anyone starting chemo in Nov 2005

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  • Odalys
    Odalys Member Posts: 2,103
    edited April 2007
    Hi sisters. Hope everyone had a good week and a nice Easter.

    Debbie - beautiful family. You look great, very healthy. Daniel has grown so much since last year. He is a cutie. Are you all settled in your new place?

    Well, our vacation was wonderful. We had a great time and haven't been this happy since before bc dx. Maryland is so green, with so much open space. It's absolutely beautiful. We liked it so much all three of us want to move there - maybe one day. Here are some pictures I took with a disposable camera.

    This is the view from my friends kitchen window...
    image

    Here we are in 38 degree, very windy, weather.
    image


    Do we look cold? Brrrrrrr....
    image

    An here is Steven enjoying the car ride. We drove 1098 miles each way, stopped and rented a room whenever we felt tired. It took us two days to get to our friends house in Frederick. We prefer driving to taking a plane. It's a great adventure.
    image

    New job is going great too. I feel so much better now that I am working in somehting I am so passionate about. Also, I'm so active that the SE are almost all gone. I feel like I am back!!!! I'll be back later to chat some more. Have a great Sunday!

    Love and hugs,
  • AnnaM
    AnnaM Member Posts: 1,387
    edited April 2007
    What wonderful news, Odalys! I am really happy to hear your SEs are subsiding. Do you think it's because you are so busy, or do you think you have been on the Femara long enough for your body to get used to having no estrogen at all? What a beautiful family! Stephen looks like a real sweetie. What a smile! Your pictures of MD look like our VA, esp. the cherry blossom trees. Too bad it's so cold here right now. And walking a little dog in the rain is no fun, either. Ah well, sure beats not walking a little dog at all.

    It's also great to hear how much you love your new job.

    Debbie, I agree, you look healthier this year. And little Daniel has grown so much! How did the move go and is everything back to normal now?

    Daughter and son-in-law were smart this time; they left Boston for a week in Belize yesterday and have just missed the nasty storm.

    Lots of love to Kim, Lat56, Mary Lou and Margerie. Margerie, I seem to remember there's a surgery coming up soon. Good luck!

    Love, Anna
  • kim825
    kim825 Member Posts: 284
    edited April 2007
    Hey everyone. Hope you are all having a great weekend. Deb you all look great. Yes, so much healthier this year. Daniel has grown so much.

    Odalys, glad you had a great trip. Those Nintendo DS are like saviors, aren't they. Glad you are enjoying your new job.

    Anna, no surgery here on my end. Gearing up for end of the month scans. Not sure of the date yet.

    Love to all,
    Kim
  • Odalys
    Odalys Member Posts: 2,103
    edited April 2007
    Anna - I think my body is getting used to the Femara. Plus, I've learned to prevent the stiffness by moving around and not staying in the same position for too long. I'm also walking 2 miles almost every evening after work, and taking stairs every chance I get. There is a mental change as well- learning to accept my limitations. BTW-How is your tennis elbow? Mine has not completely gone away yet.

    Kim - Nintendo DS is great and keeps him entertained. But, I don't like for him to play it for too long. Are your kids into it too? It seems every child around Steven's age either has one or wants one. Please let us know when you will going in for scans.

    Got to go now need to get to bed early. Hope everyone has a good week.

    Love and hugs,
  • Margerie
    Margerie Member Posts: 526
    edited April 2007
    Kim- will be hoping for great scans for both of us- my PET is on May 2nd. Like many have said- it is weird living in 3-6 month increments. I am tempted to forgo scans.........but knowledge is power, even if the truth hurts.

    Anyway, my nip surgery is May 7th. I may get more thigh lipo (he offered)- it's just pain and money right?

    I have overhauled my diet slowly in this year post chemo. I had a pretty good diet before, but always room for improvement. The last thing to go was my sugar addiction. I have not had dessert in 5 days- a record for me. It is true the longer I go, the less I crave the stuff. It may be a coincidence, or my scale is broken- but I have lost 5.5 pounds in the last 5 days. I also was up in the mountains for spring break- so maybe altitude related. Anyway, I won't be wasting away anytime soon- I could stand to lose 40-45 more.

    The other diet changes I have already made: lots of supplements (saw a naturopath and if anyone is interested in what I am taking, just pm me), more omega-3's, whole grains, brown rice pasta instead of reg pasta, no beef or pork, organic dairy and produce, hormone free chicken, lots of fish, flax and dried blueberries, pomegranate juice.

    My fatigue is gone and I am able to take melatonin and herbal supplement instead of ativan for my insomnia.

