Starting Chemo in JAN 2007

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  • NOLONGERREADINGORPOSTING
    NOLONGERREADINGORPOSTING Member Posts: 778
    edited June 2007
    Now she tells me!!!!!

    Had a nice long talk with my mum last night to let her know I'm in the clear. Her sister who is still alive also had breast cancer, but I don't know the details of her diagnosis; so I asked my mother if she knew. She then volunteered the information that *her maternal grandmother* died of breast cancer!!! I never knew this. She told me she didn't want to worry me while I was in treatment. So apparently, there is a stronger genetic component for breast cancer in my family than I was aware of. I am wondering if I should have some genetic testing?!!??

    On the wig...it fits and feels very comfortable and I think it's my preferred head gear right now. Those short cool Whisperlite wigs from Paula Young are the best in my opinion. This style is the best one yet for me, but it's still a little too formal. I'd like one a little more pixyish, like the one Jan has ordered, for casual wear too. At $50 a style, why hold back!!! My gray 1/2 inch hair just will not be ready to wear until fall, and I have a wedding to think about!!!

    I will try and contact Sharon too...I hope nothing's wrong. She's probably just busy with her garden and her sewing projects.

    Mizsissy
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  • Lynn12
    Lynn12 Member Posts: 1,008
    edited June 2007
    Good morning ladies,

    Joni and Dar, how did your lunch go? I wish I was there.

    Mizsissy, congrats on the clear mammo, what a relief! Have fun camping!

    Mary, I think you should ask your onc about the port…you have nothing to lose by asking.

    Jan, hope your cough is better.

    That’s good news about the hotflashes. George is amazed at how I warm the bed up when I have a hot flash. We joke about it, he says that I’m the new superhero. “Introducing Furnace Woman, able to warm the entire world” Another weird thing is when I wake up at night, I usually look at the clock and take a sip of my water, then about 30 seconds go by and I have a hot flash. It seems as though I am waking up before my hot flash. Now if I could only figure out how to use this power in other ways.

    Nancy, hang in there. Hopefully the pills will start working soon.

    Caya, that’s great your wall units came out great!

    Rebecca, that is so sad about your daughter crying. I think you are doing the right thing by bringing her to rads with you.

    I’ve now done 10 zaps, 33% there. I have some pink under my arm, but so far so good. I do feel a bit tired and think I’m sleeping more. I don’t have a body mold, I lie on a very hard slippery table with a sheet on it. My hands are holding onto 2 grips above my head. They roll and move me to line the tatooes up, I need to ‘lay heavy’ when they are lining me up. They also display numbers on me and use them somehow.
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2007
    Skye – I envy your quiet weekend. I’m desperately trying to figure out what to do for father’s day.

    I had seen that article about hot flashes and recurrence. I’ve tried to stop whining about my hot flashes so much.

    Nancy – this sounds so horrible. I wish I could be there to do something. Good idea on the crying – LOL. I hope the doc has something helpful for you on Friday.

    Caya – let us know if you get in touch with Sharon. I’ve been thinking about her.

    Rebecca – that’s so sad about your daughter at school. Good idea to take her to the hospital. I hope it makes her feel better. Congrats on the hair. Hopefully it will fill in quickly.

    I had a dream last night that I woke up this morning with very thick grey hair style in the same was as one of my mom’s friends. It had grown in overnight along with a perfect pair of eyebrows that looked like they had just been waxed. When I went to the mirror to admire my new hair (I didn’t even mind the hair style) I realized that it was really a wig. But that was OK too because the eyebrows were really there. So, when I actually did wake up I half expected to have grown some eyebrows overnight. No such luck. On a positive note I did sleep like a baby with the help of that rx cough syrup. I feel so much better today!

    Mizsissy – Ugh – I can’t believe your mom didn’t tell you that! You should probably mention it to your oncologist at some point just to be safe.
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  • Rebecca
    Rebecca Member Posts: 971
    edited June 2007
    Glad you had good results on your Mammo Mizsissy! Yikes about the family history. I would think that some genetic testing would be in order. Have fun with your model…post pics if you can, we would love to see not only your photos, but your designs as well.

