June 2007 Chemo

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  • Terrilee2
    Terrilee2 Member Posts: 13
    edited June 2007
    Hi All,

    Well... 3 down... 5 to go!!! Someone needs to pinch me! I feel great!!! I finished at 2 pm, and by now, according to my last two treatments, I should be experiencing the dry heaves.... There never seems to be rhyme or reason to this stuff! I am hoping that if and when I get the queazies, it will be tomorrow. Kacie, my high school grad is having her grad party on Saturday. Silly me... 250 of her "best" friends, relatives, neighbors and probably a few nosey strangers are due to show up here on Saturday at 3pm. Wish us luck! Actually, I am blessed with some really great friends that have been helping me all week and they plan on running the show... God bless them! Ok... I have been reading our posts, and I know that there has to be a few comedians in our midst... lets share some funny knee slapping stories... Laughter is the best medicine. Here goes... My son John, 14.5... is this funny outgoing kid that is going through puberty. He is growing up under the guiding wings of his three older sisters... (poor Kid).. Anyway.. Our house is like grand central station most days... It is not uncommon for me to come home from work and find 5-or 6 kids here hanging with my kids. Well, last night Kacie had a couple of her girlfriends over, and it was the first really warm day we have had this season. Northern Wisconsin... Back to the story, One of the girls came over with a bathing suit on and she was very shall I say healthy... John's poor eyes were buggin out of his head, so I suggested that he go clean his room. Boy they hate that when I do that. Anyway, after he went to his room, I told the girls that they needed to stop torturing the boys and to put a cover on. They kind of giggled, but got the message. I then went up and was gabbing with JOhn, and tried to talk birds and bees.... I talked about some likely situations that he may find him-self in, like being around girls with big boobs... and he looked me straight in the eye and said "That girl is heading for some big time back problems" I was dumbfounded...

    To everyone who isn't feeling well, my good positive thoughts are sent your way. Fresh air, fruit, and naps!!!

    Peace,

    Terri
  • b445
    b445 Member Posts: 1,325
    edited June 2007
    Wow I have been very busy, with my parents here for the last month, moving MIL, enjoying grandkids and working I haven't got on here much.

    I have now done 5 treatments of the Abraxane and 1 of the Avastin. Hair is going fast now and I'm a bit tired when I sit still now. so all in all I think I'm doing well.

    I will try to read and catch up with everyone but it won't happen tonioght as I'm very tired tonight.

    hugs & prayers to all
  • tos
    tos Member Posts: 376
    edited June 2007
    Hi SouthernCheryl I so agree, the Taxotere is a nasty burger. Try to rest as much as you can.
    I sure didn't look forward to going to #2 yesterday but I did.
    You might talk to your Onc about the subset question?

    I agree too about the costs, I don't know how people do this w/o good insurance. Just added stress on top of everything else.

    Hi Cy, good to hear from you, get your rest.

    Terri, my gosh you are moving right along and sounds like you're doing pretty good. I'm so glad you are having so much good help w/this grad party, sounds fun but a handful! Enjoy and take it easy,
  • litig8or
    litig8or Member Posts: 54
    edited June 2007
    Here's a funny story for you---I've had 2 AC w/ Avistan txs so far. When I get to about day 12-14 and until the next tx, I am like super woman. Not only do I have energy, I feel better than normal. I clean house and am very productive at work and such. Anyway--I take AmbianCR every now again--usually the few first days after a tx, b/c I just cannot sleep. But, if I've had a tough day or know I have a big day the next day, I might take one just to make sure I'm rested.

