I am starting chemo in July 07. Anyone else?
Comments
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I survived, 1 down and 7 to go. It was a ride, can't complain everything went well didn't feel anything unusual while getting infused, or afterwards. I'm getting 4AC and 4T dose dense, I must admit the A was a little scary looking I guess that's why they call it the red devil, and they injected it manually into my port and watched it carefully. I was surprised how large the infusion center was they had seats for 40 people, there was about 20 while I was there all ages.
I think it was almost a relief to get it started, after biopsies, and two surgeries, and all the doctor visits. We've all come along way to get here, but we will make it to the finish line.
Climbergirl, hope you had a good experience you sound like a very positive person good luck today. -
Hi ladies. I just wrote a post and went ot send it and it disappeared. I hate that! Here is my second attempt:
This morning I had my first appointment with the oncologist. We liked him very much. He explained everything in detail and spent a great deal of time talking with us.
I, too, will be doing AC/Taxol dose dense. I start Monday 7/16, and in the meantime I need to have a bone scan, CAT scan, and a MUGA. And I have to have the port put in. And I'm scheduled for an expander fill the Friday before I start, so at least I will be busty for my first treatment!
The dr. said I will begin losing my hair 2 weeks after my first treatment, so I stopped on the way home and got 3 more scarves which I must practice tying.
Well for me, meeting with the chemo doctor made this whole thing real in a way that even the mastectomy had not. I think it was when he showed me the numbers from the Adjuvant! printout, it became scary. I guess I was hoping for him to say "If you do this, you will be cured for sure, 100% guaranteed!" But no such luck of course. I know it won't do any good to worry about the what if's.
On the plus side, the nurses there were great as well. They spent a long time talking with me about what to expect, and encouraging me to ask questions and talk to them if I have any concerns or issues or discomfort during treatment, because they will do anything they can to help. I was encouraged by that. Oh, and the nurse said they use a numbing spray on the area of the port before they start each time, so I was relieved to hear that as I have read elsewhere on the boards that it might hurt when they access the port.
Well I think I'll go practice tying my scarves now.
Donna -
Hi~ chemo report # 1
The infusions themselves are not bad. The adriamycin can cause some local itching in the skin around the iv but other than that it all was good. Did not eat during the infusion. Made it to my 6:00 yoga class night and felt slightly off coordination wise but the IV drugs are great and kept me going. Afterwards was invited for Italian but right around then my nausea kicked (yes all pm meds had been taken)and so I had to pass. The orals do not seem to work as well as the IV drugs. I have 0 interest in food but have not had any vomiting. This is really similar to feeling pregnant early on with twins. Chills, heavy legs, headache and def chemo brain. Don't listen to the docs that say this only happens later, bullshit! I had made sure my husband set up my meds last night and this morning because I found it confusing and was doubting myself. I do well under stress and and am
sharp as a tack so this could be nothing but these drugs not the "stress" of it. Was told to take some extra comapazine and ativan and rest ~ sort of works but not really. Have been drinking tons of water as usual. Seems to be improving as the hours go in but now it is time for the Neulasta shot, hopefully I will be spared the bone pain from that. have my I have a feeling that I feel better at the end of the week.
gagal, it sounds like so far so good for you, keep it up. On of the things we did all day yesterday was to take lots of pictures on my first chemo day. That was fun!
Ciao
cg -
Can I join in ladies? Had my first chemo on Monday. I had myself in a panic over the weekend....it wasn't the chemo itself (I was happy to get on with the next step in fighting this beast) it's the needles I am terrified of. Well, I used the Emla cream an hour before my appointment and didn't feel a thing. It was easier then a blood draw out of my arm. Went in for my booster today and again was in a panic but the needle was so small I didn't feel a thing. So far no major side affects. I have a constant quesy feeling.....am I supposed to take the meds for this or only if I am vomiting? There are times that food sounds good....right now I so want a Firehouse sub but I know it's not a good idea. So it looks like soup for dinner. Maybe i'll feel up to it for lunch tomorrow:)
Ginger -
Hi Everyone, I haven't been here for a while and it feels really good to be back and take in all the info. I have my 2nd op on Monday as the tissue from the first op wasn't clear. I'm only in for the day so I'm not expecting it to be too bad. I then have a meeting with the Onc on Thurs to discuss Chemo start date which will be end July or beginning Aug.