    Skye- I just get to lie on the hard table with a sheet over it and hold on to some handgrips that are over my head. The techs position me by pulling the sheet and shifting the armrests until the lasers line up with the tattoos. Then they project numbers on my chest and raise the table until something is “95.5” (no clue what it is 95 and a half OF…but it must be important)

    RobbinJaye I am sorry that you are having such a tough time with rads…are they giving you any cream to use on your skin? I have this fancy stuff that they wrote me a script for. I am not quite half way done, so I do not know if it will help as it goes on, but so far so good…no pain, and just a little pink. The pink is itself rather strange because the area actually has CORNERS!

    Nancy that sounds miserable…I truly hope that this resolves quickly. “A little swelling” indeed. That sounds like quite a bit. Sometimes I think the oncs are a bit callous…but I guess in their line of work sometimes it might be necessary

    Caya congrats on the redecoration! That is always exciting. Can not wait to see the pics.

    Amera…my 10 year old (Frances) has been emotional, and I too have chalked it up to hormones because she started to “bloom”. That explanation does not work for Ana, though because she is only 7…and I have to wonder also about Frances because I think they both have been under a lot of strain. I feel so bad for them, this is as hard for them as is for me I think. I makes me want to cry just to think that I have caused them sadness or worry. They should be running around in the sunshine without any worries, snug in their innocence……

    Jan, glad you are feeling better…nothing quite like cough syrup with codeine in it. Wonder if the codeine had anything to do with your hair dreams?

    Ana’s trip to the hospital with me was pretty uneventful. I rather think she enjoyed seeing what mommy does while she is at school. I walked her into the treatment room and showed her the machine and where I was going to lay down, and then she waited for me in the waiting area. She asked me a million questions, many of them pointing to the idea of whether or not I was still sick, and whether I still had cancer. We talked a bit about that, and how I did not have any cancer in my body anymore and that the medicine and treatments were there to keep it away for good. She accepted that, and was very cheerful by the time I brought her to school…..just in time for that dratted assembly to be over! I feel good about keeping her out….it was educational and emotionally healthy for her.

    Hope everyone is having a good day!
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  • NOLONGERREADINGORPOSTING
    NOLONGERREADINGORPOSTING Member Posts: 778
    edited June 2007
    Well girls, Gina just left about a half hour ago, and everything went well. I was very nervous, but things just fell perfectly into place. Like, number 1, amazingly, everything fit her perfectly without alternation; secondly, she and I have very similar taste. She is a half foot taller than I am but her measurements are very close to mine. The clothes looked F A B U L O U S on her, geez, I wish they looked so good on me!!!

    I don't know where this is going, but if we can figure out where we will definitely get there...

    image

    image


    Mizsissy
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  • Caya
    Caya Member Posts: 971
    edited June 2007
    Hi girls,

    I just got off the phone with Sharon (shorti). She's been in the hospital since Tuesday - she wasn't feeling well and so they did a CT scan of her bowel - it turns out that she had a bowel obstruction and she had to have surgery. Apparently some scar tissue from her colon cancer surgery adhered to her small intestine, causing this. She just got home last night, and is recuperating. The good news is the CT scan showed no sign of cancer on her gut and bowel. She has been reading the posts, and wanted me to post this update for her. She says as soon as she has the strength, she will post herself.
    Rebecca - that sounds like you did exactly the right thing taking Ana with you for your treatment and giving her the explanation that there is no longer any cancer in your body and this medicine etc. if preventative. It really is too bad that such young children have to go through this, I really feel for you, Jan, Amera and any others with such young ones. Mine are 18 and 21, and believe me they have their moments.
    Had a good day so far. I went back to the wig boutique where I bought my 2 wigs and had the owner cut the straight one (my avatar) into a shorter bob with bangs - it's very cute, much cooler. I will try to change my avatar picture so you can see it.
    hope everyone else is having a good day.
    caya
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  • Rebecca
    Rebecca Member Posts: 971
    edited June 2007
    Wow Mizsissy those are great!

