Starting Chemo in JAN 2007
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Rebecca and eveyone else with daughters, I can hear you loud and clear. I have a 10 year old. She is a joy and a love but the tween voice is getting louder by the day. Gotta love those hormones.
As far as the nasty middle school years...well, she is pretty oblivious at this point. But I have noticed some of her classmates getting into that nasty girl stuff. I really hope she doesn't get caught up in it but I think it's impossible to avoid.
Whenever I am around women who remind me of the mean girls in 7th grade, I still get a little pit in my stomach.
I just keep telling her that we love her and try to make home all about acceptance. I emphasize that she does not need to be everyone's friend but she does need to be kind.
I'm trying very hard to make sure she isn't one of the mean girls but also don't want her to become an easy target. It's a tough balance. I think most middle school girls are miserable no matter what side they fall on.
Rebecca, there's a book that was recommended. Haven't read it but may get myself a copy: http://tinyurl.com/3xdhbw -
Congrats TLC! Funny you got caught off guard on your last day of chemo. That was me on day 1. Had no idea I was there for chemo. Was great because of zero anticipatory nerves.
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My daugther is only six but already I can see she is harder than boys. She FREAKS out about her curly hair, throws tantrums in the mirror over it. I was so aggravated w/it, that last week I said BE GLAD YOU HAVE HAIR!!!! She cracked up at that. My son was always much more able to entertain himself. She follows me from room to room from the time she wakes up until bed...and then she gets out of bed ten times for drinks of water, etc... it's a long day. I always saw myself w/daughters, but when I had a boy first, I was perfectly fine if I had all boys. Not that I'd trade Jaclyn. She can be pretty funny and loveable when she's not being moody.
I have more Boston company here...a girlfriend and her two daughters are here to check out Kent State, which I believe is a couple of hours away. They prob. would have been better off flying into Cleveland or Canton/Akron. Oh well....it's a nice, quiet visit.
Hope everyone has a good day. -
My jr. h.s. years were very hard because our city was a place of the haves/have nots. I lived on the haves side of town and believe me, it was very blue collar, both parents worked, my father had a job at night on top of his day job... but we owned our own house, etc. I went to school w/similar kids but was then thrust into a jr. h.s. w/kids from several diff. sets of housing projects across the city, low income, etc. And I'm sure many were good families as well, but a lot were not and many were very jealous of anyone who had their own home, etc. It was lousy. Worst time in my life. My kids live in such a nice area here and I can only hope that it will be a better experience for them in those difficult years.
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Amera, that book for teenage girls looks very interesting; I am almosted tempted to order it myself even though I don't have any girls.
I remember the way I dealt with those difficult years. I just became best friends with a girl the same in my neighborhood, even though we didn't have as much in common as I did with the "popular" set. We just stuck together everywhere, on the bus to school, in the ladies room primping, in the cafeteria for lunch, walking our matching cocker spaniels in the afternoon. I don't think we even liked each other that much but it was kind of a security thing and I am not sure it was the best thing, because we were so socially isolated. Funny...it was about that time that I began to feel a strong longing to have a child of my own.
No biking or running today, not until the rain lets up. Mary, I am *VERY IMPRESSED* with your 20 mile bike rides. I wish I could do so much. I do really feel great after our 7 mile rides, especially when we bike very fast, racing the sun to get home before dark. How thin are you?!!! Why don't you bike over to Pinckney some time?!!! Mel, that is so sad you can't bike; I wouldn't if I had to share the road with careless drivers either!!!
Where is Jan? Haven't seen her posts for a while. I really haven't kept up with what's going on the past few weeks.
Also, where is Aladora? We haven't heard from her for a very long time, and the last time we did she was a bit down. Maybe I'll send her an email.
Robertin, you've certainly had a lot on your plate with the diabetes and your daughter's kidney transplants; what an ordeal that must have been for you and you family!!! I think those preteens need group therapy. We had a wonderful school near here called "Go Like the Wind" that was a religious Montessori school and they really kept things in line there. They had a rule that any student who offended another student had to gain the forgiveness of the person they offended. We had our nephew there for a while and he thrived.
Mizsissy -
Well Ladies,
I thought I was done, but I've got a big issue I'm trying to sort out, and it may affect some of you too. How many of us are going on hormone therapy?
