New here and would like to offer some hope

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juneaudenali
juneaudenali Member Posts: 2
edited June 2014 in HER2+ (Positive) Breast Cancer
Hi everyone,
I have been lurking on this board for a few months now. I was diagnosed in January, had double mastecomy, 4 FEC and just started Taxatere, Carboplatin and Herceptin, I am stage 3a, 36 years old with three wonderful boys (8, 6 and 3). I have been so scared and devastated and feel like I am doomed! The more I read about her2neu the more I freak out!!! The first oncologist I went to see treated me like I was already half dead. I ran out of his office crying and ended up with a great doctor.
My new oncologist has quite a few patients, that are doing just fine. She even had one call me, who was also stage 3 (7 pos.nodes), she is out 9 years! Our oncologist prescribed her herceptin off label because she knew it was a good thing even back then.
As I crave positive stories I am sure you guys are as well, so I thought I'd share!
Peace,
Dagmar
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  • stacey2930
    stacey2930 Member Posts: 210
    edited May 2007

    Okay here's a very positive story. My sister was diagnosed with IDC very aggressive tumor with 2 positive nodes in 1989 she was 38 years old. She had chemotherapy. 18 years later she is STILL cancer free, living in her dream home in Tennessee. I was diagnosed in 05 with IDC.. Hope I'm as lucky:)) stacey

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  • juneaudenali
    juneaudenali Member Posts: 2
    edited May 2007
    Stacey, that is so wonderful for your sister!!! Thank you for posting that. I hope you will be that lucky, too, heck, all of us!
    Just reading around on these boards makes me feel so much better, such wonderful women here!
    Thank you,Dagmar
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  • lexi4
    lexi4 Member Posts: 1,074
    edited May 2007
    Thanks for sharing your encouraging stories. I have been feeling teary lately and they do help!

    Hugs,
    Lexi
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  • BeeMack
    BeeMack Member Posts: 40
    edited May 2007
    I too am a relative "newbie" and want to be here to give hope and encouragement. I call myself a BC overcomer even though I have just had my MRM April 19. I went in a T2, N1, MO, and the end reports were T2 N2 MO..I 'think" I moved up to stage IIIA from 2B because of the nodes. Tumor was 3CM ER/PR/HER-2Neu +++. POSITIVE is one of the main keys to overcoming...so I will be delighted to hop in with positive. How many of you all have done the "Shrink the Whale" activity? I told my cancer support nurse at the hospital about it...she was going to come to this site and do it herself! It sure helps put things in perspective.

    I love you ladies and I don't even "know" you.

    Becky
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  • nitewind
    nitewind Member Posts: 64
    edited May 2007

    "Shrink the Whale"?? Sounds like something I'd like to hear more about.

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  • BeeMack
    BeeMack Member Posts: 40
    edited May 2007
    Teary is good too Lexi. I "allow" tears a couple of times a week. I am post MRM and was bemoaning my "non cleavage" last night. But I also have to laugh about my "falsie" popping up out of my blouse in the mall the other day. Use the pocket, use the pocket...LOL. Humor goes a long way, as well as hearing great survival stories..overcomer stories. They are all around us!

    Here's a big hug for my Sisters of Hope.

    Btw...Shrink the whale can be found on this site...excellent perspective excercise!

    KEEP THE FAITH and KEEP THE SMILE.
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  • lexi4
    lexi4 Member Posts: 1,074
    edited May 2007
    Thanks Beck. I am normally pretty strong, but this past few days I have really felt emotional. I have been having some unusual aches here and there and of course asume the worse. But, I know a good cry is cleansing...just getting tired of messing up my mascara..LOL

    Thanks for the hug, hugs back.

    Lexi
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  • josied0
    josied0 Member Posts: 66
    edited May 2007
    Lexi-

    I was dx 12/05 and I find I am very emotional and often...although I am strong and positive...sometimes I get in my bathtub and scream under water and sometime I almost stomp my feet through the tub I fear...thank goodness I live in an old house with strong iron tubs...ouch!!! I have a 4 year old so I try not to scream in front of him too much !!! It can be aches, lonliness, I struggle with "when am I going to get back to being myself"....and I am really just coming to realize I will not go back...I will only move forward and although things will be different I will be stronger and better and able to help others so much more!! Fists up.....cry and cleanse then count your wonderful blessings.....lots of hugs....JoAnna
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