Starting chemo Sept 05

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  • lynellb123
    lynellb123 Member Posts: 69
    edited March 2007
    Hello My Special, significant & spectacular September sisters! (How's that for alliteration?)It's the start of a much needed Spring Break for me. A whole week off to do nothing but....dr appts., house cleaning, appliance repairs, car stuff, school work, food prep(hosting Easter dinner, shopping for the perfect dress to wear to my godson's wedding,& helping my daughter move into her new apt., (& I wonder how a week flies by.)I also plan to take some time to see a play in NY, get a much needed manicure/pedicure, have my hair professionally colored and sleep in just a little. WHEW!

    I wanted to share this with my sisters. I took a fish oil supplement for one month from a co. called Icelandic Health. The company assured the purity & quality of their product. I realize that after taking the fish oil supp. for a month, I haven't had the aches & pains in my joints & bones that I usually do. I'm wondering if I acted too soon when I recently stopped the aotomatic shipment when I saw the price per bottle ($39.99) The first bottle was a free trial. I purchased another brand from the health food store but I'm not sure about the stregnth of the IU's or effectiveness. On the same topics of supplements, I was reading an article that suggested that DHEA was really helpful for immune function & side effects of menopause. Now I read on the Sloan-Kettering herbal supplement site that anyone who has had estrogen+ BC should avoid this supplement. It also said that if you are taking Tamoxifen, you shouldn't take this supplement as it could cancel out the benefits of Tamoxifen. I think I should stay out of the vitamin stores or at least do my research Before I purchase anything.

    I'll be checking in with everyone this week, Love to all!
  • Pegk
    Pegk Member Posts: 389
    edited April 2007
    You might be in Morocco now having a wonderful time. I hope so, and I hope you come home rested, relaxed, energized with a bunch of pictures.
    I hope this is the start of a Happy and Healthy year!
    Love,
    Peggy
  • tinkermax
    tinkermax Member Posts: 269
    edited April 2007
    Hi everyone!

    Just thought I would add a link to a well known internet site which is based here in Guernsey

    Lynellb, the link shows the Omega 3 at the same strength as you had, but as you can see it is much cheaper.

    There are also, lots of reports you can read on this site.

    Hope you all find it informative

    http://www.healthspan.co.uk/shop/product.aspx?id=O3-1

    I get surgery in 10 days...and cant wait!!

    Hugs to all of you.
    Maxine
  • Calico
    Calico Member Posts: 1,108
    edited April 2007
    image

    Happy Birtday Sandra, hope you have a super day!!!!!!

    God Bless
  • lynellb123
    lynellb123 Member Posts: 69
    edited April 2007

    Happy Happy Birthday Sandra! I hope you're enjoying Morocco & having a fantastic time. Wishing you a year of Health & happiness

  • txred9876
    txred9876 Member Posts: 392
    edited April 2007
    Happy Birthday Sandra!

    I worked so hard over the weekend I had to come back to work to rest! We are finaly working on the house a little bit more now that my hubby is feeling some better. It seems like it is a never ending project...LOL

    I need a vacation....might take one with my daughter to go see my family in oregon this summer. Not sure yet....but it sure would be nice.

    take care and you are all in my thoughts and prayers!
    Tina
  • Liezel
    Liezel Member Posts: 192
    edited April 2007
    Happy Birthday Sandra!!!

    I am done with Herceptin!!! Happy Dance.... It felt so different from finishing my original chemo. When I walked out, it felt right. After chemo, I was still very scared.

    Anyway, can't wait for my reconstruction. Keep delaying it though, hoping to get a bit fitter before, and also don't want to do it before my or DH's b/day. So hopefully by end May.

    Things are well, just very busy. STill very hot, hoping it will start to cool down soon.

    Sandra, hope you had a great b/day in Morocco, and that you celebrated with some hubbly bubbly!!

