What are you taking?
I was dx stg3 back in Sept2005, and went thru all the major treatments surg/chemo & rads which all finished last summer.
I have just recently started back my vitamins & supplements regime, and I was wondering what everyone else was taking, and how much of it.
This is what I am taking at the moment:
Vitamin C Ester C 2500 mg -3000mg
Vitamin E 400iu
Selenium 180
Co Q-10 120mg
Calcium 600mg
Vitamin (D3) 400 iu
Garlic Allicin 500mg
Shark Cartilage
Melatonin 6mg
a multi vitamin
HMS90 (whey protein Isolate) daily
Phyto defense (carotnoid complex) (Flavonoid complex)
I am not sure if all this stuff is working, but ladies I must say I feel really really well.
What does your daily regime consist of?
Mel
xoxo
Comments
-
Mine is
SIMILAR.. NOT SO
high on selenium and some of the others
no shark..
I dont take . .mega doses
unless authorized by my naturopath
glad you feel good
I have to admit
to feeling better on supplements
than . RX.. for certain things
Sometimes.. take Rhodiola Rosea
for alertness, depression etc.
the astronauts took this
I believe
-
I rattle when I walk-LOL. I am 40 yo, triple +, on Arimidex, Fosamax and Herceptin, with a resulting bad case of insomnia. I worked with a naturopath for my particular situation. I feel great after fine tuning my supplements!
SUPPLEMENTS (all daily by mouth)
For insomnia (a lot, but better than the ativan I used to take every night):
Melatonin 10mg-20mg
Valerian extract 250 mg
50 mg Benadryl
GABA 500mg
The rest:
Green tea extract 1,000mg
Selenium 200mcg
Flax oil 2,000mg
Fish oil 2,000mg
Folic acid 400 mcg
1-2 tbsp ground flax seeds
Curcumin 1,000mg
Multi-vitamin
1 oz. concentrated pomegranate juice
Glucosamine MSM 3,000mg
Grape seed extract 300 mg
Calcium citrate powder 1,500mg
Selenium 200mcg
Co-Enz Q 100mg
1 tablespoon probiotics
Liver support (artichoke and sarsaparilla extract)900 mg- because my liver enzymes have been creeping up since starting Arimidex. Will see in a few weeks if liver support is helping.
Also I added: 3-5 hours a week of hiking (Dr. Susan Love's latest book describes 3-5 hours of moderate exercise, walking, etc., as reducing recurrence rate by 6%) -
Not much of a list:
1000 mg C with bioflavonoids divided doses
alpha lipoic acid 100 mgs, synergy with vit. C
b6 100 mgs, wards off carpal tunnel
cal/mag citrate 1200 mgs divided doses
D3 1000 IU
Vit. E TOS 100mgs, when I remember
CoQ10 100 mgs
Biotin 300 mcg to keep the hair on the head.
Whey protein powder
barley grass -
I've tried to pare it down, but there are still quite a few:
Vitamin D3 800 IUs
Biotin 5 mg (5,000 mcg)
CoQ10 30 mg
Glucosamine, Chondroitin & MSM (1,500 gluc./1,200 Chond.)
Fish Oil 2,000 mg
Vitamin C 1,000 mg
Calcium 600 mg
Magnesium 100 mg
Milk Thistle 175 mg
B-complex
multivitamin
I'm intrigued regarding the selenium others are taking....what is this for? -
Selenium is essential micronutrient. A selenium-deficiency can predispose a person to developing cancer. It helps our immune system function, so it may also help to treat cancer. Donald Yance in Herbal Medicine Healing & Cancer recommends 800 mcg daily to treat bc.
-
OR you can just eat brazil nuts which is what I do. Six a day is all you need according to my natural health nutritionist. I try to get most of my nutrients from food. I eat lots of organic fruits and veggies, lean protein (only free range chicken, grass fed beef and certain fish), use only good oils and whole grains and include at least 4 cups of green tea, ginger root, tumeric and cinammon daily. I take a multi for 50+ which has more D3 (1,000) and B vitamins. I also take a calcium supplement and fish oil. I also drink an organic whey protein shake every morning and take milk thistle seed before my labs.