    So---why is that funny--let me go on.....I have a 17 year old. His curfew is Midnight give or take a few minutes (who cares if he's five minutes late so long as he doesn't die in a car wreck going 90 trying to beat the curfew). So, he ALWAYS has to come in and let me know he's home. It's not unusual that if I take an Ambian I won’t remember this, but anyway the other night he came and told me he was home and I grunted. Then he went to his room and started playing PS3 or whatever game system he has and about 30 seconds later I walked into his room, didn't say a word and just looked intently and scanned the entire room. Finally, Zach says, "Mom, you ok?" I say, "I can't find the pirate food." And I abruptly walk out and head back to my room. He follows me into the hall and says, "Mom, are you hungry?" And I say, "No, Karen (my twin) was supposed to bring that damn pirate food." He says, "Are you alright?" I say, "I just want to find that pirate food!" And I go get back into bed. He made sue I was in bed and resumed his game.
    The next when he told me, I laughed so hard I cried! I have no recollection of any of that.
    Have a good weekend!
    Kathy
  • SusieSwan
    SusieSwan Member Posts: 111
    edited June 2007
    Oh Terri, how blessed to have your pubescent son worrying about the girls' future back issues!! Give it another 6 months!! Are you going to Madison for your treatment by chance or are you too far away from there?

    Kathy, my oldest daughter use to sleep walk and would do the same kind of thing and we'd laugh and laugh the next day about what she was on a mission for. I wonder what pirate food is?! I have a personal obsession with Johnny Depp so maybe you were dreaming about him! I would have been looking for more than pirate food!!!!

    I'm looking forward to a relaxing weekend. I'm thinking of taking my girls to go see that Evan Almighty. I think it looks like it could be very funny and I could use some good deep belly laughs.

    Cheryl, I hear that's a "better" type of carcinoma to have, correct? Doesn't usually spread? Happy for you if that is the case.

    Where's Debbie K?!?

    Everyone have a great weekend!
    Hugs,
    Susan
  • Leahrc
    Leahrc Member Posts: 459
    edited June 2007
    HI.. I am from the February 07 group... just had to add this llittle tidbit:
    If you wear a bathing suit, you absolutely will NOT have to worry about your bikini line, either!

    Reach out if you need any of us who have gone before you!

    Love.
  • jsims2
    jsims2 Member Posts: 27
    edited June 2007
    Hi all--

    Just got done with round 2 of TAC today the Taxotere gave a slight headache but they said it could of been the Emend. Really tired now so I am going to take a nap. Maybe the nausea will be gone when I wake up!

    Wish me luck!

    Hugs to all...
  • b445
    b445 Member Posts: 1,325
    edited June 2007
    Just remember it's wasier to ward off the nausea that it is to get rid of it! At the first signs of it teke the compazine or what ever they give you for it!

    Well I have the hair down to about 1/2" now and other than the crown in the back you don't know I'm losing it! I'll still keep it covered and I can't stand the hair everywhere thing!

    Going to the salon and spa for a ladies out salsa night that the hubby got me!

    Take care hugs & prayers
  • Charlie451
    Charlie451 Member Posts: 69
    edited June 2007
    Hi all,
    I hope everyone has a good weekend planned. My blood test today came back real low for white cells so I guess I'll be trying to avoid germs all weekend. The onc's PA won't give me a Nuelasta shot until it drops below a certain point. And that's OK with me.
    Cheryl- I know what you mean about not ever going back. I have given it fleeting thought myself. This stuff is so difficult to understand. Is this guy your new onc? Maybe he will give you some straight answers about things.
    Gracie, Honeygirl and Bonnie - Nausea is such a bummer. The chemo has got to wipe out all good bacteria from our digestive system. I'm wondering if replacing it by eating yogurt would help a little with the nausea.
    Pam - Can they reduce the amount of taxotere you are getting each time? I hope you are able to get some relief soon.
    Kiddegirl- Hang in there and keep us posted!
    Terri- Your son's "back trouble" observation is just great!
    Kathy- HA! I loved the sleepwalking story! No doubt your son will be watching now for the next event.
    Have a nice weekend,
    Linda
  • DebbieK
    DebbieK Member Posts: 116
    edited June 2007
    Hi Everyone,

    I have been reading the posts all week and muchly enjoying them! I was given Emend this week and wow did it really help with the nausea! My tx was Monday (2nd AC), and it was such a relief not to feel sick all week. However, I have been more tired this time around. I did manage to work some but overall I have not had much energy for anything this week.