    I hope you are all well. Think of you often. Have a good Passover Linda, and a good easter all! Enjoy the chocolate... I am going out to celebrate tonight!!

    Liezel
  • txred9876
    txred9876 Member Posts: 392
    edited April 2007
    Congrats Liezel! (Nov seems so far off for the end of my herceptin!) I am starting to get into a routine though....

    Work is still wearing me out. I moved to the 7am-4pm shift as it allowed me to spend more time at home in the evening with hubby and daughter. I like getting it out of the way, but it has been very tiring and many nights I do not make it past 7! I hope I get used to it a little more....

    Take care all
    Tina
  • Calico
    Calico Member Posts: 1,108
    edited April 2007
    Hello ladies,
    just a quick Hello....I am reading often, just so "tired" with responding and put it off all the time...sorry.

    I am seeing a therapist because of anxietey and insomnia and sofar am not impressed.
    Also talked to somebody regarding meditation, starting next week. I feel actually stressed doing this but I cannot sleep and I need help with unbecoming a zombie lol.....

    I had my first diet coke at 9 am today just to stay awake, that was after a pot of coffee.....grrrrrrr.....

    Good news from my mom, she responded well to chemo, original size was 2.8 cm and it is almost all gone. She had 3 FEC and one Taxol, going for two more T's....feeling the effects in hands and feet and the (oh so well known) bone pain. The doc (resident onc) told her she would not get pain and did not give meds....poor thing was sitting there all weekend long with what we all experienced...can't imagine not to take Advil at least....she went to her GP and got some and also stuff for upset stomach.

    We booked a vacation to Mexico....the first big vacation ever. We are going late May for 11 days....expensive...do I care?
    So now I can deal with my fear of flying....ha! maybe if I add to my anxiety it will become zero....like mathproblems...negative times negative makes positive..


    Liezel,
    glad for you for going to get recon. Congrats on being DONE with Herceptin!!

    Maxine,
    only a few more days before surgery, how are the jitters?

    Leanne,
    enjoy your vacation.

    Lynell,
    Sam’s Club has Fish oil at a good price, I get mine there, I think it's 10 Dollars for 300? I swear by it and Turmeric for bone pain, also started to take Maitake capsules, very expensive by NewChapter....gosh, I hope it will build immune defense....my white counts are at the lowest normal and I seem to get colds which I never had before bc...

    I look forward to coloring eggs with my daughter, we will be tie dye-ing (sp????)lol eggs this year, should be fun.

    Everybody stay well, enjoy some Easter chocolate and have a wonderful weekend!

    God Bless
  • Pegk
    Pegk Member Posts: 389
    edited April 2007

    Congratulations, Liezel, on finishing herceptin!
    Tina, you'll get through it, too.

    I'm happy to hear the good news about your mother, Calico.
    I hope therapy and meditation help your outlook. You've been through so much. Are you reaing ravel books about Mexico? That should help, too.

    Maxine, I'll be thinking about you this week and will be looking forward to hearing good news about your recovery.

    Happy Passover! Happy Easter!

    Peggy
  • foxxf
    foxxf Member Posts: 171
    edited April 2007
    Leizel, congrats on being finished herceptin, no more needles!!!! (for a while anyway)

    Calico, so glad your mum is responding well, the chemo side effects are easier to deal with if you know that it's kicking the cancers a$$!!

    Maxine best wishes for a speedy recovery.

    Tina rest as often as you can, you are doing well.

    all is good here start my Job as Canteen manager on Mon 23rd. Both excited and nervous but should be fine.

    It's starting to cool off here at night so hopefully for you northerners the summer is on it's way. I see on the News the big snow falls in the U.S and sure you could do with a bit of our Aussie sunshine.

