Starting Chemo in JAN 2007
Comments
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I think I have probably said this here before, but here goes ... when someone asks me why I got this, fam history, etc, I compare it to a car. You do the best you can to maintain brakes, clutch, etc. Then one sunny nice day you are driving along and you hit something that causes your tire to blow out. You spin out for a while, it all settles down, you assess the damage, do what you need to do, and go on with your life. The last thing you want is for someone to blame you that your tire blew. I think people need desperately to believe that we did something wrong so they can feel safe. Maybe they don't mean to be cruel, but it sure can feel cruel.
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Dar, you are right to be offended...I know I am. I hate the insinuation that it was something that we did that caused this to happen. I bet the person who wrote this list never had cancer...and probably attributes that fact to their adherence to these ridiculous rules. We take good care of ourselves, and if nutrition alone could cure or prevent cancer, it would have been eradicated long ago....AND we would not be seeing such a change in survival rates NOW that there are medical treatments being developed.
I am sure that your SIL means well....but that would make me BARKING mad!
Delete the email and forget you read it. You did what you needed to do to get rid of your cancer, and you did NOT do it to yourself with a nutritional deficiency. What a load of crap.
GRRRRRRRRRRRR -
Melia you are so completely, and eloquently right.
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Thank you ladies for the validation. I'm not sure what I will do about this. I agree my SIL probably meant well, but perhaps I need to mention that this is NOT helpful. I can't imagine sending a similar list to friends and family who have high blood pressure, heart problems, Crohn's disease etc., but when it's cancer, people seem to think you're fair game. Guess it's because we're all afraid of cancer - precisely because the causes are not so clear.
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Dar,
That entire litany you received sounds like it was designed to make you feel if you are not living a perfect moral life, exercising, eating the "proper" foods & so on, that cancer is the natural disastrous and well deserved outcome. While there's a kernel of truth here & there it sounds like lead in to a marketing line for pills, books, or some other capitalistic money making scheme.
SILs. I have one who I met ONCE, who has spoken a total of TWO words to me in our entire relationship, who I am told HATES me and knows I hate her. I heard all this from my MIL; I am wondering how on earth the SIL knows all of this by mental telepathy without some sort of intervention by MIL, but MIL says she "just knows." She has never thanked me for the wedding present we sent her, and has never acknowledged any other kind of communication we have attempted. Not to mention the total lack of communication since I was dx'd. Now the latest news is that she ALSO has breast cancer. My husband has been asked to call them immediately by FIL to provide emotional support. This is going to be very interesting....
Mizsissy -
Hi all,
I am feeling better today. I had a nice relaxing quiet day, catching up on some routine household chores.
I am once again meeting my WW pals for dinner tonight at Outback. They seem to love it there. I love to eat out anywhere.
Jan & Lynn,
The ending to Sopranos was interesting and kind of surprising. I was left thinking,Huh!. I guess they now could make a movie if they wanted to. I really thought that there would be a lot of blood.
Mel,
The transitional gown sounds perfect for those hot summer days when you just want to be comfortable. It looks a little old ladyish, but you are right, who cares? Comfort is the thing. After all, if we can go without hair for so long, vanity is long gone. LOL
You are also right about not pushing yourself while finishing the taxol- There is plenty of time later, so why not just listen to our bodies.
Nancy,
I know they are old enough to take care of themselves but you never stop worrying do you? Letting go is so very hard.
Mary,
I am glad you are feeling better.
Dar,
You are not a wuss, just tired from all this stuff you have been through. Getting our strength back will take time, and eventually we will feel stronger. I agree, those kind of e-mails are so maddening. I would just delete it and not answer back.
Jan,
I had my sister tape the show for me. Was it on at 10:00PM? I havent spoken to her yet, but I am interested in seeing it.