Ginger - I read in a thread that you should take the anti sickness drugs even if you don't feel sick just as a precaution as once it starts it's hard to stop and the sickness drugs are less effective. I also hate needles and will look out for Emla cream here.
Asia I hope you had a good break, sorry the weather is so bad here in the UK!
I am so amazed by you all, good luck everyone please keep us posted on what we have to come.
Wig shopping next week...how exciting!!I've always wanted a wig but I guess the circumstances for getting one now aren't that great. First things first, I have decided to cut short my very long dark hair that I have had for many years, it's about time for a change really but I may find I actually love it short and then it fall's out!
Is anyone else cutting there hair before it falls out. Is it right that it will come out on the 2nd Chemo session??
T -
Hi all,
I've been pretty much just taking it easy just haven't wanted to do anything, I'm just figuring out all the meds for nausea. I started feeling it coming on about 3 hours after infusion I probable didn't start them soon enough. I've been mostly eating crackers, then soup and a popsicle, not my usual 4th of July meal.
I didn't need the emal cream for port insertion, it wasn't a problem for me. I was surprised that the nulesta shot didn't hurt hope that doesn't change.
climbergirl, I am so relieved I'm not alone I defanately
have chemo brain same problem with the meds all night wasn't sure what I was taking. The pharmacy wrote them in generic and the Doc referred to everything name brand.
gshoemate, ha, ha, sounds like we're both having
soup on the 4th, I'm not ready for that sub yet. I started taking my nausea drugs even if I didn't think I needed them.
I'll probable start thinking of shaving my head as soon as I start seeing it come out in handfulls. At this point I'm not interested in even combing my hair, maybe it will be easier just to cover my head and not worry about hair on those not so great days.
Pat -
Finally got my chemo start date today - July 23. I'll be getting the ever-popular 4AC/4Taxol dose dense. Glad to hear the infusion itself is bearable. Radiation is still up in the air for me. I am getting a MUGA test done on July 13th.
I think I will have my head shaved when it starts falling out, too.
The list of meds I'll be getting about made me dizzy!
It's great to hear everyone's experiences.
Karen -
climbergirl - Are you still going for acupuncture? If so, how did it go? I am noy going to start chemo until next month as it turns out. Everything has dragged out too long for me and I am just now recovering from the node dissection done on the 3rd. They found another 2 involved lymph nodes but thankfully not enought for radiation. Will get the exact plan on the 18th this month from my onco.
Hope everyone had a good 4th!!! -
Pat et al,
I think that learning the ins and outs of the meds is key here. I could not wait to come off everything after my "must take no matter what" three days post chemo. The drugs def make things really weird. I started feeling normal yesterday but made the mistake of taking an ativan (1 mg)Thurs night which the next day just makes me feel like cannot concentrate on anything. Last night I did not take anything and was happier giving up an hour of sleep reading than waking up a zombie. My doc friend told me that using a short term sleep aid like Ambian is a better choice for night sleep vs the Ativan. That is the hardest part for me I don't like the loss of mental acuity at all and would never climb during my first week! I would not drive much for the first three days either. The Neulasta was not too bad, maybe some chills, no bone aches thankfully. I have been avoiding gathering with people that I know that have colds (which it seems like everyone has one now !) and stayed away from a 4th of July reunion for that reason.
