I'm forever at the docs.
    I wish I could take my neulasta home with me! I have to drive into town and pay an office visit to get mine. Oh well, I really do not have much to complain about.

    Tomorrow I have to have my port checked as they are unable to get a blood draw. Hope they can straighten it out.

    Today, a little of my hair has started to come out. Will probable shave it sometime this weekend!!!

    My best to all, rose
  • TINAMAE
    TINAMAE Member Posts: 106
    edited July 2007
    Does anyone know if your second chemo is worse than the first, I had my first one on Monday and Tuesday and Wednesday were pretty rough, on Tuesday I was telling my husband I could not go another one, but today I feel alot better.

    Thanks Tina
  • LottaQuilts
    LottaQuilts Member Posts: 212
    edited July 2007
    Actually, Tina, I would say the second was easier.

    On my first (Thursday infusion) I wasn't really feeling better until Monday afternoon. On my second, I felt fine by Sunday afternoon.

    Funny, with my first one, I also told DH that I wasn't doing any more treatments... I was just quitting. He told me that just wasn't an option and to go take a nap!

    I'd have to say that fatique is starting to creep up on me though. I'm finding I'm really tired, but restless (having trouble sleeping at night).

    The worst part about the second one was knowing how bad I was gonna feel for the next few days! The easiest part - knowing it was only gonna be the next few days!

    Hang in there, gals....WE CAN DO IT!!!

    Abbi
  • mominpa
    mominpa Member Posts: 17
    edited July 2007
    Tina, I had a similar experience as you...had my 1st tx on Monday. I felt queasy and a bit fatigued on Tuesday. I did not take the Compazine on Tuesday, just the Kytril. Big mistake! I could not sleep that night and felt queasy. Threw up soon after I got up. I felt wiped out all day. I talked to the nurse, and she said I should have taken a Compazine Tues night to get me through. I took them yesterday and before bed and am a bit better today. I am hoping tomorrow will be even better.
    Abbi, it is good to know your second was a little better.

    Karen
  • TINAMAE
    TINAMAE Member Posts: 106
    edited July 2007
    Thanks Abbi I sure needed to know I wasn't the only one not wanting to continue on with this, I really thought I would do really well since most of the time I am hardly ever sick, but this knocked me on my but and I just cant imagine 4 more like it before surgery

    Thanks Tina
  • jbw3843
    jbw3843 Member Posts: 46
    edited July 2007
    Hi girls. I just lost my whole post! Argghhhh.... Here I go again, to the best of my memory...

    I've finally found the right board to post to. I'm so excited.
    DX June 5th, Ductal, surgery 6/21 lumpectomy (1.4 cm), sentinel node biopsy (2 of 5 involved) Treatment: 4 AC, 12 Taxol, 6 wks. radiation

    7/18 Port installed (Happy Birthday to me)
    7/19 Chemo starts

    How did I do? I think pretty well. I was given anti-nausea in the IV, the A, then the C. Port worked. No funny taste. Ate a few saltine crackers and drank mucho water. Hubby drove me home. I was tired. Nausea yes, like a flu feeling. I took the Decadron twice a day Friday, Sat. and Sun. Compazine as needed. I felt a feeling like heartburn, and just no appeal for food (like a morning sickness feeling). I stuck to very bland foods and had to force myself to eat. This lasted at least 4 days. Slept poorly, couple hours here, then up 2 hrs, then slept another 2 etc., doc said one of the anti-nausea meds would cause sleeplessness. I wasn't sure what to expect being the first time, so I just kind of notated everything for next time and went with the flow. I think they may need to switch things around a little because I had the nausea feeling for 4 days. Thankfully, I never vomited. I was very tired (worse days 3 and 4 then 1 and 2). I went to a family wedding on 7/21 (2 days after chemo) and I hung in there. The ceremony was lovely and it took my mind off the nausea. Can't say I enjoyed the food though

    Things kept getting better day by day. More energy, sleeping better, etc. I was mindful to keep eating something and to keep drinking water. I also have taken walks everyday, but one. It really helps to get out in the fresh air and do some deep breathing.

    Question... Did or does anyone feel a bruised feeling in their chest from their port. It's actually not the port itself, but opposite of it in the chest. It's not constant pain, but just like a deep bruised feeling (no actual physical bruise though). I guess it's been only a week and it is rather an invasive procedure, maybe this is normal. I see the surgeon this Monday. I also had tingling down my arm into my hand on and off which he said could be the brachial plexus (which the port is implanted near). That is subsiding.

    I also had pain in the node area and tumor area after chemo. I'm glad to hear others have had this experience. It's also subsiding, but it did throw me at first.

    My next AC treatment is 8/9. I'm glad to have the first treatment behind me and gone is the fear of the unknown. At least I'm 25% done with AC! I try everyday to focus on the positives and I'm thankful that I'm a teacher and that I have the summer off to begin treatment. I have wonderful family support and now I have found wonderful online support with people who truly understand what I am feeling. Thanks!

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