June 2007 Chemo

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  • litig8or
    litig8or Member Posts: 54
    edited June 2007
    I guess you guys didn't have the vodka tonic before the Ambien!!!!!! AcK!!!

    We just celebrated my boyfriend's BIG 4-0!!!! (I'm 39) Oh, when will I get a ring??? Eh, it's only been a year--don't feel sorry for me yet!!!

    AC #3 on Tuesday....I'll keep you posted!!!!
  • sdstarfish
    sdstarfish Member Posts: 544
    edited June 2007
    Thanks for sharing the dream! As for me I can't sleep tonight - first round starts tomorrow. I forgot to tell you that I also take melatonin, because it is supposed to ease side effects, increase effectiveness of chemo, and help you sleep while you're losing it. I think it is not helping tonight because I had to take Dexatron and it makes me feel kinda wierd.
    I went to Look Good, Feel Better last Monday. What a cool bag full of make-up - and some spendy brands, I might add!

    Hang in there, Shrink!
  • sdstarfish
    sdstarfish Member Posts: 544
    edited June 2007
    You're right, CY . I forgot to add that disclaimer
  • TerryNY
    TerryNY Member Posts: 603
    edited June 2007
    Welcome to all the new sisters, this is a great group of ladies.
    Gracie, I hope this finds you doing much better today.

    Bonnie, sounds like you are hanging in there, good for you!

    I finally did it Saturday, had my daughter shave my head, well there is still stubble but I was so tired of having hair everywhere. I was self conscious at first but it feels very liberating to me and the breeze on my head feels wonderful. I have a dr appt today so will be the first time I venture out, wish me luck!

    The nurse has been coming everyday to change my packing and dressing. It's been traumatic and I've resorted to popping a xanax before she comes along with some Tylenol. She's thinking it'll be three weeks before I'm healed which will put me two cycles behind. I am NOT a happy camper about this but not much I can do.
    I see the surgeon tomorrow for a follow-up on the office procedure he did last week. Anyone else feel like their social calendar is dr visits and MORE dr visits?

    Hope everyone has a great Monday!
  • TerryNY
    TerryNY Member Posts: 603
    edited June 2007
    Oh, I did want to mention the herbal remedies as well. My onc's office was very explicit in what we were *allowed to take while on chemo and what not to take as some of the herbal remedies will interfere with the chemo. It almost, well it does, puts you in an either/or position on treatment options, chemo or the herbal route.
    So make sure you discuss this all with your oncologist.
  • burquie
    burquie Member Posts: 129
    edited June 2007
    Good Morning!
    Hope everyone had an enjoyable weekend. Mine was pretty good, managed to eat quit a bit..... YEAH! Made dinner yesterday for my family and my sons GF, she turned 20 on Friday so we celebrated yesterday. Then last night I just "hung out" with my sons, ages 17 and 20. When I got to bed I just realized how much I really enjoyed that. Just hanging with them shooting the crap was really good medicine!
    This morning it was off to the plastic surgeon for an expander fill; she put another 180cc's in that puppy...really looking good, if I do say so myself! I'm glad however the fills are on my "off chemo" week; don't think I could possible do both the same week.
    Just wanted to check in and wish you all a good week! Remember girls we will get through this crap..... we have to, people depend on us!

    Bonnie
    PS: the only "herbal" remedy I might be interested in is the kind that gives you the munchies and makes the nausea go away!
  • Charlie451
    Charlie451 Member Posts: 69
    edited June 2007
    Hi all and happy Monday. Great to see so many posts. I am feeling good even though I'm in my nadir. I'm actually able to finish up a neglected painting and plan for some (paying, non-art related) part time work!
    Gracie, I do hope you are out of the woods with this stomach problem.
    Shrink, welcome. About your dream, what if the 6 cowboys on horseback were there to help?
    About the herbal question, I agree with Terry. It comes to the point of choosing one way or the other. It is tempting to want to throw everything at this disease. I plan to use some herbals to help rebuild my immune system later.
    As far as the costs involved - don't even get me started. The oncs and insurance and drug companies are way ahead of us in this business.
    Linda
  • joanne_elizabeth
    joanne_elizabeth Member Posts: 499
    edited June 2007

    sdstarfish, just curious how much melatonin and is the onc okay with this? I was reading bout this yesterday. I am due to start wed.thanks

  • miknikmom
    miknikmom Member Posts: 31
    edited June 2007
    I am on day 5 of first treatment and feel pretty good. Have not been sick no headaches. Went to work right after chemo and returned to work after the shot the next day. Cleaned house and like crazy all weekend. Went swimming and tonight I am going to the gym. I did have to take a laxative because I only went to the bathroom 1 x since Thursday. I have been really worried and nervous waiting for something to happen. That is the worst part. Sometimes I do feel a little foggy in the mind. 1 down 3 to go.
    Diana
  • shrink
    shrink Member Posts: 936
    edited June 2007

    I'm about a week ahead of you and my experience sounds similar. I had relatively few side effects which included constipation. I did take Colace, prune juice and a laxative twice. Everything seemed to go back to normal on day 6. The fog lifted too. They're probably related. I also had a little blurry vision, my skin turned red for a day or two and I cried for almost one whole day. Feel much better now. Best of luck on this journey.