Both my oncologists are recommending tamoxifen over the AIs, even though I am post menopausal, because of the severe side effects of AIs, in particular bone loss. Let's face it, neither tamo or the AIs are great for your body, so my 2nd opinion oncologist recommends 3 years of tamo followed by two of Arimidex or Femara.
But I'd have to give up Prozac for Tamo, and Prozac has done wonders for me. So here are my choices.
1. Give up Prozac and start Effexor an SNRI which is a really serious, heavy drug that is difficult to get on and get off of, and can cause depression, weight gain, and anxiety. My PCP has given me a 5 week transition program which I would have to start right away. I really don't like the idea of playing around with my brain and mood right now.
2. Forego Tamo, and take one the AIs instead. Arimidex, the one I am most familiar with causes hair thinning. Some women don't get their hair back; I really want my hair back!! You can experience very severe bone pain...this is the *most effective* against recurrence, but I am concerned about quality of life too.
3. Take Tamo and go off Prozac altogether..but I'm under a lot of stress in my personal life now, and I don't think this is a great idea, though it seems like a better idea than taking Effexor.
4. Go back to Wellbutrin, one of those old fashioned antidepressants. I took it for a couple years, mainly as a weight control pill; I think it made anxiety worse.
Anybody else struggling with these issues??
Mizsissy -
Hi Ladies,
On Day 4 of last Taxol and thanks to Robertin's suggestion of double Aleve I am feeling much better than I did last time at this point. Thanks!
Viddie, I've been on the Coumadin/warfarin since I had the port installed because they can cause blood clots. So I'll be on til it's taken out next spring. I don't like it but my dad died from an unexpected blood clot so I'd be afraid to go without.
Nancy, thank God you made it through that scary experience! Can't the world tell we are dealing with enough already? Evidently not. Wish we'd all been there to help.
Elizabeth Edwards will be in Milwaukee May 25. I'd go if it didn't cost $65! - Skye -
Mizsissy,
Wish I could help with the hormone issue, but as triple neg, no options there for me. Probably a mixed blessing?
My second taxol went fine, and I was in bed by 7:30, feeling fine today. Last week I crashed on Sunday, so maybe that will be the pattern?
We haven't heard from RitaJean either?
Yes, those jr high years are hard. Like I said, I think the girls got lots of comfort from their animals (they had LOTS, we were in 4-H) and from finding a couple of close friends who had more in common with them than the more popular girls. Boys ... I found with my son that as long as he was average at sports, he was fine. Boys don't go into the emotional much ... it's all about kicking that next goal or getting on base. But I find now that the girls that did so well socially aren't doing so well in their adult lives, kind of bloomed too soon? That is not a lot of comfort to a preadolescent girl though.
Melia -
Hello all;
It's a beautiful day here today, the sun is shining and not a cloud in the sky. Going to go for a long walk, clear the cobwebs.
Nancy, I'm sure glad you weren't hurt in your car incident, hope you're having a better latter part of the week.
Skye, glad to hear you are doing better this round of Taxol.
MizSissy, I will be on Tamoxifen, but I don't take prozac, so I don't have the same issues as you are facing. Good luck with your decision.
They have bumped my rads simulation up to May 4, now, so that is a week from Friday. I'm a bit nervous, but I'll get thru it. The thing I'm most worried about is the MRI I have to have done on my liver again on May 1. I will be meeting with my oncologist to discuss what we are going to do after the MRI.
We had Al Gore in town this week on his Environmental stuff, but the tickets were like $250.00, yikes.
I sent a pm to Rita Jean to see how she is doing, and she is doing well, she checks on our boards occassionally.
Lynn, your last chemo is May 4th right? Do you have our addresses all done yet? I will be emailing each of you that sent me a picture(s) the scrapbook I made up of the January chemo girls. If you still want to be included, just send me along a pic to joanblack@shaw.ca.
Tina, good luck with this weeks company.
Jan, hope you are doing okay, would be nice to hear from you.
Amera, Rebecca, Robertin, T4T, Carol, Melia, Viddie, Caya, Shorti, Mary (bad red wing fan), vicki, nandy, tlc (congrats on finishing), and anyone I may have missed...hope you are all well.
Have a nice day!!
Joni -
Mizsissy, I've also started talking about the hormone therapies with my onc. Right now he is saying 3 years on tamo and four on Arimidex after that for a total of seven years! But I don't have the complications of needing the other meds. That lady I met in the store on Tuesday who is a year out has been on tamo the whole time and hasn't gained any weight, but said she hasn't lost the five or ten she gained on chemo either. Weight gain and bone loss are my biggest concerns but guess I'll just have to work with those as best I can.