    Tuesday my husband shaved my head and then I shaved his! He wanted to to support me and we both look a little weird now. I have been wearing my caps and have a cheap wig I haven't worn yet. It isn't as bad as I thought it would be, but I will be glad when it grows back.

    Today is our 33rd anniversary; he brought me flowers and champagne. We're going out to dinner; I think I will have a steak and help out those red blood cells.

    I hope everyone has a wonderful weekend.

    Hugs, Debbie
  • honeygirl
    honeygirl Member Posts: 1,718
    edited June 2007
    Happy Aniversary Debbie! Hope you had a wonderful dinner.
    Linda , I was wondering about eating yogurt to help my stomach lining also. Guess it can't hurt.
    Kathy , that is so funny about the sleep walking! I wonder what the "pirate food" consisted of!?!
    Well , for me , I am day three after my second treatment. Still have nausea , and am not sure if it is from the shot of neulasta , but my legs are aching. Didn't think I would make it through work yesterday , but I did. Went straight to bed when I got home! Felt a little better after a nap.
    Well ladies , I hope everyone is having a good weekend. At least one that is not filled with to much nausea and pain. Hugs and Prayers to you all. Melody
  • TerryNY
    TerryNY Member Posts: 603
    edited June 2007
    Good morning!
    I hope everyone is doing better today, it's hard to keep up here but I do read every post.

    I've thought a lot about the costs involved in treatment, it's amazing how much they 'hit' you up for, every visit is a co-pay and some weeks I've been to the dr almost every day. I think they should treat it like a pregnancy and have a flat fee. I mean, they know what treatment plan you're having so it would be easy to set an amount based on that and how many visits are required, but no one asked me. LOL

    The funny stories are uplifting, thanks for sharing them. I love the 'pirate food'...there is a brand name called Pirate's Booty that is supposedly *healthy junk food, should I send you some, Kathy? LOL

    Debbie, Happy Anniversary! Hope you enjoyed that steak!

    I am going to my g-son's birthday party today, he's 4. I bought him loads of Spiderman goodies as he's a huge fan.

    I'm also going to finally shave my head today, I'm sick of finding hair everywhere!!!

    Hope everyone is doing well and coping the best they can.
    Have a good weekend!
  • DebbieK
    DebbieK Member Posts: 116
    edited June 2007
    Good morning, all,

    Melody, I can't believe you were at work day 2 after treatment! For both of my treatments I have stayed home through day 3, but have done some work on my laptop between naps. You are really tough to get right back to it so quickly.

    Our dinner was wonderful. I had my favorite, prime rib, and a nice glass of merlot. I even wore my wig and my husband said I looked great. I found it gave me a bit of a headache, hope it stretches out a little bit.

    Terry, I really agree with you about the costs of all these appointments! Thank goodness for insurance but even the co-pays add up.

    Well, I need to go get groceries before I get too tired out.

    Take care all, Debbie
  • tos
    tos Member Posts: 376
    edited June 2007
    Debbie happy anniversary and you sound like such a sweet couple. My goodness the prime rib and a glass of wine sound so nice, your hubby is very thoughtful, he must love you very much.

    Kathy, funny story about the Ambien CR. I have been on this nightly for over a year and haven't been aware of doing anything strange but have sure heard the stories.
    Just make sure you get plenty of sleep when taking them.

    Janet I had a headache after my first Taxotere that went away pretty quickly but the second time I did not. I hope you are feeling better now.

    Cy oh my gosh what a nice hubby you have there too! A ladies night out at a salon and spa, wow, that should be fun, you enjoy, you deserve it.

    Hi Linda, yes watch those germs and hope you feel strong thru this low time, it can get you down.
    My Onc said he couldn't reduce the dosage on my Taxotere cuz then it wouldn't be as effective so I'll get thru, only 2 more! I did get the Neulasta shot yesterday and feeling pretty achey and ready for whatever, we'll all get thru this, hang in there.