Margerie, I am surprised you a eating flax seeds daily since they are estrogenic and you are on Arimidex. I am afraid to eat any estrogenic foods even though I know the jury is still out on whether they are good or bad for us with hormonal driven bc.
I also take either NSAIDS or aspirin daily as I've just read too much about their involvement in lowering your risk of recurrence to not include them. I know they are hard on your stomach but I take breaks now and then and they come in handy for my aches and pains from Arimidex. -
I love Brazil nuts
must get some
cashews too
and pecans
oh, dont take advil
if I can help it
but have High BP
and it raises it
how about chromium??
anyone here take it??
I am a firm believer
that my supplements
(& higher power)helped
me through this DX
though my medical team
were not, so I was at
loggerheads
-
Hi All,
This is what I take daily:
Calcium W Vit D 1200mg
Flax oil 4000 mg( I am er/pr neg)
Fish Oil 3000 mg
Curcumin 3000mg.
Flax muffin
2-3 cups green tea
6-8 cups pure blueberry juice
2-3 Tblspn extra virgin Olive oil
OJ for folic acid
square of dark chocolate at least 60%
red wine
I also eat a atleast one salad a day with Romaine lettuce,red cabbage, carrots, and tomatoes.
My veggies are brussel sprouts, brocolli,and spinach, sweet potatoes and any kind of beans.( have minimum of 2 a day of these.)
I eat a normal dinner including red meat, but have a very small portion of that.
Linda -
Liz,
I have gone back and forth on the flaxseed. Used it, read something, discontinued, read something else, started again. I have made the decision that it is doing more good than harm. It also helps me get more fiber in my diet. I have my estradiol checked periodically and it is very low (I think 5). Anyway, this is edge's latest from evidencewatch.com :
Lignans and Flax:
Flaxseed, also known as linseed, is a concentrated source of omega-3 fatty acids and phytoestrogenic lignans. Recent studies (in vitro, animal, and epidemiological) suggest that dietary lignans may be chemopreventive by virtue of anti-estrogenic, anti-angiogenic, pro- apoptotic, and anti-oxidant mechanisms (see Webb & McCullough (2005): Nutr Cancer (2005): Dietary Lignans: Potential Role in Cancer Prevention, who found the most support for a role of lignans in cancer for premenopausal breast cancer; see also Godnough, Nutrition Bytes (2005): Antitumorigenic Effects of Flaxseed and Its Lignan, Secoisolariciresinol Diglycoside (SDG).
Although MD Anderson Cancer Center, CIMER (Complementary/Integrative Medicine Education Resources) Reviews of Therapies (2005): Herbal / Plant Therapies: Flaxseed & Flaxseed Oil (Linum usitatissimum) which cautiously concluded that there is not sufficient human evidence to make a recommendation concerning flaxseed consumption and breast cancer risk reduction, another systematic review - Memorial Sloan-Kettering Cancer Center (MSKCC) About Herbs (2005): FLAXSEED ( Linum usitatissimum. Family: Linacae) - concluded that flaxseed has been shown to have chemoprotective effects and that mice studies have shown that flaxseed inhibits the growth and metastasis of human breast cancer, prostate cancer, and melanoma, and that furthermore flaxseed was also as effective as hormone replacement therapy in improving mild menopausal vasomotor symptoms.
McCann et al., Int J Cancer (2004): Dietary lignan intakes and risk of pre- and postmenopausal breast cancer found that premenopausal women in the highest quartile of dietary lignan intake had reduced breast cancer risk, but no association was observed between lignan intakes and postmenopausal breast cancer, concluding that dietary lignans may be important in the etiology of breast cancer, particularly among premenopausal women).
