anyone starting chemo in Nov 2005

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  • kim825
    kim825 Member Posts: 284
    edited May 2007
    That is such a beautiful pictures Odalys.

    Hope you all had a wonderful Mother's Day!
  • LAT56
    LAT56 Member Posts: 79
    edited May 2007
    Hello everyone!! I've been trying to post for a couple of weeks but there's been some type of problems!??

    Kim - Glad to hear the great news regarding your scans!!

    Odylas - What a gorgeous picture!!

    I've been busy with my daughter's wedding plans. The time just seems to be flying by - its less than 2 weeks away!
    Between work & this planning, I am exhausted. I pray each day that I have the energy to enjoy this special time. I also pray that I REMEMBER to do all of the things I'm supposed to get done each day!! LOL I have so many lists!

    Hope everyone had a wonderful Mother's Day!!
    Love,
    LAT56
  • AnnaM
    AnnaM Member Posts: 1,387
    edited May 2007
    What a beautiful picture, Odalys!

    Margerie, I hope all is well.

    Lat56, I know how busy a daughter's wedding can make you; mine got married on May 22, 2004 and I will never forget that day as long as I live. It was an outdoor wedding; we were so busy worrying about the 17-year cicadas and the possibility of rain that we never even thought about the temperature. It was a whopping 95 degrees that day. Somehow nobody noticed, though.

    I saw the new oncologist and she does everything differently. Here I've been getting tumor markers taken every month and she doesn't do those at all. She wanted an MRI of both breast areas (flaps now) and the axilla. I had that done the next day, namely, yesterday. Waiting for the results. I hope the only reason she wanted those was to have a baseline of all my scar tissue, nothing else.

    Sister-in-law is here; little dog was ultra sick yesterday and last night and I spent the day at the animal hospital with her. She seems a lot better now. Some worm that comes from eating bird poop. I've been telling her not to eat that stuff!!!!! Three hundred dollars worth of doggie care and meds. Yikes...... To make matters worse they shaved her little tush, just one week after I spent a fortune at the groomers. Ah well. At least she's back to her wiggly little self now.

    I can't even believe how much I am running around. I hope this doesn't go on till our departure on the 4th.

    Lots of love to all my sisters,

    Anna
  • Odalys
    Odalys Member Posts: 2,103
    edited May 2007
  • kim825
    kim825 Member Posts: 284
    edited May 2007
    Hi all. No chemo this week. My RBC, WBC and platelets were very low. Hopefully next week they will be up and I can get chemo. Dr. feels the carbo "finally" did it to me. Figures because I only had 1 left. I don't know if he will give me the carbo next week.

    Lat56- how exciting for you and your family as the wedding gets close.
    Anna-I hope the little doggie is on the mend and feeling better real soon. Hope everything is great with the scans. She probably wants a baseline like you said.

    Hope everyone is ok and having a great week.
    Kim
  • AnnaM
    AnnaM Member Posts: 1,387
    edited May 2007
    Little doggie had to go back to the animal hospital and spend the night. I got her back last night and she is starting to wiggle again. Forget about the $300; now the tab is more than double that figure. Jeeps, they forgot to tell me how much of a luxury a pet can be!

    I'm glad to hear you are doing well, Kim.

    Still no news about the MRI. I will call the dr's office on Monday.

    What a nice card, Odalys. I agree, there's no way I could have gone through all this without you guys.

    I hope all my sisters are having a beautiful weekend. The weather here in Virginia is spectacular. It sure makes one love life even more.

    Love to all, Anna
  • Odalys
    Odalys Member Posts: 2,103
    edited May 2007
    Hi ladies,

    I'm writing this note with such sadness in my heart. My boss (who is also a good friend of mine) has been fighting this beast for over 3 years. She had her reconstruction surgery in January and soon after surgery developed respiratory problems and ended up in ICU. It was there they discovered she had mets to the lungs. She recovered and completed over 25 weekly chemo treatments. She was very excited to finish her second go of chemo but just this week they discovered she has mets to he brain. She has taken a leave from work and thinks she will return after completing rads. However, the rumor in the hospital is that she won't be able to continue doing her job. One of the VP's wants to speak with me first thing Monday morning...not sure why.