    We had a great spring break- the skiing was perfect!

    I hope you are all warm and dry kim and Anna. The noreast weather is being harsh!
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited April 2007
    I posted this here because I needed to share.

    ***April 16, 2007****** My thoughts and prayers go out to those who lost their lives this morning in the shootings at Virginia Tech. This was just to close to home, and makes me fear so much for the lives of my family and friends. I have a step daughter that works part time there , and also at our local paper. Her father and I, are very thankful she is safe at work. We Love You Angie
  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2007
    Odalys, Steven just looks like the sweetest kid on the planet. Such a precious smile. You all look freezing, but the pictures are beautiful! You look great!

    Marg-40 more pounds?!?!?! I remember your wedding pictures you posted way back when. You are tiny. You remind me of that commercial where the cartoon-drawn wife is yelling at her hubby, "What, do you want to weigh zero?!"

    Not yet moved, but Greg is in week 4 of his new job. I hate being single mommy. I don't know how women do it.

    I have to get a pregnancy test done tomorrow. I want a second child more than anything, but I am not physically ready to carry one. The drugs I am taking would be horrible to an unborn child, so I am really fretting.

    I love you guys, but I have to get to bed! Just wanted to check in.
    Love and prayers, Deb
  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2007
    Adding my heartfelt prayers to the families and friends dealing with the horror.
    Deb
  • kim825
    kim825 Member Posts: 284
    edited April 2007

    MaryLou, I am glad your step daughter is fine. What a horrible, horrible tragedy. My thoughts and prayers go out to the Virginia Tech families.

  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited April 2007
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited April 2007
    This is Lane Stadium at the VT campus.

    image

    And here is the field at Lane stadium at sunset.

    image

    more
    image

    I feel so sad that all this happened here, right in my own back yard.

    This is across the fields there.

    image
  • Margerie
    Margerie Member Posts: 526
    edited April 2007
    Mary,

    I am so sorry this tragedy has happened in your backyard. It is truly heartbreaking to look at the victims. I am really scared this will be the start of a new trend. Socially isolated, angry individuals are on every college campus. I remember a few from my college days.

    Anyway, hoping everyone is having great weather- and here we go onward................

    Kim- let us know when you find out when your next scans are!!
  • Odalys
    Odalys Member Posts: 2,103
    edited April 2007
    Mary such beautiful sites inspite of such tragedy. My heart goes out to the victims, their families and all the survivors. Such trauma for those young people to endure. Sad to think maybe it could have been prevented. He certainly sent out many warning signs yet no one picked up on them. I wonder what message God wants us to learn from this experience? Oh no, I hope we don't see a trend.

    Good night everyone. Love and prayers!
  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2007
    I just got photographed for the NY Times!!! Oh wow, I responded to the interview opp. on top of the discussion boards, and I got contacted, interviewed, and PHOTOGRAPHED!!!!
    More later, but I am so excited I am going to pee my pants!
    Love and prayers, Deb
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited April 2007

    WooooohOOOOOO!!!!!!!!! Deb, that,s kewl

  • Odalys
    Odalys Member Posts: 2,103
    edited April 2007
    Wow...way to go...Deb!!! Let us know when the article will come out so we can see you.

    One of the nice things about starting a new job is that there is no baggage- nobody knows about my battle with breast cancer and/or my daily struggles. I can truly start fresh and go about my daily business as I did before bc. No one has to know that I too live in 3-6 months increments. I think maybe I reached acceptance. I don't fully understand why God has chosen us to go through this path but I accept it and will do my best to live life to it's fullest.

    I did frame the picture of the girls holding hands on the beach and placed it in my new office. Now, I can always be reminded of our strength and courage and what a blessing our sisterhood is.

    Kim, Margerie, MaryLou, Debbie, Anna, Lat56...sending you big hugs. Love you all.
  • AnnaM
    AnnaM Member Posts: 1,387
    edited April 2007
    Love to you, too, Odalys, and all my sisters. Debbie, that's wonderful! I wish I got the Times. I will look online. Do you know what day your interview and picture will come out?

    Wishing all of you a glorious, springy Sunday!

    Love, Anna
  • kim825
    kim825 Member Posts: 284
    edited April 2007
    MaryLou what beautiful pictures. It is just heartwrenching what happened on that campus.
    Deb, congrats let us know when you will be in the paper.
    Margerie, I will know on Wednesday when the scans are. Probably within the next few weeks.
    Odalys, your words are beautiful. I don't know either why we were chosen for this path, but we will all accept it (somehow) and move forward.
    Anna, yes it is a beautiful day here in the Poconos.