More recently, the RCT study of Thompson et al. (Clin Cancer Res (2005): Dietary Flaxseed Alters Tumor Biological Markers in Postmenopausal Breast Cancer) examined the effects of dietary flaxseed (daily intake of 25g flaxseed-containing muffin) on tumor biological markers and urinary lignan excretion in postmenopausal newly diagnosed breast cancer patients, finding reductions in two biological markers (Ki-67 labeling index and c-erbB2 expression) used to measure cancer cell growth, and an increase in apoptosis, suggesting that dietary flaxseed has the potential to reduce tumor growth in patients with breast cancer; the researchers suggest that the anti-proliferative action of flax was comparable to results for tamoxifen and aromatase inhibitors in other studies. And the review of Hanf & Gonder (Eur J Obstet Gynecol Reprod Biol (2005): Nutrition and primary prevention of breast cancer: foods, nutrients and breast cancer risk) observed that lignans from traditionally made sourdough rye bread, linseed/flaxseed and berries are local sources of potentially cancer-protective phytoestrogens. We note that the bioavailability of the antitumor component of flaxseed, the enterolignans, was 28% greater with ground flaxseed compared to whole flaxseed, and furthermore crushed or milled flaxseed was 43% more bioavailable compared with ground flaxseed, so it is clear that crushing and milling of flaxseed substantially improves the bioavailability of the antitumor enterolignans (J Nutr (2005): The Relative Bioavailability of Enterolignans in Humans Is Enhanced by Milling and Crushing of Flaxseed).
Evidencewatch Commentary on Lignan Consumption and Breast Cancer
Although these findings, especially those of the Thompson study (above) are highly promising, the quite small number of subjects studied (19 and 13 respectively in the treatment and placebo groups) as well as the very short study duration (approx. one month) caution against drawing definitive conclusions concerning long-term flaxseed consumption benefits for women with breast cancer, and it is certainly highly premature to suggest that flax/lignan consumption may be a substitute for tamoxifen and/or aromatase inhibitors.
However, that said, given the well-known healthful benefits of flax/lignan consumption, and the potential for other positive health benefits independent of breast cancer risk, suggests that incorporation of high fiber flaxseed/lignan components into the diet appears to be without harm and may be healthful overall, especially for premenopausal women.
And for menopausal women, there may also be a benefit: the randomized blinded crossover trial of Dr. Lorraine Turner reported at the annual breast cancer symposium sponsored by the Cancer Therapy and Research Center held in San Antonio (Turner et al., 27th Annual San Antonio Breast Cancer Symposium (2004): Does flaxseed relieve vasomotor symptoms?) found that flaxseed (40g daily consumption) significantly relieved vasomotor hot flashes in 85 postmenopausal women treated for breast cancer, with the fall in hot flushes correlating with a rise in urinary lignan markers, an important finding suggesting that lignans may potentially be deployed as an alternative for hot flash relief in women who have undergone breast cancer treatment, and possibly other postmenopausal women in general; the median number of hot flashes - from a baseline of 208 per month - was reduced by 38% during flaxseed supplementation. Furthermore, despite some previous studies appearing to suggest that isoflavones can cause hypothyroidism, the study found that flaxseed was not associated with any thyroid function abnormalities.
The Thompson study is confirmative of the earlier work of Brooks et al. (Am J Clin Nutr (2004): Supplementation with flaxseed alters estrogen metabolism in postmenopausal women to a greater extent than does supplementation with an equal amount of soy) which found that dietary supplementation in postmenopausal women with 25 g ground flaxseed (but not with 25 g soy flour) significantly alters the metabolism of estradiol in favor of the less biologically active estrogen metabolite (2OHE1).
Furthermore, given the fact that enterolactone is quantitatively the most important circulating lignan, Pietinen et al. (Cancer Epidemiol Biomarkers Prev (2001): Serum Enterolactone and Risk of Breast Cancer: A Case Control Study in Eastern Finland) examined the association between serum enterolactone and risk of breast cancer, finding a significant inverse association between serum enterolactone and risk of breast cancer was seen both among premenopausal and postmenopausal women, and noting that high enterolactone levels were associated with higher consumption of rye products, tea and higher intake of dietary fiber and vitamin E.
And following up their earlier research, McCann et al. (Breast Cancer Res Treat (2006): Dietary lignan intakes and risk of breast cancer by tumor estrogen receptor status) have further established that the observed inverse association of lignans with breast cancer may be limited to ER- tumors.
