I am starting chemo in July 07. Anyone else?
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When I started chemo, I didn't think of 'months'. I thought of 'cycles. I had 6 3-week cycles of TCH (ended in January 2007) and those cycles were what I marked on my calendar. Each chemo meant one fewer cycle to go. That was much easier on me than thinking of the months ahead.
I crossed those chemo days off my calendar with GLEE!!!
Good luck to all of you!!
Janet -
Good day all, I am new to this thread if I make a typo in language I am new to breast cancer too :-).
I am having 3 months of chemo before surgery, 2.5 CM left breast hoping to shrink down to nothing. Have MRI tomorrow and oncologist appoitment on the 2nd of July so it looks like I am in for July. I am with you on not the ideal way to spend the summer. Especially as I live close to the beach. -
Hi Savanah and welcome to this thread. There seem to be quite a few of us now. It's interesting how different oncologists seem to take different views about treatment. my lump was a similar size but i had it removed first. anyway, good luck with the MRI.
i saw the oncologist yesterday and it looks like I will be starting chemo on Friday 13th! I am having 8 sessions and he is hoping to give them every 2 weeks which I believe means it will be harder on me in the sense of not having so much recovery time but means that I will be through it quicker. It's really down to whether my body can cope with it so frequently - I might have to drop down to once every 3 weeks if my blood count gets too low. He also told me that there was evidence of the cancer getting into the blood vessels as well as the lymph nodes but I suppose that doesn't make any real difference - one way or another the cancer cells are likely to have travelled.
I'm away from Thursday for the week. I am going to the UK to a Cancer Care Centre for a week's retreat with meditation, nutrition advice, psychotherapy and group work. Looking forward to it and hope it will help me to face into the chemo in a positive way.
Keep in touch everyone. Asia -
Hi Savannah and welcome. Hey, we are seeing the onc. on the same day. I'll think of you! I agree this is not a great way to spend the summer!
Asia, will you share what you learn at your retreat? Enjoy!
Donna -
Hi All,
Back from a weekend of great weather and Rock Climbing in Rumney NH. I am actually am going to start chemo on July 2 as my onc wants me to revisit a tiny area in the RB via an MRI biopsy tomorrow which is fine. He wants to check out what the chemo might be zapping but most likely is is not anything. They will do this with areas that do not show up with ultrasound or mammo...this is a relatively new thing so I do not know any women that have done this yet. I threw out a question in the just diagnosed forum so we shall see what it is like. The MUGA was similar to a regular MRI scan and it is cool to see how strong heart muscle actually is as it is doing it's thing. They take some of your blood via an IV and then mix it with a radioisotope, let it sit for awhile and then put it back in and do the heart scan. It takes about an hour. My course (as of right now) is 4wks AC and 4weeks Taxol. As I mentioned earlier I am strongly questioning the A and so may insist on forgoing that for Est pos reasons. I have already spent around 200 bucks on hats and my wig is on order....but it is so hot today. I cannot imagine busting that out in the summertime. The wig is mostly covered by my insurance thankfully as a decent one will cost you around 400.00.
Asia my girl, the dose dense(2wk)regimen has been shown to be a more effective treatment than the 3 week. For dose dense your doctor should be putting you on Neulasta(or something like it) for your white blood count. If not then ask why not...this will give you an added boost. The doc should not be waiting for your counts to nose dive for this. My Irish cousin Mary works for Amgen and we were talking about how the Neulasta needs to be given right after the 1st treatment. It is big bucks so let me know if that is covered within your health care system. Irish cousins come in handy!
Off to a yoga class!
climbergirl -
Speaking of hats, the first one I've purchased so far is from an art festival. I love it, but it was $120. My husband made me buy it (nice excuse, huh?)but I was still feeling guilty about it. So a few days later we were at Target and I found a cute bandana-type kerchief for $1. So now the average cost of my head covering collection is down to $60.50 each!
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Hi ladies. I will see my oncologist again on July 6, but when I saw him the last time, he talked about the 2-week dose dense type of treatment.
