Scared, could I have IBC?

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beedee
beedee Member Posts: 54
I'm 19, and in April, I noticed that there was a round spot on my breast that looked something like a bruise, it had been there for quite a while, at least 6 months and I never thought anything of it... I did notice that my chest, just above my breast, seemed to be out more than the other side... I went to the dr. and I had an ultrasound and the ultrasound came back normal. I've been crazy busy since and haven't had time to go back to the doctor... but the bump on my chest seems to be a bit larger than it was before, its very flat and it is hard, and my dr. suggested that it may be muscle...
I have also notice two more much smaller spots on my chest, which look like bruises...
I decided to look it up and came across inflammatory breast cancer, could it be this?
I do not have itchiness, warmth, dimples, or anything like that, and it says the swelling is usually around the armpit, where the lymph nodes are, but mine is on my chest? I'm worried, does anyone know much about this, could i have IBC?
One thing that is making me think that it is not IBC is that my breast has not grown extremely rapidly, and enlargement is more in my chest above the breast. to touc, it feels hard, is this what it would feel like for IBC? Or would it be really soft and "cushy"?

Comments

  • GrandmaSharon
    GrandmaSharon Member Posts: 3
    edited June 2007
    I would go to another doctor and have mammogram and put your mind at ease. I have inflammatory breast cancer, and it is no picnic. The surgeon had me do chemo (8) treatments, next week I will have surgery to have smaller tumor removed, then must do 35 radiation treatments and then will be on hormonal therapy for 5 years. You are young but I would definitately get a second opinion and mammogram for sure. It certainly can not hurt and would answer your questions.
    My tumor felt very hard.
    When Doc. did a biopsy he said that he had trouble getting the samples, because it was so hard, and that he is said is a sign of cancer.
  • Sherri-Canada
    Sherri-Canada Member Posts: 8
    edited June 2007

    Make sure you check with an experienced doctor, mine alse was not itchy or growing fast.

  • beedee
    beedee Member Posts: 54
    edited June 2007

    I don't know if there are too many experienced doctors in my area... I do not have pain, nipple irregularities, itchiness, warmth, or dimpled skin(like orange peel)...

  • beedee
    beedee Member Posts: 54
    edited June 2007

    Does anyone know conditions that are similar to IBC?

  • beedee
    beedee Member Posts: 54
    edited June 2007

    I went to the dr a few days ago and he said it may be fibrocystic breasts. He didn't seem to know a ton about IBC or my problem, but he is sending me to a dr who is more knowledgeable about it. Probably going to be at least a months wait... I'm still so worried about this, but it's out of my hands now, I just got to wait...

  • cfrie
    cfrie Member Posts: 19
    edited July 2007

    Hi - it is a good thing your doctor is sending you to someone who is more knowledgable about it. Chances are it is not IBC and is just something minor, but it is definitely something that should be looked at by a doctor who is experienced in dealing with IBC. My best to you.

  • beedee
    beedee Member Posts: 54
    edited July 2007
    I went to see the Doctor today... He did a thorough examination, checking both breasts, and my lymphnodes. He also showed me how to do a proper breast exam, how the breast is formed, what normal tissue feels like as well as normal fatty tissue lumps, and being young, I did not know much about self-examination. He seemed quite thorough and definitely saw the bump on my chest and the spots on my breast. He said that he thinks it may be a skin problem and said that I should see a dermatologist, as that is what it looks like to him. He said that it may not have anything to do with the breast, it may have just happened to be there. I told him that the ultrasound was in april, and it was bigger since then, and he said that it wouldnt have to be very big to show up. So I guess the next step is to wait for an appointment with a dermatologist, I feel kinda skeptical about the skin thing, but I don't really know how to feel about it, it makes me worry.. He also said that he could do a punch biopsy (OUCH!), but he would rather not and leave the skin like it is so the dermatologist can see exactly what it is like. I did not mention IBC, I don't know if I should have, I'm not sure how familiar he was with it. The wait for a dermatologist could be very long, there is one about 3 hrs from where I live, and about 4 or 5 about 8 hrs from where I live, so I am not sure what will happen... I would rather go the 8 hrs if I can get in sooner, as this seemes to be getting bigger, and I don't know how long I can wait, I am worrying so much...
    Anyways, I thought I would update you all, any thoughts?
  • VAY
    VAY Member Posts: 29
    edited July 2007
    beedee:

    I am an IBC survivor...six years in October! IBC usually does not appear as a lump although it could. My skin never turned orange or hurt or itched. I had slight discoloration like bruising and the breast tissue was hard. No nipple involvement either. I would want to get into the dermatologists right away to rule that out and then a core or punch biopsy would be the only real way to be sure. The mammo just showed calcifications when I took one. You are probably just fine but do not let the docs blow you off. God bless and keep us posted.
  • beedee
    beedee Member Posts: 54
    edited July 2007
    Thank you VAY!
    I am going to my family dr tomorrow to push for that derm appt. Everything is going much slower than it should. Hopefulyl I will get somewhere with it tomorrow. Will keep you posted.
  • beedee
    beedee Member Posts: 54
    edited July 2007
    Things did not go well at the dr appt today. My family dr. had always taken his time and been thorough, but lately he is so rushy. I may try to find a new dr. but I doubt there is anyone taking new patients.
    The derm. appt would be a 9 month wait! That is way too long, I was given the option to wait for it, or to go back to the surgeon to get a biopsy done. I chose the biopsy, even though I am scared to death to get it done. It would be a punch biopsy. My dr concentrated only on the spots on my breast, and referred to the one with thickness underneath it as a lesion. He ignored the large bunp above my breast and said that he did not feel it there. After I pointed out that the surgeon made a point to let me know that he did feel it, My dr. said he did feel it, but it was nothing, just normal breast tissue. I said to him that it had grown since april, and he asked me if I had gained weight, I guess that is what he thought it was. But i have not gained weight. He said that no matter what, the biospy will only tell us what the lesion is, and will have nothing to do with the bump above the breast.
    I left today very frustrated and have been crying for most of the day. I don't know how to handle this and I need encouragement or something. He made me feel like I was crazy. I'm just so dissappointed : (
  • tarap3
    tarap3 Member Posts: 105
    edited July 2007
    I've been following this thread beedee, I am so sorry that you are scared and being made to feel crazy, I am in the same boat and it is frustrating!
    I have been out of chemo for a month and a half, I had ILC,IDC,DCIS and LCIS. Very early stage, grade 2. I had four cycles of TC and am now on tamoxifen.
    For a couple of weeks I've had an area on my right breast that is red, itchy, warm to the touch etc. I did have a bilateral mastectomy. Now, I know it is not rational, but also not out of the realm of possiblity to have IBC. I am scared also. I've been given my second round of antibiotics. My Plastic surgeon told me I was just anxiety ridden, my onc pretty much the same, but she did say we could biopsy if it doesn't go away after these antibiotics. My breast surgeon is out of town for two weeks. Has anyone had an infection like this from tissue expanders with no prior infections? I haven't had radiation either.
    Beedee, I hope that you get benign results from your biopsy and I hope that you get answers soon.
    Tara
  • VAY
    VAY Member Posts: 29
    edited July 2007
    beedee:

    I am so sorry that your doc did not give you the attention and respect you deserve regarding your concerns! I would definitely continue to push until you are satisfied. Did you actually have the biopsy done? They need to biopsy the areas that you are concerned about even if there are more than one. They numb the area that they biopsy and it is really no big deal so do not stress over that. It is so frustrating and it could really be nothing but better safe than sorry! Keep pushing and hang in there. You may want to find a new doc! You are doing the right thing. Big hugs and prayers to you!!
  • beedee
    beedee Member Posts: 54
    edited July 2007
    I did not have the biopsy yet. I have to wait for an appt with the surgeon. He will do a punch biopsy. Makes me nervous, Can someone tell me exactly how this procedure will go and how it will be for pain, I know they deaden it, but does it hurt after? From my understanding, they will only biopsy the spots on my breast.
    I am hoping to find a new dr before this takes place, so I can try to avoid going back to my current dr.
    It seems to me that my current dr, just wanted me to accept and stop worrying about this and just let it go. It was ridiculous!
    Anyways, I am still a wreck, stressed out and worried constantly, I don't know how to relax right now...
  • shrink
    shrink Member Posts: 936
    edited July 2007

    The punch biopsy was much less painful for me than the core biopsy. The area is frozen with a fine needle. The surgeon quickly punches out a small area (1/4") of skin and that's it. They apply pressure and put guaze over it.

  • VAY
    VAY Member Posts: 29
    edited July 2007

    I had a core biopsy which is more invasive than a punch and i did not require stitches or anything. Was a little sore for a few days but that was it. I know how you are feeling and it is very hard to remain calm and not worry. You are right about your current doc and you are being very pro-active and that is great. Keep up the good work and pray. It really does help. I also refused to watch anything but comedies. Sounds crazy but it really did help. A few glasses of wine never hurt either LOL!! Hugs and prayers to you.

  • beedee
    beedee Member Posts: 54
    edited July 2007
    The two dr's who i was checking into are not accepting patients anymore.
    It is VERY hard to get a dr in my area, and I'm not sure where to go from here...
    Why can't things go right for once!
  • HappyTrisha
    HappyTrisha Member Posts: 614
    edited July 2007

    I don't have IBC but just happened to be looking at this thread. Where do you live?