    I particularly like the second one with the cat echoing Gina's stance. They both look like they are gazing at the same thing. I love the dress, too!
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  • Amera
    Amera Member Posts: 452
    edited June 2007
    http://news.yahoo.com/s/nm/20070614/hl_nm/cancer_breast_gene_dc_1;_ylt=AsGS2rpg8roJsQcGVvzvl.kE1vAI

    I wonder how long after our initial treatments we can use new targetted approaches. If it's just a pill, can they give it to us at a later date to prevent recurrence? A question for my onc.
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  • skyedivine
    skyedivine Member Posts: 839
    edited June 2007
    Hi ladies,
    Mizsissy the photos look great, she really does look like a fashion model. Perhaps you are starting new careers for both of you.

    Rebecca, I think you were a wise mom. Children are so all about emotion, and their imaginations run so wild. Now that she has seen your treatment she has the concrete knowledge that the doctors are busy making you better. I think all of our kids at every age have worries. My oldest won't show it but his girlfriend told me he was freaking out at first. And when I told the younger one last week that the rads onc said my case seemed very "favorable," I saw his face visibly relax. They both hug me more which is nice.

    As for the hot flashes, that was the best news I'd heard for a while. Talk about every cloud having the silver lining...

    Caya thanks for catching us up on Shorti, that sounds so difficult for her. Shorti-Sharon if you are reading this just know you're in everyone's thoughts.

    Jan its great your cough is better, and Nancy, still praying you will get some relief from the leg pain and the lasix will quick finish the job its mean to do.

    Caya can't wait to see the new wig avatar. Mine is SO much cooler than the old one...it has lighter, wider mesh and just less hair, plus the back of my neck is uncovered which is key. The hairs on the old one were frizzling up over my neck from my hot flashes.

    Anyway, time for my afternoon post-rads siesta. It's 90-plus degrees here! = Skye
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  • robertin
    robertin Member Posts: 78
    edited June 2007
    I've been reading all the posts, but lately there was not reply box. I finally figured out today that my forum permissions had changed. So, I logged back in and voila there was the reply box. Missizzy, I love the outfit and am envious of your creativity and energy. I can work 8 hours a day, but that's it. I go to bed around 9:30 and get up at 6:00. I still need a nap when I come home from work. But at least I can work.
    I am in my 3rd week of radiation treatments. Actually, I had my 13th treatment today. We've had this student observing, and the problem with teaching physics is that all radiation students need physics. I teach so many of them, that I don't remember names. So, I wonder if Jacob the observer was a former student. Hmmm, I'm glad I'm not teaching this semester, because I feel kind of uncomfortable exposing my breast to a student.
    Darker hairs are starting to come in and my hairs are long and abundant enough that coworkers will stop me to tell me that they can see hairs. Since I'm excited about it, I think it's cute they are excited for me too. And this morning while putting on eyeshadow, I saw the tiniest grey eyelashes. Now that is something to be really excited about. When I had my head shaved, I still had my eyelashes and eyebrows, and you sure look a whole lot different when those are gone.
    Anyway, the end is in sight, and that feels good.
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2007
    Anyone up for a chat tonight? I’ll be in the chat room if anyone is around.

    Rebecca – sounds like taking your daughter to the hospital was a brilliant move. I’m glad that it was such a positive experience.

    Mizsissy – congrats! You were right of course, what a beautiful model. Love the dress too.

    Caya – thank you so much for calling Sharon. I hate that she’s having such a tough time. Good news from the CT at least.
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  • Nancyab
    Nancyab Member Posts: 276
    edited June 2007
    Oh Sharon, My thoughts are with you, Bless your heart!
    I went to Rads mapping today, dispite my feeling horrid. That was an experience, now I have robin egg blue lines on me with tape over them. They did the CT scans and tuesday I go back for chest xrays and actually start radiation on Wed, I picked 7:40 in the AM as my time so I could go to work and be there by 8:30. I only hope I can do it, but they said that if I find it's too early I can change it. The Dr. there came in and was concerned about the water retention. He wanted to make sure I get a kidney function test. I told him that I see the med. onc tomorrow and that I am taking the lasix. I am back up a pound today and still heavy and achy. I am pretty sleepy so I am going to take a nap. I pee pretty good when I wake up LOL! AHHHHH
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  • Nancyab
    Nancyab Member Posts: 276
    edited June 2007

    Mizsissy, I love the dress and those are great pics! I envy you and your talent!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2007
    As my Dad likes to say, you can buy anything in America.