I had my mastectomy on Friday and was home on Saturday. I am doing better than I thought I would, except I was nauseous the first few days. Just have trouble sleeping comfortably.
I just got some pathology results back - tumor was 3.6 cm with clear margins and no lymph node involvement - whew! But the tumor grew over 1 cm in the 4 weeks I waited for surgery. This makes me a Stage II, so I assume the same chemo plan, and probably rads, too.
I had an expander put in, so first stop is the plastic surgeon on Friday, and hoepfully, I can get this drain taken out!
Karen -
Hi Everyone,
I'm new to the boards. I have a Stage II invasive with lymph node involvement and will be going thru my 3rd surgery for node dissection next week. The Muga Scan is helpful for the chemo drugs that affect the heart. My surgeon is aggressive but still have concerns about my onco. I will start chemo late July but I agree with climbergirl, you just have to let the doctors know how you feel and wait for them to convince you one way or another. No need to lose ourselves in all this! -
Hi All,
Climbergirl - your procedure does sound interesting. Presumably this will be repeated after chemo? Or have I got it wrong. Yes, i will be having the Neulasta as a matter of course but my understanding is that the blood count can still drop. And it is free which is great. In Ireland, all treatment is free if you are diagnosed with Cancer. I will be away when you have your first session so good luck and let me know if you can still rock climb after it.
Karen - I'm glad everything went well with your surgery. Hopefully you might sleep better once the drain is out?
Donna - I will certainly share my experience at the retreat - and anything I may have learnt. Just at the moment I am wondering why I booked - suddenly realised that I have become quite dependent on my husband over the last few weeks and feel quite odd about leaving him for a week. This is not like me at all. Strange.
VickieJ - Welcome.
Asia -
Hi Again,
Karen: Wow that is quite a growth curve for the tumor, I think that I experienced something like that as well with my 1.5.
Asia: I have not heard that you can still lose your counts on it. People are swearing up down and sideways that it takes care of it, but who the heck knows. I won't be licking any doorknobs that much I know. As for the climbing I will be surprised if I actually want to do it during chemo. I will have to wait and see. The yoga yes, walking/running yes but climbing is a whole different thing. The steroids may work in my favor I hope.
I was talking to my acupunturist @ Dana about planning activities around the chemo and he said that this is pretty much how things will go:
Mon = transfusion, Tues and Weds steroids keep you sleepless and feeling pretty good.
Thurs Fri Sat crash....acupuncture treatment on Sat and then slight improvements for the early part of the 2nd week and then feel good Thurs Fri Sat. So he said that those days were the time to make plans for. Just a road map, subject to individual alterations, but nice to know about ahead of time! -
Here is a question with regard to the growth of the tumor: did it grow in the 4 weeks before surgery, or did it just turn out to be larger than they originally thought? With mine, the doctors said they could measure it with ultrasound and MRI (both showed different measurements), but they could not truly know its size until they did the surgery. They said this is particularly true with Lobular, which I have. And the tumor did turn out, in fact, to be larger than the MRI and US tests showed.
Donna
P.S. I got my last 2 drains out today. YIPPEE! I go for a fill in two weeks. -
Hello all,
Sounds like we're all busy getting ready for chemo, got some hats and bandanas ordered a wig online (keeping my fingers crossed it's not to embarassing). Found out today I'm scheduled for Monday July 2nd. I go back to oncologist on Friday to finalize everything. Still not sure if I'll be receiving 6 tac or 4 ac 4 t DD, I'm triple neg so want to be as aggressive as my poor old 57 year old body can take. I look forward to getting to know everyone, sorry we all have to go through this but it's nice not to be alone. -
well, girls, count me in too. I am seeing my onc on July 2 for final decisions. Having port put in on the 9th and first treatment will be on the 12th or 13th (yes that same Friday the 13th). The mammogram that found my cancer was on Friday, the 13th of April. So that date has a whole new meaning for me. I am supposed to be having dose dense AC x 4. I have heard about the Adriamycin that was mentioned here, so I intend to talk about that too. Climbergirl, I'm close to you, in Kingston NH, just over the MA border. I had a 2nd opinion at Dana Farber, was trying to make my decision about chemo or not. I'm getting my treatment at the Exeter Hospital. What a lousy way to spend the summer, but I'm gonna grab those good days whenever I can. Good luck to all and god bless.