Catch you later,
Viddie -
Oh my gosh, Dar, I can hardly believe someone sent that to you. The more I read of it, the madder and more indignant I got! You are right to be offended, as I think everyone in our situation will be. What this is about is someone being RIGHT about something and making everyone else in the world WRONG. We are the ones who got caught being wrong, doing it wrong, living wrong - we got cancer, shame on us. I hate the implication that we brought this on ourselves, by not following the "rules." There are a few kernels of truth here and there, but you can find a few kernels of truth anywhere,. in the ravings of any madman, if you look with an open mind. That doesn't mean that you swallow the whole load of crap - and then assume you are home free. I'm sure she meant well, probably, but the attitude of smug superiority comes through loud and clear. This is the same feeling I get from ultra-religious people, who firmly believe that they, and only they and their similarly believing brethren, have the secret to living a moral life. Again, they are right, everyone else is doomed. Guess it touched a nerve with me, for sure! I'm not sure whether I would respond or not - it depends on your relationship with the person who sent it, I guess. Some people, if they sent me that, I wouldn't bother to respond to at all. Since it's your SIL, and you may have to have some kind of interaction with her in the future, maybe it's worth standing up for yourself. She probably own't get it anyway. This sounds to me like it was taken from a natural foods magazine or manual of some kind - someone who has drawn the line way on the far side between regular medicine and natural cures. Raw juices, blackstrap molasses, supplements, that'll cure you. Now will you please buy our line of vitamins and supplements, and our $500 magic juicer?
Mizsissy, THAT SIL now has breast cancer??? This really is going to be interesting. Keep us posted. Sorry, I must have missed that bit of information earlier.
I'm having a fun day. Old friend dropped by this am with some peaches that are out of this world, then my mother in law came to visit until tomorrow. She brought FOOD!!! She does some things that I just can't do as well as she does, since I'm not from the south, and therefore not a southern cook. We had a fun afternoon going shopping, got some gauze pads and ace wraps for me, groceries...just had fun messing around. She's a sweetheart, and it's fun to shop with someone to talk to, who isn't rolling their eyes when I look at stuff.
I called my surgeon's office for the path report - no luck. Had to leave a message, as they are at the "other" office today. Called my PS office, to ask what I need to be doing during this short month before the diep, but no luck there either. Left another message. Oh well, I'll try again in the morning.
Hope everybody is having a good day. -
Dar I just skimmed through the email b/c its the kind of thing that always annoys the crap out me. I try to believe that people send these things with good intentions. I agree with you that by placing blame on people with cancer they feel safer from it themselves. Maybe we should start an email that suggests that people who thoughtlessly forward stupid emails without any consideration to the feelings of the recipient put themselves at an increased risk for being punched in the nose. I have a friend who sends similar emails (always nutrition related) to me all of the time. Otherwise she is a wonderful and supportive friend. I just totally ignore the emails. I dont read them, respond to them, or ever acknowledge them.
Mizsissy sounds like karma to me.
Viddie yes I think it was on at 10p.
My step test came back negative, but the doctor thought I should be on antibiotics anyway since it could be a false neg and the chances of me having it are so high since everyone else in my house has it. Anyway, she gave me a choice between pills or one shot. Just getting one shot sounded good to me. After all weve been through whats one more little shot? So then the nurse comes in with the biggest darn needle I have EVER seen and tells me the thing has to go in my butt! It hurt like crazy! I guess I should have asked a few more questions before I agreed but at least I dont have to take any more pills. -
Gads Dar, what nerve. And I know she means well but I agree with the smug tone. As if she has the answers. Gads! I've had it with "well-meaning" folks. Really, how much are we supposed to just grin and take? Sorry for the rant here gals, I'm just sick of it. Not that I would tear into anyone but really, I am just so tired of being made to feel like I caused this. I do not want to spend the rest of my life worried about every little thing I do and don't do in regards to my health. I will make reasonable changes but honestly, I did everything right. I ate well, took supplements, exercised religiously. But here I am, and here we are. Too bad all these "experts" don't become drs and researchers and put all that "knowledge" to good use.
