For those starting chemo in June
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mary.
yes, that was a LONG game, 10 innings instead of the usual 7. Two of the kids came over to watch it on my TV because it is a little bigger than theirs (37 inch) and I have HD. I could not believe TN had the bases loaded and no outs and then blew it. They had so many chances. AZ deserved that win. I guess since you are maybe moving to Phoenix some day, you were for AZ? Tonight will decide it. Pat Summit and Phil Fulmer were both there. Wonder where Pearl was? Makr said he would run out in orange paint like he did at one of the Lady Vols basketball games. But he never showed.
I got a sleeve that fits over my night sleeve to make it more snug and keep it clean. This over-sleeve is multi-colored and very loud. lol OT said they never know what color will be sent, sometimes fuschia etc. You can see me coming. That is for sure.
I am getting tired of my bald head shinning through on top so I ordered a hair piece. I do not know if it will work or not, but for 19.95 from Paula Young, it is worth a try. I liked her wigs better than the more expensive ones when I was wearning them.
Have a good Wednesday girls. -
oh yeah, be sure to read the thread on this chemo forum about the news. very interesting. it looks like a couple of things that made some of our prognoses so grim, are the very things that now make them good. Be sure to read both articles from two different studies, the one from nbc and the one carol posted.
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I LOVE you guys and your answers to my GWTW question!!!! Janie, I read the news thread and looked at the two articles. In the first one I guess I prefer to think that we of the Her2+++ club are in that 8% category and that if that new test were available, we would have probably scored well on it too!! I'd like to think that I didn't lose my hair for nothin'!! On the Oregon front, it finally quit raining, but it's rather cool. We had to cover the tomatoes last night because it frosted. Today the sun is shining, but it's not very warm out there. I need to go home because I've been going to the cutest little shops here and getting stuff that I really, maybe, kinda don't need, but I can't resist it. HMMMMMM!!! Hope you all are having a wonderful middle of the week day!! Life is Good Smiles NancyLee
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Remember N.L. you are doing Mary's proven program of exercise when you shop. You may not loose much weight after you eat out but hey, you had fun trying. Janie, I was rooting for your Vols just for you. Sorry they lost. Mary
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thanks mary. poor monica. she pitched so well inning after inning, game after game. she could not hold out forever waiting on the others to score some runs.
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Hi Everyone,
I'm, 44 and have 4 grown kids and husband - mama staying with us and helping so much! Was dx 4-20 and surgery 5-15.
I start chemo tomorrow - had lumpectomy left side - tumor was 2.5 cm and right next to my breastbone and very visible. I thought it was a fibroaednoma because I have fibrous cystic breast disease and gee, after a negative core needle biopsy last year I actually waited until the pain was too much to bear. I now know how really obvious it was and feel very stupid.
10 of thirteen nodes were + so I have stage 3 - (both) hormone + and HER2-
Ok, Please help I have silly noob questions..
What do ya'll take with you? How long does it take? Do ya'll sleep or read or knit? What should I eat for breakfast? What are they going to give me that is going to make me sleepy and does that mean like in a boring lecture or nitrous oxide sleepy? What do you wear? I have a port, so can I wear a tank or tube top and not have to wear a gown?
Any help would be great - I am really scared and a huge wuss.
Thanks!!! Susan -
Oh, please re-direct me if I am in the wrong thread or whatever..thanks!
Susan -
OOOOOH--I think I like your exercise program!!! I exercised some more today and got a new case for my cell phone and some neat little things at the Family Christian Store. We ate some stuffed chicken at this area diner and I am STUFFED!! It was really good. Now I'll be broke AND fat as a pig when I get home!! My brother called and told me that it rained 5.5 inches at my place last night and I called my lease guy and he said he turned on the pumps in the basement for me and he thinks I ONLY got 4.5 inches at my place!! I guess the rain didn't really follow me over here after all. Best go balance my checkbook Life is Good Smiles NancyLee
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Susan--I had my second tx yesterday. I am sure different facilities do it differently--but as for my chemo, I go get blood work that morning (I'm in a clinical trial), the see my doc who measures the tumor (the tumor part that you can feel had decreased by more than 50% after the first tx--wooohooo!) I'm stage 3 too.
