Starting Chemo in JAN 2007
Comments
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I'm surprised with Boston being the medical mecca it its, that there isn't a tumor bank. That's what they call it at OSU. Jeez, I guess I'm glad mine is stored there. I assumed everyone's was stored somewhere...
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Tonsils in a jar at school! LOL! Nowadays they'd call in a hazmat crew!
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Welcome back Mary!!! I, too, forgot about the "socks". Glad you are feeling so well.
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Hmmm...this is worse than chemo.
I also have strange blood bruises that look like a string of small beads following the arteries in my arms and legs. Last week I had a lot of irregular heartbeats and felt breathless a lot..tomorrow I see the cardiologist. I hope nothing too wierd is going on.
Hair: it's growing back on my head, but very strangely, I suddenly lost most of my eyelashes and more than half my eyebrows last week, after surviving most of chemo (chemo was done March 5). Anybody else losing hair AFTER chemo?
Gosh MzSissy,
I am thinking the same thing about the rads. They say that the rads are a breeze after chemo, but I am starting to think different.
They just better make sure they don't hit my heart or my lungs with the damn radiation. Don't need no scar tissue there.
I love my chemo team but not sure about my radiation team. It's a new Dr. She is an asian woman. (very cute and sweet) but the staff seems very unimpersonable. Today, while I was getting set up for my rads, I went upstairs to my chemo dept. just to say hi and feel the love. They were awesome up there compared to the rads dept downstairs...
I'm gonna' keep close tabs on you MzSissy. After I go for my Cat Scan and tattoos tomorrow, I should start next week. Dang, and my birthday is on the 8th. What fun....
As far as the hair, my hair is coming in as peach fuzz. To little yet to really know what's up. I'll tell ya though, the rads better NOT make an interferance on our hair coming back in.
Peace... -
good to see ya back Mary ...socks ? i ha no socks i guess Canadians do not get them
ya my avatar i have been playing about at photobucket its cool heres me full length , i do not think this board supportbigger signatures and stuff
I am i the zone man ...... dope be gone .....
Rebecca hang in there take her easy I am thinking by the time next weeks rolls around I may start to realize hey do not have to go back .
robinjaye : i still have to go for rads have my appt ext week .... as long as rads do not make me poop and puke i will be happy .... and i can get outside this time man it was a longggggg winter
Mel can you walk in those socks ? ohhh hope swelling gets better -
RobbinJaye that CAT scan stuff is easy compared to chemo no worries. But if its the same stuff I had it makes you feel warm and then you feel like you have to pee (but you really wont). Its a bizarre feeling, but lasts only a few moments.
Well twice today people told me I must be so happy to be heading towards that last chemo - one of them is my business partner and a wonderful friend so I just set her straight. She got it. She also offered to keep my kids for a week when I eventually do recon. Wow. She has no kids and lives 7 hours from here, so that's a really generous offer from out of nowhere. I don't think I could have the kids that far away from me, but awesome of her to put it out there. They would have a blast with her and her husband. -
Congrats Rebecca on completing your chemo regime!! And Mary it's good to hear that you made it thru the surgery with flying colours!! I did take the Hex off the Red Wings, but it didn't help them.
Amera, Lynn & Viddie, you look wonderful in your pic! Jan I love your wig, it doesn't even look like a wig.
I had my appendix out in Hawaii in 1979, so it gives me a reason to go over there to visit them. I don't know what they did with the appendix, or my boob, for that matter, and to be quite honest I never even thought about it until you brought it up Lynn. Interesting topic. Once the tissue doesn't have a blood supply to it, I don't think it lasts long, so I guess they figure the pathology report will be the lasting document that has to be referred back to.
Those compression leggings drove me nuts...especially trying to get them off when you have to go to the bathroom.
I had my MRI yesterday, will not have results until May 11. On Friday I go for my radiation simulation. I'm still not feeling very good. I was out planting my dahlias, and I think I overdid it, as I fainted on the back lawn. Woke up to my dog laying beside me, and licking my face. Yikes. My sister who is the nurse says she thinks my blood counts are really low, so I'd better take it a bit easier.
Robertin I'm getting a passport pic, with my wig on. A passport is only good for 5 years in Canada.
Shorti, love the avatar.
Mel, hope that swelling goes away soon. MizSissy, glad to hear your heart is okay. Skye & Melia, good luck with your treatments!!
Back to the couch for me...watching hockey again tonite.
Big Hugs...Joni -
Joni, you fainted!?! Please be careful not to overdo it again. I guess I'll stop rolling my eyes at my mom when she tells me not to walk the dogs without my cell phone (not that I'd be calling anyone if I passed out). Take it easy.