High-fiber Diet:
Although some studies fail to support a strong association between fiber intake and breast cancer risk (Cho et al., Cancer Epidemiol Biomarkers Prev: Premenopausal dietary carbohydrate, glycemic index, glycemic load, and fiber in relation to risk of breast cancer), more recently, and more definitively, found that a high-fiber, low-fat diet intervention is associated with reduced serum bioavailable estradiol concentration in women who have breast cancer, with increased fiber intake independently related to the reduction in serum estradiol concentration (see Rock et al., Clin Oncol: Effects of a High-Fiber, Low-Fat Diet Intervention on Serum Concentrations of Reproductive Steroid Hormones in Women With a History of Breast Cancer; see also Mattison et al, Br J Cancer: Intakes of plant foods, fibre and fat and risk of breast cancer - a prospective study in the Malmo Diet and Cancer cohort, where it was found that high fiber intakes was associated with a significant 40% reduction in breast cancer risk, and that the lowest risk of breast cancer was associated with the combination high fiber-low fat). Note however that intake of dietary fat per se has not been conclusively established as associated with higher breast cancer risk. Nonetheless, increased dietary fat is typically associated with increased caloric intake, in turn potentially leading to overweight and obesity, which are known risk factors for breast cancer, thus motivating in this way a low dietary fat diet. See also the work of Australian researchers Graham Giles and colleagues (Giles et al., Int J Cancer (2005): Dietary carbohydrate, fibre, glycaemic index, glycaemic load and the risk of postmenopausal breast cancer) who found that that increased intake of fiber and carbohydrate may be associated with the diagnosis of cancers of more favorable prognosis, and the earlier results of the DIANA Trial (Berrino et al., Cancer Epidemiol Biomarkers Prev (2001): Reducing Bioavailable Sex Hormones through a Comprehensive Change in Diet: the Diet and Androgens (DIANA) Randomized Trial) who found that a radical modification in diet targeted to reduce insulin resistance, and involving increased phytoestrogen intake, decreases the bioavailability of serum sex hormones in hyperandrogenic postmenopausal women; see also the review of these issues by Michele Forman (J Nutr (2007): Changes in Dietary Fat and Fiber and Serum Hormone Concentrations: Nutritional Strategies for Breast Cancer Prevention over the Life Course).
More recently the UK Women's Cohort Study conducted by Jane Cade and her colleagues at the University of Leeds (Cade et al., Int J Epidemiol (2007): Dietary fibre and risk of breast cancer in the UK Women's Cohort Study) -
Linda...I LOVE that you include dark chocolate and red wine in your list of supplements!
I forgot..I've also added a whey protein drink to my day and a baby aspirin (as Liz said..just in case). Also found a good calcium citrate at Whole Foods today and am upping my dose a bit to 1,050 mg in divided doses. -
Funny about the chocolate! I found 70% bars in my local health food store yesterday. Isn't that great.
-
I'm stage IV with weekly navelbine and herceptin.
Fish Oil
Astralagus
Danactive, but mvoing on to more potent probiotics from Health food store
B complex
Multi vit, heavy on B and A
Accupunture for the se's of chemo and immune system -
Anyone heard about taking miatake mushrooms? Also what
about greens? I am just starting to supplement and most of what is listed by you was on the list I was given...I think I am having trouble with the CoQ10, but I am not sure. And then my question is can you or did you take during Chemo or Radiation? Did you tell your doctor or
just do it. I am a newbie...just had my post op visit this week and waiting to see an Onc (Stage 1, grade 2, E+ (82%)....looking for any advise -
bump....in response to post inquiring as to fish oil dosage and supplements ('suppliments')....
-
Quote:
Anyone heard about taking miatake mushrooms? Also what
about greens? I am just starting to supplement and most of what is listed by you was on the list I was given...I think I am having trouble with the CoQ10, but I am not sure. And then my question is can you or did you take during Chemo or Radiation? Did you tell your doctor or
just do it. I am a newbie...just had my post op visit this week and waiting to see an Onc (Stage 1, grade 2, E+ (82%)....looking for any advise
I can't tell you about the mushrooms. I was told not to take any supplements while on chemo or radiation. I can't remember if I was allowed a multi? Had I to do it over again I may have taken the Co enzyme Q 10.
I think it has been shown to help protect the heart from
damage from Adriamycin. -
1000 D3 summer, 2000 winter (November to April)
1000 c
4 fiber capsules
500 mg calcium twice a day (in the form of yummy dark chocolate - Adora) after meals
Probably ought to go back to fish oil but I can't remember which one i was taking that didn't bother me and now the ones i have do....