Then, I go downstairs for chemo. It's a big room sectioned off. I don't take anything with me but a book. My first chemo took 3 hours and my second took 2, eventually it will get down to 1.5 hours. They give me IV Benadryl at the beginning (along with three other drugs for nausea and such) and it makes me very sleepy--so I sleep. A lot of women take their own blankets, but my facility has these blankets that are actually heated and they are WONDERFUL! I also take a water bottle. It's good to drink a lot. Make sure you have someone to drive you home.
My second days has been fine so far--I will start getting more tired tomorrow and last time, days 4 and 5 were my worst, but after a week and a half I felt completely normal. I hope yours is as easy going. Good luck. The second time will be way less stressful--not knowing is the hardest part!
Kathy -
susan,
the first one is the scariest because of the unknown, but it becomes routine quickly. you will most likely have blood work before chemo, either a few hours before or immediately before. as i remember, it takes about an hour or hour and one half. they usually give you anti-nausea drugs and/or benedryl etc. i had to remind them to give me benadryl slowly or else i got "dancing legs" and that is not comfortable. there are usually individual tv's to watch and i did that a lot. i also actually took work with me and worked when i was not too sleepy. i also often slept because it was heaven to drift off to la la land for a while. i had a chest port and also wore something that could be easily moved over to access the port. it did not matter what i ate and they often brought me food and drink while i was in chemo. good luck. you will do fine. janie -
We are off today for the Oregon coast. We're going to stay at Lincoln City tonight and tour the Tillamock Cheese facility tomorrow before going to Portland to see my nephew. Then we will head back to Montana via Spokane, Washington. It takes like 17 hours to drive from Lincoln City to Jordan, Montana where I left my jeep. My sister is going back with us so we will have 3 drivers, but I can't see any of us falling asleep while the others drive so we will probably have to stop somewhere tomorrow night. We'd like to make it as far as Idaho, but that depends on how many times we stop along the way!! It's a lovely day here in Bend. They are having a thing called Balloons Over Bend and they launched about 8 hot air balloons this morning for media day. The real event doesn't kick off til tonight and we will miss it. Last year I got to go to the night flare show and all the major balloon launches on Saturday. It's really cool. We took some pictures this morning because some went pretty close to my sister's house. Well, I'd better get packing. I guess I'll be back online by Monday probably. Bye for now Life is Good Smiles NancyLee
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A cheese factory!! How fun! I love cheese!!!!! Enjoy your trip!
Kathy -
nancy lee, i was out there in november of 2005. the oregon coast is beautiful. at that time of year there were evergreens along the beach as far as you could see. there was hardly any habitation or businesses along the road we were on. didn't see the cheese factory. maybe that is a good thing.... like kathy, i love cheese...but it does not love me. what kind of car or truck are you putting that many miles on? wow! have fun. I hope your mom is comfortable.
hey everybody else! have a good weekend -
Ah, thinking back to first chemo. THAT was scary. Each facility is different. The first one I went to, I could bring movies (nothing that might offend anyone) and they popped it in the VCR and we watched it. Another that I went to had TVs at each station, but I never did watch. I mostly just read or talked to folks who came with me.
I remember always being cold, partly because during the Adriamycin, they had us chew on ice chips the whole time to avoid mouth sores. I remember being freaked out (even tho they warned me) when my urine was pink because of the drug. I remember being oh-so tired from the Benadryl but being afraid to sleep lest I drool or snore. (I got over that)
I also brought snacks along to eat, as it seemed like a long time I was in there.
Janie's right, you'll get into a groove. And it'll go by pretty quickly (well, in relative terms).
NL, it sounds like you're just having a blast. Good on you, as we say in Texas. Mary, hope the house is still standing.
Things are good here. Hot, but, hey my mom's remodeled bathroom is almost done and her plumbing problems appear to be fixed. Whew.
Paula -
Hey hey paula,
good to hear your mom is almost situated. vcr's in chemo room? i was in 3 different facilities and did not have that at any of them i do not think. if i did, i didn't even know it. lol. mayo was the most private. you are either in a private room, a room with 2, or a room with four. you are assigned a nurse for that session. they always closed the curtains around you. so if you did snore or drool maybe it would not be a distraction, especially if the tv were going. i talked a lot to my accompanies too. and i always ended up putting the iv on battery and dragging it to the bathroom with me because i could not hold out. the chemo room in valdosta is huge with all 4 walls lined with recliners. nurses go wherever they are needed at the time. they had individual tvs with earphones. the facility in lawrenceville is much smaller. the oncologists are right there however, just down the hall. there are about 10 recliners, maybe a few more. it was so cozy there everyone talked a joked the whole time. you got to know some of the people who came about the same time. mayo had sandwiches and drinks etc. so you could actually do lunch. valdosta had drinks. i do not remember about the snacks. lawrenceville had a drink machine and furnished snacks.