    Best wishes to all
    Nicole
  • txred9876
    txred9876 Member Posts: 392
    edited April 2007
    I thought the spring had sprung here in Texas until the last several days! It got down to 33 degrees on Sunday night.
    I have been trying to rest as much as I can but some days its all I can do to stay awake!Sometimes when I get home from work I literally fall asleep in the chair! I am trying to get into a routine but its not working very well. I sleep a lot on the weekends then don't want to do the week!

    My husband had to take care of some business out of state so it is just my daughter and I until the end of september....I am NOT adjusting very well! Also he is not very accessable by phone so hopefully he will write....LOL

    I have Herceptin again next week (18th) and then on the 19th they are going to do a scope to see whats going on with my stomach. I am sure it will all be ok...maybe it will just be a medicine change or something they can fix easy.

    My parents really want my daughter and I to come for a visit this summer but not sure I can do it with the limited time I have on the books. I have the time but it will not leave me a whole lot when I get back. My dad rarely writes and has been writing DAILY emails and phone calls every couple of days. If we go to Oregon its going to be kind of rough...lots of driving and the plane rides. Not sure if the lymphadema will be ok...but might just have to deal with it. It would be a fly up then sometime in the 7 days spend two 5 hour drives (to and from Southern oregon where my almost 17 yhear old lives)plus the expense of hotel stays. I know my parents really want to see my oldest and the only way my ex will allow it is if I am there. Then he has no choice!

    Nicole ...good luck on your new job!

    Calico...maybe you can talk with your doctor to get some medicine while on your flight. I hope you have a wonderful vacation. You really deserve one!

    Tina
  • sholroyd
    sholroyd Member Posts: 288
    edited April 2007
    Hi all

    Maxine – sending virtual hugs to help your recovery – can’t wait to hear from you.

    Linda, I believe my depression ‘enveloped’ me as a result of bad news all around me as well as work etc. I believe now I have sorted my head round to ‘living with C’ and I am now finding I do not think of ‘it’ constantly. Hugs to Isaac and family.

    Lynell, I also get very confused about good advice on supplements, diets etc. I take fish oil, ABS plus Senior (multi-vitamin, multi-mineral formula) and calcium magnesium. I now ‘think’ a little bit in moderation.

    Liezel – I had been thinking of you with your last Herceptin – mine is on 18 April. I have arranged some little chocolate bars for the nurses etc, only cost 50p and the wrapping is a personalised one – I have had their own name put on – hope they now will know how much I have appreciated them. I have always said “no” to reconstruction, but I am finding a little seed is growing in my head saying “maybe”.

    Calico – Great news on your mum. I found meditation helped me a lot. I also fancy Mexico at some point – would like to see the pyramids there as never saw them when we went to Egypt – however my wages are now well down so holidays will have to be budgeted for in the future. Tina, I struggled with full-time and I felt I had no option to reduce my hours – budgeting is such a bind isn’t it?

    Thank you for your birthday wishes. I have had a fabulous birthday and have felt very loved. My daughters told me I was having a meal on the Saturday evening (31st) and it turned out to be a meal for 26 (extended family) – they all put a lot of effort into this and I had a great time. Folk at work also made a fuss of me – all very much appreciated.

    The holiday was good but I don't think we would visit Morocco again - very poor country and where we stayed was a holiday complex that seemed to be growing into a concrete jungle (Agadir). To see the proper Morocco we needed to go on trips. We went on one to see the anti (means smaller) Atlas mountains which was a full day trip but very good and we got to see some of the country how it is. We have seen goats climbing the Argon trees and we have eaten almonds straight from the tree. The Moroccans don't go into food in a big way and whilst there was plenty to eat in the hotel, it wasn't the best food we had had. Would have liked to have seen Marrakech but it was a long way away and a very tiring day (according to those who went) - so we followed my good advice and didn't go. We have certainly learned how to haggle. The people on the whole were friendly. Weather was good but quite cold at night and when the sun went behind a cloud.

    I am finishing off now as I am supposed to be giving my house a good clean – only taking my cards down today – had around 70 cards – going to sit and read them all again now before I store them away.

