Starting Chemo in JAN 2007

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  • sharon56
    sharon56 Member Posts: 220
    edited April 2007
    Well here I am checking in on all these posts with the sun shining in on me . Last Chemo at 10 today I am hyped up on steroids for the next few days . Expecting a little longer chat with my onc today want to get a overall report on treatment and prognosis .
    As for being the last chemo. I want to get this done and start feeling better , get out of that fog . My wig is not going on my head today just a baseball cap . Its too hot to wear that thing feels like a toque on my head and winter is over ..... I am going to a hospital today anyway so whats the difference ?
    Still going to add my eyebrows and eyeliner , me eyes tear alot too , more when I go outside but then I wear sunglasses anyway .
    Joni : awwww Flames lost hope your weather gets better .
    I had a rash too but it was during my FEC treatments onc gave me more steroids for it .. i was off to the races then ha ha .... but it went away and now has faded .
    My oldest daughter is coming with me today , so i a off to get ready .....
    Check in with you gals later .. i may not get much sleep tonight
  • sharon56
    sharon56 Member Posts: 220
    edited April 2007
    oh and here is the last time you shoud see my brain like this

    image

    Do yu everfeel like this is what your brain looks like sometime's ????
  • Dar1
    Dar1 Member Posts: 146
    edited April 2007
    Skye, Shorti, CONGRATULATIONS on your last treatment. Being done chemo is definitely better and you will start to feel better each day.
    The "inspiration" comments I guess are a compliment - however as you've all said, I haven't done anything special, just got up, showed up and kept going. I can vaguely remember when I too was a person who had never been diagnosed with cancer and didn't know how I would deal with it.
    The weather here looks good for the next week - yeah! Maybe the snow will finally go - yes, we still have some in our yard, which is surrounded by trees and melts slowly.
  • tlc60
    tlc60 Member Posts: 83
    edited April 2007
    Skye and Shorti: WHOO HOOOO! Congrats on the last chemo 8-)
    I get to go on Wed for mine and I am elated!

    Mel: Good luck on an easy tube surgery! Hope it goes smooth for you and makes the whole eye thing better.

    The rest of you have a wonderful sunny day !

    tlc
  • NOLONGERREADINGORPOSTING
    NOLONGERREADINGORPOSTING Member Posts: 778
    edited April 2007
    Hoooooooooooorrrrrrrrrrrrrrraaaaaaaaaaaayyyyyyyyyyyyyyyyy!!!!!

    Sky & Shorti, I am so happy to know you'll be done soon. Remember, it takes a few weeks to fully recover. You'll have your brains back soon!!! And your energy!!!

    Mizsissy
  • Amera
    Amera Member Posts: 452
    edited April 2007

    Yippee! We are all getting there. Yahoo!

  • TPPJ
    TPPJ Member Posts: 1,017
    edited April 2007
    Congrats Shorti! Loved your "brain"! It's like that old commercial: this is your brain on drugs...

    God help me..just got an email that more company is coming here from Boston on Wed. My friend and her 2 daughters so they can check out colleges. I am soooooooo unbelievably exhausted from this weekends company. Thank God this family is very quiet and goes to bed early.
  • Caya
    Caya Member Posts: 971
    edited April 2007
    Tina,

    You should find all your pertinent information in your pathology report - I just basically combed over my reports, asked the onc. a ton of questions, and also went on the internet to educate myself as much as possible. I am very organized - you should see my black briefcase - with about 10 different files - one each for - Pathology, herceptin, chemo, newspaper/internet articles, reconstruction,lymphodema etc. This way when I want to know something specific, I just reach for that file. I have always been like this, probably a bit too anal, but it does help me focus.
    Glad your company left, too bad the house is a mess. Oh well, take your time, it will all get done.

