dence breast and considering a mass anyone else

boston91 · February 2007

i had a lump because i just wanted tumor out. i know it could still come back on chest wall or skin. But I wonder if I had a full mass and nipples gone. Would it give me any odds of less recurrence.

Fitztwins · February 2007

I think so, but no guarantee. I had one mast. I wish I would have had a double.

Janis

Anonymous · February 2007

There is always a small amt. of breast tissue left, even after mastectomy. It can and does recur sometimes, even w/mast.However, depending on the size of your tumor and whether chemo, radation or any recontruction is going to be done, you just have to think "what do I want to do?"

I chose lumpectomy even tho I was told I should have double mast. I had no choice really, I have other illnesses that didn't allow me to have that major surgery.. Now I have to have hyst.-- GO FIGURE> If I could have done the mast, I would have in a heartbeat, no looking back!

Blessings.

Anonymous · February 2007

tam1953 · February 2007

Yes, I've been told that double mastectomy would reduce the chances of recurrence by 98%.

I've currently had a lumpectomy. May decide to up it to a mastectomy at some later date. It's a big decision. Tam

lguise · April 2007

Hi,
In February 2007, I was diagnosed with high grade DCIS, comedo necrosis with a core biopsy (Mammatone). I got a second opinion which changed the diagnosis to "ductal interepithelial neoplasia, Grade 1". I then got a third opinion, which again changed the diagnosis to "atypical ductal hyperplasia". All three pathologists used the same slides. The surgeon suggested I have an excisional biopsy to determine once and for all if it is DCIS or ADH and when I got th e results back, all he could tell me is that all the suspect tissue was removed during the earlier core biopsy and the margins (unspecified by the pathologist)were normal tissue. So the issue remains - I am in that "grey area" between ADH and DCIS but the problem is that the treatment plan for each is very different. My oncologist has offered Tamoxifen but I am wondering if I should consider a) a mastectomy or b) radiation before Tamoxifen. I am consired to be at a 4x higher risk for invasive cancer and I feel that the offer of Tamoxifen just doesn't cut it when it comes to reducing the chance of recurrence. My gut is telling me to treat this as DCIS and get a mastectomy.

jan125 · April 2007

I have always heard to trust your gut. If I were in your shoes, I would do the mass.

jdash · April 2007

i wish i had trusted my gut 10 yrs ago when i had my lumpectomy stage 1
redx stage 3 dbl mast and had great plastic surgeon very happy : )

moogie · April 2007

My breasts were so dense imaging was poor surveillance, and My MRI's were progressively abnormal. If you have been told you don't image well...I'd consider the mastectomy....because a dense breast can have a lot going on we will not see. Or see if you can get into an RPFNA program, that samples cells from around the breast to get a general picture of activity on a schedule. It is painful, but it is another source of information for you.
Moogie

30something · April 2007

Yes, being young, 32 at diagnosis, dense breasts... didn't show up all that was there... 2 years down the track have recently had another mastectomy, and reconstruction after initially having lumpectomy, then mastectomy... rads, chem... peace of mind was a huge factor... and I feel I have made the right decision for me, it took awhile to reach that decision in my head and heart, so take your time and chat to who you need to, to feel you have weighed up the pros and cons
Good Luck!

Anonymous · May 2007

Post deleted by bco-administrator

boston91 · May 2007

Thanks for replies. I am thinking I will go for it. I had rads though so not sure if reconstuction would work well for me. I am at two years May 15 th. Maybe I will go to a plastic surgean and see what he thinks. Wish I had done it in the beggining but just wanted cancer out. Hugs

dence breast and considering a mass anyone else

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