  • honeygirl
    honeygirl Member Posts: 1,718
    edited June 2007
    Hello to all my chemo sisters. I hope this fines you all at peace. I am five days after my second treatment. Sunday I started feeling better. I was able to do some housework. And I made it to work today. I really wish I didn't have to work through chemo. I just stay home when I feel really bad. For me , it seems to be the early morning hours after treatment and the third day after.
    Yes , I have cravings. Potatoes! I don't know if its the starchiness that agrees with my stomach or what. Also milk.
    I also have been having such vivid dreams. Some make no sense at all. And I had a nice , comforting dream of my Dad who passed away 12 years ago. The only real problem I am having is my knee. It usually acts up a couple times a year. Usually with the weather changes. After about a week it stops hurting and it doesn't bother me for another 6 months. Well , I don't know if it is the chemo knockin' my immune system down , but I can't get rid of it this time. Over the weekend , I thought it was over , but back at work today , I am on my feet walking most of the time , it started hurting again. I guess I need to see my doc. I'm just SO tired of Docs! Well everyone , hope your having a good evening. And welcome to all the new junies! Hugs and prayers , Melody
  • DebbieK
    DebbieK Member Posts: 116
    edited June 2007
    Hi All,

    Well I worked all day today. I am a little tire due to white cells sinking about this time, but otherwise fine. An old friend came by and went to lunch with me. Haven't seen him for a couple years because he moved away and he was in town for the day. What a lift he gave me! Of course, he gave me my choice so we had chinese food!

    Terry, I am so sorry you have to have Nurse "Ratchet" come see you every day. I hope you are healing fast and can get back on the chemo train.

    I am so happy I can work all through this. I think I would go crazy if I had to stay home all the time. Work really distracts me from all this stuff.

    Couldn't agree more about the doctor appointments. I was so happy over the weekend when I realized I don't have one for this whole week! Hallelujah!

    Take care all, Debbie
  • b445
    b445 Member Posts: 1,325
    edited June 2007
    The problem I think with taking herbals is they are high in antioxidents and that is counter productive to the chemo. so please be sure to weigh them carefully and let your Onc know everything you take!

    Well I think my day of doing nothing helped me catch up cause I have more energy tonight than I have for a while.
    Of course it feels good knowing that MIL's old apartment is all cleaned out and we don't have to go back there expect to turn in the keys on Sat.
    It will be nice knowing she is taken care of all the time and I can concentrate on getting me better.

    Work was really hectic today as I was covering for two other gals as well as my own job!
    will be glad when they are both back and I can concentrate on my job!
  • Nancyab
    Nancyab Member Posts: 276
    edited June 2007
    Hi gals, I just finished my chemo treatments on June 1, I had 4 ac's and 16 weekly taxols. I just finished radiation # 4 of 33. My hair started coming back at about my 12th taxol although it lacks color. I just want to say that it sounds like all of you are doing well regarding side effects, that is wonderful! AC is a tough one and taxol is easier but cumulative no doubt. I am still tired 25 days post chemo and surely rads will effect my energy as well, I just hope not to much.
    Debbie- I too am a coffee lover, hated it during AC and midway through taxol I got my love for it again. So that too shall pass.
    I get my port out Wed, and that will be a distant memory! Yeah! Good Luck to each of you! I am from the January chemo group and we support each of you! Holler if you need us!
  • sdstarfish
    sdstarfish Member Posts: 544
    edited June 2007
    Wow, unfortunately our list is growing for June but fortunately, we'll have lots of support and encouragement with each other. Here's what I have so far, feel free to copy & edit or add additional info:

    1) Cy - Washington - 5/25 Start - Abraxane/Avaisten
    2) Sandra - Canada - 5/28 Start
    3) Pam - Oklahoma - June Start
    4) Dawn - June Start - 4 AC, 4 T
    5) Terri - New York - 6/4 Start - 4 AC, 4 T
    6) Cheryl
    7) 5Kids 5/24 Start - 4 AC, 4 T
    8) Susan - Illinois - June Start - 4 AC
    9) Jennine - NC -
    10) Bonnie - NY - June Start - 4 AC, 4 T
    11) Lisa - CA - Started today, June 35 4TC
  • tos
    tos Member Posts: 376
    edited June 2007
    Boy it is good to see so many of you are doing pretty good and staying active, working, exercising, that is wonderful!