  • VAY
    VAY Member Posts: 29
    edited July 2007

    I am so sorry beedee! I know it must be very frustrating. Where do you live? You should call American Cancer Society (ACS) and see if they have any recommendations for a good doc. They are a very good resource and if they do not know of anyone, they may have another agency they can refer you to. Hang in there!

  • beedee
    beedee Member Posts: 54
    edited July 2007
    I am in Canada, and I am not sure how to find out who else is accepting patients.
    Thanks for your replies ladies!
  • HappyTrisha
    HappyTrisha Member Posts: 614
    edited July 2007
    I would go to this link and put in your province, and then link to SUPPORT/SERVICES at the top of your province page.



    http://www.bc.cancer.ca/ccs/internet/frontdoor/0%2C%2C3278___langId-en%2C00.html
  • myrnaincabc
    myrnaincabc Member Posts: 76
    edited July 2007
    Can I ask what you all think about the day I had today? Any thoughts would be great, Im confused. I had a PET scan on Friday and was looking for results today after a long week end.
    Well here goes what a fricken day. I called breast surgen nurse first thing in the AM and she of course didnt have results yet/ ( but told me to go do some yoga) but that she would get them and call me. So I called the PET scan place and told them I wanted to pick up a copy of my report withing the hour. The girl said well I took it on docs desk, just waiting for his sx. I said well if you want me to I will come sooner and help expidite it but handing to him myself, either way I will be there by 11 AM. Right after that the breast nurse calls me and says everything is just fine, no problems. I said no kidding everything is clear no cancer anyplace!! All is well, and she said yep, but will have doc look at it and let you know if she wants to do anything else. I was so happy, but thought I would drive over and get report anyhow. So I get there get the report, open it up and on the 1st page it says " restaging lung cancer, pain in left breast" . I about fell over really, I was like what the hell no one has ever told me I had lung cancer. hell, I about passed out. Drove home and called breast nurse and told her to please call me right away, that it said I had lung cancer. Then I called my onc office and asked them if I had lung cancer/ but of course it's like 11:40 by then and offices closed for lunch. I did call the PET place and asked the lady why it said that , that this was news to me. She said could be a typo. I said thats nuts I insisted on talking to the owner. In a few minutes I got another call from PET place talking about human error, I actually used the word F** to them and said there was no excuess. This lady said she would re pull scan and call me back. She has some one else call back saying how sorry they are, but it was a typo. I said and " now Im supppost to be comfortable with the rest of the report" man I was ticked. So I have PT for breast LE at 1:00 so I wait and leave messages again onc and breast surgen nurse to call me.( I really though I was being treated for lung cancer, and just hadnt been told.) and to leave a message on my home phone and I will be back home in about an hour. Finally about 3:00 I get the breast nurse on the phone ( she had left me a message saying it was a TYPO) and to call her with any questions. She was actually pissy with me for being so upset, she said she see's typos all the time and just fixes it, and she told me it was OK why did I pick up the report anyhow! grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr I said blblblblblblblblblblblb then I asked her if all was well why did it say " these findings are most likley inflammatory neoplasisa", I said I looked that up and it sounds like IBC. She says NO thats not want it means at all, you just have inflamation which is Breast LE. She said we will just wait and see. I said wait for what, she said for it to resolve, it would just take some time!! I give up , I am changing doctors!! Really going to do some research and totally change breast docs.
    Anyone have any thoughts/ does this sound like IBC
    thanks sorry for the rant just am confused
    Myrna
  • myrnaincabc
    myrnaincabc Member Posts: 76
    edited July 2007
    Im sorry everyone didnt mean to just jump in like that. I was dx in June 06 IDC stage 3 triple neg, partial mast, chemo , rads all finished with tx Jan 07. Had swelling, warm, rashy, now scaley nipple area since Jan 07, increased swelling March 07 given antibotics some better but still swollen, then again June. Saw doc early July after mamo complained, they said LE sent me to PT , then I insisted that it still was a problem , so breast sergon ordered the full body and brain PET?? Im just confused , still swolen, red, itchy, rash comes and goes. Thanks for listening
    Myrna in Oklahoma
  • jasmine
    jasmine Member Posts: 1,286
    edited July 2008

    Myrna...you do know that you can have your films sent somewhere else to be read and get a second opinion that way?

  • myrnaincabc
    myrnaincabc Member Posts: 76
    edited July 2007
    Im just goofy , visited with a friend on here and she helped me to understand that the PET was good news/ yes they made a TYPO but the overall news was good. Im sorry I came on here acting like the world was on fire. I am going to have the flims sent some place else your right, good idea, changing docs too. Again thanks to everyone just for listening.
    Myrna

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