Okay, off my soap box now. -
I just checked the Johns Hopkins cancer webpage and guess what - they have a notice on there about the email going around falsely attributed to them. I didn't think it seemed right - does sound more like someone trying to sell juicers, supplements etc. I'm thinking I will forward the email back to her with a link to the John Hopkins site. Not everything on the internet is true - especially these emails that have been forwarded so many times. I've noticed a few posts on this board too that are links to sites selling supplements etc.
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Hello all,
Husband has been asked twice by HIS FATHER to call his brother regarding the diagnosis of SIL. He is not doing so. I think I will insist that he do something tonight, since this is my role anyway, I'm always the one that remembers family responsibilities (I usually buy the birthday and special occasion cards) and because I am *just curious* about this new dx!!!! I am sorry but I am not feeling any more than just that.
Will report back later!!!
Mizsissy -
Dar - you should do that (send the link to her). Great idea!
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Jan, you can nearly always make me laugh out loud. I love the line about getting punched in the nose.
This is odd, but I never posted a photo; don't have any and don't know how. But I love seeing everyone else. If anyone wants to see what I look like, look under get togethers, San Diego, p 3. I am second from the right.
My ankles are swollen again today after working and not elevating them. Guess I need to figure that out.
Mizsissy, am looking forward to hearing about the phone call!
Melia -
Hi Guys, from sunny San Diego....NOT. We are freezing. It's only in the sixties. I'm wearing jeans and a jacket. They've got the "June Gloom" thing going on too. Oh well. We went to Legoland today and I hate to say, but it was TERRIBLE. A real dump. Chipped paint everywhere..at the beginning of the season, not all that clean. Not much attendance and it closes at 5 pm. I wonder if it's on it's way out. We may try San Diego Zoo tomorrow. Going out on a harbor cruise with the DH tonight...I hope they have an indoor area. I am wearing baseball caps and bandanna's this week. I flew out "topless", but then got a little uncomfortable with it.
My kids are going stir crazy in this hotel, despite having a massive suite, and are driving my parents insane. Me too.
Dar, I received that ridiculous ass email too...a few weeks back. I was like ok, yeah, that's all true... it's so presumptuous and clearly forwarded by people who have nothing to worry about like we do... -
Hi ladies,
Just grabbed a quick look at the posts, been busy today with DH - we are having new wallunits installed tomorrow (finally getting rid of the white lacquer late 80's ones we've had) - so we have been emptying the old ones and piling everything up in the dining room.
The new ones are maple, shaker style stained in a medium-dark brown. We designed them around the 46" LCD HDTV we bought in January, when I told DH I wouldn't be moving much from the family room couch during chemo, so he better set me up with a big screen TV and get the movie channel from our cable company. Hopefully it will turn out okay, the cabinet maker designed it so the TV will be suspended on a swivel in a corner unit. All the upper doors are an opaque glass framed in the maple -
I've been feeling a bit nauseous still since Friday, the day after the Herceptin infusion. This apparently is not uncommon with the loading dose, and it's not unbearable, mostly annoying.
Viddie, Mary,Mel - glad you are all feeling better.
Jan, hope you don't get strep but it is good you are getting the antibiotic just in case.
Dar, Amera, Mizsissy, - boy I hear you with those well-intentioned do-gooders. A former neighbour called today, he didn't know about me, but when he asked how the family was, I had to tell him. He starts telling me to drink 8 glasses of water a day (been there, still doing that) eat more veggies (like I am the biggest salad person in the world, way before BC) etc. I basically had to cut him off and called for DH to talk to him.
Hope everyone else is okay. Skye - how is Puffball?
Mizsissy, can't wait to hear about the SIL phone call. I have one SIL (DH's twin brother's wife) who is the biggest phony - along with her husband, my BIL. I barely talk to her, I just can't take her shtick.
Hope everyone else is okay - hey, Shorti (Sharon) - are you out there - please chime in and let us know you are okay, we haven't heard from you in awhile.
hugs to all,
caya -
Caya, the shelves sound beautiful. I had scored a bigger TV for the bedroom but not cable! Guess now I'll have to start buying Sopranos DVD's, you've all gotten me interested in it. I also get nausea for about a week after Herceptin infusion but not bad. It does seem to be helping me lose weight, I'm down about 5 pounds from the high I had reached.