    Re: Ativan - alot of the girls take it for nausea, nerves to help sleep. I know a few people are worried about getting addicted, but right now I feel if you need it to get through all this to calm down and/or sleep, just do it. Don't be a martyr. This too shall pass, and can always be weaned down. My onc. nurse nurse keeps telling me that stress is the worst thing for me right now, and I intend to listen to her.
    Wish I had enough hair to colour, but I still have one more Taxotere to go.
    I feel much better today, at least so far. Yesterday just knocked me over, I was so out of it.
  • Caya
    Caya Member Posts: 971
    edited April 2007
    shorti,

    did you hear me laughing while you drove down the 400 for your treatment? ( I assume you take that highway, or maybe the 404) - congrats on finishing, hope you have a good meeting with your onc.
    all the best
    caya
  • Caya
    Caya Member Posts: 971
    edited April 2007
    Triple ditto for me to skye, shorti and mel - hope everyone is okay today.
    skye, that cheesecake and fruit sounds great, too bad my tastebuds are basically like foul water, I can only dream of what real food tastes like. Oh well, maybe I'll drop a few pounds, no sense eating if I can't enjoy any flavour.
  • jonimb
    jonimb Member Posts: 900
    edited April 2007
    Congratulations Shorti & Skye...you DID IT!!! By the time you read this you'll have completed your chemo.

    TLC, you are next on Wednesday.

    I had a very bad day yesterday, and still not feeling well today. Have a call into the oncologist, as I'm very shaky, and I seem so uncoordinated. My vision is very blurry too.

    HOpe all are well...hugs..Joni
  • luckymel
    luckymel Member Posts: 643
    edited April 2007
    Congratulations, Shorti - think I forgot you were having your last treatment today. It's a great day for both you and Skye! Now on to feeling better and healing, and making that transition between cancer patient and whatever it is we are now.

    Had my eye tube surgery this morning, and it went without a hitch. General anesthesia, but a brief one. The tubes are in but I can't see them, and can barely feel them. Evidently they are more like space holders, solid tubes (not hollow like I imagined) that will help the ducts to heal around them. So they don't function as drains while they're in place. However, they must have helped something, because my eyes are NOT tearing right now. I think he said they'd be in for 3-4 months if possible, but my memory of what happened isn't very clear. Anyway, it's over, and I'm happy so far.
    Mel
  • Lynn12
    Lynn12 Member Posts: 1,008
    edited April 2007
    Skye and Shorti - hhhhhhuuuuuugggggggggssssssss! YAY for both of you!

    Joni, sorry to hear you are not feeling well, if memory serves me right, you normally have a hard time several days out. Just think, this is the last time you'll be going through this yuckiness!

    Mel, wow, you're back and online! Good for you, glad to hear it went well and you're relieved of all the tearing.

    Short, lmao on the brain pic!

    Tina, we went to Modern pastry because it is local (Mike's is national) although we then wished we went to Mike's..next time.

    Caya, hope you are feeling better from your chemo fog. Can the people from Boston stay at a hotel?

    Thanks everyone for your responses on the sinus and full feeling, it's always comforting to know that I'm not the only one.

    About the Ativan. I have been trying not to take it at night and have been having trouble sleeping/stopping my brain and getting really grumpy because of it. Thanks for everyone's thoughts on this. Why am I trying to be a hero? Sleep is important and I should do what I can to make sure I get enough of it.

    It's currently 84 degrees outside, I'm off for a nice walk.
  • TPPJ
    TPPJ Member Posts: 1,017
    edited April 2007
    Lynn,

    I didn't know Mike's went national. Hmmmm... I wonder if I can get their cannoli's in Columbus. Not that I need any!!! I am actually off for a walk w/ a neighbor.

