Another bathing suit/swimming dilemma

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  • Steph54
    Steph54 Member Posts: 26
    edited July 2007
    Thanks Binney,

    Where did you purchase the covers? I have searched online and have found only one site advertising covers for Camp forms. I suppose it's best to have the covers made by the same manufacturer as the prothesis. Do you think so?

    We spend winter months in the desert, Ar Nev and CA, but haven't experienced your high summer temperatures. Maybe it's worse here by the ocean with high humidity. Have two dehumidifiers running and the tanks are full every 2 days.

    You help make this journey a guided tour! Thanks so much.

    Sassi
  • Erica3681
    Erica3681 Member Posts: 1,916
    edited July 2007
    I've heard the same thing about Radiant Impressions and heat. But on the plus side, they are quite light. A fitter showed me one and let me handle it. It was surprisingly light. However, she never even mentioned that they're available as NON-custom forms. I think that one reason we can be so helpful to one another is that we're not in the business. I suspect that the fitter was hoping to get me to order a custom pair of Radiant Impressions, which are very costly. And a fitter certainly isn't likely to recommend the 126's, except as an extra pair, since they're so inexpensive and don't require fitting. But we can recommend them, or bath scrubbies, or whatever works, to one another, which is why this board is so wonderful.

    Which brings me to a question. I've been thinking that, along with this forum, there might be a place for a separate website devoted to women who choose not to reconstruct and those are trying to decide whether or not to reconstruct. The idea would be to put all the knowledge I've accumulated from this board and elsewhere onto a permanent site. I've created a homepage and would love your feedback.

    I wouldn't want to compete with bc.org. Far from it, I love this site and these Discussion Boards. I wouldn't envision my site having discussion boards, but would focus on information and perhaps personal stories of women who've chosen not to reconstruct. Of course, I would welcome contributions and ideas from all of you. If you want to check out the homepage (none of the links to other pages are operative yet), here's the url: http://breastfree.org/

    There are precedents for this. FORCE is one (for women with BRCA), DIEP Sisters is another. Given the many sites dealing with reconstructive surgery, I thought there might be a place for one dealing with NON-reconstruction. I look forward to any and all reactions.

    Barbara
  • nagem
    nagem Member Posts: 353
    edited July 2007

    Love it! It might be a nice place to also swap prostheses and bras and bathing suits that didn't work out and were not returnable, do volunteer knitting of knitty titties, etc.

  • joanne_elizabeth
    joanne_elizabeth Member Posts: 499
    edited July 2007
    bath scrunchies - can someone tell me what they are?
    I am still using the softfill things you get with camisoles and off the shelf form from JC Penny's I put into a mastectomry suit. I just get soooo tired of doing thing related to bc I figure I will get a real one when chemo is done.

    Joanne
  • Kessala
    Kessala Member Posts: 189
    edited July 2007
    I wear an "A" cup bra so perhaps this wouldn't work for larger breasted women.

    I've always just worn a Softee breast form inside my regular (non-mastectomy) bras.

    They're called Camisole Breast Forms but I've never used a Softee camisole. I just tuck one form in my empty bra cup and forget about it!

    Lightweight, $13.99 a pair with free shipping, machine wash, various colors. Works for me!

    www.softeeusa.com

    Kessala
  • joanne_elizabeth
    joanne_elizabeth Member Posts: 499
    edited July 2007
    Kessala,

    Have you ever had any issues of it falling out?

    Thanks,
    Joanne
  • Erica3681
    Erica3681 Member Posts: 1,916
    edited July 2007
    Kessala,

    What size softee do you wear for an A cup?
  • OLBinNJ
    OLBinNJ Member Posts: 236
    edited July 2007
    Barbara,
    I love the idea of bringing together information so women can make informed decisions. I was just thinking about all the information I have gotten from this discussion board about different types of breast forms, and I tried the Amoena 126 partly because of your posts (and I love it). I did wash it in hot water to see if it would shrink in a hot tub, and it shrank a little, mostly in the back. My mast left me pretty concave, so that is an issue. I'm getting a larger size and will see how that works. Meanwhile, I'll just add a "cookie" behind the one that shrank. Anyway, maybe we should have a thread for reviewing breast forms, giving our experiences with the good, the bad, and the ugly.
  • Kessala
    Kessala Member Posts: 189
    edited July 2007
    For an "A" cup I have purchased both the Small and the Petite (even smaller) size Softees.

    I formerly wore soft cup Maidenform bras and liked the Small Softee. I had to remove some of the fiberfill to make it match my real breast a little closer.

    Now I'm wearing Playtex bras with a molded foam cup and find the Petite Softee works better for me.

    I've never had a Softee even shift around in my bra, much less fall out. I have only used the Softee in a bra. I have no experience with using them for swimming.