Ladies, sorry to keep asking but I'm still curious whether Ativan keeps you asleep through hot flashes or if you still wake up with them. If I can ever sleep a straight 5-hour stint without a hotflash wakeup, I'm ecstatic. Usually it's every two hours. I'd consider the Ativan strongly if it would help that.
- Skye -
Hi all - just coming out of my post chemo fog. Tummy still hurts and I'm exhausted from doing nothing. I haven't read any of the posts I missed yet, but Skye I did see your Ativan question. I take it for about a week after each chemo and I can sleep through anything, including hot flashes. Last week I slept through my husband shampooing the carpet at 2:00am (darn dogs).
This was FEC #5 for me and each one seems harder than the last. I woke up from the "fog" this time to discover that I have absolutely no eyelashes left. I only had a handful anyway, but what a bummer to have none at all. -
Hi All,
Jan, so sorry you had a tough time with #5 but glad you checked in, we were getting worried about you. Do you only have 1 more?
Mizsissy, you have a lot of decisions there. I don't know anything about anti-depressants, but the Effexor with is an anti-depressant can cause depression? Doesn't make sense to me. My onc said that I'll go on tamoxofin for at least 2 years, maybe 3, then switch to AI. I haven't discussed it with him since our first meeting but will probably at my next appt. with him.
Joni, I finally sent you a pic. My last chemo is schedule for May 8th. I had to push it out a few days because my company is having our annual User Forum on May 6 - 8 and I have to be there. Sunday - cocktail party/dinner, Monday - all day with clients and in sessions, Monday night - cocktail party/dinner. I'll stay Monday night, get up and drive 2 hours home to get to my chemo at 11am. Whew, I'm exhausted just thinking about it. The good thing is I won't need to work the rest of the week, so I'll have a few extra days to recupe from my last chemo.
I have most everyone's address and am waiting for one thing to get delivered, then production line at my house (perfect thing for my 15 year old to help me with). I hope to be sending everyone something by end of week next week. I will include everyone's addresses/emails in the package.
Skye, I do sleep through the night with Ativan and don't wake up with hot flashes. Although it is still cool at night, not sure how good it will work when it get's warm and muggy.
We finally booked our flights to Florida for my 'you made it through chemo' trip. Now we're just looking at hotels. We're only going for 4 nights, but I just can't wait to just be laying around a pool all day! -
Well I am up and awake , yes ativan helps with the flashes i take it the week after my chemo and i need it . Am on day 4 after my last taxotere and feel like uncle fester in my housecoat and bald head . Its a little cloudy outside today .
Jan hang in there .... FEC be gone ..... even though this is my last I am still feeling funny .... the mind body limbo . Laptop is the pal today , its hard getting the energy back . Plan is to get off my duff by the weekend.
Gotta get prepared for rads . I usually give myself a week after chemo for rest and recoup . My fingers are tingling and so far no joint of muscle pain a bit of swelling this time in my fingers . Sleep alot and bed is still warm and cozy .
Last chemo seems funny and it has added up homer is still in the ball park foggy and wacky feeling ....
Not sick and puky just dang waxed out draggy days oh my ... common WBC's get back up there .... at least now I know they will be there to stay ! -
Jan, I hear you on the #5 & #6 of FEC. I'm still not recovered from my last chemo #6 on April 16. I basically was totally out of it from then til this Tuesday. I went to the garden store with my sister on Tuesday, and then down all day again yesterday. I actually phoned my onc this week, as I was feeling so weird. I had heartburn, pains in my incision site, pains in my back, down my arms, headache, and just felt crappy everywhere.
My Onc's nurse said this is common with FEC, as it is one of the more aggressive chemos, and its effects are cumulative.
Big Hugs to you Jan...just one more and you'll be done!!
Shorti, get rid of that waxy feeling...I'm sure it's just our WBCs being so low.
Hugs everyone.
Joni -
Amera thanks for the link...I think I am going to get that book....and not just for me! My husband is completely terrified by the dynamics that he is starting to see swirl around Frances, and I think it might help him if he could gain some understanding.