kathy, i found it helpful to turn everything into as pleasant?!?! as possible, like wearing different shades of hair etc.
good luck to you and susan.
janie -
Well good wk. end you little June Bugs. Yea, the house is still standing or leaning depending on what angle you look at it. Hubby went fishing today with grandson Bailey. Bailey always catches the fish and good size ones. Poor hubby he just has no luck, Bailey is 11. I was always in with others for chemo and worried the most about sleeping gas. I just know it happens and I would be the one it would happen to but then everyone else was sleeping too so maybe no one ever knows. Our Cancer walk was yesterday and someone screwed up and it didn't get in the paper so not too many knew about it. I did walk the victory lap with 2 of the grandkids. I drove up by there on the way to the store and saw the balloons so thats how I found out. There wasn't many there but they said they made good money so Koodos to them. I better get going. Later girls, have a great day. Mary
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mary, poor ol tooling tim. i bet he has a good time with bailey anyway. grandpa's and grandsons seem to have a special bond. i did not think about gas. lol. i probably would now. carbidopa/levo seems to have that wonderful side effect. that reminds me, my stomach is all bloated and swollen again. i am going to try to get it down with meds. i do not want to go to the gastro guy or gal on top of everybody else. i had to see one of those before bc reared its ugly head. the swollen stomach was my first symptom of acute gastritis and a messed up stomach (by ibuprophen). i recently went off prevacid. wonder if that is the cause?!?!
this rubber glove and sleeve really compress everything; however, it is very difficult to type. i do not know how that is going to work when i go back to typing so many reports.
enough of my whining. how are you guys?
hugs>>>>>>>>>>>> janie -
Gosh Janie, I never thought about you having to type, that has to suck. I took some ibuprophin a couple wks. ago for my shoulder and knew it was gonna mess me up and it did. My stonach is still upset so no more of that crap. I hope you get your tummy straightened out. Thats no fun. I better get busy today. You girls have a good day. Mary
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Hi--I'm back home and it's the middle of the night. I got up because I wasn't sleeping anyway and we are having a terrific thunderstorm. The lightning is far away so I don't think I'll get zapped off!! We stayed the night near Spokane because we messed around so long sightseeing that we only made it that far before we all decided to stop. When we got to Jordan it was almost midnight so we stayed there last night and when we got to Glendive yesterday, my jeep was acting really weird so I stopped at the place where I got my tires. They told me to take it to a carwash cuz it was pretty muddy and that would probably take care of the shimmy shimmy shakes that it was having. Not the case!! It got worse so I went back. I thought it was a U-joint going out and I was right. So we had to rent a car from Avis and transfer all our stuff from the trip into it and drive it home. We got to town about 10 minutes before my ITV class was supposed to start so I raced up to the high school thinking that I had to open the doors and get the ITV going and there was a lady from the school already there and it was all set up. That was nice. I have this Baby Sign language class every M,T, & W from 6-9pm for the next 3 weeks. Like I needed something else to occupy my mind!! My sister and I will take the rental car back to Glendive on Friday and retrieve my jeep on our way up to Plentywood to see our Mom. I have to open the daycare in a couple of hours so I think I'll jump in the shower and start getting ready. Nice to be home Life is Good Smiles NancyLee
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NL, KNOW YOU ARE GLAD TO BE HOME AGAIN. WHAT DO YOU THINK ABOUT THE BABY SIGN LANGUAGE? I HAVE BEEN INTERESTED IN IT FOR SOME OF MY SCHOOL KIDS, EVEN OLDER ONES WITH SEVERE ARTIC PROBLEMS. IF IT IS EASIER TO LEARN THAN ASL, THEN IT MIGHT BE MORE APPICABLE.
