Inflammatory breasr cancer

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  • nagem
    nagem Member Posts: 353
    edited May 2007

    Yours is a very tough story. But if it helps, I do know a number of IBC patients who are doing very well. The chemo is difficult to get through—but that's because it's such powerful medicine. I found drinking lots of water and exercising even when I felt rotten helped move the chemo through my system faster. Good luck to both of you!

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  • Samala
    Samala Member Posts: 2
    edited May 2007
    Hi,

    I was glad to see that you are a seven year survivor of IBC stage IIIb. I had IBC IIIb also. I had my mascetomy in July of 2006 and am doing well. You give me hope...Are you on hormone therapy and what did you use? Thanks...
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  • bburnett
    bburnett Member Posts: 16
    edited May 2008

    To: Tina in Tx.

    I am pushing at the moment to get a dr. to order/schedule me for the type of biopsy that will diagnose IBC or not. What should I expect from this type? of biopsy, and is there 1 distinct term for it?  What were your earliest symptoms?  I am also in central texas.

    Thanks, bb

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  • suzyq18
    suzyq18 Member Posts: 33
    edited May 2008

    hi bb i was diagnosed the ibc last august. i had 2 biopsys 1 from the lymph nodes and 1 from the bresat  this was a core biopsy, it was uncomfortable and i had a small amount of bruising, but it gave accurate information that it was the dreaded ibc. i started fec chemo within a week, then a masectomy, and radiotherapy, i also take tamoxifen, it has been a struggle but i am not feeling 2 bad at the minute tired from the rads,and sore my symptoms were the itching and inverted nipple i also felt exhausted, hope u get on ok and the results are negative, suzyq 

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  • bburnett
    bburnett Member Posts: 16
    edited May 2008

    To: Tina in Tx.

    Thanks for your response. I already had a radiology biopsy, needle-guided lumpectomy, and a lymph node removed last Fall, because the biopsy said the lump was malignant. The lymph node removed was declared clear. Now, 6 mos. later I have had this large itchy patch on the same breast, but farthest from the lumpectomy, over a month. I've had a new mamo and sono, detecting nothing, then tried 3 different  prescriptions, to see if it would get better or go away. It hasn't, and my research tells me the only way to know for sure if it is IBC is to have a surgical biopsy, because sometimes it doesn't develop into any lump to be detected by the prior tests. I don't know what exactly this type of biopsy is, other than, probably removing a sample of several skin layers from the pink, itchy patch. Does this sound like what I should expect?  Where did you have your diagnosis, and mastectomy?  I think I am probably more nervous about getting this diagnosed than most, because my husband was diagnosed with Early Onset Alzheimer's well over a yr ago, at the age of 55, and deteriorating rapidly, and because of that, have some other urgent things to take care of in the next few months, that can't be done from a bed or a clinic. Given the aggressive nature of this possibility, you could easily say that I am a basket case most of the time, now. I've tried, and can't get anyone, who can do this type(surgical) biopsy, for at least 2 weeks more. Thanks, bb

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