    I am def. not at all worried/uptight about taking Ativan. It just ever so slightly takes the edge off for me when this situation makes me nervous. And I think other things some people do to de-stress (smoke, drink excessively, etc.) are probably a lot more harmful.
  • TPPJ
    TPPJ Member Posts: 1,017
    edited April 2007
    Quote:

    You should find all your pertinent information in your pathology report

    CAYA, I READ AND RE-READ THAT THING A HUNDRED TIMES AND CERTAIN THINGS I AM INTERESTED IN I CANNOT FIND, LIKE WHAT KIND OF IDC DO I HAVE, EXACTLY HOW ESTROGEN POSITIVE AM I?, HOW HER2/NEU+ AM I? MY GRADE 2 DOESN'T PERTAIN TO MY HER2/NEU, CORRECT? THAT'S THE "HISTOLOGY", WHATEVER THAT IS.... I VAGUELY RECALL SOMEONE TELLING ME I WAS HIGHLY ESTROGEN +, AND I THOUGHT THEY SAID 90%, BUT QUITE FRANKLY, I AM NOW WONDERING IF I REALLY HEARD THAT... I FEEL STUPID CALLING BACK IN WITH QUESTIONS THAT I SHOULD BE ORGANIZED ABOUT AND ASK DURING THE CORRECT FORUM: MY DR'S VISITS. I DON'T HAVE ANOTHER ONE NOW UNTIL JUNE 19.

    NEED TO GO TO WALGREENS TO P/U MY TAMOXIFEN. JUST READ THE TAMOXIFEN BOARDS AND IT SOUNDS HORRIBLE... BUT I THINK WE ALL DISCUSSED LAST WEEK THAT THOSE PEOPLE MUST BE HAVING EXTREMELY BAD CASE SCENARIOS... I CAN'T BELIEVE IT'S FIVE YEARS WORTH. I YI YI.... THIS MED STUFF REALLY JUST DOESN'T END.... TO THINK LAST SUMMER I THOUGHT I WAS THE PICTURE OF HEALTH. BIG SIGH....
  • TPPJ
    TPPJ Member Posts: 1,017
    edited April 2007

    Can't recall who asked about the cold sweats. I haven't had sweating, but I've had flashes of hot and cold. It's subsided though as I mentioned in my "probably too much information" post earlier today about thinking I started ovulating again...

  • meliaanne
    meliaanne Member Posts: 682
    edited April 2007

    I am so discouraged. Not only do I have a rash from the first taxol, but my blood cell counts are down again. What if I can't finish the chemo???? I need the taxol since I am triple neg, and have no other meds (ie tamoxifen, herceptin) to fall back on ... darn it.

  • Nancyab
    Nancyab Member Posts: 276
    edited April 2007
    Hi ya Sisters,
    Feeling very very achy and somewhat numb in the fingertips today. TPPJ- you mentioned the sinus thing and bloody noses. ME TOO!! Matter of fact the headache is killing me. I don't know what to take for it. I feel like I am the beetle baum... everyone is finishing treatments and I still have 5 taxols to go. June 1st last taxol then it's off to Rads. I feel with every taxol I get I'm more and more sore. Monday's have become my weekly down day. I have a sore under my tongue that even with magic mouthwash won't go away.
    All of you that are finished with chemo Congratulations! But please don't leave me behind, I'm scared!!
  • Caya
    Caya Member Posts: 971
    edited April 2007
    Tina,