Puffball is still hanging in there, I saw him by the hostas tonight but my son had drank the last milk. I put out flavored creamer but I don't think he liked it. Still looks lost. We would try to coax him into a box and take him to a wildlife rescuer but are afraid to handle him. I'm hoping that if he succumbs, I don't see it.
And Sharon, I second Caya, let usknow how you are doing. I want to see that blue jeans hat!
Tina have a great time at the zoo tomorrow.
Jan, "punch in the nose" re that email is right! I have seen that whole schmear in a book somewhere. It smacks of, "Here, you dumbass, if you'd read this first maybe now you wouldn't have cancer." I did read something very helpful recently, that even if stress does lower immune symptoms enough to cause cancer, we seldom choose the things that stress us...life just happens. I know I didn't choose for dh to get cancer or young chick to smash into my car or colleague to go psychotic, or even for book tours to coincide. Therefore we should not even be blaming ourselves for that. Anyway, I delete and don't reply to almost every forward I get, even from my mother. If it is not a personally written message there is no need to personally respond.
My first zap today went uneventfully. Was over before I knew it. For the first time I wanted to cry over a treatment, however. Even though it's nothing, I feel here is more insult added to literal injury, somehow, and I guess I fear the burning and hardening. I was surprised at myself.
Amera your hair is beginning to sound divine. Mine is darkening all over but still short enough to see skin. I met a lady at a book sale in town on Sat. who was wearing a baseball cap and looked darling in it, she was about 65. I gathered my nerve and asked her if she'd had chemo and she said yes, for multiple myeloma. She actually had breast cancer 25 years ago and the two are unrelated, they told her. Then I found out she lives in my same lake neighborhood, an easy walk away. I hope to see her again, neat lady.
And finally, I finished my outline at long last, wahoo! Immediate pressure is off and I can do other things again. I'm sitting here in my cami and thinking about zap #2 tomorrow. - Skye -
Hi all, I have Relay for Life on the brain tonight because this morning before chemo my Doctor (med onc) gave me a picture of me that he took at our Relay in April. It was was good that I decided to crop it and use it as my avatar here.
I had my third infusion of Taxol today (seventh chemo over all) and I have my last on July 2. That would be a great reason to shoot of fireworks if they were allowed in Austin. Oh well, I guess I'll have to watch them on TV.
After my last chemo, I'll be meeting the new Radiation Oncologist at my center. The one I met in January left the practice to start his own place, but my Med. Onc. says this new lady is good. She switched over to this location from one of their others in town.
I'm still gathering info on which Aromatace Inhibitor I want to use after I'm finished with radition . The doc gave me an info sheet about some of the recent studies. I sure hope it helps narrow things down.
Here are some bigger views of the doc's pic of me and one of us together. It took me a while to figure out this picture thing in the messages. -
Skye, I forgot to say that I enjoyed your pictures of puffball and your new avatar. Thanks for sharing.
I enjoyed the other pictures that others have posted, too I just can't remember who they are right now. -
Great relay pics, Debbie!
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Skye, LOVE the new do! Congrats.
I'm triple quarulupalin' the shout out for Shorti/Sharon. Been too long girl....where are ya?! -
Good Morning all,
Caya, the cabinets sound lovely. We really need to upgrade some of our furnishings, but no energy right now. Last year when our older daughter was getting married we made great progress outside. We had a day after brunch for our 60 family members who were here. This year, with another wedding on Oct, I am hoping to make some progress inside. But even last night we were laughing about needing a plumber to do a few things, and I said I would call him after chemo was over.
Skye, Rad is not nothing. It's one more assault on your poor battered body. Of course you felt like weeping. But we will all get through this and will enjoy the summer. And think of the wonderful Thanksgiving we will all have this year, since most of us were facing our diagnosis last TG. TG is my fav holiday, and this year it will be quite a bash.