    Kessala
  • joanne_elizabeth
    joanne_elizabeth Member Posts: 499
    edited July 2007
    This is great ! I have a pile of bras that I was ready to ditch and now I may be able to use some of them. One style I really liked!I am getting the idea that smaller breasted women have a much easier time hiding this. I just went to the gym and I wear one of my husbands tees over a sports bra with no prosthesis and I doubt anyone would ever notice the missing boob except me.

    Joanne
  • Binney4
    Binney4 Member Posts: 8,609
    edited July 2007
    Sassi, I order extra covers from my pros fitter. Can't remember what I paid last time but it wasn't much. They last a long time.

    Joanne, there's another thread on this board called "Bathing suit season soon" where there's a long and funny discussion about using bath scubbies for swim prostheses.

    Barbara, you make setting up a web site look easy -- how impressive! I think your new website is a great idea, because as all of us know who have been here at bc.org for a while, every so often they upgrade this site and we lose huge stores of information. What you have there looks great, Barbara, and it's completely upbeat. Really great job!

    (What on earth happens to our sisters who don't have access to the web??!!)

    Way to go!
    Binney
  • SusaninSF
    SusaninSF Member Posts: 1,213
    edited July 2007
    Barbara,

    The site you're building is FANTASTIC!!! You are a very talented marketing writer. Do you write for a living? I agree with you that it fills an important gap of information out there. The plastic surgeons all have their sites advocating for reconstruction. So many oncologists assume we all want reconstruction and counsel us to do so as a way to lessen the shock of losing your breast(s). In my experience, trying to reconstruct made the process far more traumatic. I would have been far better off foregoing reconstruction in the first place.

    I'd be happy to help with the website if there's anything I can do.

    You're the best!

    - Susan
  • Erica3681
    Erica3681 Member Posts: 1,916
    edited July 2007
    Everyone who responded about the website, thanks so much for your supportive comments.

    Binney, one of the reasons I was motivated to do a website was exactly the problem you pointed out, that as this board is updated, whole threads are lost, with all the helpful information on them.

    Susan, if I go ahead with the website, I know I'll need help. In addition to wanting to feature individual stories, I'll want lots of input about what solutions work for women of all ages and sizes. Anyway, I'm delighted you're interested.

    Barbara
  • Steph54
    Steph54 Member Posts: 26
    edited July 2007

    Binney, thanks! I will contact my Amoena fitter.

    Barbara, what a great idea and such a nice start on the web site. I would be glad to help.

    I am wondering if a new thread title might grab the attention of those that may miss reading about it under "bathing suit/swimming dilemma." Personally, I feel your site will be extremely popular. Good for you!

    Sas
  • BoobsinaBox
    BoobsinaBox Member Posts: 550
    edited July 2007
    Barbara,
    I'm late getting here, but I want to add my voice to those who love the idea of your website. As one who has chosen to go "natural" rather than wear the tight bras and heavy prostheses I got last fall, I would love to offer encouragement and support to those who are wondering if they can do it too. I have been so much happier since I accepted what my body looks like now, and stopped pretending to have boobs. (Please hear me! This is NOT a judgment on what anyone else chooses! I'm the only one I know personally who has made this choice, but I am happier! Many others seem happier with prostheses or even reconstruction, and I just want us all to be happy!) Thanks so much for doing this, and let me know if I can contribute helpfully. I'm working on pictures of the way I look in clothes now, but for some reason I keep thinking I look like a 60 year old instead of a 35 year old. Must be because I'm 60! :>)
    Dawn
  • Erica3681
    Erica3681 Member Posts: 1,916
    edited July 2007
    Dawn,
    Thanks for adding your support for the idea. I'm working right now to create other web pages for the site. I want the site to address the variety of options available to women who don't reconstruct--so this certainly includes going flat. As I'm a small woman with bilaterals who wears breast forms, I know a lot about options for someone like me. But I hope to get lots of input from the women on these boards about the different choices and challenges we face. So, there would be a section about going flat, about the clothing choices when going flat, etc. And I know the challenges of a single mastectomy are different from those faced by those of us with bilaterals. Also, larger women definitely face different issues, both in going flat and in wearing prostheses.

    And another section I plan to include is individual stories (I just wrote my own yesterday). I think people newly facing mastectomies hunger for a sense of what the experience will be like. These boards certainly help in that regard, but I've always enjoyed reading stories, so I'm thinking maybe others will, too. So, I'd welcome stories, of a thousand words or less, about your personal experiences.

    I'm thrilled that so far people seem enthusiastic about the project. SusaninSF asked whether I'm a writer--yes, I've written poetry, fiction, and a newspaper column, plus the blog I currently write. I also am fortunate that my DH is a website developer, so he's helping me with that.

    Also, my thinking is not to have any discussion board on my site. Rather, I would refer women to this site, so that we can keep the dialog going here.