    So you want to FINALLY see a picture of me, my kids, and my wonderful rock of a dh Anthony. We had some friends up this weekend that I haven't seen in 4 years. It was very emotional for me. I have a couple of pictures in the shutterfly link below. Of course I am the one in the hat, dh is the short one in the picture of all the guys, and of course the 3 people who make life living everyday. Now can someone tell me how to add a picture to a post. Then you guys are going to get sick of me and my pictures.

    share.shutterfly.com/action/welcome?sid=0AbtmLZk1csmLmI

    Love,
    Kim
  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2007
    Kim, you look fantastic! You look like you are feeling well and living well. I have to tell you, the picture of "your little slugger" shows your window treatments, and we have the same ones! How ironic-it just shows what kindred spirits we all are.

    So, basically I answered one of those posts here on bc.org for an interview opp. The reporter calls me one day when I am on the way home from Daniel's therapy, and I am trying to hand back a happy meal to Daniel while driving. She says she will call me back, and I await her call nervously for two more hours.

    She and I spoke for about 40 minutes, and when I hung up with her she told me that she had a huge stack of emails regarding this story. I therefore thought that I would be lucky if I got a quote in the story. I was pretty excited about just that.

    Well, a few days later when I am in Indiana visiting Greg, I get a call from the photography department of the NY Times. He says, "We want to send a photographer to capture your daily life. Can we send someone by this afternoon?"

    Imagine me, sitting in the van with my mouth hanging open!!!

    I called back and we arranged for the next day. So when Friday comes, I get up early and drive to the mall to find clothes for Daniel and myself to wear. What do you wear for the NY TIMES???? The photographer said they would just follow my daily tasks and to be comfortable, but I just couldn't imagine wearing my hot pink CANCER SUCKS shirt for such an event.

    So I get a makeover. I go to the Mario Tricoci Salon (that is the Chicago Salon that did the makeovers for the Jenny Jones Show). I got a free make-up application for being a first time client. The coolest thing was that the person who did my make-up was the head of the make-up department!! She used to do the Jenny Jones makeovers!


    My stylist looked like Laverne DeFazio, and I was scared. I thought I would have sucky hair, but she transformed my crazy locks into a hairdo! I loved it!

    What a fun day. I felt weird and awkward, but the photographer was my age and we clicked, so it got a lot easier. Daniel fell in love with her and was holding hands with her within an hour. She followed us around Menards while we shopped for stuff for the new house, and she took pictures of us at the park. Daniel was sound asleep by that time, so the family shot should be very cute.

    We even get a disc with all the pictures! Now we don't have to go to Sears Portrait, because we were horribly overdue for one!

    I love bc.org!

    Gotta go-we got back this evening from our 5 day visit to Greg's temporary home (staying with friends of our realtor). They are very kind people.

    I love you guys! I really want us to meet soon. When are we going to do that?!?
    Love and prayers, Deb
  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2007
    Oh, I forgot to mention...as I was leaving the store after buying my dress and accessories, I got to the car and started to hoist Daniel up to his seat. That was when I realized I was still clutching a pair of shoes that I didn't pay for!!!!!!! I stole shoes!!!!!
    Don't worry, I called and paid for them over the phone.
    Love and prayers, Deb
  • Margerie
    Margerie Member Posts: 526
    edited April 2007
    OM gosh Deb!! Did you ever see the movie Muriel's Wedding? (The shoes)

    Anyway, WHEN IS THE ARTICLE COMING OUT???

    Congrats- that must be fun!!

    Hoping everyone has a great week.

    I still have that picture in my mind Odalys (the gals walking) and it makes me smile.

    Maybe we can meet in the fall after the kids are back in school. Mucho busy now! I have a cabin in Tahoe- but I wish it was more centrally located!

    Best of luck on your scans Kim. A gal on another board calls the time around scans "inscanity"- had to laugh at that one- so true!

    Margerie
  • Odalys
    Odalys Member Posts: 2,103
    edited April 2007
    Yeah... kim!!! What a pleasure to see you smiling and looking so happy. You look great! Your angels are adorable. You can use photobucket.com to upload your pictures. I'll dig up the instructions and will post them again.

    Deb - such fun! You deserve it. I can't wait to see the pictures. I think you can still use the chemo brain as an excuse for forgetting to pay for the shoes. Thank goodness the security cameras and guards didn't catch you walking out with the shoes under your arm. You shoplifter you...LOL!

    Margerie - have fun in Tahoe.

    love,
  • Odalys
    Odalys Member Posts: 2,103
    edited April 2007
    Kim,
    There are several ways you can post a picture.
    Here are the instructions for posting pics.