    Anyway, I just spoke with her and had to refrain from crying because she kept saying she does not know what happened because she was doing so well. It sadness me to see her so fragile and in such disbelieve.

    Crap! Crap! Crap! I hate this hideous disease. For the love of God...I hope they find a cure fast!!!!! I don't want to loose another loved one to cancer! I'm going to keep praying for her and for all of us.

    Ladies please say a prayer for her. Her name is Liz. Sorry for pouring my heart on here but I know you all understand and can also share my pain.

    I love you all.
  • kim825
    kim825 Member Posts: 284
    edited May 2007
    Odalys I am so sorry to hear about your boss. May God give her strength to get through this next hurdle. I will keep Liz in my prayers.

    Anna, poor little puppy, and your poor wallet.

    huge hugs for everyone
    Kim
  • Margerie
    Margerie Member Posts: 526
    edited May 2007
    I am so sorry about your friend Odalys. Of course, this haunts us all and it sucks! I hope you are strong for yourself and for your friend. SHe is in my thoughts.

    Kim- I hope treatment goes well for you this week. Eat your spinach! I saw a naturopath and he has helped me rebound my blood counts from chemo. Your poor blood cells have been thru the ringer. I hope you continue to regress on those scans and can get a chemo break soon!

    Anna- we have been lucky in the vet bill department. Do you have safe (non-recalled) puppy food? I hope puppy is feeling better.

    I forgot to say I finished my reconstruction 2 weeks ago and I am so happy. The nips look unbelievably real. He did the tattoo already. All that is left (cross my fingers) is 6 months of herceptin and getting the port out at the end of the year. I guess I have no more excuses not to loose weight now. I dropped desserts every day- 5 pounds already came off. I am also hiking nearly every day.

    Hope everyone has a safe and fun holiday weekend. My, my how time flies. Summer almost here!

    Love,

    Margerie
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited May 2007
    Here are some pictures from this week end. Wanted to show you all my hair. I think this time last year I was bald.

    I posted a long post just a while ago. Lost the whole thing. I was doing some silly venting. I have no right to fuss over stupid stuff. So I'm glad it was lost.

    Odlays I will pray for Liz, and also you Kim. Odlays your picture is stunning.

    Love and Hugs to you all.


    Sebastian and I

    image

    image

    My Granddaughter the second from the left. She is now a teenager.

    image

    Relay for life, the wind was blowing very hard and it was so cold....I'm never cold, never ! LOL

    image

    I didn't get a bag for us yet. I'm going to another one the 22 of June. I had to make this one quick, because of the birthday trip. But I was thinking of you all.

    Love you all!
  • Odalys
    Odalys Member Posts: 2,103
    edited May 2007
    Mary Lou - So good to see you again. I guess your new grandson is keeping you busy. He is such a cutie. I wish I could pick him up. I love carrying babies. Please give him a big hug for me. Great pics, you look great! Wow, amazing how much hair in one year.

    Okay, off to work. Take care friends and have a great day.
  • AnnaM
    AnnaM Member Posts: 1,387
    edited May 2007
    Odalys, I am so sorry about Liz and I will pray for her. We have a prayer box at my church and I will put her name in there; they pray for that person for one month within our group and then send the name on to be prayed over for another month. I believe prayer is important.

    That's why I pray for you, Kim. You are always in my thoughts.

    Puppydog is doing so much better. No, I was careful not to feed her any of the foods on the bad list. We only give her dry food, Newmann's Organic, to be precise. She's her bouncy little self and she showers us with love.

    So, the MRI showed a suspicious node in the axilla, so the new oncologist sent me to have an ultrasound, which I had yesterday. The ultrasound showed the same suspicious node but with no clarifications on what made that node so uncertain, so now I have to go in for a needle biopsy next Tuesday. OMG, this is EXACTLY where I was two years ago, just as we were getting ready to go away for four months then, too. Two days before our departure I had the iffy mammogram and embarked upon the testing nightmare. Here I go again. I am not freaking out, but I am summoning all my serenity, all my strength of mind, to be calm and okay with this.