    Anyway, I was just reading Parent's magazine where I found this link for moisture-wicking PJs: http://www.coolsets.com/ Marketed for women with night sweats and hot flashes.

    A bit pricey in my opinion - I think I'll stick to my tank tops (literally I guess), but I thought it might be worth passing along.
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  • skyedivine
    skyedivine Member Posts: 839
    edited June 2007
    Quote:

    moisture-wicking PJs: http://www.coolsets.com/ Marketed for women with night sweats and hot flashes.

    A bit pricey in my opinion - I think I'll stick to my tank tops (literally I guess), but I thought it might be worth passing along.



    LOL Jan, I'm sticking to my tank top today, too! I've also seen those pjs and thought they were a bit much pricewise. And where does the perspiration go once it's wicked away? The sheets?

    I'll pop into the chat for sure. - Skye
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  • Robbin65
    Robbin65 Member Posts: 251
    edited June 2007
    Quote:

    Hot flashes mark low risk of breast cancer recurrence



    That makes me feel a whole lot better. Thanks for the post Skye!!!

    MizSissy, oh my, I thought that was a pic of you at first!!!

    Well, the triple digits are here and I wish I was at the river. I ain't going anywhere with this boob. One and a half weeks to go and I can start the healing process.

    Have a great Fathers Day Weekend ya all... (My favorite friends!!)
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  • Robbin65
    Robbin65 Member Posts: 251
    edited June 2007
    OKAY, I WAS BORED.
    HEY, WHAT'S UP WITH ALL THE GREY??
    78 days out of the last round of chemo.image
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  • luckymel
    luckymel Member Posts: 643
    edited June 2007

    RobbinJaye, we were just all in chat wondering about you! You can at least see the end of this - hope that helps. How is your ulcerated area - does it continue to get worse? I'm sure you'll heal quickly once the constant assault of rads stops. It's almost o-v-e-r!

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  • luckymel
    luckymel Member Posts: 643
    edited June 2007

    My gosh you've got a lot of hair!! You go, girl!

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  • NOLONGERREADINGORPOSTING
    NOLONGERREADINGORPOSTING Member Posts: 778
    edited June 2007

    Robbin, my hair looks almost just like yours except it's mostly white!!! And a little shorter!

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  • luckymel
    luckymel Member Posts: 643
    edited June 2007
    Hi, hi everybody! I've been really busy the past couple of days. Just caught up on the posts. So much to say to all of you, but I've used up all my time in chat tonight! So I'll keep it as short as I can.

    Two nights ago when we were doing the dressing change, or ace wrap change, I noticed that where my right nipple had been, I had more reddness around the sutures, and a bit of drainage on the dressing. Last night there was actual pus there. Just in that one spot, but with a skin sparing mastectomy all the skin is just pulled together, so if that gets infected, the whole breast gets infected. So I freaked out and called the surgeon, who said it sounded like an infection to him, so to come first thing in the morning and he'd see me between surgeries. It was better this morning that it had been last night, I think because I didn't use Neosporin on it and switched on my own to Bactroban, which I just happened to have a few molecules of, left over from something. Anyway,he did end up putting me on Bactrim and changed me to (imagine this) Bactroban ointment, and said he thought it would clear up fairly quickly.

    He also had just gotten my path report, and gave me a copy. Three pages, single spaced. Guess there was a lot of boob there to examine - now I see why it took them a week and a half. It is so detailed that I can't even understand a lot of it. However, there was lots of atypical ductal hyperplasia and half a dozen other kinds of atypical hyperplasia. Also a boat load of cysts and papillomas and the like. Nipple was clear, and margins were clear, but I'm so GLAD I had the prophylactic on that side!!! On the left side, it was more of the same, plus the addition of my IDC, which had decreased in size but not disappeared. That was a disappointment because it had not shown up in my PET scan or CT . Now I don't understand why. All margins were clear on this side also. I'm very glad it's all gone. The worst thing is that of the 14 nodes he took on the left, two were positive! I've had chemo, guys, shouldn't those be gone? Maybe I gambled wrong by having neoadjuvant. He was happy that "only two" were positive, but to me it sounds like a bad thing. First thing I did when I left was fax the report to my oncologist. If he doesn't call me tomorrow,, I'll schedule an appt. for next week.