    1. If your picture is already on the web,
    you can place the pictures' URL in between
    this command [image][/image]. You can find
    the URL by right clicking on the picture,
    then click properties,you will see the URL.
    Now cut and paste the url in between the commands.

    2. using photobucket.com
    www.photobucket.com
    It's free to use the site but
    you do need to register.
    It's an easy site to figure out,
    very user friendly.

    Once you've registered and
    upload a pic use the edit
    button above the pic to make
    the pic smaller and easier
    to view on the board. You'll have a choice
    of making the pic 75%, 50% or 25%
    smaller than the original size.
    I usually make it either 50% or 75%
    of the original size. You can check
    out some of the pic I've posted
    to see their size.
    You'll see three codes below
    your upload pic. Use the IMG code
    highlight, then copy and
    paste it on whatever thread on the
    board you chose.


    Have fun posting.
  • kim825
    kim825 Member Posts: 284
    edited April 2007
  • kim825
    kim825 Member Posts: 284
    edited April 2007

    Thanks Odalys. I have a photbucket account with another group. This picture was there already so I tried it and it works. Yeah!! Let's see if I can do it again. LOL!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2007
    Hi Ladies, I have no idea when the article is coming out. The photographer thought it might have been on Sunday, but no such luck! I'm going crazy waiting for it! I am paranoid about the pictures-I am the worst at posing for shots.
    Love and prayers, Deb
  • kim825
    kim825 Member Posts: 284
    edited April 2007
    Went ok today. I'm not feeling too well today after treatment. Little out of it and nausea. Good news is that tumor markers are down again. They are down to 40. They were 45 3 weeks ago. Scans are going to be May 4 and I will see Dr. Michaelson on the 8th for results.

    Kim
  • Margerie
    Margerie Member Posts: 526
    edited April 2007
    Kim, I hope you feel better soon. What treatment are you having? Is it chemo or rads? Sorry- I have such a bad memory. I am so glad to hear your tumor markers are coming down- I am pretty sure 40 is in the normal range!

    Good luck on your scan- mine is a couple days before on the 2nd. My onc calls me with results the next morning. I wish you didn't have to wait 4 days! Maybe I am just a pain in the butt!
  • AnnaM
    AnnaM Member Posts: 1,387
    edited April 2007
    Sometimes when I log onto our board the blue breastcancer.org box hides one or two of the most recent entries, so I don't get to see them till way later, once someone has posted, or maybe after I have posted a response. Does that ever happen to any of you?

    So I can't read the two posts just before Margerie's.

    Anyway, Kim, I love your pictures! What beautiful children! They're so young. You really must have your hands full. Just like Margerie. I do hope you are feeling better, and I am happy to hear your markers are going down. Here's to their going down further each day!

    Debbie, what a wonderful story; please let us know when the article comes out. I can't wait to see your pictures. I'm glad you didn't run into any trouble with those shoes. Yikes.

    Isn't spring nice? I'm going to a town 30 miles west of here to get blood drawn from my foot tomorrow. I hope I don't run into any problems. I hope they're nice about it. I sure don't want to fight about this any more.

    May is going to be pretty hectic for me. A two-week visit from sister-in-law. A trip to WV for stepdaughter's graduation from medical school. Her mother will be there. I haven't really ever met her. Yuk. All the preps for leaving for four months. That's the worst part. I actually don't even want to go. There, I've said it. I don't want to go. I dread being away from my oncologist. I dread the 8-hour overnight flight with me wearing compression sleeves and gloves on both sides and little dog under my seat. I dread trying to pack enough for four months into luggage that is as tiny and light as possible. Obviously, I'll have to do the packing for hubby and doggie as well. Don't get me wrong, I'm not complaining, I'd just rather not go. I can't tell this to anyone else, esp. not hubs. He would try to fix it. Nobody can fix my newfound home-stickedness.

    Love to all,

    Anna
  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2007
    Anna....a few questions....

    First, blood drawn from your foot? Why? Is it because you are now portless?

    Second, where are you going for four months? Did I miss something when I got so behind on my posts this month?

    I can understand your reluctance at wanting to travel. Our trip to California was hardly long in comparison to an overnight 8 hour flight, and we were in misery. We both agreed that we would not fly again for a VERY long time. Traveling with a 2 year old is pretty similar to packing for four months, isn't it?

    Don't worry, I won't try to fix you. That is why we are all here. We won't fix each other, but we are all here to get our sisters through the tough times.

    Love and prayers, Debbie

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