    Honeygirl, hope your pain is better today, my gosh I don't know how you are working either, get lots of rest when you can.

    Terry happy birthday to your grandson, love those grandbabies. Good luck with your shave, I know it's rough but I was like you and got to a point where I had to get it over with, hope you have a good week-end too!
  • shrink
    shrink Member Posts: 936
    edited June 2007

    Hello Fellow Travelers. I started chemo (4 AC, 4T) on June 14. Had relatively few side effects and felt almost normal after 5 days. I've been on an emotional roller coaster from hysteria and panic to dispair, grief and sort of OK since the diagnosis (Stage III ductal, three "suspicious" nodes and maybe inflammatory BC). In fact, that last episode of the Sopranos made me so angry, I forgot entirely that I had cancer for at least ten minutes. Anyway, I can tell the "respectable" 6 cm lump is already smaller which gives me some hope that I might live beyond next week. This will be a long battle for the upcoming year and probably longer but the support on this site has been wonderful and informative. Next chemo is July 5. Does anyone know if the effects are cumulative?
  • DebbieK
    DebbieK Member Posts: 116
    edited June 2007
    Shrink, I have been asked the question so many times about it being cumulative. I have never heard a definitive yes or no. I have had two AC tx so far, and it didn't seem to be cumulative to me. You are very fortunate to not have had any bad nausea or other side effects. Did they give you medication to help you with the side effects?

    The only thing that helps me not to subside into a panic is to just go a day at a time and do what the doctors say. From your note, I assume you have not had surgery yet? Will they do that after you finish chemo?

    Take care, Debbie
  • shrink
    shrink Member Posts: 936
    edited June 2007
    Hello Debbie:

    The plan is to have a modified mastectomy after chemo, then maybe more chemo and radiation followed by anti estrogen meds.

    They gave me Emend 125 mg prior to the infusion along with 2 dexamethosone. For the next 2 days I took Emend (80 mg)with the dexa and the 4th day, just the dexa. I had some gassiness, constipation, turned reddish, spaciness but no nausea or vomiting. I hope the next treatment goes as well. I drank loads of water, took Colace and prune joice and resorted to a laxative after 3 days of no results. Then, I started to return to "normal". Hope you're doing well too.
  • DebbieK
    DebbieK Member Posts: 116
    edited June 2007
    I thought maybe they gave you Emend. I was given that for my second go around and it really eliminated the nausea for me. I did not have much trouble with constipation but I never get that anyway so I guess I am not prone to it. I have been drinking lots of liquids as well. My next treatment is on July 2nd so I hope I get by as good as this last one. The only overwhelming side effect I had was fatigue. I slept a lot this week but am feeling good today.

    Take care, Debbie
  • burquie
    burquie Member Posts: 129
    edited June 2007
    Hello Chemo Cousins!
    Well here it is day 5 (1st tx of AC was Tuesday) and yesterday and today I have been feeling pretty good! Imagine that! Food isn't as disgusting as it was the 1st 3 days, I'm a little tired, but trying to rest as I need it. IF the tx are all going to be just a couple of days of nausea and alittle vomiting, I think I can handle it. I haven't as yet had any se from the Neulesta shot, however I've been taking a little tylenol, my onc said it was okay. I have been having trouble staying asleep at night, nothing a little xanex can't take care of though. I do think however I will ask for this Emend, that you have talked about..... the compazine really takes a while to have any effect on me. Oh well!!!
    Hope you are all having a great official first of summer
    weekend, and are feeling as well as you can!

    Bonnie
  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited June 2007
    Ended up in the ER today. Had to get some fluids. Still having terrible problems with my stomach. Now not just nausea, but severe pain as well. They gave me fluids, some Zofran, and Lortab for the stomach pain. I just can't eat. Nothing tastes good, can't drink...everything, even water makes my stomach hurt. ALSO the big D has hit...YUCK. I hope they figure all this out before my next tx....