    On Friday we leave for stepdaughter's graduation from medical school. I will put on a happy face for my hubs, because all this is very difficult for him and he does not get along with that daughter at all.

    Sister-in-law is here and is helping by babying the little dog and taking her out when we are gone doing the testing, etc.

    Mary Lou, your hair is sooooooo long! I had mine trimmed a bit yesterday, not too much though because I do like the curls now, so some length is actually nice. My hairdresser marvels over the fact that my hair is now thicker than it used to be and my curls haven't gone away at all. A nice change. I had her put a few highlights in there so my hair looks very very blonde again, I like that.

    Margerie, your nips will only get better and better. Mine were pretty pointy the first month, but now they are almost a year old and I think they look incredibly real. That's nice that you got the tatoos right away and didn't have to wait at all.

    Love to all of you and let's hope we will all have good news soon.

    Anna
  • Odalys
    Odalys Member Posts: 2,103
    edited May 2007
    Dear Anna,
    I'm going to focus on you getting good news. No more bad news for any of us! I will pray on you getting b9 results and as always will continue to pray for all of us. Thanks for praying for Liz. I will speak with her this weekend and will let her know there are many people praying for her. I'm sure she is grateful.

    OMG - your poor doggie. I hope she gets better and stronger cause vet bills are not fun. Wow, your dil is graduating from medical school - what an accomplishment.

    BTW- I mailed out the surprises this week. I hope you like it. It turned out to be a family project.

    Ok, have to go get dinner on the table. I'll talk with you all later.

    Love and hugs,
  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2007
    Oh How I have MISSED YOU!!!!!!!!!!!!!!!!!!!!!!

    I have only a moment to write, because I just tried to catch up on everyone and everything! Wow----in a nutshell, I continue to pray with a loving heart for all of us and our friends who deal with the beast as well.

    Our house is such a project, but I love our new area and I marvel each day at how nice everyone is here! Greg and I are constantly saying in disbelief, "Where did we move to?!?!" because everyone is so darned friendly!

    New pictures look fantastic, everyone!

    Odalys, LOVED my surprise! Thank you so much, you are such a blessing of a friend.

    Love and prayers, Deb
  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2007

    oops, ML-how many of us are left on the box journey?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2007

    Hey, where is everyone?

  • kim825
    kim825 Member Posts: 284
    edited May 2007
    Odalys, I loved my surprise. Thank you very much for the survival kit. I am going to put it in my chemo bag and take it with me every week. I remember when the boys started kindergarten the teacher gave out similar survival kits.
    MaryLou,loved the pictures. Your hair is beautiful. Our Relay for Life is this weekend. I am carrying the torch for our team and have to write a little bio about myself.
    Anna, I am praying for B9 results. I am thinking of you today as you go through the needle biopsy. Lots of hugs and prayers for all my sisters.

    love,
    Kim
    Margerie, I am glad reconstruction is done.
  • Margerie
    Margerie Member Posts: 526
    edited May 2007
    Had a great weekend up in the mountains. Am in full tea party gear for DD's 4th birthday. I have lost 16 pounds in 2 months (I think 5 was from the lipo)- keeping up the good work and maybe I will be at my college weight by the end of summer.

    I am thinking of you Anna. Hoping it is just scar tissue or something benign. Arrgghh- sometimes I hate scans.

    Kim- hoping treatment goes well this week. Your last carb if I remember right?

    Best to you all,

    Margerie
  • AnnaM
    AnnaM Member Posts: 1,387
    edited May 2007
    Odalys, thank you! The surprise came just at the right time for me. What a dear friend you are.

