Swollen armpit, collarbone lymph node & neck lymph node

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2022

    Jo-jo2018, you have been on my mind this week. I am sorry that FAC didn't work. I haven't had Vinorelbine but it's also known as Navelbine and I believe there is a thread on that chemo in stage IV threads. Sending you good energy, love and prayers that this chemo kicks the cancer to the curb.


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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2022

    Jo-Jo2018, has your MO taken a new biopsy, especially of any of the new tumors to see if the er/pr/her2 status has changed? I am hoping so and that is why you are starting the new treatment in 2 weeks. If you haven't had a recent biopsy I would request one. I would also see if they can send the biopsy for evaluation for any mutations - even if you had that early on I have read that cancer can acquire new mutations to work around the chemotherapy and render it useless. I am not an oncologist but it seems like your cancer or some of your cancer is not responding to ER+ treatment. I have read that some people have a mix of tumor types: some that are ER+ others that along with others that are triple negative.

    Has your oncologist discussed Keytruda? I have read about Keytruda for triple negative breast cancer and is immunotherapy.

    Sending you strength and love. Let's find something that gets rid of your tumors.

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  • Jo-Jo2018
    Jo-Jo2018 Member Posts: 124
    edited September 2022

    Aprilgirl1 thank you! I will head over to the thread you mentioned.

    I have not had any new biopsies. All I know is my initial status in 2018 was ER+PR+ and in January it was ER+PR-

    This cancer is definitely mutating as all my MO has thrown at it does stop its growth. Triple neg scares me..... I will speak to him about this at my next appointment- Thank you for taking time to reply and all the information ❤

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2022

    Hi Jo-jo2018, not to be a pest but please send your oncologist or their team a message,don't wait for the next appt unless it was yesterday;) I don't know when your next appt is but if they will take a biopsy that will take time to schedule and come back. The time while we wait for answers is so exhausting and terrifying. Let us know how you are doing, ok?

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