    Leanne, look forward to hearing from you after your holiday – hope it is great, children and all. You have to do what you think is best for your sons – folk are always ready with ‘good advice’ that isn’t always.

    Peg – I need to sort my camera out – the piccies are very large and there is a way to reduce them, I just need to fathom it out. . I will try and remember how to reduce one and post of me with all my 50 badges and things on.

    Hugs to you all.

    Sandra from the UK
  • tinkermax
    tinkermax Member Posts: 269
    edited April 2007
    Hi everyone

    Thanks very much for all your good wishes.

    Everything went really well, and i came home today.

    I currently have 120ml each side, so not quite flat, and relatively pain free, so its all good

    will pop back soon to give an update

    hugs to all

    maxine
  • foxxf
    foxxf Member Posts: 171
    edited April 2007
    Tina, Is there any way your parents could come and visit you? If it's going to be such a great hassle for you to go there and they want to see your children why can't they come to you instead? Even if you offered to help with some of the cost it would still be cheaper than if you went to them and assuming they are retired they won't have the time pressures that you would face. Just an idea.

    Maxine, Woo Hoo! So gald you are doing well.

    Sandra, your holiday sounds very interesting. I haven't travelled much so hearing everyone's account of their roaming is quite the eye opener.

    I have decided I need to loose some weight and just need to bite (or not bite..lol) the bullet and do it..any helpful suggestions would be appreciated.

    Best wishes to all
    Nicole
  • hopeful1
    hopeful1 Member Posts: 54
    edited April 2007
    Hello my September sisters! I’m sorry that is has been so long since I have posted. My excuses are two-fold, but neither is any excuse for not keeping up with those that helped me through my most difficult days.

    My first excuse is that my life is back to ‘normal’ which I guess is a good thing. I have a soon to be teenager that is playing baseball, volleyball, and has a fairly large role in the school play. My daughter just turned 10, and she is in a Double-Dutch jump rope league, and is playing soccer and softball. I am still working a full time job, and spend a few days/evenings a week helping my aging parents. Throw in a committee co-chair position for a recent event at our church (we raised over $40,000!), and that explains where my time goes!

    My second excuse is that I seem to be consumed with the fear of the “beast” recently. I was avoiding these boards because it seemed to feed my fears by reading what so many people are going through. In the beginning, it helped me to help others. Am I becoming selfish? I also am having a really hard time with all of this “cancer is a gift” nonsense. I have been getting the “it’s been almost 2 years – can’t you put this behind you – it’s time for you to snap out of it …” kind of comments from various people in my life. Those that have not been through it will never understand, and I need to just be aware of that and let it go. It’s just very hard.

    Peg – thanks for the again for the birthday card. It was very thoughtful and it brightened my day! I have been begun walking/running again and you are my inspiration! I will never reach marathon levels – but at least I’m getting started again.

    Congrats to Leizel and Sandra for finishing Herceptin!

    Tina – I was sorry to read about your dog. I understand how difficult that can be.

    Nicole – good luck with the new job!

    Leanne – Can’t wait to hear about your trip. You are in my thoughts often.

    Linda – Thanks for the updates on Isaac. I’m so happy to see that he is improving and that the doctors are optimistic.

    Calico – I can relate to the anxiety issues. I hope you find something that works for you. Hopefully a trip to Mexico will do the trick! Where are you staying? I have been there several times and have had wonderful experiences. So happy to see that your mom is doing well!

    Maxine – Add my best wishes to the list for a speedy recovery.

    Susan – Hope all is well with you. I think of you as my ‘anniversaries’ roll around since we were on the same schedule.

    Lynelle – Hope you enjoyed your Spring Break – but it didn’t sound like much of a break!

    Marg – I took a cancer break too. Welcome back.