One thing to keep on top of is your water intake and taking sennakot pills for keeping the pipes regular. You can get these over the counter and they work. I drink normally 2L of water/day but am finding keeping up with it in the first three days after infusion a challenge. This cannot be overstated! I am trying to eat on my sched 3X a day and have cravings for real high protein stuff buffalo chicken/ buffalo burgers and anything with catsup on it. Am also eating fruit with each meal and veg but the stuff I want is not bland at all. Have been rinsing my mouth with baking soda solution and using the Biotene wash just in case for mouth problems but so far things are holding together. Sometimes all you have to go on is what you think might be appealing for 15 secs until you get nauseous again so it is a big guessing game as to what will work foodwise. I am not snacking at all as I think it makes people more prone to eat crap, especially now. I have been walkin with my husband and dog but like Pat says this is super tiring and I am so lucky to have my husband helping out. Am very grateful to not have to work.... I would be useless the first week for sure. Hopefully some of my other chemo mates will have less trouble with their concentration.
My sister asked what she could bring over and I told her spaghetti which is pretty strange I admit, but that is what I want. This coming from someone who does not usually eat any red meat. Anyway off to a acupuncture appt to see what that does. All in all I have to say that most of the time so far I have been bored out my tits with this! I am not good at sitting around watching TV so if anyone has any good book recomendations let them fly!
Ciaola!
climbergirl -
I start my first chemo tomorrow 7-9-07 Not sure of all the details as it's all hit so fast. All I know so far is that they are trying to shrink an 11+cm tumor and I'm ++ neg her2 with t4 invasive cancer. Not quite sure what type of chemo I'll be getting just yet but know they said every 3 weeks with nulasta the day after each treatment. I have had mamo, sono, pet, core and needle biopsy, diagnosed then had a port inserted and left the next day on my vacation for 10 days only to come back the night before (tonight) starting chemo and can't sleep a wink due to anxiety. Oh well...maybe I can sleep while they do it.
I've done as much reading up on every book I could find on breast cancer and healthy eating and have a list of herbal vitamins I want to see if I can take with the chemo to help keep me healthier. I am hoping to keep working through as much of this as I can and I am NOT going to let this consume any more of me than it already has!
Good luck to all....I'll post again after I know a little better what's happening.
**Quick update. Just got home feel a bit worse for wear than I expected. Splitting headache and a bit queazy but nothing major. They switched my chemo rx at the last minute which kinda threw the chemo nurses in a spin for a monday morn. Really kinda depressed that I feel this bad and I haven't even hit the timing for the "possible" side effects. Oh well maybe they will hit early and clear up fast. I'm gonna try and work in the morning b4 the neulasta shot. Hope that helps clear my head -
Lots of luck today. My first chemo wasn't anywhere as bad as I'd imagined. The tumor shrunk between the first and second treatments which was encouraging. I was told by my cousin, an MD (not onc) that the more aggressive the tumor, the faster it shrinks. Let's hope so.
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Good Luck today.
Kim -
Hi Everyone!
I'm another to be added to the July Chemo group. I'm starting first of 4 AC on Wednesday, 7/11. Then 4 Taxol/herceptin to follow. I'm sooo ready! What a journey up to this point! I was DX on 5/1. Seems like it took forever to finally get to this point. I had a lumpectomy and re-excision for clear margins. I am not too nervous about the chemo. Just wondering how I will react to it. Hairloss is definitely on my mind, tho'. It all seems like a dream to me. Just think...this time next year, we will all be amazed that we got through this! We are soooooo awesome !!!!
Take care everyone and I'll let you know how Wednesday goes,
Barb -
Hi ladies.
I've just returned from having my port inserted and I am finding it rather uncomfortable. Someone please tell me it will get better! I feel like I can't really move my neck, and it sort of hurts when I swallow.
I had my MUGA scan this past Friday, and tomorrow I have a bone scan and CAT scan. Do they make everybody have bone and CAT scans? Or is my oncologist making me have them because he asked if I had back pain and I said yes, but I also told him it was due to having to sleep on my back all the time since I had the mastectomy and expanders. Plus the expanders felt heavy to me, which he thought was strange but all I know is that it threw my posture off and caused back pain which is now gone because I can sleep on my side again and I'm getting used to the expanders.