YEA MARY, I KEEP MAKING CORRECTIONS AS I TYPE. THIS GLOVE IS NOT MAKING IT EASY. THE GLOVE COVERS MY FINGERS ALL THE WAY TO THE NAIL AND IS QUITE TIGHT AND STIFF. -
Glad your home N.L. and had a good time. I think Wa. is beautiful but amazing how they have towns but they are spread out because of the mts. and trees. I am used to one big group of houses etc. not a few here and there in a long line. I wish I could of seen more of Seattle but we were in the rig. so didn't see much. I thought all the North West states were pretty, all in a different way. I am glad I went on that trip even if I paniced a little in some of the mts. (Utah)and I just thought the Continental Divide was going to be different like a giant grop off or something. Well Janie and N.L. good luck with the kids language stuff. You girls seem to get into some interesting things with your kids. Hope P.J. and mom are doing fine. Later, Mary
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mary,
Did you go over mt zion in Utah? the kids and I took a vacation out west a few years ago. We flew to Vegas and drove to the Ponderosa on top of Mt Zion. The narrow winding road with a steep drop-off scared the begiggers out of me. I told them that once we got up to where we were going we were not driving back down until we left. It was a fantastic vacation. It was one of those all-inclusive deals. We stayed in a cabin. Meals were served 3 times a day at the lodge. Breakfast and lunch were buffets and dinner times were reserved and sit-down. The dinner menu was from the grill where Big Bart was grilling outdoors. The trout was great. It had everything imaginable to choose from. Horseback riding, ATV's, paintball, hayrides, swimming, biking, fishing, hiking, rappeling, campfires and ghost stories. I cannot remember it all but we all found things to do. I loved riding the 4 wheelers, or maybe it was 3. Anyway, ever how many wheels, i did that often. Did not enjoy the many rattlesnakes though. How did i get off on this walk down memory lane?
How is everyone feeling? Any test results?
Have a good Wednesday girls. I am going to move closer to work this summer and am going to start packing today. YUCK -
Janie, Happy packing girlfriend. I hate moving. We went up a mountain that didn't seem bad but when we got at the top it was like looking out of an airplane window! It was a steep road that winded straight down almost. That was scardy (as I call it to the grandkids) going down in an 18 wheeler. Wow Janie what a great vacation you went on. Now that sounds like a blast, except for the rattlers. I love to ride horses but can't anymore because of the back and shouders. We had 4 wheelers and dirt bikes(when the kids were young) that we would go out in the bottoms(as they were called, the land down by the rivers) and we would ride with the kids. Hubby had one girl and me the other and the son rode his own bike and we would ride though the woods all day. They were a blast. We would pull the kids on a sled with them in winter. Memory lane is a nice little stroll. Well we hit the last ball game for Bailey tonight so he is done but his brother who is 15 is on a traveling team so he plays a couple games a wk. and the wk. ends. We will go to a few more of his. I better go. We are getting ready for a 3 day summerfest we are going to set up our craft booth at. I have been doing some fancy necklaces and I am getting better. Hubby made tractor things, farming community. At least while hes making wood crafts he is not fixing the house. Well later girls, Mary
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Mary,
That sounds like the same mountain! I cannot imagine manipulating it with an 18 wheeler. I hear you on the horseback riding. That was the last time I was on a horse and will probably BE the last time on a horse for me. Traci and I went that day. I was so sore I could hardly move upon returning. I had a big ol horse named Navajo. He was not a bucking broncho. lol. Now, I would not mind trying the 4 wheelers again. I loved that. My body would probably not love it though. I think I told you how weak my arm has gotten from "being careful."
Good luck with your craft booth. Can you put some of your stuff on pictures to show us?
Hey to everyone!
JF -
Hi girls, I dunno that trip up the mountain sounds scary to me. Of course, so why am I going up into the Black Hills for vacation in August? (I'm BAAAAD with heights) Oh, yeah, because it's nice and cool up there. But the resort sounds great.
Mary, I, too would love to see some of your stuff.
The fun never ends. Got a call at work today from my mother-in-law. She was over at my mom's house after having lunch. And the firemen were there. Electrical problem. I swear, my poor mom. Plumbing, electrical, what's next? (I shouldn't even think about it, might jinx her) Anyway, the home warranty will cover the lion's share, thank god. (replacing part or all of the AC)
Other than that, things are pretty quiet. I need to remember to call and get an appt. to get my port flushed. It's been longer than you're supposed to go, but I keep forgetting. Maybe if my Aug. scans are OK, I'll get it out.
Toodles,
Paula -
Oh, yeah, and Janie, I went to the LE people. They offered to try to get me a pump thing, but it looked like way too much commitment. She said I should wear my lovely, roasting sleeve more (anything would be more than I wear it now). And she's ordering me a night sleeve that has velcro and you tighten it up or whatever. We'll see how that works out... Given that we usually keep the AC on 80 at night, well, we might have to be changing that if I have a giant sleeve on my arm.
