Can we have a forum for "older" people with bc?
Comments
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Hi, Lisa--nice to meet you!
Taco, happy anniversary--56 years? Wow!
I didn't post yesterday due to scanxiety over my ocular-onc visit today. Fortunately, not to worry--everything is stable and the tumor even shrank a little since May. Things went a bit more slowly at the clinic--they added a new higher-res retinal scanner to the OCT camera; and because the ultrasonographer quit for a better-paying job, an ohthalmology fellow (MD) had to take the ultrasound scan. New machine with gentler probe made it a more tolerable experience. Still on the "3-month followup" plan, but if all is well by this time next year I will move to twice yearly. Because I had to have my pupils dilated, I'm missing out on the chance to have my lunch & coffee out on my deck on this lovely mild sunny day. Might take advantage of it later to get my car washed.
Bob's taking the day off tomorrow for Mon Ami Gabi's outdoor "Monet & Rosé" luncheon, with the producer of the immersive exhibits as guest speaker. He wants to do the immersive Van Gogh if it's still playing anywhere. I wish the Art Institute would bring back the Van Gogh/Gaugin exhibit instead. He's working Saturday but off Sunday, so we're going to a special Air & Water Show watch party at the restaurant attached to Theater on the Lake. The party will be on its south lawn--with an open bar & BBQ buffet--but we're bringing our own chairs (which they suggest doing since they may not have enough). And because it goes on rain or shine, we'll also bring ponchos. General admission includes nothing but the right to sit on the ground (or one's own chair) and buy simpler refreshments. One would think that the VIP tickets would entitle us to one of their chairs--or refuge indoors if the threatened storms materialize.
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I had. bad news today. The memory care that my husband went in on 8/04 is in lockdown due to Covid. He's still negative and I hope he stays there. No visits for 2 weeks which isn't going to be good for him. I'm thinking of leaving a card every day (if that's OK) to keep in touch. He will get a booster the end of the month.
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Oh my goodness. He hasn't been there long and that is a lot of support to go w/o. Two wks. could be a long time for him. Could you call him a time or two during the day as well as leave cards. Could be safer for all concerned to have the quarantine, but sure wish your husband had been there longer bfore it happened. Likely hard for you too. I'll be thinking about you and hoping that the time passes fast. Hugs.
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Wren - so hard to not be able to see your DH for 2 weeks. These lock downs of care facilities are tough. I have a friend, that during the height of covid, she would go stand by her mother's window as her mother's room was on the first floor. It was the only way she could see her mother for months. Hope you can leave the daily cards. Sending you hugs.
Day two done - one boring 2 hour training and one great 1.75 hour training. Both on zoom. This morning 4 hour SW/SP department meeting. It is zoom. My manager had hoped it would be in person, but she could not find a space, but next month in person. Zoom is so much harder.
Yesterday afternoon we had a funeral for a friend's son. It was soooo hard. He would have turned 44 in 2 weeks. I can't even fathom the pain the parents are in.
We've had rain for the past couple days - well needed. I think it is gone for the next couple days then will be back.
Have a great Wednesday.
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My 95 year old aunt is in a nursing home. My sister says she is not expected to last long, but she is all there. I ordered a popup card for her. Should be arriving today. She is the last of the generation. She has a family reunion planned with her funeral. Only one person I don't want to see. Better than some families.
Made another three jars of spiced peaches-- cloves and star anise.
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Wren that’s hard, on both of you. Hoping he stays negative and you both get through the two weeks quickly. Sandy, great news on your eye!
I went to our park playhouse last night with 4 other women to see The Wedding Singer. It’s was a fun play and the weather was great. We drag our bag chairs and sit on the elevated stepped lawn. We took a walk through the park and got to see carriages set up for the filming of the Gilded Age. I had forgotten they were filming scenes there, so it was a nice diversion
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Looks like they spiffed up some Amish carriages.
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Sorry you won't be able to see DH during the covid lockdown wren. I hope he stays well and that you're able to be in touch with him somehow.
chisandy - glad the eye exam went well.
cindyny - the play sounded fun. Glad you had good weather.
We've had comfortable weather here. Very unusual for August. Picked up my retainer for my TMJ. Hopefully it'll help the jaw pain I've been having. Baseball is on now (1pm game), but I need to do some cleaning and the Nats are having an awful season. Guess I'll take be frequent breaks.
Enjoy your day.
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Thinking of you MC. We have some of your issues with some in the family. Mainly on Dh's side. Things have changed a little for us here though. One BIL ( youngest actually who bought our old house from us and loved it so much ) passed away three yrs. ago. The other brother in law has had issues since shortly after youngest brother with short term memory issues so he can't live at home. Is in a residential facility. So, just one bil ( married to the only sister in the family and she passed 7 yrs. ago, as well as one other who lives here in town. The two we have seen most are okay. The one now ( after a really long time ) has finally learned that there are some things we just don't talk about in this town. I speak mainly of political conversations. Had trouble with it for yrs. I did a lot of family cooking for get togethers and I finally made a rule -- the minute you start your political talk I will pack up my food and go home. I was only put to the test once. The stomachs won. I quit packing and stayed.
Religion and politics can be difficult and this is a VERY small town. About 13,000 people. Most of the people here will never be caught discussing either of the aforementioned subjects very much. I can count on one hand since we came back home which was in 1997.