    Glad everyone else seems to be doing pretty good...would do shout outs, but am just too tired.

    Blessings,

    Gracie
  • 1973vwbus
    1973vwbus Member Posts: 16
    edited June 2007
    Hi all, I am 48 will be 49 in 3 weeks, been with my partner Randy for a year, we re-met at 30 yr. high school reunion and started dating. I live in Newport Beach, CA and was recently diagnosed. I have not seen the pathology report, looks like I need to ask the Oncologist next week when I see her. The suggested course of action is chemo for 3 months then a lump removal does not look to them as if it has gone to the nodes, but time will tell.
    I have learned a great deal reading here today.
    Has anyone tried any herbal regiment to compliment the chemo and surgery?
  • sdstarfish
    sdstarfish Member Posts: 544
    edited June 2007

    How are you doing with your chemo, Sandra? I start on Monday. TC.

  • sdstarfish
    sdstarfish Member Posts: 544
    edited June 2007
    Hi, Savanah:
    I am starting chemo on Monday, and I take a boatload of herbal suplements
    Here goes:
    Supplements (pill or powder)

    Maitake Mushrooms (also called Maitake MD-fraction): Japanese mushroom taken in pill form that is great for the immune system. Older men and women in Japan live much longer on average than American men and women. Research shows that most of them use maitake regularly.
    · Protects healthy cells from becoming cancerous
    · Enhances immune system’s ability to ‘seek-and-destroy’ cancer cells
    · Helps healthy cells during chemo
    · Helps prevent the spread of cancer

    Maitake and breast cancer: 73% of patients show significant improvement or regression of tumors!

    Quercetin: Comes from plants. Found a lot in onions. A flavenoid. (the pigments that make the pretty dark fruit and veggie colors.) Taken in pill form.
    · Inhibits tumor growth by making the cancer cells unable to divide and make more.
    · Reduces the side effects of chemo

    Quercetin and breast cancer: Of all the cancers it helps, it helps breast cancer the most.

    Papain (papaya enzymes) or Bromelain (pineapple enzymes):
    · Helps you absorb quercetin, so it can work best
    · Increases the manufacture og cancer-blocking cells
    · Enhances immunity
    · Inhibits cancer from spreading
    · Helps with effects of radiation and chemo
    · Tastes good! Chewable tablets. (Can’t get the enzymes as much just by eating the fruit – most is in the parts of the fruit we don’t normally eat)

    Ip6: big name is ‘Inositol Hexaphosphate’. Comes from whole grains and legumes, but it is hard for our bodies to eat enough to make it worthwhile for fighting cancer. Taken in powder form with water. It has no taste, and looks/feels like cornstarch.
    · Causes cancer cells to ‘shut off’ so they can’t make more
    · Stimulates healthy cells that kill cancer
    · Strengthens the effectiveness of radiation and chemo

    Oxygen: Comes in liquid form. Mix with water or juice. Little-to-no taste at all.
    · Dr. Otto Warburg received the Nobel prize in 1931 for the discovery that unlike all other cells in the human body, cancer cells do not breathe oxygen. That is why they are ‘mutant’ cells that cause us harm. Studies have shown that taking an oxygen supplement can kill cancer cells, like Raid to a bug.
    · Besides the liquid form, it is important to stretch every day to bring oxygen to healthy cells, and also get some type of light aerobic activity (like walking) 5 days per week.
    This should get you started on your research!
  • shrink
    shrink Member Posts: 936
    edited June 2007
    SInce starting chemo I've had several vivid dreams. In one of them I wake to find myself looking down the barrel of a very large gun. The circumference of the barrel is just about the size of my tumor. In the other, 6 cowboys on horseback break into my condo and want to kill me and my significant other. I try to scream to warn him but I'm speachless and paralyzed. I think I can use these images to fight these invasive killers and turn the tables on them.