    Meanwhile, I had the skin sparing mastectomy, so I have to have reconstruction. I see the PS Monday morning, and I'm sort of afraid she'll not want to do this surgery on someone who still has cancer, possibly. Of course, they did remove all this stuff, but you know what I mean. Oh well, enough about this - I don't know what it all means anyway, I'm just speculating.

    Nancy, you poor thing, I'm so sorry! I know what those legs feel like. Just hang on, though, it will go away. The swelling, the pain, all of it. The first weekend I had my lasix they told me to take 20 mg. daily,, and I think by Sunday night I was desperate enough to take a handful! Eventually, they added another diuretic for a while. Hang in there, and know I feel for you.

    Caya, thanks for checking on Sharon. How frightening that all musit have been - as well as miserable. I'm so glad it wasn't cancer returning, at least, but still it's a very serious thing to have to go through. Oh, guess she can still read - duh! Sharon, we're all pulling for you - we've missed you!

    Robertin, good to hear from you. Hang in there just a little longer! Mizsissy, LOVE the pics! Great clothing, and your model is gorgeous. Jan, feel better. I've got the same cough, and it's exhausting! I hate to try to get the codeine cough syrup though - I'm already taking too much stuff.

    So much for a short post. I just can't do it

    Hugs,
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  • Robbin65
    Robbin65 Member Posts: 251
    edited June 2007
    I went into chat and you were all gone...
    What time (my time) (pacific time) do you all get there?
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  • TPPJ
    TPPJ Member Posts: 1,017
    edited June 2007
    Ha-ha, Skye: the second brownie after the kids go to bad is always the most delicious. Funnnnnnny!

    Well, I'm in Dana Point. The hotel is nice...older, but nice. Smaller room than I would have liked, but.... the view at the pool is to die for. Overlooks the ocean and I love it... no worries about the kids getting sucked out to sea, swimming, etc.

    Drove down to San Clemente tonight and ate at the OC Tavern. Watched the Cavaliers get beat by the Spurs in seconds to spare. Kids had a fun time playing pool and arcade games.

    Well, I have to say, I reallllly missed OC more than I ever realized. Driving through the suburban areas of Laguna Niguel was so nice... I could def. do this place again. Even if the houses are way smaller, etc. The Calif. lottery is way up there right now...I need to get a ticket.

    Sorry for not being more responsive to all your posts...I'm tired, on the run here, etc...
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  • viddie
    viddie Member Posts: 547
    edited June 2007
    Hi everyone,
    I have been quite busy the past couple of days and just read all the posts. I finally had my first visit yesterday with the breast surgeon who will be working with the Diep plastic surgeons. It went very well. Yet another different pathology report opinion. Now I have three different opinions by three different hospitals on my second tumor. My original hospital said the other piece was just ADH & ALH. Dana Farber said it was dcis and without clear margins. This hospital pathologist says it is lcis. I did not want to get another opinion, but apparently because I changed hospitals and surgeons to get my Diep surgery, they wanted to look at pathology slides. They all agree with the IDC diagnosis, but the other piece gets them all in a tithy. With lcis, the chances of cancer coming back in either breast is 1% a year, cumulative, and with tomax, it reduces it to half. That has nothing to do with the percentages of having her2 or IDC. I decided that it does not matter what it is, I just want it and my breasts gone. That will bring my overall percentages of it returning to breast area to 1-2 percent. I like those odds better.
    Melia,
    How is the swelling? How did your treatment go yesterday? I hope you are feeling better.
    Lynn,
    Congratulations on getting your port removed.
    Nancy,
    How are you feeling? Are the pills beginning to work?
    Jan,
    I am glad you are feeling better . I like the pj’s, but I also think they are a bit pricey. I agree with your dad.
    Tina,
    It sounds like you having a marvelous time.
    Mizsissy,
    Congrats on your clear mammogram. What a relief!! Your mom should have told you. I would definitely tell your oncologist. Your model is beautiful. The dress is also very chic.
    Skye,
    Ritalin?? He sounds quite generous with his meds. Never knew that was for fatigue. Reassuring study about hot flashes. Your Sunday plans sound delightful.
    Mary,
    How are you feeling? Great news about your mammogram!!
    Rebecca,
    How is your Ana tonight? Is she feeling better ? I agree with everyone else that it was a great idea to take her with you to radiation.
    Amera,
    Sounds like you had a fun time at your luncheon today. Interesting and encouraging study. Let us know what your oncologist says.
    Caya,
    Thanks for calling Sharon.
    Sharon,
    I hope you start feeling better real soon. Sending lots of hugs your way.
    Robbin,
    You have quite a hairful!! That’s great!
    Mel,
    I hope your infection clears up quickly. Sounds like it is a good thing that you are having your diep later. Your having chemo first did shrink your IDC. You didn’t gamble wrong. We can’t second guess ourselves.Your surgeon was happy with the pathology report. The best news is that it is all gone now and all your margins are clear. They have to give you reconstruction, by law.
    I hope your cough clears up soon. Maybe bactrim will take care of both your infection and your cough.
    Gotta get to bed.
    Catch you all tomorrow,
    Viddie
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  • Amera
    Amera Member Posts: 452
    edited June 2007