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Jan, because I live outside of Calgary, and I'm usually walking along the irrigation canals I always take my cell. I actually fainted twice since my last chemo. Once in the house and then yesterday outside. I'm still feeling yucky too, so that last FEC really hit me hard, and they do say it has a cumulative affect.
I know on my last blood counts that my Red Blood cells were down, and I think that has an effect. I've always had low blood pressure, so that can cause you to faint too.
Just have to learn to take it easy, which is not something I'm used to doing.
Take care...Joni -
Joni, like that new avatar. That's a long time to wait for your results from your MRI. What are they doing there in Canada? Let's hope the Wings can at least make it interesting tonight although I doubt that I will make it up for much of it. Didn't get much sleep last night at the hospital with all of that peeing. You better be careful out there in the sun!
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Yea!!!!!!!! You're home and doing well.
Hope you're able to get comfortable and will sleep well.
We've been thinking about you.
Cindy -
Obviously my expectations were way off. I'm in week one after my last two-week cycle of Taxotere. In my mind I knew that it would be some time before I felt stronger, wasn't so quickly fatigued but I just want to be stronger NOW!
I went for a 3 mile bike ride on Sunday and nearly had to call for an ambulance. I became very short of breath and before I knew it was gasping for air. I was barking like a seal. I've never experienced air hunger before. I don't want to again.
I'm still only working about 5 hours a day. I get so tired after the 5 hours I can barely drive the 30 minutes home.
I just hold on to the onc.'s words that one day I'll wake up and realize that I do feel better, more 'myself'. I'll just have to not expect that to happen so soon.
I am getting hair, though! My daughters check every few days when they stop over and they tell me that it's growing like crazy. It's a full head of fuzz with a few thin spots that I can see. It's very very salt and pepper. I've been coloring my hair for the last 12 years so I really don't know what it was before the chemo fall-out and I don't how much chemo has effected it.
The eyebrows are still dropping and my lashes are nearly non-existent. I can pencil in the brows but my eyes are also still watering too much for me to try to do anything about the lashes.
The journey goes on..........
and on..............
and on..........
Cindy -
and there isn't anything significant.
Hope this week is better for you!
Cindy -
YEA!!!!!!!!!!!
Hope this week is sweet and easy for you.
Cindy -
Joni, Shorti - exactly 40 years ago today the Toronto Maple Leafs last won the Stanley Cup - and it's been a drought ever since - and Joni- be careful - you too Mizsissy - they're not kidding when they say not to overdo it. My onc. specifically warned me not to overextend myself, saying that while exercise is good for me, my strength and healing are more important right now during chemo. I find the first week after the chemo (FEC, and now Taxotere) is a write off, but then I can maybe do a 30 minute walk outside or on the treadmill every couple of days. We are supposed to have sunny dry weather over the next week or so,hopefully I'll get outside to walk. And I had been going to a fitness club religiously for nearly 2 years before this and been down nearly 20 lbs - 10 are back because of the chemo and inactivity - but I will think about this tomorrow (like Scarlett O'Hara)...
Cindy, - yes it seems endless, but we are getting there.
Mary, glad you are doing well. Just be careful and don't push it.
hugs to all
caya -
Hi all,
Rebecca,
Congratulations on your last chemo. How time flies! Pretty soon all of our hair will be back- and we will be so happy-Will time fly between now and then??
Mary,
I am so glad you are home and done with surgery. I hope you are feeling okay.
Skye,
I am glad you are feeling better.
Joni,I am glad you are okay. Fainting must be scary.
Cindi, & Mizsissy,
Please take it more slowly. It is great to feel good enough to cycle, but a little at a time is better right now. You can build up your resistance slowly, and before you know it, you will be going longer. It is so tempting to push ourselves when we are feeling good, but we have to be strong enough, and you will be soon.
Melia,
Good luck tomorrow.
Mel,
I am surprised your PL would make a judgement based on just being 2 weeks out of treatment. Don't you have 5 more weeks to go? He should see you the 6th week before he decides. Now, thanks to you, I will wait until a week before my surgery to see my PL. I plan to have my surgery 4 weeks after my last taxol. That is what the breast surgeon suggested. I hope she is right and I am strong enough.
Off to bed- taxol/herceptin tomorrow!!
Viddie -
Cindy, that sounds like an asthma attack. Do you have any spring allergies? I do and I have asthma so biking outside right now is not the best thing for me. I know driving home can be hard especially if it's sunny and you are squinting into the sun. That makes you even more tired. Maybe you should eat something before you start your drive, just a granola or protein bar or oj. I am envious on the hair issue. I am however enjoying the bald head while I'm recuperating -- no wigs for me right now.
