Sexuality and stage IV
Tracy
Comments
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Tracy,
I am not stage 4 but I have been exactly where you are now.I finished chemo Nov 06 and I still have alot of fatigue.We had a very active sex life pre BC.We went 3 months recently and he never complained.We have been married 17 years and though I love him with all my heart and find him just as attractive as ever.But when I am tired I just don't have sex on my mind.Of course,I feel guilty and I start thinking he will look elsewhere.You know,I'm sure that sex involves other things than actual intercourse for his pleasure.Good luck Tracy,I wanted to let you know that I understand.
Hugs,
Lisa -
What about non-intercourse forms of sex?
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Yes we have talked about that. I have TMJ so one of those forms does not last as long as he would like and the other he says he can take care of himself so he is not interested. I have done some research on the internet about the esring sp? and vagifem but I am really concerned about that getting into my blood stream. My understanding is it is a use it /lose it and the more you use it the easier it is. The big problem is I don't want to use it...I think I would like a quick fix but I think this will probably take time. Do you know anything about the estring? some doctors seem to think this is safe and other say no way. any experience with this?
thanks for the response!
Tracy -
I am a stage III'er and I must admit since this all started I have no desire at all. This is something that really upsets me. My husband hasn't complained...but this bothers me. But when chemo started I had absolutely no interest...felt to sick. Then after chemo with just the stress of weekly herceptin, never ending doctors appts, Zoladex and Femara. (The list goes on.) Plus I just recently had a prophylactic mastectomy and followed that up with a ooph on April 5th. Here I sit with my drain still in after 37 days and stitches from my ooph. It was a couple days BEFORE my ooph and I had a melt down. It came out of no where. I just blew up and started crying telling my husband this whole thing just SUCKS! Its bad enough to have bc and deal with that. Then you have to have your breast cut off and your ovaries removed. I was just nuts that day. (My poor husband.) But that day it really got to me. Its bad enough to go through chemo, herceptin and other treatments...then have all the parts of your body that make you feel like a women REMOVED. I miss our sex life. I use to enjoy it. Now I feel like its never going to happen again. As one person mentioned..I can certainly make my hubby happy another way...but it still comes down to me missing it & wanting that closeness we had.
So you are NOT alone on this one Tracy. I've had many a melt down over this one thing.
Chelee -
Yes it is a tough subject, Tracy. As odd as it might seem, this is a very common problem that medical providers refuse to deal with and that women are silent about, partly because it can seem ungrateful for "more important" things. I am only stage I, 5 years out, and was only 50 at dx, and find it hard to deal with even though I use the Estring by recommendation of the oncs that I've had. It is a trade-off. The Estring does nothing for libido, which is almost zero, nothing like it was for me before dx. Entry is still dry and difficult even with the Estring plus lubrication, for me. The whole experience continues to be 100% a mechanical exercise that thankfully is reasonably brief and I wouldn't do it at all except for the love of a good man. It is, however, hard to accept that this is a permanent chore instead of a permanent pleasure.
There is a clinical trial phase III for a drug that may be helpful eventually.
Personally, I think that each one of us who refuses to be silent with our health care providers is doing the next woman who comes along a very big favor.
Much sympathy,
AlaskaAngel -
You are singing my song. I am 42. Same issues. I have been doing a little 'soft porn' and good lube.
Janis -
Thank you, all, for addressing this subject so candidly. I have been very sad about my lack of interest in sex, it is another thing I find to cry about. My husband and I have been together 30 years and he has always been a great lover, but I can honestly say I have enjoyed sex with him more in the last 10 years than the first 20...until chemo.
I miss not only the physical release but the emotional intimate connection. Plus I feel as though I am letting him down although I will have sex with him any time he wants except when I am really feeling the chemo side effects. He doesn't push it though because it hurt me the last few times, plus he always took great pleasure in my pleasure...and that just ain't happening no matter what we try. I worry about how this is affecting my husband, and I worry that once I start the anti-estrogen drug, I will face 5 years of even less interest, if that's even possible.
My cancer therapist gave me the name of a female doctor in Newport Beach, CA, who specializes in helping women with this type of problem. I cannot personally recommend her because I have not yet scheduled an appt., not because I don't consider this a priority but because I am dealing with more problems with my elderly mother that are eating up my time. If anyone lives in the area and is interested in the doctor's name, address, and phone #, just PM me, and I will be glad to give it to you.
Another one who understands completely, too... Sybil
DX IDC Stage 1(or 2, depending on which onc you ask -- 2 tumors), Triple Positive, Oncotype DX 35 High Risk,
Surgery BCS 12/23/06,started Chemo 2/25/07,but just found out mid-April one of my tumors is confirmed to be HER2 + -
Hey Ladies, add me to the list. I finished chemo, then had a mast, just had the exchange in April and now I need a hysterctomy. And thru it all my hubby has been so patient. But I have absoulutely zero desire, which seems odd given how much I love him. So when I feel a bit better (between the mast and the hyst!) I'm gonna try what Janis suggested, even if we use a tube of lube each time! I'm kind of desperate; we had a great sex life and it feels like that's gone too, along with all my female parts. This so sucks.
Julie -
There is much, much more discussion about this problem going on in the forum section under "moving on" or after-cancer. So... take a look!
A.A. -
Tracy and all, I have the same problems and tried lubricant which only helped with immediate penetration. My onc suggested Replens (OTC) a vaginal moisturizer. Really solved the pain issue which helps with the lack of drive issue, too. Your pharmacist might have to order it, I've never seen Replens on the shelves at pharmacy. Hope this info might be of use to you. Engrid
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I'll try to be diplomatic...
Invite hime to take a shower with you.. Take matters in hand...Wash vigoursly..Repeat as needed...
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Ugghh, I am glad I am not the only one. I feel bad about it. And even brought it up to my onc. She really didn't have anything for me as she said most people just never bring it up. I know about the pain and dryness. Worse than losing your virginity, every time. I am 37, my husband is 30! Very frustrating! I take care of him, but it is not the same. I have NO desire for sex period. Makes me sad!
Anita
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Bimmer.
I laughed as I read your reply to my husband. I said a man wrote this. And I was right!
A sweet recomendation. -
Oh Bimmer - I laughed to when I read your post. I think every time I say I'm going to take a shower, my husband announces that he needs to take a shower too! Thanks for the smile
Wendy
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