Almost made it to 10 years...new LCIS DCIS diagnosis

ILC is a tricky one and if it shows up in one breast, most likely is in the other one as well. In my case, a tinny 3 mm ILC was found and no nodes were positive with MRI however, thinking that if the breast created cancer once can do it again, I decided to remove both breasts. Surprisingly, pathology showed ILC was found in the nodes, and LCIS was found in both breasts. ILC is a sneaky type of BC. Talk to your MO and consider removing the breast tissue if continues to create cancerous cells. This is my opinion and it worked for me. I no longer need mammograms or scan for breast lumps.

I don't have the same Dx but just got diagnosed with breast cancer for a third time! First time, IDC, treated with two lumpectomies (to get clean margin), 24 lymph nodes removed, they were all negative, the sentinel node biopsy failed, chemo and radiation (31) immediate severe lymphedema in my arm.

Second time, almost 16 years later, same breast but ILC, mastectomy and AI which I only took for 6 months, Oncologist wanted 5 yr.

Now, high grade DCIS with microinvasion, will have mastectomy, sentinel node biopsy and then wait for pathology to see what next.

I wanted both breasts removed in 2019 and was refused because I am not BRCA+. I should have gone elsewhere but I didn't and that's on me.

Had I had a bilateral mastectomy, not only would I not be going through the health issues cancer brings, I would not be going through the financial issues either! Fortunately for me, I had my records transferred to a local hospital and met with my new breast surgeon prior to being Dx. Makes a huge difference having chosen my doctor prior to Dx. I like him, and more importantly, I trust him! Both of the other times I was assigned a breast surgeon. Neither time went well.

I can't relate to your exact diagnosis, but I can say, if I had it in both breasts, I would get them removed! I am ending up doing that now, because the "healthy breast" my surgeon refused to remove became cancerous, a little over three years after his refusal to remove it!

Now I am three years older, still working at well past age 65! I planned to retire at the end of this school year (I work in a school), but now will no doubt need to work yet another year! Ugh! My concern is that my DH's health gets worse, and I will be forced to retire early to be a full-time caregiver. As of now he is doing ok, but has trouble walking and uses a hiking stick to walk. (He refused to use a cane, due to making him feel old, so I got him a "cool" looking hiking stick)

Kim, I hope you come back here and let us know how you are doing!

Lenaaz, I'm sorry that your were dumped without a plan in place. Have you considered going to to a gynecologist or women's health clinic for checkups? While they are not oncologists, they do treat precancerous conditions in women and are tuned in to cancer prevention and detection. Make sure that you transfer the actual medical records for all of your previous treatment (not just the patient summaries) so that they will know your medical history and exactly how you were treated. Good luck finding someone to look after you.