Vitamin D shortage - anyone else?
Options
notme
Member Posts: 161
Since we are hearing there may be a link between breast cancer and Vitamin D, I asked to be tested by my oncologist. My D came back very low. She prescribed 5,000 units of D taken every other week for 4 doses. Then I was retested. - No change. I also take 1,000 units daily in my calcium tablets and multi-vitamin. For some reason, my body will not absorb the vitamin D.
Anyone else been tested? Anyone have a similar experience?
BTW - my oncologist does not put much weight in the link to breat cancer as the studies are not conclusive so far.
notme
Anyone else been tested? Anyone have a similar experience?
BTW - my oncologist does not put much weight in the link to breat cancer as the studies are not conclusive so far.
notme
Comments
-
Be sure your supplement is D3.
Be sure to take it with a fat-containing meal.
Use the oil-filled capsules if you have low stomach acid.
Take fish oil or Omega-3 at the same time.
Increase your daily dose to 2,000 iu.
Spend some time in the summer sun so your body makes more D.
Take some melatonin at night to help the process.
Give it more time. -
It wasn't enough. 2000 of D3 daily or 10,000 of D2 (prescription - ergocalciferol) weekly. Give it 3 months and check again. Also, try your primary care instead of your onc on this one. there's been lots of literature directed at oncs about this but they have bigger fish to fry.
-
It's my gyn who has shown the most concern about D, due to the link with osteoporosis, not cancer prevention. My D was very low, and I now take lots daily, but what helps the most is 15 minutes of sun (no sun block) on my legs every day. Until I started on the sunshine nothing seemed to help. My gyn says chemo is implicated in reducing our D levels, probably for life, so we need to pay attention to it. Don't know if that's true or not, but I do know I'm glad to be on top of the problem now.
All best,
Binney -
I also go for the 'natural' Vit. D from the sunshine. My orthopedist recommended 15-20 min./day and I am happy to comply. Sunshine does worlds of good for my mental outlook anyway, so knowing it's therapeutic is just BONUS!
Lisa
fortunate to be in San Diego where sunshine is abundant year 'round -
Is there some easy test for D levels? I recently read about the implications and added 400iu of D to my regimen (which includes tamox, curcumin, DIM, melatonin, green tea extract, grapeseed extract, selenium and folic acid). I don't spend a lot of time in the sun and did the standard DD chemo, so it would seem that this is an issue.
Alicia -
It doesn't need to be conclusive evidence. There's enough evidence to get our attention, and I hope the rest of the medical community. This is the first time I saw such a low number to what they consider to be toxic levels of D.
http://www.medpagetoday.com/HematologyOncology/BreastCancer/tb/3006 -
Rosemary, I think this is the quote you're referring to:
"The vitamin becomes toxic above 3,800 IU per day, though the National Academy of Sciences sets the upper limit at 2,400 IU."
Even the FDA gives a much higher tolerable daily dose. Only a blood test can show when someone has way too much and signs of hypercalcemia don't seem to show up until a blood level of 150 ng/ml is reached.
In people of above normal weight, vitamin D is stored in a way that makes it less available to the body. Scientists speculate the storage is too deep in the fat layer and can't be readily used. So in the winter, when most people can't possibly get the right kind of sunlight to make their own, the stored Vitamin D can't help us as much. This may also be one reason why body weight is tied to the outcome of some breast cancers as high blood levels of Vitamin D seem to inhibit the growth of a primary and metastasized tumors. -
Alicia, there's a blood test for Vitamin D serum levels, so next time one of your docs gives you a lab order sheet you might talk with him/her about adding that to the mix.
Binney -
Actually, I was prescribed 50,000 units every other week. 4 capsules in all. (I lost a zero in my original post).
I am overweight. Maybe that is the problem with my D not being used. I will try to take it with omega 3 and make sure it is D3 that I am taking.
Thanks for the advice.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team