    I need to catch up on the posts. To anyone I may have missed – please know that my thoughts are always with this group of amazing women.
  • sholroyd
    sholroyd Member Posts: 288
    edited April 2007
    Brilliant news Maxine – keep up the good work and keep us posted. A small seed is starting to grow in my head about reconstruction – just not sure yet.

    Hi hopeful1 – know what you mean exactly. I am finding though on this board we talk about lots of nice things too so pop in again soon.

    I have been thinking about Peg’s request for birthday/holidays photos. You are going to regret this ;-). I use a company called shutterfly for my photo printing and it suddenly dawned on me that I can ‘share albums online’. I created an album for my 50th birthday and Morocco holiday – all 108 of them – I don’t expect you to look at them all, honest. I would ask that you keep this to the board as I am aware there are a lot of people showing in my photos and I am not sure I should be showing without their permission??

    Anyway my birthday started off with me doing a party for my grandsons with pass the parcel, party poppers, musical bumps etc etc etc . There are a few photos of my work desk and some folk from work. The party meal you see is what I was told would be my husband, 3 off-spring and myself – turned out there were 26 present. The 2 small children are my grandsons. So through this you will have more of an insight into who I am ;-) As you will see I have put on weight but I have been ‘good’ for 4 days now and hope to shed around 1 stone.

    share.shutterfly.com/action/welcome?sid=8AYsWThy2atWIV

    Happy viewing – speak soon.

    Sandra from the UK
  • Pegk
    Pegk Member Posts: 389
    edited April 2007
    Nice to hear from you Hopeful. I'm glad you're so busy with wonderful things. You're not being selfish and cancer is not a gift for anybody. If anything, you ladies are my gift for enduring cancer. At least we have each other when it seems like no one understands what we're going through.

    Thanks for sharing your photos, Sandra. I feel like I've been to your party and that I've taken a virtual trip to Morocco.

    I hope your continuing to mend, Maxine.

    Nicole, I've discovered pounds creeping up during the past several months. Bad weather and a weakness for comfort food. I hate dieting, so I'm hoping with better weather coming up I'll get out and moving again. So that's my advice to you. Skip dessert and take a walk.

    I hope all is well with everyone else.
    Peggy
  • Liezel
    Liezel Member Posts: 192
    edited April 2007
    Happy birthday dear Peggy!! Hope you'll have a wonderfull day filled with love, sunshine and joy!

    I am battling with a chest cold, but as usual I have this fear that it might be something else, specially since my onc seems to be worried about my lungs. Taking lots of Vit C and hoping it will help.

    Sandra, can't wait to see your pics!

    Hopeful, I feel the same as you. It feels as if I am at a crossroad in my life, and I am the only one who can decide which way to go. Most important to me is my family and our life, work, health and everything else has to revolve around that. Many friends and clients have noticed this turmoil inside me, and has tried to help me through it, but I am a very private person and just can't open up to anybody. They want to see me fit and healthy, I can't take that away from them. But their support and love has really made me stronger.

    My mom (who had bc 15 yrs ago) found a new lump in the unaffected breast. Going for mammogram next week - please hold thumbs. Very frustrating to wait so long, but they do live in a small (compared to Cape Town) city, so it takes a while to get it done.

    I hope you are all well! Enjoy the approaching summer up north. Still nice and warm down here!!

    Keep well!

    Liezel
  • susan_02143
    susan_02143 Member Posts: 7,209
    edited April 2007
    Hi all....

    Just flying through. I am in LA helping my sister recover from eye surgery, and trying to motivate her to clean this condo. What a mess!

    Going home tonight, and I can't wait. 10 days away from home is way too long.

    Really just popped in to say Happy Birthday to Peggy! Hope that you have a wonderful day.

    Will read all the postings once I am back on a computer screen that is much larger.

    Hope everyone is well....

