Anyone else HER2+, ER-, and slightly PR+?

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k4katz
k4katz Member Posts: 240
edited June 2014 in HER2+ (Positive) Breast Cancer
Hey ladies, my onc is recommending that I start tamoxifen after I finish my herceptin in December. My second opinion onc did not recommend the tamoxifen since I am ER- and only slightly PR+ (17%). Does anyone else have a similar dx? And if so, did you/will you do tamoxifen?

Thanks!
Kristin
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  • SheriH
    SheriH Member Posts: 785
    edited May 2007

    I just found out that my pr/er are only slightly positive, but my onc still recommended 5 years of arimidex.

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  • threadbear
    threadbear Member Posts: 50
    edited May 2007

    I was HER2+, ER, PR+, but I don't know how strong. My onc put me on tamoxifen anyway. We are planning on taking it for 2 years, then on to an AI (I'm 52, and in "chemo-pause).

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  • mickey53
    mickey53 Member Posts: 6
    edited May 2007
    I too am Her2+, ER-, PR weakly+. I began Arimidex on Jan 4/07 for the next 5 years. I was not impressed with some of the potential SE but my Onc said it help improve the effectiveness of Herceptin. He also said he would advise his wife to take it in a similar situation as mine but could not guarantee that she would do as he advised, lol . I have the joint aches etc but otherwise am doing well, just hope my Muggas will stay up (only 50 2 weeks ago).

    Cecile
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  • k4katz
    k4katz Member Posts: 240
    edited May 2007
    Thanks for your responses! I am so NOT looking forward to the tamoxifen. Hot flashes, weight gain, ugh. But if my onc thinks it will help keep the beast at bay, I guess I will just have to bite the bullet!
    Kristin
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  • kath11
    kath11 Member Posts: 102
    edited July 2007
    Kristin,

    I read your diagnosis on the roll call and sent you a private message, then I found this thread with my same question. I just found out today I am HER2 positive after they redid my path with a FISH test. Same diagnosis as you and my onc. says probably no Tamoxifen or Arimidex. That worries me. I think I'll get a second opinion. I want the most aggressive treatment I can get.

    Kathleen
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  • slonedeb
    slonedeb Member Posts: 562
    edited July 2007

    girls can you help me with this i am er pr post her2 neg what does this mean they said i couldnt do herceptin what do you thinki dont know nothing about this her2 stuff

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  • simeon
    simeon Member Posts: 14
    edited August 2007

    My estrogen receptor was 9 and my progesterone receptor was 72. I wasn't quite sure how to read the report but my onc always considered me to be negative and after having A/Cytoxin and 5FU (back in 1994) I did not have any further treatment until I had a recurrence last year and then was tested for herceptin which was positive. Hope this helps alittle but probably just more confusing with everybody getting a different treatment. A second opinion is always good if you are unsure.

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