    I guess your pathology report isn't as clearly written as mine - mine says in big bold letters - ER positive (90%) and PR positive(50%) - also what the FISH score - is - 10.9 - also lists the IDC as "mucinous subtype' (colloid carcinoma) etc.
    The Histologic grade refers to the grade of the tumour - I am grade 2 also - (medium) - this does not refer to HER2 neu status - I know it's confusing,and some reports are written more clearly than others. What I do is tape record every meeting I have with my onc. - then I play it back and it is amazing what you will hear, things you missed etc. Of course I asked his permission the first time I did it, but I think he is happy that I tape record it all so he doesn't have to constantly repeat stuff over and over for me - although sometimes I make him go over it all again like I did last Thursday when he gave me the very good prognosis.
    I hear you about feeling healthy last summer... I had my mammogram and breast ultrasound end of June 2006 - showing nothing lol...
    I think you are just a bit stressed from your "family fun" weekend - take it easy
    hugs caya
  • Caya
    Caya Member Posts: 971
    edited April 2007
    Melia, Nancy - don't worry, we won't leave you behind. A few of us will be on Herceptin for a year - and I'm sure we'll be b***ching plenty...
    Mel - wow - that's great that you're back and feeling better...
    Lynn, Nancy, anyone else - I also had a lot of sinus problems this last month with the Taxotere - runny nose, and when I blew it, often bloody - called it into the onc. sec., they didn't seem to think it was a big problem, but of course last month for me was the month of tush sores and bladder infections...
    I have noticed I've had face flushing a bit the last few nights, but I'm monitoring my temp., becuz I really don't feel like shlepping down to the ER for nothing... at least I feel not so out of it today -
    Joni, how are you? You sound like I felt yesterday, it was the couch, the TV and I - dizzy, not focused.
    I guess I'm making up for it today, it must be like- how many posts? - 5 or 6?
    Mary - I guess it's getting close for you - good luck, hope you're doing okay...
    caya
  • luckymel
    luckymel Member Posts: 643
    edited April 2007
    Melia and Nancy, I'll definitely stay and hold your hands through your Taxol. You guys took me in at the end of my taxol, so it's the least I can do. I was the last straggler of the November group, so I know what that feels like. Everybody else was moving on to whatever was next, and there I was, whining about my taxol to an empty room. Taxol wasn't easy for me, so I can definitely relate to what you're going through, but I also know that this wonderful group won't abandon you either! I see this group as one tht will stick together over time.

    Hugs,
    Mel
  • Rebecca
    Rebecca Member Posts: 971
    edited April 2007
    Quote:

    Melia and Nancy, I'll definitely stay and hold your hands through your Taxol. You guys took me in at the end of my taxol, so it's the least I can do. I was the last straggler of the November group, so I know what that feels like. Everybody else was moving on to whatever was next, and there I was, whining about my taxol to an empty room.




    no way....no empty room here! Not to mention that we are not all done yet! I have one more TAC to go, and after this one, I am pretty scared for the next. ALL of the lashes on the bottom lid of my right eye fell out this morning.

    YECK...not the way I wanted to start the day. I also think that my nails might be separating from the nail bed...I have red lines that then turned kind of dark, and now they are going hazy white. SHUDDER. Other than that I had a great weekend, and a pretty good day. I goofed off a lot and wound up finishing a novel rather than writing my lecture (BAAAAAAAAAAD Professor). On the other hand, school was cancelled today due to a water main break, so I can do what I planned for TODAY on Thursday (next meeting of this particular class) and then there are only two more lectures to go before the end of the semester.

    Congrats all around to the finishers! I have to take the kids to gymnastics now....
  • Nancyab
    Nancyab Member Posts: 276
    edited April 2007

    Thank you for staying with me... I was hoping you would say that. I know we all still have alot of crabbing to do about this BC stuff, Right? If I didn't have you sisters to whine too, I would be in a rubber room! All of you have got my deepest respect. Giant Hugs!

  • TPPJ
    TPPJ Member Posts: 1,017
    edited April 2007
    Nancy,

    I think it's clear I'm email addicted and BC is my topic of choice nowadays! Have no fear! Tina is here!
  • sharon56
    sharon56 Member Posts: 220
    edited April 2007

    Back and finished !!!!!!!!!!!!!!!!!!
    Nancy I am only done the chemo still have 33 rads to go , won't leave until the last ones over with . Even then i think we will still all be here there are chemo threads here over a year old .
    Caya : I only have to go to Newmarket for chemo down to Sunnybrook for rads and then I get rides with the cancer society and if tired i will be sleeping .
    Chemo went will no problems today , I gained 7 lbs it shows in my face not so cancer patient looking ) Also got a copy of my pathology report and am reading over that now . No wonder they did not see my tumor on my mamo I have advance fybrocystic disease and the tumor was surrounded with fibroids . MRI's for me man do I am not so sure I could find anything on my own going to go over it with my family doctor on Monday . I also have to go back to the onc every three months . She also said I can exercise to my hearts content , going to get back in shape man , but the fatigue will still affect me so walking and gardening for now . See how it goes one day at a time .Also Ativan if you need it use it she said would have to be taking it alot longer than 6 - 10 months to get addicted to it ..... and i will be tonight hyped up with all these steroids .....
    So I am off to the couch catch ya later
  • Lynn12
    Lynn12 Member Posts: 1,008
    edited April 2007
    Ohhh, I love it when we're all mushy! I think most of us have no intention on going anywhere anytime soon. I don't finish chemo until May, then rads and no one is going to get rid of me that easy. I plan on staying with my girls here for the long haul and after!