Tina, didn't realize you were here in SD. I haven't been to legoland, kids were grown by the time it was built. I do like those outlet stores just below it though. Enjoy the zoo; hopefully it will be sunny, though if it's cloudy, the animals are more active. It is supposed to be warmer and sunnier as the week goes on, and we are being promised a perfect weekend. I wish we could meet!
I hope you all have a good day. Today is bloodwork in prep for chemo tomorrow, and I may need to call the dr again about the ankle swelling. He mentioned Friday that if it continued, he would want to run heart tests and put me on a diuretic. And yesterday at work they swelled again.
Melia -
Melia - I hope that swelling goes down soon.
My local group is having their annual pool party tonight. I am really looking forward to it. No better place to debut the mastectomy bathing suit that with a bunch of other bc survivors. I will miss the chat tonight - have fun. -
Good Morning,
Well, I got my port out yesterday. They just used a local, which is good because then I didnt have to deal with anesthesia issues, however it wasnt pleasant at all feeling the pulling and tugging associated with the removal. They showed it to me and actually asked me if I wanted to bring it home with me uh, no thanks! Too big to fit in my scrap book. I pretty much laid around all day, took a percecet and dosed. Im a little sore, but no big deal at all, just so glad the port is out!
Jan and Viddie, I liked the ended of Sopranos as well. Leaves a lot to the imagination and an opening should they want to do a special 5 years down the road.
Skye, I cried at my first rads. Ive also been more weepy than usual since I started. I really really hate hearing the buzz of the machine and knowing what its doing. Its hitting me pretty hard. Ive done 8 out of 30. Congrats on finishing your outline!
Dar, I would have gotten to maybe the 4th sentence and then deleted the email. I hate it when people say or send those type of things. Really pisses me off its like sending an intentional guilt sentence.
Amera, thanks for the update on your hair. I used to have really wavy hair, but so far mine is straight as a board. Go figure.
Melia, I've been taking diuretics for almost three weeks because of the swelling. I'm getting a bit worried though, how long will I need take these pills, when will the swelling stop?
Jan, the pool party sounds like fun, have a great time! -
Good morning ladies,
THE PHONE CALL
Well, DH was very cooperative and was ready to make the phone call as soon as we were done with dinner. He put the cell on speaker, but I told him I wouldn't be participating, just listening. Just before he dials, he said, I just wanted to make one last check with you, "It is OK if I tell her to call you?"
"Whew, most definitely not!!!"
He talked to his brother and got a little information, but the brother almost immediately put his wife on because he didn't know the answers to the questions he was being asked. DH was very cordial to her, and made some recommendations. Her cancer is very small and local and he suggested a lumpectomy but she said she was having a mastectomy because she didn't want to be bothered with all the infections. [Hmmm....what infections?? I never had or heard of any lumpectomy infections...] Apparently she knew someone who had an infection. He went on to say that one case really wasn't a good way to judge, that I had done quite well with mine and furthermore she should go to breastcancer.org to get the best info. She said that she had a *friend* who *actually worked* with cancer patients everyday and that's where she was getting her information, so DH, being the gentleman that he was kept on arguing gently with her, but she wasn't at all gracious, no acknowledgement that he was calling or showing concern--and this may have been the first time in the entire relationship that they ever had a conversation that was more than a few monosyllables. Her end was just "Yeah, yeah" this "yeah yeah" that. After a while I decided I had heard enough and that it was time for my bike ride.
DH 's bike was in the shop, so he couldn't come, but I had a blast!! Our bike path, which goes for about 15 miles along an old railroad bed, has been getting paved in stages since last November, it was finally finished a few days ago. It was a beautiful evening, perfect temps, breezy, and there was something thrilling about doing it alone. I just sailed though the miles and over the bridges. Came home an hour and half later, feeling as fit as a fiddle.
So that's it for SIL for now, I doubt there will be any further installments on this story, because I don't think she and I will become *breast friends.*
BTW, the oatmeal diet worked wondors yesterday. My stomach is now back to its normal size for the first time in weeks and the only extra bulges I need to get rid of are fat!!
