Can we do a Her2 roll call?

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  • Towanda2
    Towanda2 Member Posts: 94
    edited June 2007
    DX 2/04; stage 2B, 3 cm, 2+ nodes, ER+/PR+/Her2+++

    Lumpectomy, 4 AC, 12 weekly Taxol+Herceptin followed by 40 additional weekly Herceptin. Also 33 rads.

    Finished Herceptin 6/05 and still NED.
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  • raluca63
    raluca63 Member Posts: 20
    edited June 2007
    Dx 3/06, ER/PR-, HER2+++
    neoadjuvant AC followed by 4 Taxotere/Herceptin, mastectomy, radiation
    finished Herceptin 5/07
    NED so far
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  • nancy53
    nancy53 Member Posts: 42
    edited June 2007

    hi,diagnosis stage 1,grade 3 her2 +.right mastectomy 5/22?o7,will start chemo soon,after scans and portacath.

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  • SLICKY
    SLICKY Member Posts: 13
    edited June 2007

    Hi all,ive only had 1 lot of herceptin,hope my results will be as good as all yours further along the line x

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  • DebbieB
    DebbieB Member Posts: 161
    edited June 2007

    Dx'd Oct 2001, Stage 2, Grade 3, highly HER+++, ER-/PR-. 4AC and 35 rads. No herceptin offered at that time to those less than Stage 4. Still NED!

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  • Saturn46
    Saturn46 Member Posts: 5
    edited June 2007

    I am finishing 4th cycle of A/C, then in July starting Taxol/Herceptin for 4 cycles then 4 cycles of Herceptin only. What is NED? How are the side effects of Taxol/Herceptin, my Muga already is only at 50%, I have high cholestrol and overweight. I read this can be damaging to the heart?

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  • chrissy41
    chrissy41 Member Posts: 9
    edited June 2007

    Dx 1/06 Stage 1 1.8CM lumpectomy 4 rounds of cheom,6 wks radiation, 1 year of herceptin 3 more to go last treatment 7/25/07. everything is going great stay positive.

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  • PNWKaren
    PNWKaren Member Posts: 88
    edited June 2007
    Dx 7/06, Stage IIB
    Left sided multifocal ILC, 3 tumors, 0.5cm, 1.5cm, 3.5 cm
    3/5 nodes +, one with 1.1 cm macrometastesis
    Bilat mast (right side prophylactic)
    DD A/C x 4
    Taxol and Herceptin weekly x 11
    28 rads + 5 boosts
    Continue Herceptin every 3 weeks until Nov 07

    My last MUGA took a drop from 66 to 53. If my next one is below 50 we'll have to make decisions then but, in the meantime, so far so good.
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  • nagem
    nagem Member Posts: 353
    edited June 2007

    Dx 9/05, stage 2a, 1.3 cm ILC her2neu+++ with one positive node. ACX4, TX4, Herceptin weekly for 9 weeks, then every 3 weeks for a year, rads X25. Finished 12/06. I'd like to hear from women who predated Herceptin too ...

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  • Patye51
    Patye51 Member Posts: 7
    edited June 2007
    DX 5/17/07
    IIB, triple +, 1/5 nodes+
    AC x 4
    Taxotere plus Herceptin 12 weeks
    herceptin every 3 weeks for rest of year
    will finish in Oct 07
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  • jan125
    jan125 Member Posts: 411
    edited June 2007
    to Saturn NED is my main man No Evidence of Disease.
    Here are my stats....
    Stage 4 dx. at the start at age 29.
    Her2+, ER/PR +
    Bone and liver mets.
    6 months carboplatin and taxol with heceptin.
    Clear PET/CT scan on month 4
    Spot showed on CT with contrast (different type of CT scan)on liver in month 6.
    Continue with herceptin every 3 weeks, lupron to shut down ovaries and femara.
    Did another scan after 3 months off chemo to check on status of mets and liver spot shrank.
    Just did another scan and spot is Stable now, so they are calling it scar tissue.
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  • SheriH
    SheriH Member Posts: 785
    edited June 2007

    IDC stage II, tumor 5 cm, 5/19 pos nodes, triple positive. Mastectomy Jan, 04, no recon, 4 AC/1Taxol/ 3 Taxotere, rads, 6/52 weekly doses of herceptin, stopped due to too much strain on my body, last herceptin in Sept., 05. So far NED!

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  • alexis
    alexis Member Posts: 4
    edited June 2007
    Hi All,
    Dx. Jan 2005, Stage II 2.7cm IDC with 1 positive node.
    Did chemo first. 4dd A/C, 12 weekly taxol/Herceptin, Carboplatin every 4th week. Surgery in Aug. 05, tumor shrunk to .5cm and microscopic cells in node. Did rads and herceptin together. Finished herceptin april 06. Taking arimidex.
    No Evidence of Disease. Hooray!!!

    Alexis
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  • dginoregon
    dginoregon Member Posts: 17
    edited June 2007
    Hi all,
    Age: 62 at time of diagnosis, now almost 63.
    Dx end June '06, Stage 1 IDC in left breast. ER/PR neg, HerNeu2 +++ Proliferation rate: High.
    Treatment: Lumpectomy with sentinel-node biopsy, 2 nodes total, both CLEAR.
    Radiation (MammoSite), then 4 DD A/C Oct/Nov 06, started Herceptin 12/14/06. From 12/14/06 to date I have had 8 3-weekly Herceptin doses.
    Infusion #9 would have been 06/01/07.