    *susan*
  • sholroyd
    sholroyd Member Posts: 288
    edited April 2007
    Liezel - positve vibes being sent your mum's way and yours of course. To see (some) of my photos click on the link or post it into your browser - it will take you into 'shutterfly' site and you will be able to view photos I have sent for printing - don't expect you to look at all 108 !!

    share.shutterfly.com/action/welcome?sid=8AYsWThy2atWIV

    Peg - how did the you enjoy your birthday and the walk? Right today, I will start walking, been thinking about it far too long - my dog could do with the exercise too!

    Hi Susan - enjoy your time back at home.

    Speak soon.

    Sandra from the UK
  • Pegk
    Pegk Member Posts: 389
    edited April 2007
    Those of you in the Northeast know that Mother Nature gave me an absolutely spectacular weekend for my birthday!
    Friday a friend of mine from work took me out to lunch. Later on my husband and 2 daughters surprised me by meeting me after work to take me out to dinner. (It was especially a surprise because I thought he was working-he took the night off and I thought my older daughter was at college) We sat outside at a French Bistro on Columbus Ave and watched the city go by.
    Yesterday my daughter, friends and I had a lovely walk, then in the evening we went to a great movie (The Namesake) and had dinner at a resaurant on the Hudson River.
    Today I'll be doing some gardening. I'm ready to take on another year!

    Best wishes to Liezel's Mum and Susan's sister.

    I hope you're all enjoying this weekend.
    Love,
    Peggy
  • sholroyd
    sholroyd Member Posts: 288
    edited April 2007
    And it will be a glorious year Peg ;-)

    Sandra from the UK
  • Liezel
    Liezel Member Posts: 192
    edited April 2007
    Hi Everybody!

    An update on my mom. She had her mammogram, and it show various suspicious areas ranging in size from 1cm to 2 cm. She is scheduled for a biopsy next week.

    It does not look good to me. She seems ok though.

    Hope you are all well. We are having a nice looong weekend this weekend. Only back to work on Wednesday.

    Keep well!

    Liezel
  • Calico
    Calico Member Posts: 1,108
    edited April 2007
    image

    image

    Liezel

    hope you have a wonderful day and have time and peace to celebrate and somebody to spoil you silly!!!

    I am so sorry about your mom. If it is bad, she will get through it...she has a daughter who is a PRO now!!!

    My mom's tumor is almost gone just with chemo, one more and then of to a mastectomy.

    God Bless
  • Pegk
    Pegk Member Posts: 389
    edited April 2007
    Hey Liezel!

    From one April baby to another...
    Have a spectacular birthday! I hope the coming year brings you health and happiness.

    and...
    I hope your Mom's biobsy shows B9.

    Love,
    Peggy
  • tinkermax
    tinkermax Member Posts: 269
    edited April 2007
    Hi everyone

    Just thought I would check-in.

    I get my first fill on 11th May. Its all looking good at the moment.

    hugs to all

    maxine
  • lynellb123
    lynellb123 Member Posts: 69
    edited April 2007

    Liezel & Peggy A very belated Happy Birthday. It sounds like you had a fantastic birthday Peg,what a nice surprise to have your entire family to celebrate with you. I'm sorry that I missed your birthday, it sounds lke it was fun. I'm also sorry that I haven't been posting as much,I just don't seem to have enough hours in the day to get everything done.I recently had another 6 month check up & everything was aces. I will post again soon. Wishing all my September sisters a great week!

  • Calico
    Calico Member Posts: 1,108
    edited May 2007
    Hi Maxine,
    glad you are doing okay. Did they give you a time frame for the exchange??
    How is your pain....any???

    God Bless
  • sholroyd
    sholroyd Member Posts: 288
    edited May 2007
    To Liezel

    http://www.jacquielawson.com/viewcard.asp?code=1212888127586&source=jl999

    Maxine - keep things looking good.

    Calico - continuing good wishes to your mum for her journey.

    Speak soon.

    Sandra from the UK

    No work on Monday - Bank Holiday.

    9.05 pm and I am off to bed!

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