    I just got home after spending the entire day in medical facilities. I went in for the needle biopsy this morning, but the pathologist said she needed to do it with a radiologist who could guide her with ultrasound, so she scheduled me at a different place for this afternoon and met me there. She ended up having to stick me twice, but said in her preliminary report that there is no malignancy, just atypical cells. She told me the oncologist will probably want the node surgically removed so it can be tested further, but I spoke with my breast surgeon last week and he told me that he is the one who would have to remove the node and he will refuse to do it. He says my axilla will always be "suspicious" now because it is reconstructed. I just wish my new oncologist had called him before placing me on this medical merry-go-round. It looks like the three tests will end up costing my insurance around $6,000; the MRI bill alone was $2,800 and that's without the fee for the doctor who read the film. There must be something wrong with our system. WHAT IF I DIDN'T HAVE INSURANCE? What about the women who don't?

    Anyway, I have pursued the weird node as far as I want to and now make my peace with it. My funny little atypical node. I embrace it and bid it well. I invite my little node to live with me and caution it not to try to disrupt my life any more than it already has.

    Love to all my sisters, thank you for being there for me!

    Anna
  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2007
    Oh Anna, praise GOD! I am sorry I didn't acknowledge your testing, I don't know where my mind is (perhaps still in a box in our basement?). I am so glad the news was good.

    I am in nervous mode about my tailbone. It is a little sore, as if I bruised it, but I don't recall doing so. My cancer sister at church who was dealing with mets at the same time as my dx. discovered her mets from a similar pain.

    I don't see my oncologist for about two more weeks. Do I wait?

    Now, a mommy question. How do I get ink out of the couch cushion? Daniel was bored the other day when I was on the phone.

    Speaking of, the child is still awake and has been repeating my name for the past hour over and over and over!!!!!!

    Oh, there was something else but I can't remember right now.

    Love and prayers, Deb
  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2007
    OH, and Margerie, way to go on your get skinny endeavors! I personally am becoming quite a fatty lately and know darned well I have to stop enjoying my blizzards from DQ.
    Love and prayers, Deb
  • LAT56
    LAT56 Member Posts: 79
    edited May 2007
    Hi everyone!!

    My daughter's wedding was this past Saturday & it was beautiful!! The weather was perfect, the bride was gorgeous, the groom handsome, and we served over 400 people at the reception!
    My cheeks are still sore from smiling & laughing!

    Deb - Glad to hear that you love your new home & neighborhood.

    MaryLou - Beautiful photos of you & your grandson! Your hair is so long!! Our Relay is scheduled for June 15th. I hope the weather cooperates. Last year it was way too hot and humid!!

    Odalys - I have added your friend's name to my prayer list. I will also say a prayer for her family.

    Margerie - You are an inspiration with your weight loss. I've been trying to lose weight but with the stress of the wedding, my diet was awful & there wasn't much energy left over for walking! Plus the wedding cake was delicious!!

    Kim - My prayers are with you as continue your treatments.

    Anna - How you shared your feelings regarding the "weird node"!! You just laid it out there and put that node in its place! (Hope your little dog is doing better!)

    After looking at pictures from the wedding & reception, I realize that I have lost a few moments in time. I've been having problems with my memory, but I was hoping that this was such a special occasion, that my lingering "chemo brain" wouldn't cause any issues. Thank goodness we have pictures!!

    I am running late - have to get to work.
    Hugs & prayers for all,
    LAT56
  • AnnaM
    AnnaM Member Posts: 1,387
    edited June 2007
    Congrats on the wedding, Lat56. I'm sure you are glad to have all that work behind you!

    Yep, the path report did come back saying the node needed to be removed for testing to eliminate any concern about cancer. Ain't going there....

    I am over my head in packing, trying to get the next four months' of my life into one medium size suitcase. Yikes! I have eliminated and eliminated and need to put even more back. My hubs is taking two polos and a pair of shorts. He tells me we have clothes over there, but I can't for the life of me remember what I left. Also, will it fit? Will I want to wear it?

    I sent the vitamins and little doggie toys/treats ahead.

    I also have to close this house for four months. Help!