    I'm still trying to keep myself off of the bed for more than 10 minutes just getting smacked I guess. I sure hope the Neulasta shot helps me come around quicker this time although I am feeling more pain from the shot but so far it hasn't been real bad, just twinges mostly.
    I've had more nausea the second time and noticing some neuropathy in my feet.
  • sdstarfish
    sdstarfish Member Posts: 544
    edited June 2007
    Hi, Pam:
    I get that shot for the first time today. What are the side effects from the shot - besides arm pain? Thanks.
  • TerryNY
    TerryNY Member Posts: 603
    edited June 2007
    Good morning!

    Bonnie, too funny about the herbal request for munchies and anti-nausea help....you do know NY is considering legalizing marijuana for medicinal purposes. ;-) I'm glad you had a good time just hanging with your kids. Sometimes, most times?, it's the simple things.

    Diana, Shrink and all the newbies, I wish you well on the chemo front. Most of you seem to be doing well with minimal side effects, all great news!

    Good luck to those starting this week!

    Melody, too sweet about your dream and your dad. I hope he was able to give you some comfort. Hope your knee is some better and I so understand your frustration with possibly adding MORE dr appts....arrghhh....

    DebbieK, it's great you've been able to work through this, good for you! The surprise visit with your old friend sounds like a wonderful tonic to lift a body's spirit.

    Cy, so glad you have your MIL settled so now you can concentrate on you! One less stressor for you.

    Nancy from the Jan group, thanks for the offer of help, always nice to hear from women who've already made this trip. I'm jealous you're getting your port removed!! LOL Not that mine is that much trouble, just knowing it's there and I was so adamant about not getting one in the first place. The things we do to ensure a better outcome.

    Lisa, let us know how you're doing!

    Pam, I'm so sorry this go-round is getting the best of you. I can't remember what drugs you're taking. I do hope you are able to bounce back and have a couple of good days before your next cycle.

    Lisa, I had no pain from the actual Neulasta shot, none. I did experience pain in my lower back and pelvic area about 4 - 5 days after receiving the shot. It was managed well with Tylenol.

    I have a follow-up with the surgeon this afternoon that I'm not looking forward to. I feel another xanax day coming on. The nurse yesterday did comment that I'm healing nicely with little drainage, so great news on that front. It just hurts like the dickens when they have to repack the wound. Ouchie! I need a new mantra about this because 'this too shall pass' isn't working anymore!
    Any suggestions? LOL

    BTW, has anyone heard from the 'other' Debbie? I believe she lived in MA? I hope she's doing ok.
  • tos
    tos Member Posts: 376
    edited June 2007
    http://www.drugs.com/neulasta.html


    Sdstarfish, here is a link to learn about Neulasta and it's se's. I had read of some having more bone pain as it makes your bone marrow go into overdrive producing white blood cells to help you get thru your nadir period w/o a lower count and possible fever. The Onc nurse told me it takes 6 to 7 days to kick in.
    I didn't find the shot itself painful, I got mine in my hip since I have had nodes removed from both arms but I have experienced extra pain twinges, especially in the back, shoulder area. Some of the other pain I have had I originally had w/my first treatment so not all of my pain is from Neulasta.
    I hope your shot goes well for you and you don't have any se's and that it helps you. We don't need extra worries to deal with, do we?
  • tos
    tos Member Posts: 376
    edited June 2007
    Terry good luck today with the surgeon, it really does sound painful.

    It will get better? Things could be worse?

    Wish I had a good one for you,
  • sdstarfish
    sdstarfish Member Posts: 544
    edited June 2007
    I hear you, litig8or! I am 38, and I have been with my man for 3 years! At first I was glad to take it slow, because we live far apart. But now I'd love to see a ring - what a motivator to get through all this stuff! Still, he is so supportive and I'm grateful
  • sdstarfish
    sdstarfish Member Posts: 544
    edited June 2007
    Thanks so much for the info, Pam. I feel yucky today. Like a mild flu.
    Blehhhh
  • SusieSwan
    SusieSwan Member Posts: 111
    edited June 2007
    Hi Ladies,
    Had the sterotactic and the core biopsies today. I was more afraid of the stereotactic, just due to the table I guess, but it was no problem and I felt no pain with the core biopsie (probably helped it was near my former lumpectomy which was already numb).

    So, they said to call Friday afternoon and they should at least have a preliminary for me...cross your fingers for benign so I can get on with treatment!