    I attended a Look Good Feel Better seminar sponsored by the American Cancer Society last week. It was uplifing and provided some guidance about wigs, makeup, etc. In addition, each participant receives a gift package with some very nice beauty supplies. Many hospitals provide free wig programs. I have 4 on-the-ready but it's day 11 and my hair's still here.
  • tos
    tos Member Posts: 376
    edited June 2007
    Hi Shrink I personally have found that se's can be cumulative but it may depend on the individual and their meds so maybe all don't go thru that, hopefully, yours won't build up.

    Bonnie it's good to hear from you and nice to know that things are going pretty good after a few days. Good for you.


    Gracie, my goodness you poor thing, I hope you are feeling better today. Are you at your nadir when your counts are down? I'm sorry I forgot when you started. Do you have some Immodium AD? That is supposed to help w/the D.
    Hugs to you and hope the pain is going away now.

    I'm on day 3 from last treatment and have spent most of this time resting on my bed, just don't have the energy or feel good but no major complaints. Feel icky inside and spacey, walk funny sometimes but hope this time goes better than last. My eyesight is even going weird, driving me batty!
  • Dale1215
    Dale1215 Member Posts: 1
    edited June 2007
    I'm sure that by now you have started. I am about to start next week and feel the way you described in your post. I don't know your regimen, but mine will be TAC every three weeks for 6 sessions. Can you let me know how you did through your first treatment? Have you had your second already also? Anything you can share would be so helpful. Thanks!
  • DebbieK
    DebbieK Member Posts: 116
    edited June 2007
    Good Sunday evening to everyone,

    I just put some fried chicken in the oven, yum! I seem to constantly crave all kinds of oriental, thai, vietnamese food and fried chicken. It is amazing to me how many other things don't appeal at all. I have totally lost my taste for coffee; hope I get it back later. Do you gals have these odd appetites?

    Had a good weekend and got lots of chores done and a few naps thrown in. Tomorrow is my nadir day so I will probably be pretty tired, but then expect to be good the rest of the week.

    Hope you all had a good weekend. Hugs, Debbie
  • lastminuteD
    lastminuteD Member Posts: 333
    edited June 2007
    Evening all! I can't even keep up with all the posts let alone say something special to each of you but please know you are all in my thoughts as we go through this ride.

    Had a wonderful day visiting friends and family! Had my #2 A/C on Thursday, got a migraine again - thank God for relpax! Friday felt yucky and Saturday, could not stay off my bed for more than a little bit of time! I read somewhere that the decadron steriod they give (in mine at least) tends to give patients lots of energy - apparently it affects me the opposite cuz all I want to do is go to bed!! I met with the nurse practitioner in my oncs office on Wednesday to go over bloodwork (mine was fine so far) and I asked her about the cumulative effects and what to expect - she said the first treatment is generally the hardest, mainly because of the unknown but also because new drugs etc. So, hopefully she's got it straight cuz so far so good. I can deal with a couple days of feeling yuck as long as I know it's just a couple days!!!

    Wishing a good night's sleep to each of you!

    Dawn
  • b445
    b445 Member Posts: 1,325
    edited June 2007
    First off I want to tell you yes the chemo is cummulative! But you can get through it!
    I worked all through my first round of chemo and plan to do the same this time!
    Granted I went from working 45 hours a week to 33 hours a week. But for me the more I kept busy the easier it was to handle. It also kept my mind busy!
    I did 22 weekly treatments last year. They said between 20 to 24 treatments. I had to stop at week 22 because my body could no longer handle that chemo.

    They have not told me how many I will get this time. Only as long as my body will handle it and until I'm in remission.

    So hang in there you can do this! You have each other for support when no one else will fully understand waht we go through you just come here, cause we understand.

    Take care hugs and prayers
  • b445
    b445 Member Posts: 1,325
    edited June 2007
    Gracie, did they do a test for kidney stones? That sounds like what I went through several years ago!

    Oh on the herbs & supplements, be sure you let your Onc know what you are taking so they will know in case there is a conflict with your chemo.

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