Melinda & Melia...the swelling sounds worrisome, not to mention the discomfort. I hope they figure out what's causing it and do something SOON!
Lynn, congratulations on getting that port out!!! You are done with that phase!!!
Woke up very late this morning, so maybe I'll make it to chat tonight!!! Sorry you can't make it there. Hope to see yall there!!
xxxooo Mizsissy -
Mizsissy,
Sometimes you just can't make people listen to your good advice. I know when I started through this journey Last December, I took info anywhere I could get it. Some sources were definitely better than others, but I at least I looked them over before I discounted them. One source is not enough. Even if all the sources give you the same basic info, some of them are easier to understand. I got most of my info from this website (breastcancer.org) because it was arranged so well and so easy to read in short visits. Even though I been visiting for months I usually read the info about the step of treatment I'm going through at the moment. It gets a little overwhelming if I read too far ahead. I also like to go back and check over something I've read before, and this site is easy to navigate and find the bit you want to read at a certain time.
Maybe your sil will wise up soon, or her friend who works with cancer patients will tell her about this site.
I know for me, it's been wonderful talking to my aunt who went through this during late 2005 and early 2006. Our cases were very similar but not exactly the same. I like the chance to compare notes even though I've had a some what easier time getting through chemo than she did.
I'm sorry your sil won't be taking the chance to talk to someone who's been through the battle. It's her loss. -
Hey Melia, yes, if I had planned it better, it would have been nice to get together. We are pretty tied up w/my husbands conference events. After the boat cruise last night, there was a "reception" back here a the hotel...basically drinks and pretzels. That's it. Tons of drinks...boy, can these guys party. Hadn't seen anything like that in a long time. I had a good time just putting faces to names, people I'd heard about in this industry for years... I saw a bunch of people I hadn't seen in ten years.
Tonight we have a fundraiser here at the Omni that my husband is running..it's for Nat'l Center for Missing & Exploited Children. My kids are "working" at it. Again, a big networking, desserts and drinsk event...also, a casino night. -
LOL'ing about MizSissy and her SIL being "breast friends"...
I don't blame you..I wouldn't waste my time on someone who didn't have any time for me. And yeah...infections? Huh? Wha? Never heard of that. -
Caya, how'd the shelves come out? I bet it really updates things. Surprised to hear you had nausea on herceptin. You don't hear that much.
Lynn, great news on the port removal. I haven't seen your post about it, just others responding. I'll have to find yours as I'm curious if it went smoothly or if it was difficult. -
Congratulations Lynn - that's a big step towards the rest of your life! And I'll bet you're glad it's over.
I emailed my SIL the link to the Johns Hopkins website, with the blurb that they are not responsible for the email. Just put a note saying that she may like to know, the internet is full of info, not all of it reputable, and when you've had cancer it could drive your nuts if you listen to it all! Hopefully she gets the message that I'm not interested in this type of thing. -
So Lynn, when the port came out, did it leave a porthole? :-) Sorry, couldn't resist. I so look forward to the day next spring when mine can come out. It does not look fabulous with the camis I'm wearing for rads. Congratulations on your milestone! And thanks for letting me know I'm not the only one emotional about rads. I also swear my left breast hurt a couple hours after it today. I didn't think that was supposed to happen.
Mizsissy, sounds like your dh ran very good interference for you. I feel for anyone who joins the sisterhood but attitude is so much of it, and sounds like hers isn't great. Perhaps she will come around. I can't imagine either what she meant by infections with lumpectomy. I don't even remember reading about such a thing, though I guess any surgery can get infected.
I swear I had a chemobrain redux today, I'm very fuzzy-minded. Stopped at the post office on way to rads and asked the clerk for my receipt, she said she was waiting for me to pay her. I had written the check then closed my checkbook and put it back in my purse.
Tina the convention sounds busy and fun and for such a good cause. Jan, make a big splash at the pool party, I'd love to have that kind of camaraderie here.
Hope to stay clearheaded to make it to the chat tonight. - Skye
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