    I love you all and all you've done for me, you're the best!
  • sharon56
    sharon56 Member Posts: 220
    edited April 2007
    oh and i got this at chemo today too sometimes I wonder how little kids do this
    http://www.youtube.com/watch?v=cXz6UJL5oDA
  • viddie
    viddie Member Posts: 547
    edited April 2007
    Hi,
    35 posts since I was last on- WOW! I do not think I can read them all at once, but I will try. They are so comforting to read. I do not know what i would have done without you all. Thanks for always being there.

    I will be here for a very long time also. I have taxol/hercepten until July. Then surgery, then hercepten until April 2008, then Arimidex or tamoxfen for 5 years- Yikes!!!!!! I might be the last one to the finish line.

    Mel,
    I am glad your tube surgery went well today.

    Shorty and Skye,
    Congratulations on finishing taxol.
    What an accomplishment!

    Tina,
    Now you have plenty of places to stay in Boston when you visit. Might it be this summer? If so, all us Bostonians (so to speak) can plan a get together.
    On ativan, my oncologist also gave me an ample supply. I have only been taking it after my treatments, but she told me that I could take 2 a day if needed to calm my nerves. She told me that tapering off, even after a year, should not cause a problem. I am thinking about indulging more often, especially after a nerve wracking day. After all, when else can we do drugs and have a permission, even from our doctors?

    Skye,
    I also snored through my first taxol last week, or so my DH says.

    Melia,

    Why did they take your wbc today? Don't they wait until your next treatment? Don't you have 2 more days until your next taxol. That is 2 more days for them to recover.

    Speaking of bc causes, I drink a lot of tea and I need to sweeten it. They say that too much sugar feeds cancer and artificial sweetener can cause cancer. They say a lot of things about food. We have to eat and enjoy it. Are you all careful about what you eat? Do any of you use Splenda? That's not supposed to be good for you either. What's a person to do!!! I know-chocolate is medicinal- right? Maybe I should switch to hot chocolate. I am not serious- I enjoy my tea too much. Time for a cup of tea- anyone care to join me?

    Viddie
  • TPPJ
    TPPJ Member Posts: 1,017
    edited April 2007
    Do any of you use Splenda?

    I do, Viddie...on my Special K Low Carb cereal. Otherwise, it tastes nasty. I read that sugar feeds cancer too, but is it true, I wonder...

    If I don't do Splenda, etc., then I'll gain more the recommended amt. and be risk for recurrence that way. It's hard to win here. I think I'm just throwing the dice and hoping for the best!
  • meliaanne
    meliaanne Member Posts: 682
    edited April 2007
    Viddie,
    I have my blood work done on Mondays and then treatment on Wed, but after this I may go on Tuesdays to give myself an extra day. Everything looks ok to me but my wbc ... higher than when they had me rest a week, but way down from last test. I am just discouraged, feeling like my body is letting me down. I really felt bad last night though, all of a sudden, and wonder if that was my body telling me to take it easy. I talked to my husband today, and he is going to pick up more of the errands so that I can get more rest. I can be home from work at 3:30 (I go in at 6 am) so I think if I do that, and just rest til bedtime, I will do better.

    I am so glad everyone is planning on staying. It started to feel a little scary there for a few minutes. I am thrilled for those who are done, but don't think I can do this alone!!

    Ok, off for a hot shower (I am always cold now) and then to bed early. My rash is still there but better, and I am hoping it will be gone tomorrow.

    Sweet dreams all.

    Melia

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