    Ribbin, you have so much more hair than I do. Although, it does look similar in color. I am positively jealous. I'd for sure go topless with that much hair!

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  • Dar1
    Dar1 Member Posts: 146
    edited June 2007
    Robin, your hair looks great! Mine is a little longer, but MUCH, MUCH grayer - it's about 80% gray. I'm sitting on the fence as to whether to color or not. Think I'll try some reverse streaking first. I donated my wig to the Cancer Society last night.
    Joni and I met for lunch on Wednesday - what an awesome lady she is.
    My SIL called and spoke to dh - said to thank me for doing that research on Johns Hopkins. What a lucky break for me that that very email was mentioned on their website!
    We are going to Edmonton to see our son and DIL this weekend,along with my daughter and grandaughter. Should be fun!
    Take care all.
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  • luckymel
    luckymel Member Posts: 643
    edited June 2007
    Looking again at the pics posted yesterday, and RobbinJaye, you really should go topless - it's beautiful, thick, HAIR! Mine is scalp, with some hair on it. Big difference.

    Mizsissy, the pics you posted are even lovelier today. The clothing, the model, the photography....surely you can figure out something to do with all this beauty. Maybe make your own dvd (with Gina of course) and use it to sell your things to stores?
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  • Lynn12
    Lynn12 Member Posts: 1,008
    edited June 2007
    Robbin, nice head of hair on you! Mine is a bit shorter and MUCH greyer.

    Dar and Joni, sounds like you had a lovely lunch!

    Mel, hope your infection clears up.

    We're going to the Relay for Life this afternoon/evening. I'm signed up for the survivor's lap. We don't have a team but will check things out in anticipation of doing the full relay next year when I hvae more energy.

    Saw the rad onc today and mentioned I'm getting a bit tired, sleeping later in the morning and getting tired all of a sudden at night. Asked about vitamins, he said I can take a multi once a day, but that won't help the fatigue, I just need to bare it and get through. He did say to try to be active when I have the energy during the day. 12 down, 18 to go. So far so good with my skin.

    Happy weekend!

    Lynn
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  • goldnmom
    goldnmom Member Posts: 189
    edited June 2007
    So sorry about that infection. I would think the infection would be the only reason your PS would delay reconstruction. Hopefully that will clear up quickly.

    From what I've read, doing chemo before surgery is supposed to be more effective, so don't start second guessing yourself. The oncologist can clear up a lot of your questions. Hang in there Mel! Let us know what the onc says.
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  • mer1957
    mer1957 Member Posts: 534
    edited June 2007

    wow that's a lot of hair! I'm 78 days out too and have half the length of yours. Yes it's gray and I used to be blonde. Anyone have any color other than gray? I hear it's just temporary hair like a baby's - is that true?

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