I got a good night's sleep, thanks to Vicodin and Restoril (sleeping pill). I am about to go attempt a shower.
It looks like we have some beautiful sunny days here. Friends are coming over with food the next few days. My darling son comes home from college tonight. He even called me yesterday to see how I was. That was a special occasion - he never calls - boys are like that. The only emotion he shows is his voice gets deeper. What a funny guy. Red Wings won but I missed it -- sleep was more important. -
Cindy ... does sound like asthma; please take it a little easier! Mizsissy, hope your energy comes back. It sounds like it takes a while to really recover, and although I won't need rads, I have read that it tires you out quite a bit.
Had my 3rd of 12 taxols yesterday. The dr reduced the amt a bit b/c of crummy wbc. I am very concerned that I won't finish in July. Hopefully the lower dose lets me continue. The nurses in the unit are so nice and they went over the blood test results with me and showed me what to look for, so now I feel more informed. I am trying to get my mind around the idea that this may drag out into august; one lady who missed her chemo appt yesterday was in icu because of her critical blood test results, and I sure don't want that to happen. Does everyone get weekly blood tests thru chemo, or is that just my situation?
I was so drugged that I went to bed at 7 pm but feel better this morning. I am still working fulltime and really want to keep doing that for two reasons; it's good for me psychologically and we need the money. Since people in the industry don't know about the cancer, they treat me normally and Iike that for the most part. Though sometimes a little sympathy would be nice.
My husband and kids have been great; my husband much better since I had a meltdown a few weeks ago when he refused to schedule a getaway with me after chemo b/c of his marathon training. He asks all the time how I am doing now, which he never did before, and he has picked up the errands for the most part. I appreciate it but wish it hadn't taken me raking him over the coals to get what he should have been offering all along. Oh well.
Viddie, good luck today with taxol.
Melia -
Melia, I did get weekly blood tests thru chemo and now still do with the Herceptins which will be weekly til I'm thru with rads, and then every 3 weeks. I'm so glad to hear your dh has really come on board.
Joni and Cindy, fainting...yikes! Please do take it easy, both of you. Hard telling where you might land if it happens again.
Jan, it's great your dh solved your scarf/wig dilemma. Perfect comment! I do like my wig but I'm more and more comfortable appearing in my scarf. I find I enjoy staring back and smiling at people who are staring at me. Some do it so openly.
Mary, high fives on the successful surgery. I had those leg thingeys too after my lumpectomy and had also forgotten them. I'm a total wuss but I remember my post surgery as extremely painful for a long time (which my surgeon explained was because he mushed and rearranged all the tissue back around to make it even), so I marvel at your great recovery from mastectomy all the more. Sounds like you had excellent care, too.
Caya, my onc also warned me not to overdo, and to wait 3-4 weeks to really get going on the exercise other than walking or very light aerobics. He's remembering when I attempted the 45-minute kick-boxing/walking video while on AC. I can still see the look of horror on his face. I may try to dig a few weeds out of my flower garden today, however.
On the hair, mine is thick but extremely short...I think it's shrinking...and salt and pepper. I had very little gray before, and most of it was hidden. And little patches here and there of a handful of inch-long dog hairs. I lost some eyelashes again too so there is a blank quarter inch on my right eye. Seems so unfair to keep losing after the chemo is done, but the dh reminded me this morning that my body doesn't know the chemo is done yet. Drew Barrymore was on TV as we went to bed last night, tossing her gorgeous locks around, and I remarked that I hate people with hair. DH said, "Hair is overrated." Had to kiss him for that. - Skye -
Cindy I really sympathize with being sick of being so tired. Not that this was every fun, but Ive reached a whole new level of being fed up with being sick. Now that my last tx is coming up I want to get back to my life NOW! Its so exciting to hear more reports of hair growth.
Mary so glad you had a good nights sleep. Keep resting. Great to hear you son is visiting and that meals are arriving. I think I know what you mean about boys my youngest brother is 25 and NEVER calls me, but lately I get a call at least once a month (if hes not out on the sub). It seems so strange to me every time he calls. My other brother who lives nearby has appointed himself as my unofficial caretaker. He calls, takes me out for lunch, cooks dinner if my DH has to work late, picks up the kids from school when we can, and on and on. I never knew he could be so sweet.
Melia my blood tests are done right before chemo and at day 10 after each chemo. My counts are always low and getting worse after each round. I am getting neulasta and procrit every time now. When I was in this week another womans red counts were so low that they were going to give her an immediate blood transfusion. That was disturbing to hear! Glad to hear your husband is catching on. Sometimes they just need these things spelled out. They just arent as smart as we are
Skye thank goodness Im not the only surgery wuss in our group. I love your husbands hair comment.