Climbergirl, I can completely relate to your feelings about being inactive! I ran my 4th marathon May 6, three days before my lumpectomy. I missed a huge 15k race we do every year, which was yesterday and all day I thought about it. And my husband and I typically do a ton of cycling in the summer as well. I'm hoping when I see the PS on Friday he will allow me to start doing some running and riding. Of course then I will start chemo and we'll see what effect that has on my energy level, but I'm going to try to get out there as much as possible.
We did get out for a hike with our dogs yesterday,though.
And I'd seriously be interested in any recommendations for good reading!
Is anybody getting 6 cycles of Taxol? It seems like everybody gets 4, but I swear I remember the oncologist saying I will have 6. I'll have to clarify on Monday. Even with my husband taking notes it's hard to keep track of everything!
Welcome to the new members of the July club.....
Donna -
And my mother in law, bless her heart, gave me her wigs from when she had chemo for lung cancer. She is 77 and the wigs are gray, and styled appropriately for a 77 year old person. I am 42 and blonde (even if the blonde comes from my hairdresser...)
My husband and brother in law thought it was hilarious. -
Hi Donna:
Yes, the port does get better, but it's been a month for me and mine is still pulling at times and even kinda stings. I also have problems with my throat. I thought it might be allergies, but I don't think so. Never get allergies. Also, thought maybe the last surgery and throat tube have been the cause. I have to clear my throat alot when I am talking. And, I've never had that either. Weird thing, too.... a node is kinda swollen on my shoulder. My surgeon thinks it may be related to my thyroid and wants to do a CT scan and thyroid scan. Geez! He doesn't think it's related to the port, but it wasn't there before the port!
My Onc also scheduled a bone scan, chest x-ray and Pet scan after I told him I had back pain from osteoarthritis. I don't think he understands since I am 47 how bad my arthritis is! I have seen the x-rays and I look alot older inside! I guess they are covering their behinds, but it's a real worrying kinda thing. It's like they are trying to find stuff that's not there or something.
Let me know how that port goes for ya.
~Barb -
Thanks for the encouragement. Did you happen to have a headache and what I can only describe as pressure inside my head like a tight filled balloon? I don't feel terrible but I sure don't feel good. Every smell is turning my stomach right now and I just feel like overall crap.
I too imagined far worse getting the chemo. So glad I got the port after watching all the others using arm veins. The BP cuff hurt 10 times worse then the injection in my port....what a relief that was. It is still so tender and I wonder if I'll ever sleep again....lol.
Thanks for letting me vent, I'm a fighter and know I'll make it through all this but don't have anyone to talk to (hubby recently lost his dad to cancer so I don't want to trouble him, he's worried enough) so just being able to write what I feel helps even if I can't talk about it
Good luck to all you ladies (and gents) going through this...YOU ARE NOT ALONE...you're in my thoughts and prayers! -
Hi all, I'm just back on the computer after a week away at the Cancer Care Centre in Bristol. it's interesting to read the experiences of people who have started their chemo already - my first is this friday. So far, no one seems to be suffering too badly. i hope this continues for us all.
i had a very positive experience at the Cancer Centre although it was hard at times and I cried quite a bit which is not something I normally do. We had a lot of nutrition advice and lovely food while we were there which we are supposed to carry on with - no salt, no sugar, no tea/coffee, no red meat, no dairy products and it should all be organic. lots of juicing. Lots of vitamin supplements as well. then we had various healing sessions, a psychotherapy session and some music and art therapy. there was a lot of group talking as well as meditation, relaxation and guided imagery. I really feel that i went on a journey - got quite low in the middle of the week physically and emotionally but came away feeling very positive. All the staff were great and I felt really cared for while I was there and also got very close to the other women in the group. I would not have missed it for anything.