Mizsissy--I too am hormone positive, and face the same types of therapies as you do. As a post-menopausal woman I think that you face the easiest choice...the research clearly points to the AI as your best bet. As far as the S/E go, I have done a bit of poking around, and what seems to be the case is that there is some bone pain, and sometimes a bit of hair thinning if you are predisposed to that sort of thing, but complete hair loss is rare to non-existent. I read a bunch of posts on message boards about Arimidex and I was horrified....but you must be wary of information that you get off of message boards and so on regarding severity of side effects because people who feel great do not think to post there...same thing goes for websites and so on.
For myself, the question is a bit different. I am NOT post-menopausal, and so would not qualify for an AI without intervention of some type. I am hesitant to do that, so I am leaning towards Tamoxifen for at least an interim period to see which way my body goes. The research appears to indicate that after about 2-3 years on Tamoxifen the risk outweighs benefit, and that you get GREAT additional benefit from following with 2-3 years of an AI. Right now that is my plan. If I need to shut down or take out my ovaries at that time I will revisit it then, unless my onc is VERY insistent. -
Mizsissy, if antidepressants are helping you that much, and you can't stay on Prozac, I'd just go to Effexor if that's your only choice. Most people do very well on it, and there's no reason to expect you'll have the bad side effects. However, it there's another choice, other than Wellbutrin, could you try that? Like maybe Lexapro? I know for sure Paxil and Prozac are out, but I haven't read anything about Lexapro being a problem. I take that one, it's similar to Prozac. I never thought I was depressed, ever in my life, until I took Lexapro. Now I see that I've probably been mildly depressed for a long time. I'm not giving up that good feeling for anything! Of course, I don't have to take tamoxifen either.
While I'm acting like a dr. and recommending drugs...which I shouldn't...I have another tip. Years ago when I first started on the Lexapro during a family crisis that got the better of me for a while, my dr. also put me on Neurontin at night for sleep. It's an off-label use, of course, but it is WONDERFUL for that - it makes you sleepy, you sleep all night, there is no addiction and no withdrawal, you feel refreshed in the morning, and you can pretty much take as much as you need to get the job done. It's just one of those non-toxic drugs with minimal side effects that works for a lot of things. It's given for seizures, anxiety, sleep, neuropathy, chronic pain....lots of stuff. I think it also helps with hot flashes. So, what I was getting at, is Skye, you might try that. I haven't had any hot flashes at night at all, but I always take my Neurontin at night. Bigger doses now because of the neuropathy, but still, I've never woken up with a hot flash.
Ok, enough of the drug pushing - sorry!
Joni, I'll send you a pic. Just let me find one - I'm camera shy.
Mel -
Mel, thanks for the info. I've been wondering about Lexapro. Effexor scares me. I'll definitely check into it!!!
Mizsissy -
Mizsissy, I know that I will be on tamoxifin also and I have been on Lexapro for years. My onc. has not mentioned anything about me having to go off of it. I was on Prozac years ago. I don't mind lexapro so much it's better than that awful Paxil OOOOHHH. I'll tell ya though my MIL went on that cymbalta, she is really different and not in a good way so I wouldn't touch that stuff either. She went from a nice lady to mean and grumpy. I wonder if I'll have to go off my lexapro, wish they would gear me up now if that's the case. Sorry you have so many decisions, wish I could help you better.
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No way would I do Effexor either, my PP tried to get me on it, I said nope don't like the stuff! Wellbutrin I didn't take long enough to know whether it was helping or not. I felt the best on Lexapro and I take an Ativan if necessary and it's works for me.
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Well, I've been doing a little more reading on this, and I had a thread going on "Effexor, what's it like" and have gotten a lot of responses. Getting on Effexor is difficult, and getting off even more; in fact, one woman quoted her pharmacist as saying that noone ever successfully gets off it. You can even have *brain shocks* that make your head jerk getting off it.
It's sounds just awful and is way more of an antidepressant than I need. I'm taking a low dose of prozac. It turns out that Wellbutrin can't be taken with Tamox either.
HOWEVER, there are some alternatives to Tamoxifen. There's Evista (Raloxifen) which was created to improve bone density that apparently works like tamoxifen ( and may have the same problems).
There are also the AIs. I think Femara is less problematic than Arimidex, and you can take it with Zometa to prevent bone loss. Hot flashes were less frequent than with Tamox; and it has a better anti-recurrence effect. Fitchik was on Femara and had a bad time with it; took a break, but was able to get back on.