All of you exercising ladies are making me feel very lazy. I usually at least get out to take the dogs for a good walk, but I cant get motivated to do it this week at all.
I am waiting for a call from a ps office in Charleston re DIEP. There is no one here locally that does it. So I am looking into this guy in Charleston or one at Duke. Hopefully one will accept our insurance.
I am still suffering from a serious case of hair envy.
Hope everyone has a great day. -
Good morning laides...
Viddie - hope your treatment went well, and you don't have any s/e.
Mary - glad you are doing well. Enjoy the friends and the food they bring - I have 2 ladies from my choir group who are due by this afternoon to bring a nice tilapia dinner with all the trimmings for us.
Melia - I had to do weekly blood work while I was on FEC - but don't have to do it while on Taxotere - just the morning of treatment, once every 3 weeks.
Skye and others who have hair - I agree with Jan, I have a serious case of hair envy - although I don't miss having to wait 2 hours for my curly hair to air dry in the morning in order to be able to go out... just can't win. The one good thing about all this hair loss is that I am forced to have short hair (when it starts to grow!), I may actually like it -
Beautiful day here, too bad I'm stuck inside doing office work, then have a date with DD this afternoon to make about 8 lbs. of sweet and sour meatballs. Some cousins are coming in from Detroit tomorrow to visit me, so my mother, who makes dinner for the family every Friday night, is having my aunt and unlce over as well, so I offered to make meatballs. So I figured if I'm making them already, might as well make some for the freezer. But Amanda will help me, so it will be okay.
have a great day everyone.
caya -
Hi ladies,
Melia, glad you were able to get your Taxol and hope your counts stay ok throughout. I'm a bit worried about my last TC next week as my counts were real low last time. Good for you that you dh is stepping up!
Caya, those meatballs sound good. I love sweet and sour meatballs.
Jan, I'm right next to you with my exercise...or lack thereof. Just don't have the energy. I've gone on a few walks, but it seems that everytime I'm half way and am exhausted, just not enjoyable getting back home.
Joni, fainting? that worries me, please take it easy and make sure people know where you are.
Viddie, hope your Taxol/herceptin goes good today.
It's a gorgeous day in New England as well. We are supposed to have a long stretch of beautiful weather. Next week is supposed to get to 80 degrees, right when I get my next tx . I think I'll try to spend some of my downtime outside this time..fresh air must be helpful to the chemo fog.
Mary, keep up the healing!
Regarding hair - my body has decided that it's going to ignore the fact that I have chemo stuff in me..all of a sudden I'm growing hair everywhere. Hair on my head is pretty thick and about a quarter inch long, getting eyebrows, had to shave legs and am also growing it 'down there' too, accept still losing my eyelashes. I still have one more TC to go and am so freaked out that it will all fall out again. I've always had fuzz on my head, but it was really scarce, it's different now..thick and has some color as well. -
yes the weather is nice and not too hot . The recovery time is slow our bodies have been through alot . I am waiting until my next chemo should have been and take it from there . My body may be expecting to get hit again . Also our blood counts are still lower than most healthy people each day I say common little white cells grow ..... little red ones multiply ..... also have to remember to eat well get the protein in me .
I do not go for walks yet but do have mini projects on the go . I am refinishing our stairs making a birdhouse , doing chores in the yard like raking and such . I take lots of breaks and hydrate myself alot .Put on a hat and sunscreen and off i go . I also groom our dogs . For me thats exercise . I also do stretches . but not overdoing the aerobic stuff .
Activity is the main thing as long as i am off the couch or bed i figure i am doing good . -
Hi Ladies,
DH put a birdfeeder right outside my office window last year so I could see the hummingbirds really close (about 3 feet). All winter I've had the regular bird feeder there and today a hummingbird flew over and hovered for a bit looking for his food. They are just soooo cute. I have since replaced the regular bird feeder with the hummingbird feeder. Just thought I'd post something nice for us to think about! -
Well, I had the cat scan today. That iodine experience is very werid.
Anyway, I was wondering:
The 3 tattoos they gave me are on my hips and my stomach ...
Does anybody know why they did not put them around my breast?????
I really didn't notice until I got home and took a shower for I was so eager to get out of there when it was done. I will have to wait for them to call me for my next app to ask why. -
Lynn, that's a beautiful mental image of the hummingbirds. I've neglected to put my hummer feeder out, but need to do that. It hangs just outside our breakfast room window. We do have goldfinches and cardinals visiting the regular feeder which is also beautiful. I never did get out to weed my garden, did indoor chores instead. Shorti, your regimen sounds about right to me. I try really hard to listen to my body and today it was telling me to take it easy.