Tried glucosamine and chondroitin and it really didn't do anything for me and was way too expensive.
Eat a primarily organic, local, vegetarian diet. Lots of fresh local (especially now - 25 yards from my door) greens. Drink a moderate amount of red wine.
Live healthy, exercise, do my best to be loving and enjoy the world around me. -
Margerie,
You mention Dr. Love's newest book. What is it called? You are the second person that has mentioned her book.
Thanks, Ann -
I have read no antioxidants during chemo.
Also read alcohol is a bc promoter and that flaxseed is a great preventive measure.
How about soy what the heck is the deal with that? From what I read whole soy products are ok, supplements are not.
I hope some of these magical herbs/supplements are helping me.
How about tonics? Anybody do them?
Dr Love's Book is the same title, just updated and for some reason smaller I believe. -
What is the whey protein for?
I haven't heard about the asprin being beneficial.
I go back and forth about what to take. It can be overwhelming. Right now I'm taking:
Calcium/Magnsium 2:1 ratio
multivitamin and/or B complex and C
Milk Thistle
D
I probably need to get on a good program and stick with it. I wish I had a natural medicine person here.
It would be nice to find a really good list for all of us that would include brand names. -
The latest on soy is that it could be clogging arteries. Genistein in soy must be very powerful, it promotes the growth of a tumor and now it could also be clogging arteries.
I take whey protein cause I don't eat much meat or other sources of protein, plus is has essential amino acids that aren't in plants. I just make sure I'm not eating whey from injected cows. -
I take
Q 10 150 mg
Selenium 200 mcg (if I remember)
Vit D 3 1000 - 2000 mg
Maitake 1000 mg (thinking of switching to D-Fraction which is more expensive)
Men's Multi (has no Iron, I don't menstruate, Iron can damage your liver if you have to much)
Fish Oil 3000 mg
Vit. C 1000 mg
Calcium 1000 mg (chewable, the big pills give me tummy aches)
Turmeric (3000 mg up from 2000, when I don't take it, my hotflashes are back and penguin walk as well...funny isn't it?)
Forgot to add Melatonin 3 mg (per onc's recommendation for sleep, he takes it too)
I am going to get Astralgus today (Dr. Weil's recommendation for immune support) and Grape Seed.
I am on the fence with DIM, thought about it, am to scared with all the estrogenic write up on it...it does make sense BUT....don't know)
I stopped my red wine completely due to Edge's posting on bc.watch....makes sense
God Bless -
I take many, many things but I'd recommend that most people would benefit from a multivitamin. Several docs suggested I take one that was low in copper. The only one they could name was 'Multi-Vi-Min without Copper'. I found it on iHerb and by special order at my local supplement shop.
Copper is needed for the development of new blood vessels and some cancer patients accumulate high levels of copper in comparison to zinc. The doc tested my copper level and found it to be OK, but still recommended a vitamin low in copper. -
BBS, what is considered low in copper. How many mgs? I thought if you took X amount of zinc you needed to add copper. Or maybe I'm wrong.
Shirley -
I don't know that I can give you a value for copper to look for in a supplement--my doc didn't want my supplements to add any copper and my blood level was apparently OK.
From what I've read, we want more zinc than copper in our blood and we also want high magnesium levels. If you Google 'copper zinc cancer' you'll find that many cancers co-occur in people with high copper to zinc ratios.