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Ok--back from the action auction. I had a farm auction at my ranch yesterday and sold all my machinery and a bunch of other stuff. I've never been a farmer so I decided to get rid of all the machinery and make the banker a happy man. He was all smiles today. Someday I'll be able to pay him back completely and actually earn some money that I can keep. That will be nice, but probably not very soon. It was a hot day and although I took an umbrella to keep the sun off, I got a sunburn on my face and back of neck. OUCH!! Well, I'm beat. Big two days and tomorrow my sister and I leave for Plentywood to see mom. Nite all Life is Good Smiles NancyLee
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Hey girls, everyone have a great day. I have to get ready to leave but forgot to tell ya I saw Onky last wk. and I don't see him again for 6 months! I am glad I am done with the 3 month crap. My tumor marker was down to 26 which is the lowest it has been for a year. The high cut off is 31 and I have been at 34 and 36. I was 24 after treatment so this is good. P.J. your poor mom has Murphy's law going for her.I hope all gets worked out. I wrote a bunch lastnight but when I got done it didn't post because it said my time expired. Oh well, I was mad at the toolman and he brought me candy bars lastnight so all is well for the time being anyway. I better get going, have a good day girls. MJ
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NL, have a good trip.
PJ - I started to get that kind of night sleeve because it can change with you if your weight fluctuates etc. (as mine does). However, after trying on the Tribute, I chose it because it is lighter and is made to help create the lymph flow. It also is more flexible than I had thought it would be .... room for growth etc. I have found it to be much easier to get in and out of but have to wait until the last minute before going to bed to put it on because it is much more restricting than bandages and day sleeves. I am pretty much reduced to being one - armed once it is on. I think I told you all that I rejected the massage machine when I heard how much it would cost above and beyond insurance and I knew I would not take the time to use it daily. It took a good while at the OT's office just to get in and out of it. I am still keeping an eye on laser therapy. It now has FDA approval to be used in the states. The machine only costs 4,000 dollars (much cheaper than the massage machine). That would not be that much for a clinic to invest in. I wish everyone would hurry up and get on board using it. It has helped many women in Austraila. It could help do away with all this paraphanelia or at least reduce it.
Mary, have a great trip. Candy Bars? I could go for one right now although it is morning. Does anyone's kids / grandkids sell Katydids for a school fund raiser? You cannot buy them anywhere but for fund raisers. I have not have a tin since I sold them for chorus over 40 years ago. They are the best candy ever! If I could find someone selling them, I would buy several. They are in vacuum packed tins and keep for a long time.... although I am sure they would not last long around me. These days most kids sell candy bars instead. The Katydids are expensive, but worth every penny.
Mary congrats on the new schedule. I went on the six month one the last time. Is so good to get to wait a while to go back. However, all the OT visits sort of more than made of for it. I need to call the neuro guy. Was supposed to call and make an apt after Memorial Day. My memory is going going gone.
Later Ladies, -
Hello, hello, hello, I'm finally back from wandering again. My sister and I drove to Glendive last night because her flight was SUPPOSED to leave at 6:15 this morning. There was a terrible storm behind us in northeastern Montana with high winds, hail, flooding and dangerous cloud to ground lightning. It was wicked to the max and we managed to stay right ahead of it. We saw on the TV that they closed the roads where we had been due to flooding. So we ate supper and went to bed fairly early and this morning at 4:45 the phone rang and her flight had been delayed and maybe postponed due to the storm. So we went and ate breakfast (we had gone the night before and bought all these granola bars and fruit and juice to munch on the way to the airport) and went back to the motel to rest and pass time. Nothing was open on Sunday except K-Mart so we spent some time there. Then the airport called again and said the flight was going to leave at 2:00. When we got to the airport, they told her she could only go as far as Billings and then catch her flight to Portland in the morning. They only have that one flight per day and this late plane was only going as far as Billings and then back to North Dakota and will fly out again in the morning and then go to Oregon. So she is staying at a motel in Billings and having dinner with her old college roommate and visiting. That's nice for her to be able to do that because they haven't seen each other since we stayed with her before my first surgery in 2004. They have a lot to catch up on. So that's my tale of the day and now it's pouring rain here so I can't finish unpacking my jeep. Maybe in awhile and I can actually unpack my suitcases this time!! Hope you all had calmer weekends than me--Oh, unless you wanted excitement! Life is Good Smiles NancyLee
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