On the hair, it's still just really short stubble... but thicker stubble. I had to laugh this morning when I put a cotton scarf on and the bristle poked right through the scarf on top. Well, that solves the question of how to keep the scarf from slipping out of place! It just struck me as laughable, though it wasn't a pretty sight.
I spent some of my time today trying to clean out my art studio which is a cluttered shambles. I have to say one thing this disease has done is make it much easier for me to toss out crud I would have hung onto before. I think I have better priorities now, and a better sense of which things are really important and which are outgrown or just clutter. I can only do a little at a time but it feels good every time I carry a bag of dreck downstairs. - Skye -
Gee pers Robbin, I go tomorrow now for my tattos, it was suppose to be May 8th, but they have moved my appt up to tomorrow. I would have thought the tattoos would be on your breast. That is weird!!
Love the hummingbird image too!! We won't be getting them for a while...it has poured rain here all day, and now they're saying it could turn to snow overnite, as the temperature is expected to drop. Yuck.
I also have an appointment to see a doctor on Monday at the Breast Cancer Supportive Care center. Each of these doctors (3 in all) have had breast cancer. I will be having a one on one first, and then I'm going to join a group, and that is every week for 10 weeks to go over things like fatigue, exercising, depression, anxiety, nutrition, and even issues around sex....so hopefully it will help me. I've been awful anxious lately, and very weepy, which I think only brings your health down further.
Skye, I love your motto from John Prine.
One of my neighbours is bringing me over a casserole for dinner tonite. They have a beautiful home on the lake in Kelowna BC, and have invited us out to the Okanagan this summer for a week. That is Canada's desert area, and one of the major fruit and wine valleys...so something to look forward to.
Hope everyone is having a good day.
Joni -
My little koala bear buddy in my avatar's name is Smithy. I didn't want to let him go, and they hang on so tight. This was at the Lone Pine Koala sanctuary in Brisbane Australia.....the other guy is my darling Dan.
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Huh, on your hip and stomach. Weird! I got mine on either side of my breast. I can hardly see mine.
I am starting to get a red square in the radiation area. A little itchy too but nothing major yet and I'm in week 3. Still wearing regular bras and doing what I normally do. I am using the approved lotions and Tom's of Maine deodorant. But nothing within 4 hurs of treatment. I think that's partly why I'm itchy. I usually use lots of lotion, otherwise I itch. So I'm not sure which is causing it.
Not tired yet but a few of the gals at rads seem to be feeling it. They are a week or two ahead of me though. -
I wrote our dear Aladora (Susan) in Alberta about a week ago and got a nice long email from her today. She has been avoiding all forums because she just is trying to avoid getting so immersed in thinking about breast cancer...and she asked me to update you all
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I have been avoiding the BC forums since my 4th chemo. I found that I was obsessing about how I was feeling and by doing so, I was feeling worse. As well, two days before my 4th treatment my aunt who was fighting BC for the second time lost her battle and that hit me hard. So, I decided to throw myself into absolutely everything BUT thinking about breast cancer. I do apologize that I didn't let you ladies know that I needed a break.
I am FOUR days away from my final chemo which is on Monday. I am very excited to be done with it although I am facing it with no small degree of trepidation since all of the even numbered chemos (#2 and #4) have been the ones that did not go well, while the odd numbered ones I seemed to sail through. I have had some permanent vein damage to my chemo arm and am worried about having more. I just keep telling myself that this is the last one, the last time that I will have to do this!
Danny is amazing! He is growing like a weed and makes me laugh every single day. I cannot believe that in just over 2 months he will turn 2! I adore him.
I did get the results of the genetic testing and I do carry one of the mutations, the 6174delT mutation on the BRCA2 gene. This is one of the three common ones found in Ashkenazi Jews and is in fact the most common of the three, occurring in around 1.5% of the Ashkenazi Jewish population. I just found out on Monday that my aunt also had this same mutation.
My future plan is to have a bilateral mastectomy with immediate reconstruction via the DIEP procedure if possible. If not, then my plastic surgeon will use the TRAM flap method. So, I'll get a perfectly flat tummy afterwards, something that I certainly have not had in a very long time! My tentative surgery date is July 26th. I am most likely not going to have my ovaries removed at the same time but will instead wait until I am 45 since my risk of developing ovarian cancer at 35 is not that great.
Here's a picture for some of you new joiners who don't know her...
She sends her best to everybody!!!
Mizsissy
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