This article may be helpful:
http://www.ncbi.nlm.nih.gov/sites/entrez...t_uids=16570028
BACKGROUND: Experimental data suggest that zinc, copper, and magnesium are involved in carcinogenesis and atherogenesis. Few longitudinal studies have related these minerals to cancer or cardiovascular disease mortality in a population. METHODS: Data from the Paris Prospective Study 2, a cohort of 4035 men age 30-60 years at baseline, were used to assess the association between serum zinc, copper, and magnesium and all-cause, cancer, and cardiovascular disease mortality. Serum mineral values measured at baseline were divided into quartiles and classified into low (1st quartile, referent group), medium (2nd-3rd quartiles), and high (4th quartile) values. During 18-year follow up, 339 deaths occurred, 176 as a result of cancer and 56 of cardiovascular origin. Relative risks (RRs) for each element were inferred using Cox's proportional hazard model after controlling for various potential confounders. RESULTS: High copper values (4th quartile) were associated with a 50% increase in RRs for all-cause deaths (RR = 1.5; 95% confidence interval = 1.1-2.1), a 40% increase for cancer mortality (1.4; 0.9-2.2), and a 30% increase for cardiovascular mortality (1.3; 0.6-2.8) compared with low values (1st quartile). High magnesium values were negatively related to mortality with a 40% decrease in RR for all-cause (0.6; 0.4-0.8) and cardiovascular deaths (0.6; 0.2-1.2) and by 50% for cancer deaths (0.5; 0.3-0.8). Additionally, subjects with a combination of low zinc and high copper values had synergistically increased all-cause (2.6; 1.4-5.0) and cancer (2.7; 1.0-7.3) mortality risks. Similarly, combined low zinc and high magnesium values were associated with decreased all-cause (0.2; 0.1-0.5) and cancer (0.2; 0.1-0.8) mortality risks. CONCLUSIONS: High serum copper, low serum magnesium, and concomitance of low serum zinc with high serum copper or low serum magnesium contribute to an increased mortality risk in middle-aged men. -
Interesting,
I knew to take zink when I had a cold....
Has anyone taken or heard of the benefits of Boswellia?
Sounds very interesting...
God Bless -
Hi Calico,
In Breast Cncer Watch Issue 2 Edge (Constantine Kaniklidis) writes about Boswellia and its use particularly in its use in Brain Mets It was the April 13th issue
http://breastcancer.evidencewatch.com/
CAM Interventions
Boswellia
The gum-resin of the Ayurvedic plant Boswellia serrata, otherwise known as Frankincense, and an active lipoxygenase (LOX) inhibitor with some clinical benefit in osteo- and rheumatoid arthritis and other inflammatory conditions, appears also to be of value in brain metastases, as the (arachidonate) LOX pathway is implicated in brain tumor growth, via the production of leukotrienes which are brain tumor stimulative as well as inductive of brain edema53: Dana Flavin at the Foundation for Collaborative Medicine and Research presents a case report of a breast cancer patient who had not shown improvement after standard therapy for multiple brain metastases, which were successfully reversed using boswellia54. This is consonant with previous demonstrations of boswellia exhibiting activity against brain tumors55,56,57, by it would appear the potentiation of apoptosis induced by TNF and chemotherapeutic agents, as well as by the inhibition of TNF-induced invasion and RANKL-induced osteoclastogenesis and suppression of NF-kB activation and consequent down-regulation of MMP-9 and adhesion proteins58. In addition, high-dose boswellia (1800 to 3200 mg/daily) appears effective in the reduction (30%) of peritumoral edema and associated symptomology prior to resection for recurrence in patients with malignant glioma who were prohibited corticosteroids59, and this efficacy of boswellia in treating brain edema has been confirmed in other human trials60,61. (Boswellic acids have also been found of clinical value in asthma, colitis ulcerosa, osteoarthritis, and inflammatory bowel diseases, as well as in brain tumors62). -
Wow,
I was reading the osteoarthitic stuff in combination with Turmeric and thought it could be beneficial for our bone pain with the AI's (and my daughters hip problems )
The above article however is awesome news. I read of trials involving regular brain tumors as well.
I hope something good comes out of the trials.
God Bless -
ive been told in research and by holistic healers that the more co-q the better. but at the very minimal least should be 100mg a day and a realllly good place to be is 300mg a day. but its obviously very expensive. just my 2 cents.
-
the flax muffins dont have the whole seed in them, do they? as you may know, the body can not digest them whole, they should be finely diced, because even when crushing them, the oxidation process my lose vital nutrients.
-
I was under the impression that we shouldn't take boron (which is in multi-vitamins) due to it's estrogen-like properties.... Has anyone else heard this?
Also, I though magnesium helped with calcium absorption? But it can also be a cancer causing agent????
I did read that we should all be taking vitamin E to help keep from developing blood clots (especially important to those on tamoxifen or AI's)
It's so hard to decide, since so many thing conflict with different issues you may be having. I know that some of the things that are good for bc recurrence prevention, can contribute to blood clots (for which I have a genetic predisposition.....) Yikes! What to do???
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