    So, I will be ckecking in here from time to time. I couldn't handle not being in touch with my sisters. Kim, I will be praying for your continued wellbeing during your treatments. Have a wonderful time with those little guys of yours. Odalys, good luck on the new job and have a great summer with Stephen. The same for you, Debbie; enjoy Daniel and your new home. I know you will have a lot of fun spoiling that new grandbaby, Mary Lou. I hope your summer is great. Margerie, enjoy your new skinnyness, those nips, and your three sweeties. lat56, I hope you have a relatively cool summer. I share your forgetfulness. I guess we have an excuse, right?

    I love you all,

    Anna
  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2007
    Ack! Four months of no Anna?! I will miss you so very much, but have a most wonderful time. I had to giggle at how your hubs is taking two polos and a pair of shorts. So true, isn't it?

    I wish I had more time to update everyone but I have to do a very daunting task....job search! We decided that life is just a little too expensive in our new town and we'd like to continue living along the same means we are used to (you know, like having electricity, food, that sort of thing).
    I love you all! Love and prayers, Deb
  • kim825
    kim825 Member Posts: 284
    edited June 2007
    Hey everyone,
    Lat56 congrats on the wedding. I am sure it was beautiful.
    Anna, we will always be thinking of you. Have a safe trip. Looking forward to your updates. Your husband sounds like mine.
    Margerie, congrats on the weight loss. That is awesome. Keep up the great work.

    Chemo was fine today. I am done with the Carbo, so it was just the Abraxane and Zometa. Went rather quickly. My blood work was good and hopefully it will stay that way.

    love to all,
    Kim
    Deb, good luck with the job search. Hope you find something that you will enjoy.
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited June 2007
    image


    Hi all! I had posted a long post before and lost it....I will copy and paste this one if I have to.

    Anna, hope you have a wonderful time....enjoy your time away.

    Kim glad the blood work is looking good, you are always in my prayers along with all of our sisters here in our little corner.

    Lat, nice to see you, I know you are glad all the wedding is behind you. What a joy and a stress all at the same time.

    Marg, congrats on the weight loss, wish I could say the same....LOL Not happening !

    Odalys, thanks so much for the gift. It was so sweet of you.

    Deb, the box is still here....I will do my best to get it in the mail...why can't I do just a simple task??????

    Also congrats on job hunting, it is the one thing that makes life seem back to normal....

    Thank for all the hair comments, I have been wearing it up all week in a pony tail, and hair clip. It feels like my hair again!!!!!
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited June 2007
    I had posted these too....Just wanted to get that post above first. Just in case it was lost again...

    Sebastian in the tub

    image

    My "Hot Flash Avatar" That I made.

    image

    My girlfriend and I at the Relay, she is still in treatment.


    image

    Sebastian again!

    image
  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2007
    Oh WOW is Sebastian a cutie!!!!!!!! So photogenic, too! You can tell he is used to getting his cute little face photographed often, eh?

    ML-before you mail the box off, can you let me know who is left on the list? I'm so stinking excited to see it resurface!

    No jobs available in this area! At least, none I'd want. Daniel's new school is offering the possibility of my being a teacher's aide, or a substitute teacher for half days. That wouild be ideal!

    I'd better go.
    Kim-before I forget, I'm so glad to see that tx. is going pretty well for you (you know, considering the fact that it is treatment....). I just wanted you to know I haven't forgotten you!

    Oh yeah, did any of you ever see the new(er) Hallmark cards they have for cancer patients? They are really great. There are cards for losing your hair, treatment extended, half-way through treatment, and lots more. They are so well worded, I was impressed!

    Gotta go, Love and prayers, Deb
  • kim825
    kim825 Member Posts: 284
    edited June 2007

    I haven't seen the cards. I need to check that out.

  • LAT56
    LAT56 Member Posts: 79
    edited June 2007
    ML - LOVE the pictures of the baby. ADORABLE!

    Our Relay for Life is next weekend. I am decorating a Luminaria in honor of my November '05 sisters and will list your names! On the back, I will thank all of our family & friends whom we've received support from.

    LAT56

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