Delayed recon after bilateral mast
I am going to have a bilateral after my chemo (an insurance issue). Questions: How long after chemo will they do surgery? And has anyone out there waited to have recon? I have to wait because there is no PS at my hospital who accepts my insurance (Medi-Cal). I'm leaning toward implants. Thanks for the input.
Comments
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Hi, I did not have chemo so I don't know the answer to your question but I did have expanders followed with saline implants. Just wanted to welcome you here even though we are sorry you have to join us....you will find lots of caring, knowledgeable women here to help you along your journey.
Someone will be along soon who can answer your questions!
huggs, Sherry
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I will stand my ground....and I won't back down. -
I had bilateral masts and immediate DIEP reconstruction 6 weeks after chemo. You have to wait till your counts bounce back up-- usually within 4 weeks... but you want to book the surgery during your 5th round of chemo, cause surgeons book so far out in advance.
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Hi
I didn't have chemo but I did have bilateral mast with delayed reconstruction, 9mths later. The reason I waited, was I was just too overwhelmed with all the choices in reconstruction. - So I took my time and researched and ended up doing bilateral GAP with my own tissue. - Very happy with results and glad I waited.
Best wishes
Julie -
Thank you, Sherry, Beth, and Julie! I am really glad I found this site.
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Julie:
I am having trouble finding much info on GAP. What were the worst possible side effects that you know of? Thanks. -
I had bilateral mast. with immediate reconstruction using the latissimus(back muscle) flap and expanders put in four weeks after stopping chemo. My onc said that blood counts are important in how long it takes-to make sure you can recover from surgery well. I'm still waiting to have my expanders removed and replaced with implants (I had a baby) which through things off schedule. But I can't wait to have nipples again!
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Starfish
I had my GAP in New Orleans (NOLA). The web site is breastcenter.com. As with any surgery, there are potential SEs, like blood clots, infection etc. but they, of course, do everything possible to minimize problems.
The flap surgery is a big surgery- Mine took 7hrs and many take longer than that. In my opinion, you want to be as strong as possible and completely recovered from any chemo or radiation before doing it.
I did not have any major SEs but I felt pretty crummy for 2 wks (It takes a while to get hrs of anesthesia out of your system and healing to begin-weak, dizzy, low-grade fever, off and on nausea.) After 2 wks, felt better, but still took about 4wks to feel fully functional.
That is a fairly short time, considering you get new breasts, though.- It was definitely worth it.
Hope this helps.
Julie -
Thanks. It's so much to weigh out, especially since I am a single mom. Part of my issue is how long I'll be down.
Lisa -
I am 37 and have gone without breasts for over a year now. If you can't or don't want immediate reconstructions. It is ok to take the time to weigh your options and maybe "time it" better. I found I missed my breasts at first, but you do get used to it. I have my surgery scheduled for recon this sept. and time has just flown by! They usually make you wait at least 4 weeks after chemo for any surgery.
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I had a lateral mast with immediate recon (tissue expander) and will have a silicone implant put in next week. They wanted to wait 3-4 weeks after my last chemo to do surgery to make sure my counts were good. There are a lot of options out there for recon, some are better suited for different body types. You should be able to do a consult now so you can weigh your options for later. Also, if possible, talk to more then one ps. Sounds like you may have challenges w/your insurance, but hopefully the pss wont charge much, if anything for the consults. And talk to them about what will be involved in the future, like 5 yrs from now. And of course if possible, ask for referrals from women they did the same procedure on 10 yrs ago. Anyone can show you pretty pictures of recent surgeries, but what about the women 10 yrs ago, how do they like the work now?
In my case, I had to ask my gs about the implant for future imagining and possible problems. You are taking someone to all your dr appointments right? If not, get a recorder.
Hugs,
Issa -
That's great advice, Issa. Can I ask you this - what was it like to have the expanders?
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Ask away, Im totally open.
Expanders arent a big deal. I went in once a week and got about 100 ccs of saline put in each time. The worst part was the stick of the needle into the port, but Im a total needle wuss. The pressure some women talk about wasnt bad. And certainly nothing that a few advils couldnt cure. For me the hardest part of this stupid expander is the port. Im short and have a small frame so the port is very noticeable under my skin. Its about the size of a matchbook and its under my arm right where the elastic from my bra goes. Its hard to sleep on my side because of that port. Also, my boob is hard and looks like a pie plate on my chest. Very bizarre, but with some stuffing in my bra, no one can tell. And I believe you said you had a bilat mast, so you would have 2 expanders. So no worries about trying to look symmetrical.
Issa -
Thanks for the honesty, Issa! Never dreamed I'd have pie plate boobs.
I had no idea I'd have to get a port there! Greatttt. I have one in my arm now for the chemo, and it hurt like anything the first two days after they put it in.
I haven't had my mastec. yet. I figure late Sept., early Oct. Trying to prepare for things mentally first.
My first consult with the PS isn't even until August. This bc stuff is all just a waiting game. -
Hi Lisa,
The port for the expander is part of the expander, so I suspect different then the one you already have. Now that my expander is gone, I doubt Ill be able to tell where that port was. Its just another "stick" we have to endure w/this chemo dance.
Hang in there,
Issa -
starfish:
I had a simple double matectomy w/ reconstruction (no lymph nodes removed). I have the tissue expanders in right now. To me they feel like I have on a tight uncomfortable bra on. lol Its not really that bad. But yes, sleeping on your sides can get uncomfortable. My ports are on the top part of my breasts, but I can not feel them or see them. The needle prick of the local anesthisia is the most that hurts to me. The pressure you feel when they fill them up is also tolerable. Its up to the individual and how much they can take. I took 150 cc's the first round. It was not that bad. You will be fine.
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