Betsy -
Do any of my chemo sisters have expanders and if so have you had any problems with them? I have such strange feelings as if it gets misplaced in there and I have to move it around. My onco doesn't want my to have any saline put in until the chemo tx is done. My plastic guy says there should be no issues. What say anyone.....?
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Hi to everyone, new and old! Climbergirl, that chemo programme that your acupuncturist gave you sounds interesting. i will wait and see if that's how it affects me.
I am away from my computer now for a week so good luck to everyone who will be starting chemo during the next week. Talk to you all soon
Asia -
Vickie,
I have expanders on both sides. Do you have anything at all in yours? My PS gave me a fill in surgery, so they are approximately a B cup. I don't feel them moving around but the right one feels funnier than the left. I was at the PS yesterday to have the last 2 drains removed and he said the funny feeling is probably because I had the SNB on that side, whereas I had the nodes removed from the left when I had the lumpectomy in May. Also, since I just got the last drains out, I feel sort of an odd feeling in the right one when I get up from lying or sitting down. Sort of as if there might still be some of that drainage seeping around in there. It was the side with the most drainage. Kind of icky but not painful.
My mastectomy was June 14 and he is doing my first post-surgery fill on Friday the 13th. He likes to do the first one a month after surgery. He does tons of reconstruction so I trust his experience and he has never mentioned any concerns about fills during chemo - just that I can't swap them out until after chemo is finished.
That said, I haven't seen the oncologist yet. I see him Monday so I'll let you know if he says anything about fills. -
Figsgirls,
The 'icky' word is perfect. I have to go back for a third surgery this Tuesday for a node dissection. I have appt with PS 23rd so I will see if he can fill then. He did fill during surgery and said that I would only need a couple fills before changing it out but that will wait until after all tx done. -
Donna - I can't say for sure if the tumor grew that much during that time, or if the original sizing, based on ultrasound, was that much off. I will find out soon when I meet with my surgeon. I am envious of you with your drains out!
Vickie, I had an expander put in. Sometimes it feels like it moves, or even like there are spasms around it. I did have some saline put in during surgery and will get my next fill in a couple of weeks. My PS said I can take my time between fills, depending on how I felt during chemo. I haven't met with the oncologist yet since my surgery...I'll see what he thinks about the fills.
Karen -
Mominpa,
Did you ask your PS about the movement and the feelings you were getting? The onco had a comment about the pressure of the fill affecting the chemo. Not sure I understand that because the chemo concentrates on the new cell growth, etc.,,,right?
This is all so confusing but I beleive the more we read and research the better we are. -
Vickie, I will be seeing the PS again tomorrow and will ask him about all this. I am thinking the movement is generally around the saline port in my case. I see what you mean about the pressure of the fill - I will ask both PS and onco about that.
Karen -
Hello to all of you. I've just read all of the posts for July chemo girls. I meet with my onc on Tues. My lumpectomy was 6/14 with SNB. My margins are not clear, but nodes were! Dr. says it wouldn't do any good to do more surgery at this point unless oncologist disagrees. Tumor was orginally thought to be .8mm, but turned out to be 3 cm. So, stage 2 with chemo and rads for me, or "everything but the kitchen sink" as per dr. Like all of you, this is certainly not how I planned to spend the summer. I've decided though, that this summer can be crappy, but watch out 2008! I have so many concerns, fears, etc. about all of this and of the future. I don't know if I'll be able to work through treatment. I'm a social worker, going into homes working with families and their small children. I also am a single mom of three, 15, 11 and 3 years. We are so busy!! It's so hard to accept outside help, isn't it? I know I'm going to have to though. My company doesn't offer insurance. Komen fund took care of mamo, ultrasound, MRI and consult. But, how am I going to pay for the surgery, chemo, rads and follow up in the years to come? I'm going to apply for Medicaid, hope that will help. Ugghh! Like many of you, seeing a lot of waking hours and feel like a zombie at times. I'm thinking about all of you and hoping the best.