I'm sure I will catch up with everything on this board over the next few days but in the meantime - good luck with any treatment you are having - oh by the way, just read a newspaper article which was about research supporting the practice of wearing one of those seasickness arm bands during chemo. Apparently it significantly reduced nausea in the women who used one. I plan to get mine before Friday!
Asia -
HI ladies, I'm popping in from the June chemo thread.
Barb, I'm the same as you, ever since my lumpectomy & port, I've had the thick, clearing throat issue so I'll be anxious to hear how those results come out. I've heard another woman saying she had a permanent lump in her throat after her surgery.
OMG Donna, that is tooo, tooo funny! You're right, she probably thought she was being so helpful, you'll have to wear one just once, for her :-). I'm also 41 and blond and I can't imagine sporting a granny wig! I'm going tomorrow to pick mine up. My first chemo was Friday so I'm sure by next weekend.
Asia, I haven't been able to eat since Friday and just today, McDonald's french fries sounded like something I could handle. TRust me, that was hard for me to eat them but they tasted so good. I'm really tryng to eat a well balanced diet but I fear it's not going to happen until after chemo....anything protein related I cannot get down and I'm concerned. I've lost 6 lbs since Friday. Oh, still plenty to spare but I'm hoping these fries are a turning point.
Hugs,
Susan -
Hi everyone,
I have a couple of books I have enjoyed that you might also; Love, Medicine & Miracles by Bernie Siegel and Dr. Susan Love's Breast Book. They are great for info and support. Monday had my drain out from my node dissection and the surgeon said that he recommends radiation on top of the chemo because the three of the thirteen nodes that had cancer showed an extranodal extension present (the cancer has broken thru the lymph node walls). I have to see the onco next Wednesday (the 18th) and will find out then if he agrees and also when my chemo starts. I live in the mountains of Arizona where it is cool but because I live so out of the way I had to find medical gelp down in Phoenix. Last week it hit 114 degrees, a real pain to get around in when you're feeling crumby :-)!
I've had my port in for a week and haven't had any problems except soreness in the area and I don't know if it made a difference but my surgeon put it in during the last surgery. To all of you that are concerned about all the tests I say go for them! I have had everything from nuclear stress to bone scans (CT's, MUGA's, MRI, blood) and each time that the test comes back and the doctors give me the results I feel like I am closer to knowing exactly what is going on inside of me and what I can do about it.
I have some visualization tapes that I asked my husband to record for me using his voice. They are great, he has been so supportive to me and because he's a consultant and comes home only on weekends it is nice to have his voice, it also helps because it is a sexy voice too :-) I am taking them to each infusion to help calm me and use them during the day on those crazy little 'down times'.
Good luck to all!
VickieJ -
Hi Vickie!
I'll have to check those books out. I am so into the inspirational stories. I have devoured Chicken Soup for the Breast Cancer Survivor's Soul and Uplift.
I'm in Arizona too..live in NE PHX and am doing all my treatment at Scottsdale Healthcare Shea. How about you?
I go for first AC tomorrow. Hate to think of wearing a wig in these temps! UGH!
Good luck to you, too!
~Barb -
It's been just about a week since my first chemo infusion, and I'm feeling more like myself. It took me a good week before I was hungry, now I can't stop eating. I'm not use to this tiredness, it kind of hits out of the blue, but my counts are down and hopefully that will improve this week.
Good luck to all starting chemo this week, and welcome all new July chemo girls.
We're in this together.
Pat -
Hi BarbMAz,
I will be going to the same place. My doctor is Wassermann. I see him next Wed. to find out when I start chemo. I live in the White Mountains and I decided that I would just try bandanas for now. Good luck tomorrow and maybe we'll see each other there.
VickieJ -
Well, I'm up to the first infusion tomorrow at 12:30! Just gotta get it done!