I think one key issue to the bone ache business is the quality of your bone density, and just doing everything you can to keep that up...another problem is increase in cholesterol.
So much for that big bottle of Effexor the pharmacist gave me; I think I'm going to throw it out!!!!!
Mizsissy -
Does this mean you are rooting against the Red Wings tonight?
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Jan, glad to hear from you. Sorry you are not feeling well. Soon this will be over.
Mizsissy- I would love to bike to Pinckney but I'm not sure our trails connect. I'll have to look that up.
I didn't sleep well last night, not sure if it's the surgery coming up, the hot flashes or what. I am so tired during the day and then can't sleep straight through at night. I hope I get some good sleep after my surgery - hope they give me lots of DRUGS!!! -
Mary, they'll give you very cool drugs, and you'll just feel so good, to have IT OUT!!! Reward enough.
I'm like you, I get very tired and I am not sleeping well. My heart is fluttery and I'm getting extra and missed beats. And, wierd enough, here I am over a month after chemo and suddenly today I lose most of my bottom eyelashes. Nothing but eyeliner now!!!
The hair on my head is coming in. I'm using Nioxin. It looks pretty thick but it's still quite short, about 1/8 inch. You hair grows parallel to your head for while so it will be a while before it shows length.
The bike paths probably don't connect but I bet you aren't much further away than 20 miles.
Mizsissy -
I hear you with the girl thing! I have a 23 yr old son (in Iraq right now - Army) and an almost 12 yr old daughter. My son was a breeze compared to my daughter! The whole hair thing, clothes, everything! Yes, getting up and coming downstairs umpteen times when she's supposed to be in bed, too! Can hardly wait for the TEEN years with her! aaahhhggg! LOL
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Skye -
I have same issue with the hot flashes at night! I have been taking Ambien before bed - gets me to sleep great, but I do awaken with the hot flashes!! About every 2 hrs or so , just like you mentioned. Soooo frustrating! I have Ativan, maybe I will try that and see if it's better.
One night last week, my veins were really aching (infusion arm - normal my onc says) so I took Execedrin PM ( 2 tabs) instead of the Ambien - and I slept a bit longer - no flashes! Maybe I should try that again! -
Robbinjaye:
was your port removed at the surgeon's office? What was the process? I see my surgeon next week and will talk to her about getting my port out then.
Cindy -
I'm waiting for my fingers to get back to normal. Only the tips have the neuropathy but it's weird when I'm typing and try to pick things up.
Cindy -
I see my oncologist tomorrow to discuss what happens next as far as HT. She's talked about two years on Tamoxifen and then being switched to an AI if I remain in my chemo-caused menopause.
I'm already on Effexor, they started me for the off-use benefit of hot flash management. I'm having fewer flashes. They haven't stopped. I haven't noticed any other problems though.
Cindy -
An allergy/sinus condition got worse, my chest started to hurt and I decided not to be dumb about it so I saw my doctor on Tuesday afternoon to get an antibiotic. I'm not sure what my body can fight off right now. He agreed that I needed to be checked.
Then I saw my ophthalmologist today. I was due for my annual check and I called and told them I had some concerns regarding my chemo and they got me right in. My eyes have been through so much since my chemo started in January. The AC portion caused terrible dryness. The Taxotere has continued the dryness and at the same time I've had the nonstop watery, drippy eyes. That's been really uncomfortable.
Almost everything checked out okay. The retinas looked okay. I need new bifocals. But what worries me is that the pressure in both eyes is elevated - the left much more than the right. I've never had problems with pressure before. I asked if it could be chemo related but he didn't know. He's sending me to a glaucoma specialist next week.
I see the onc. tomorrow and then the surgeon on Tuesday. The doctoring seems endless.
And I'm tired. The sinus stuff and recovering from the last Taxotere has me dragging. I've been reading the posts but find it hard to get my thoughts together to respond.
I hope everyone is well, surviving the treatments, enjoying the springtime, surviving crazy car situations!!
Happy Friday tomorrow to everyone!
Cindy -
I am suppose to have surgery Tuesday and yesterday a cold sore started coming on - but I don't have a cold. I read that it can also be activated by stress. I am going to go get some Abreva but I guess I need to call my surgeon and let her know. I hope they don't postpone my surgery. They said they would not do it if I had a cold but I just have the cold sore. Maybe it will heal by Tuesday - let's hope.
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