I think this board is so great. It appears that others going through this at different times have really been a great support to one another.
Kim -
Ladies,
I don't mean to "crash" your thread, but just want to wish you luck and send my love your way. I was dx'd in July of last year, had surgery, did my d/d chemo (AC/Taxol) and radiation. Finished chemo in late December and now have short, somewhat stylish hair.
Please remember you all can do this. You probably already know this, but thought I'd chime in. The time goes by quickly, you have your days when you feel "icky", but it is not as bad as you think. I still had a social life, went out, worked every day (except for treatment days).
Best wishes to all of you.
You can all do this.
Raye -
Raye,
Thanks so much for your encouragement it helps to hear from someone whose been there and back. You had the same treatment I'm starting on July 2nd, and I'm also triple neg. Wow can't believe you were able to work, that really inspires me. I'll just keep repeating, I can do this, I can do this.
Thanks again and hope you have a great summer! -
I'm new to this, but would like to join in. I expect to start chemo in July and will be having surgery next week to correct an open abd wound. We want to hurry the healing process up so chemo can start. I have alot of questions and concerns to work through. I'm looking forward to using this website to learn more and make the process easier. I'm not looking forward to the loss of my hair, and hope I can find ways to make that easier as well.
Good luck to all.
Kim -
Count me in for the onco on the 2nd. I made it through the MRI it was a challenge to say the least. This is all so overwhelming some days, I am glad to have foud this site. This place helps me to know what to ask the onco when I am there.
Keep you posted and keep dreaming, smiling and laughing everyone. -
Kim,
I have always had long hair and so I went to the salon and had it all cut off. I felt that it was one way to say to myself that it is going to be alright and that I can adjust to any change!!
Raye,
thanks for the encouragement and how often do you have checkups and what exactly should we expect for followup visits to the docs? -
Vickey,
Thanks for the encouragement, I'm going to the wig salon next week and going to have some fun with this new adventure.
Kim -
Hi ladies,
I finally had the drain taken out on Friday. Turns out the movement I felt was the tube for the drain (*duh*), not anything to do with the expander. I asked the PS about the fills interfering with chemo. He didn't see a problem, but will also check with my onco before I have anymore fills. I hope it will be ok, because I am anxious to get the saline port out.
How are you all been feeling since surgery? It has been 9 days for me. I'm getting around pretty well, but still need the recliner for sleeping...just no comfortable position!
I just heard from a couple of people that I will most likely never again be able to have blood pressure, injections, etc taken on the arm on the side of my mastectomy. I knew I would not have my chemo on that side, but hadn't realized it was a life long thing. Has anyone else heard that? I think it has to do with increased risk of clotting. No biggie, I guess, just something to remember to tell other doctors.
It is beautiful in central PA today. Hope you all are enjoying your weekend!
Karen -
Ok,
Woo-hoo!
So today is the my first day of chemo and I think also Gagals? I am er/pro pos so I get the standard 8 weeks of 4AC 4 Taxol. Although I did meet a woman going through Abraxane trials and she says that that is shown to be better than Taxol both in patient tolerance and in efficacy. I have a number of questions for my Onc before I get my transfusion @ 11 this afternoon.
One thing that I did last week was go to a place called the Wellness Center and hook up with a BC cancer support group which I highly recommend doing if you can. It was really helpful to meet some woman that have already made it thru chemo. I came away from it with a respect for those that have worse diagnosis than mine and a sense that this is going to be something that I can manage and not lose my life to for the next 4 months. I met a gal that has to do 15 months of this stuff and that was a trip.
A few of my questions are related to what people do with sun protection when they go outside. I know that there are UV shirts and stuff. I can't see being indoors all the time on nice days so there has to be a way to do it. I know that drinking tons of water is super important days before and after treatment and I do that anyway with all the yoga stuff. What other questions are people wondering about?
Raye99 I have always loved your cute picture and have read many of your posts that you did on treatment. Thanks for the good wishes.
~climbergirl -
Good luck today, I hope to find out when I'm going to start my tx today.
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