Vickie, my doctor is Michael Roberts in the Piper Cancer Center. I've heard of Dr. Wassermann. I hear he is well liked. Good luck!
Well, just ate some lasagna and had a glass of wine. Gonna slug down a bunch of water before bed and all morning tomorrow.
I am ready to get going!
Oh, and Susan, I am still having that throat issue. Everything just seems so weird between my port and my throat and neck. Just have to get used to it, I guess. Still waiting for the tests to be scheduled.
Take care, everyone, and I'll get back here after my treatment tomorrow.
~Barb -
Hi Ladies.
Pat, glad to hear you're feeling better. I'm following what all of you who have started have to say, as I start Monday and am trying to get an idea of what I might feel like and when I might be tired and then when the fatigue will lift. I know it's different for everybody but it still helps to know how it's working for you all.
My port felt better when I woke up yesterday morning. I totally forgot it was even there, except that the bandage seemed to be pulling on my neck so I changed it a few hours early (the nurse said change it this morning but I did it last night) and I positioned it slightly differently and now it's OK. Although I think I had a little panic attack while changing it! I got dizzy, weak, began sweating, and had to sit down and take deep breaths or pass out! I guess it freaked me out a little seeing that bump under my skin.
My husband has always said I am like a Vulcan, showing little emotion (I think it is my German upbringing), so I think he is almost relieved when I show what he refers to as cracks in the armor.
I had the CT and the bone scan yesterday and it was no big deal, just made for a long day. But my good friend is in from out of town and she insisted on going with me as she feels she hasn't been able to do much for me so far. They let her come into the room and chat with me during the scans, and we went out to lunch in between so all in all, not a bad day.
I am soliciting recommendations for good novels to read. Somebody sent me Lance Armstrong's book, which is good, but I have to say I'm not much into inspirational reading. I would prefer the distraction of a novel.
Donna -
Hi Everyone!
I made it thru my first chemo today. It wasn't bad at all...no nausea (yet)...just kinda feeling loopy. Even had a delicious meal of Chinese food. I took all the advice and drank soooo much water, and I believe it did the trick. I took the anti-nausea medicine, but I think it's got me wired. I tried to nap, but just couldn't relax. I hope they all go this well...and I hope that I don't have side effects 3-5 days out. And, I hope that the neulasta shot tomorrow isn't that bad. Gosh, I am hoping for sooo much!
Take care all!
~Barb -
Barb,
How was the center and the nurses? I hope I do as well on my firt day!
Vickie -
Vicki, I hope you do well, too! Everyone was great yesterday!
I finally fell asleep after midnight last night. I didn't take anymore of the anti-nausea med, because I think that was making me stay awake. No sickness yet! I'm tired today and feel a little dizzy. I go back in for the neulasta shot at 9:30. I goofed yesterday and let them do blood pressure on left arm (surgery side). I have a little swelling today. I'll have to keep an eye on that.
I am just anxious to get back to my old self and go to work. I may have to wait and see how I feel tomorrow. I'm still trying to decide about a leave of absence. Time will tell.
~Barb -
Glad things went well for you, Barb! I hope you continue to feel well and can enjoy more delicious Chinese meals!
I'm beginning to get nervous in anticipation of my first treatment Monday, so every time I read someone's account that it was OK, I am a little more hopeful for myself.
Donna -
Still feeling great after 24 hours! Sill no nausea! Yippee! Had a delicious Italian meal tonight. I even had that dreaded Neulasta shot today. No eide effects yet! I'm wondering if I really went through this. Guess I'd better knock on wood. But, anyway, I contribute my lack of side effects to good hydration and exercise. I've been walking a 1/2 an hour, 6 days a week. Not a marathon, but adaquate for what I'm going through right now. Of course, I still don't feel like I have anything wrong...why ever are they doing all this to me???? ! I even worked 5 hours today. Kept thinking I was going to get sick and have to go home. Well, good luck to everyone! I just hope the remainder of my treatment goes as well.
~Barb
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