    Ejection fraction had decreased to 56, I was dealing with very severe muscle spasms across the ribs, and inflammation and swelling of a seroma. On 06/08 (yes day before last) I had re-excision surgery with a JB drain inserted (tissue to lab, of course :-) ... for now i regard my Herceptin treatment as stopped after 8.
    Delina
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  • RunLolaRun
    RunLolaRun Member Posts: 13
    edited June 2007

    dx may 06, stage IIb, had dose dense AC/Taxol & still on my one year of herceptin. Last herceptin will be 8/31/07. NED as far as i know!

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  • lrs
    lrs Member Posts: 55
    edited June 2007
    Dx Aug 06, stage 2, 4ac,4taxol,still doing herceptin, 6 weeks radiation, zoladex(to keep me in menapause), will start Femera next week, waiting for surgery to remove ovaries. NED as far as I know also!
    Still smiling!
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  • Silka
    Silka Member Posts: 71
    edited June 2007
    Dx 08/04, stage 3A, 3.6cm tumor, 5/15 postive nodes, bilateral mast.
    A/C, Taxol, 52 weekly tx of Herceptin finishing 12/05.

    Herceptin wasn't available except for stage 4 when I started tx, I went into study to get it and will be followed the rest of my life. See onc every 6 months. Still NED!!!
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  • traceylmader
    traceylmader Member Posts: 10
    edited June 2007

    DX 1/2002 IIIA Bilateral IDC Did 6 CAT, 2 FUMEP and 9 Herceptin/Navalbine (had to stop because of rare but ferocious SE) ending in October 2002. NED to date!!

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  • jewelsinalabama
    jewelsinalabama Member Posts: 33
    edited June 2007
    Hey, I was dx in 7/05,HER2 +, 1 lymph node +, bilat mast 8/05,4 doses adramycin, 8 doses taxol and something else, 36 doses of radiation; 53 doses herceptin, finished herceptin 11/06 and am going strong except for my memory...sometimes I cannot remember didley squat
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  • nutrachris
    nutrachris Member Posts: 11
    edited June 2007
    Dx'ed stage I 1990
    Recurrence June 1999, mets to chest and brain
    Started Herceptin August 1999
    Ned July 2001
    CNS Tumor Jan, 2007 Gamma Knife
    NED March 2007

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  • lastminuteD
    lastminuteD Member Posts: 333
    edited June 2007
    You all are making me feel that my treatment with Herceptin will do the trick!

    Doing A/C now - #2 will be on the 21st, Taxol/Herceptin next - weekly for 12 weeks, then start rads and continue the Herceptin.

    Dawn
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  • nitewind
    nitewind Member Posts: 64
    edited June 2007
    Diagnosed May '06
    Lumpectomy July '06
    4 a/c
    3 taxotere
    33 rads
    started herceptin Dec '06 till Dec '07
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  • A-M_Higgins
    A-M_Higgins Member Posts: 11
    edited June 2007
    Janis-

    Thanks for thinking of this.

    I'm one for whom herceptin doesn't work (have tried it 3 times!!), but now I am taking tykerb...

    I am stage 4, and sometimes we throw in the herceptin w/ the chemo, as it can't hurt (my EF is always OK...). I just hope I hold out as the new research targets these genetic issues and learns how to shut down the her2/neu once and for all!!

    Kind regards,
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  • Ohbother
    Ohbother Member Posts: 34
    edited June 2007
    Diagnosed 10/05 -
    (I have not visited this site in a while - trying to keep BC in a very small corner of my world)

    IDC - State IIB - ER/PR + Her2+
    STILL RECEIVING HERCEPTIN. Oncologist (and I)decided to keep going as I am doing fine and NED -MUGA's great - Plan now is to continue through 8/07 which would be 18 months of Herceptin -

    No Recurrence!.. Hurray

    Cydne
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  • sassyone
    sassyone Member Posts: 26
    edited June 2007
    dx 2/05
    left mast
    5-14 positive nodes
    stage IIb or IIIa (depending on doc)
    triple positive
    dd a/c X 4
    10 Taxol
    herceptin for 18 months, completed 12/06
    33 rads
    zometa, arimidex, lupron, neurontin
    NED

    Sassy
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  • Agie
    Agie Member Posts: 9
    edited June 2007

    Dxd 2/17/05. Finished herception September/06...just had my 6 month checkup and don't have to be back for a year.

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  • Agie
    Agie Member Posts: 9
    edited June 2007

    oops, yes, 1/17+ nodes...stage 2b, I think...

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  • kchance
    kchance Member Posts: 13
    edited June 2007
    Dx 12/06. Stage IIIA. Did dose dense AC --> Taxol/Herceptin. Now on Herceptin.
    Just had a local recurrence at scar site.
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2007
    Dx 11/06
    Mastectomy 2/07 Stage IIIA
    4 dd A/C 4 dd Taxol (done with chemo) 33 rads and 1 year of Herceptin finishing 5/08

    I know you were asking who was still NED, but maybe when this roll call is done later, I'll be able to be years out and NED!

    Miss S
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  • talbrig13
    talbrig13 Member Posts: 488
    edited July 2007

    dx'd 12/06, lumpectomy 12/28/06 w/ snb..3 nodes, all clear. Stage 1, ER+, PR+ HEr2 +++, Have 8 of 9 Taxotere, Carboplatin, Herceptin treatments in. Blood count problems last 2 weeks, so last treatment should be this Thursday....then Herceptin every 3 weeks until Feb 08. Having a MUGA scan tomorrow to see how we are doing with the ejection fraction. Started at 67% in Feb. Hope to be dancing with NED for a long time!

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