    Lisa & Kathy, I daed my hubby for 5 years before we decided to get married. We both had kids so that was part of the decision but I don't regret it at all. Gave us lots of times to get though all our ups and downs so when we finally did get married, we were so very confident this was a sure, forever thing. It's been almost 4 years now!

    Hugs,
    Susan
  • sdstarfish
    sdstarfish Member Posts: 544
    edited June 2007
    Hey, Bonnie:
    Just wanted to tell you that this post really inspired me today. I'm feeling yucky, but it helped me see a light at the end of the tunnel! Thanks.
  • sdstarfish
    sdstarfish Member Posts: 544
    edited June 2007

    Thanks, Susan. I kinda feel like that too. He's 100% there for me in this thing, so that's a good thing for now!

  • honeygirl
    honeygirl Member Posts: 1,718
    edited June 2007
    Susan , I will definately be praying for B9 results for you so you can get your treatment started. I'm glad to hear your core biopsy was painless.
    Lisa , sorry to hear you are feeling bad. Hope it doesn't last long.
    Pam , hoping your feeling better. The nausea really gets to me too.
    Terry , I really am praying you heal quickly. That sounds like alot of pain to me. And yes , it was a comforting dream of my Dad. And my knee is feeling much better.
    Thanks everyone for your posts , they really are so much help. Hugs and Prayers , Melody
  • Charlie451
    Charlie451 Member Posts: 69
    edited June 2007
    Wow, so much going on with everyone. It's really great to hear about boyfriends like Lisa's who are such strong support through times like this. My husband, while initially really freaked out, has been his upbeat, kind and loving self. Brought me a really nice bouguet of flowers after my first tx.
    There is no anxiety like waiting for test results like Susan. I hope and pray for the best. And Terry I hope the surgeon visit goes well and you heal quickly so the wicked nurse won't have to return. Pam, well I hope you can get past this taxotere fatigue. It might help to drink orange juice like water for the vitamin C, if you are able. Also red meat, spinach and good stuff for iron!
    I'm feeling good. Kept the grandkids today - wore me out a bit. It's a real effort to keep the bouncing baby boy from banging into my port. We have flooding here so I have to drive miles out of my way to get anywhere.
    Later,
    Linda
  • tos
    tos Member Posts: 376
    edited June 2007
    Susan, I'm so glad your biopsies went well. Let us know what you find out Friday.

    Pam
  • litig8or
    litig8or Member Posts: 54
    edited June 2007
    My John is wonderful! He comes over and cooks dinner after every treatment and he really takes the brunt of my anger about all of this and he really tries to keep my self esteem up and such. I have a 17 year old and a 21 month old (both boys) and he has a daughter that will be 3 in November. That's one reason we are going slow--that and the fact neither of us wants to get married at the same time!! One day I do, one day I don't. I actually like being single. But I like a good solid relationship too. We figure though if we can make it thorugh this cancer thing, when we do get married, nothing will be able to stop us from staying together. I'm actually about to start counseling for my self esteem and anger issues--I've really said some horrible things to him since my diagnosis and he doesn't deserve it and I'm lucky he's staying with me. Most boyfriends would run, I'd think. You read about these husbands who are detached and not supportive, so I consider myself VERY lukcy that my boyfriend WANTS to be involved (He's going to the plastic surgeon with me to help pick out new boobies. He has court on chemo days, so he doesn't get to do that and I think it makes him feel like he's not pulling his share of the load, but he is in many other ways)

    Anyway--I love him very much and I'm so lucky that I have a great support system. Day two after AC #3 and I'm feeling ok.....I wonder what tomorrow will bring.

    Kathy
  • TerryNY
    TerryNY Member Posts: 603
    edited June 2007
    Good afternoon! I just got back from the oncologist's office and I'm cleared to start chemo on July 2nd, which would've originally been my 3rd tx so I'm only one cycle behind. The wound is healing nicely but will take weeks to completely heal from the inside out and he didn't want to wait that long, not to mention the stress factor on me!

    Susan, good luck on your reports and I'm thrilled to hear that your core biopsy wasn't painful. Sometimes the anticipation is much worse than the actual procedure.

    It's heartening to read of everyone's supportive husbands and boyfriends, where would we be without them? I know mine, as well as my kids, have really been here for me throughout the whole affair. My son came home with a buzzcut the other day, surprised me! LOL He still has more hair than I do at this point, but I appreciated the gesture.

    Kathy, good luck with the counseling. IMO, the first step is the hardest and the fact you recognized you need some outside help says a lot about your recovery efforts. I really wish you well! My onc's office has a social worker available as well and I'm glad she's there just-in-case.
    Hope everyone is enjoying their week!

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