    So, any feedback welcome. If anyone is interested in contributing and wants to PM me (and maybe include an email address), that would be great.
  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited July 2007
    Bath scrunchies are the nylon net poofs that you can purchase for about 1.00 a piece. They come in various colors. You can find them with the liquid bath/shower soaps at Walmart/Kmart/Dollar store. I don't know how else to describe them. My husband calls them the bath thingys.
    I am going through reconstruction after my bi-lat so I will not have to use them, but other women in the local support group have talked about using them.
    Sheila
  • JustOne
    JustOne Member Posts: 226
    edited July 2007

    Erica,
    I love the idea of a website for those of us that have chosen not to reconstruct. There is so much trial and error for us, something like this could really be a godsend for some.

    I am 7 years out from my single mastectomy and am still confused most days. Now I’m in my ‘wearing the prosthetic all the time phase’. Odd, considering its summer. lol
    I really do think it takes finding the right prosthetics, bras, cammis and bathing suits and it can be an easy process with a little help from those that have been through it.

    A website like yours would be so helpful to so many.


    ~Pam
  • caaclark
    caaclark Member Posts: 936
    edited July 2007
    Yes, Barbara!

    Great idea for a website. Let me know if you want some help as far as advice on fashion. Since I have pretty much tried every bra made I may be able to give some input.
  • Erica3681
    Erica3681 Member Posts: 1,916
    edited July 2007

    I would love your help, Carol. You're so knowledgeable about bras. Also, I plan to have a "personal stories" section (anonymous, of course), so hope you and others would be willing to post yours. I'm still working on constructing the site and writing basic copy. Once I'm ready for input (hopefully within the next month), I'll let you know.

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited July 2007
    Pam,

    Even after less than a year, I know what you mean about confusing! At first, I thought I would find the one perfect solution and that would be that. Now I realize that there are a variety of options, each of which works well in different situations--swimming, exercise, dressing up, etc. Not to mention the variety of bras! The one option I still haven't tried, except at home, is wearing nothing at all.
  • wallycat
    wallycat Member Posts: 3,227
    edited July 2007
    Barbara,
    I love the idea of the website. Sort of similar to what I was thinking with the flyer type thing...for non-reconstructon.
    Pix of how it looks like in clothing with and without forms, what to expect, recovery, etc...
    LOVE IT! I would help any way I can.
  • Erica3681
    Erica3681 Member Posts: 1,916
    edited July 2007

    Thanks, Wallycat. I'll keep you posted.

  • nagem
    nagem Member Posts: 353
    edited July 2007

    Well, I could certainly provide the information on going without, since I've mostly done that since I seem to have so little patience for anything the remotest bit uncomfortable. (Though I did wear the Amoena 126s for three days back to back last week—my longest boobed stretch since my mastectomy—and now I'm waiting for the Still You bras to try again.)

  • scs
    scs Member Posts: 3
    edited July 2007

    I wear high neck bathing suits without any soft cup or bra. Had bilateral mastectomy w/o reconstruction. No one seems to notice my lack of breasts...I am 59 now. Found great tankinis from Lands End and found a one piece with a low back somewhere in Florida. Did have to remove front lining and soft cup bra. But, the Lands End suits are heavy enough that it doesn't matter. Have also worn high backed speedo type suits for water aerobics. These have no bra, so I can leave in the front lining. Good luck and enjoy the beach.

  • bezeiv
    bezeiv Member Posts: 5
    edited August 2007
    there is a wear your own bra swimsuit, if that will work for you. www.womanspersonalhealth.com has them under T.H.E. Swimwear
  • bezeiv
    bezeiv Member Posts: 5
    edited August 2007

    You can keep your swim forms in the bathing suit pockets.

  • Mcalot
    Mcalot Member Posts: 31
    edited August 2007
    I know that you have had lots of replies on this topic, but I thought that I would add another few items. I do a lot of long distance travel on my motorcycle and have had to stuff the amoena forms in with clothes many times. When on the road for weeks I wear my "good" non swim forms and pack cheap foam ones as they can just be squished in the saddle bags. Many days it is too hot to wear any forms and all four are in the bags. I seem to have real problems with overheating with them on and frequently do not wear anything. When I only had a single mastectomy (rather than the double) I wore my silicon swim form in both my suit and bra, then I only had to bring one. Since I was a double D it was darn tough to go without a form. I have down sized to B's so the forms are much smaller.

    The forms seem pretty durable and have survived for two years without ever "living" in their boxes.
  • Nancyab
    Nancyab Member Posts: 276
    edited September 2007

    I love the bath scrunchie idea, I just got my suit. I got a tankini because I know how heavy those "boobies" can be and I figure a one piece would be the death of me if I had to go the bathroom!

    I tried the bath scrunchies and they work perfectly, You have form but it is light and any water drains right out. Whoever thought of that... KUDOS you are one smart cookie!

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