tubular carcinoma

Options
Ainslee
Ainslee Member Posts: 6
edited June 2014 in Canadians Affected by Breast Cancer
Hi all,

I am actually posting for a friend of mine.

Brief history...I was diagnosed 3 years ago at age 38 with IDC and went the chemo (CEF) and reconstruction route. Now my childhood friend has been diagnosed at age 40 with tubular carcinoma. We cannot find much info about it on the net since it is so rare.

She lives in smalltown Ontario and has been told *she* must decide on what she wants for treatment. This is the exact opposite of how my diagnosis was done. I was told what I would be getting...no ifs ands or buts.

Because there is so little information about tubular carcinoma her doctors are telling her that Tamoxifen should be enough. The cancer was caught early (mastectomy, grade 1, .8cm, no node involvment and Her2 negative).

Her prognosis is excellent (even without chemo) but she doesn't want to have any regrets.

I'm hoping there is someone out there who can give us some insight. I also posted this message on "Just diagnosed".

Thanks!
· Share on FacebookShare on Twitter

Comments

  • TenderIsOurMight
    TenderIsOurMight Member Posts: 4,493
    edited March 2008
    Your friends physicians must guide her, not she alone. British Columbia has excellent comprehensive cancer centers, and may well be worth the trip.

    A must know is if your friends "tubular cancer" is purely just "tubular". If so, this is a better prognostic pathologic type. Many times these lesions are tubular featured, with varying percentages of tubules in the cancer,and sometimes called tubular so this is an important point for her to find out.

    Her younger age (40) and close to 1 cm size of the lesion (at 0.8) at least merits discussion of chemotherapy with the experts (designed to eliminate distant disease).

    But very important is what is her estrogen receptor (ER) status. If that is positive, she might welcome the expert's news on hormone therapy and statistics.

    Good luck to you both. You sound like a wonderful friend!
    · Share on FacebookShare on Twitter
  • abbie10
    abbie10 Member Posts: 25
    edited June 2007

    Sounds like me. cancer size of a pea. Stage 1 tumor was tubular ,this is good.. very slow growing not agresive type. I read it is rare less than 1%, if you could look at the tumor it looks like small tubes. estrogen and prog was close to 100 percent positive for both harmones. I am on AI. They told me I could live to be 110 of age(my cancer Onc. doctor) with all this, did the radiation with 10 boost, AI for five years,and test on tumor done in CA showed a low range score 17. Test cost $3700. but Blue Cross insurance did pay for the test. This let them know chemo would not be an advantage for me, not needed. If you want a score if the cancer will come back in this type of combination it would be 98%. Tell her she has a very good outlook to live a long time and probably remain free of a return from this cancer.

    · Share on FacebookShare on Twitter
  • Toronto
    Toronto Member Posts: 118
    edited June 2007

    Could she get another opinion from one of the major cancer centers in Ontario? Unless she is way in the north, she's probably fairly near one of them.

    · Share on FacebookShare on Twitter
  • Ainslee
    Ainslee Member Posts: 6
    edited June 2007
    Thanks to all who replied to my message.

    I appreciate your wisdom and support.

    Cheers,

    Ainslee
    · Share on FacebookShare on Twitter

Categories