My kids ( actually they are adults ) found a dog late this morning. She didn't have a collar but is a puppy. They feel ( quite likely ) she was dumped. We are getting ready for the annual Balloon Fest and there will be a huge amt. of people in town at all hours. It would be ( if you were prone to such a thing ) prime time to leave an animal. Of course being rescuers pretty much ( my family just sorts of naturally falls into it ) we ( they really ) couldn't leave the puppy. She looks a might thin. We can't keep her, but have to let her stay with us overnight since by the time we picked her up the Animal Shelter was already closed for the day. I am distressed with the idea that anyone would do this and hope that the Shelter can find a good home for this pup. She is sweet and minds fairly well. She does have some Pit Bull in her which wouldn't matter to us, but we have two older dogs and ALL the cats and I do not want to start over with puppies or kittens right now. If we lose one of the dogs here, I would likely go looking for an 'older' in need of home doggie. Puppies and kitties while fun to watch and interact with live too long and we are willing to continue providing a home as long as we can but part of our requirement now is -- we hopefully be able to outlive the animal so that no one else has to learn to love he or she. Our kids would likely do it, but easier if they no one has to have to.
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Wren, will the care facility allow you & your DH to communicate by video (phone or tablet)? Or will they bring him to a window so you two can be face to face (albeit with glass in between)?
Cindy, I hadn't realized The Gilded Age films upstate, but it makes sense since NYC looks so different now.
Had mice come in through the area around the hose bib--we discovered the "evidence" today. Heidi has been frustrated that she can hear them but they are evading her. (She is hard-wired to hunt). Our exterminator service (which we've used for 35 years) is so understaffed that they can't tell us when they can send anyone--it's only a matter of time before we'll begin to see ants & roaches. Our landscaper has done exterminating work, so he will lay traps and stuff steel wool into the spaces around the house (which my HK did this morning with Brillo under the baseboards). There's rodent evidence under the kitchen sink too. Ugh. Used to be that vermin could sense the presence of cats and seek out "greener pastures," but they're getting more desperate. (Hope it's just mice).
We went to a "Monet & Rosé" wine-pairing luncheon this afternoon. I am definitely not used to drinking so much during the daytime, and it didn't help that because I was intermittent-fasting and the lunch started at 1pm with an aperitif, I started out drinking on an empty stomach. When we got home all I wanted to do was sleep. Bob nuked himself a can of Chunky Soup and went upstairs to watch sports. I decided during a "pledge break" in the middle of a PBS documentary that despite the carbs I had at lunch I needed to eat something resembling dinner. Had planned to do Buffalo wings (manicure tomorrow) but I didn't feel like something that spicy. I had a ripe avocado, so I used it as the spread for a small BLT. I feel more alert now--I realize that I was having some serious hypoglycemia after that day-drinking.
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Yesterday I worked a bit in the garden, did some housework. Took Tippy out for a brisk walk while I rode bike. Then I rode over to a friend's house for our book-club (quilting was at the same time in the same neighborhood). Went home, got Tippy, and went to bike mechanic's house. We tinkered around with my bike, then went for a ride before we went to the park for a concert. Old rock music. I got some kale seeds which I will put in the garden today, and the popup card for my aunt. Hopefully the sewing machine needles will arrive today. Amazon is now delivering rather than handing over to USPS.
I am still frightfully busy.
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Wren, That is so frustrating. He just got there. I hope there is some way for you to communicated with your DH. Cyber hugs to you.
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Mary, you certainly are busy.
Wren, I missed the news that your dh was in a nursing home. Hugs for both of you as you deal with this difficult situation.
I'm skipping women's golf today and doing laundry. The weather is uncertain with possibility of rain showers. I may end up using an umbrella as I walk back and forth to the laundry room.
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I am so grateful for gratitude, a magical magnet.
A natural expression of a loving heart,
The power of gratitude recharges our souls,
In giving thanks we help heal the world
And increase our abundance of blessings unknown.
Katherine Scherer and Eileen Bodoh -
Spent last 2 days weeding areas that are overgrown. The one by the stream I plan on putting in daffodils to naturalize so no mulch until the bulbs are in. This was about 4 large garbage bags of weeds. The second area where the junipers are planted near the patio abuts the neighbor's property which is overgrown and neglected since they cannot see it from their house. However, I see it from my patio and the weeds invade my garden. I have cleared a section which is about 3-4 feet wide by 20-25 feet long which I am planting with pachysandra. In the lower section of this section the pachysandra from my yard just spread towards their driveway on its own, so I am just "helping" the upper section. I took out 4 large black trash bags of weeds and probably have 2-3 more to go. I thin my pachysandra and transplant to this section. It is looking rather sparse so I will have to add more. The pachysandra is great at cutting down on the weeds so this is why I am encouraging this barrier. Yesterday I spread 7 bags of mulch in other beds and today I spread 7 in the juniper area. It will most likely require at least 20 bags so DH is off to Home Depot for more.
It has been cooler in the mornings with slight breezes so it has been nice to work outside. I lost so much time when we had the heat waves and had to restrict myself timewise outdoors or focus on inside work rather than the gardens. So I feel like I am playing catchup outdoors as well as inside. I still have things to do in the living room and foyer plus getting more boxes out of the dining room. Sent 4 boxes to Purple Heart, have 2 for the Teachers group and some that are under scrutiny for keep or donate.
Need a shower after all the weed pulling and mulching so off I go. Have a good day.
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Watching my DH vacuuming. He does all of the vacuuming and yard work. I’ve had back issues since 2005, so he’s taken on all the gardening since then and helps with the house work. These days with two cats, we need to vacuum, dust and wash the floors weekly.
We’ve continued to have cool weather in the morning. It’s so much easier for our walks. Had a nice REIKI session this morning. Enjoy your day
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- Oh, life gets complicated! I've been so concerned with need for left hip replacement that all I've done, read, has been to educate myself about it and to interview Doctors. I've sort of let BC fall by the wayside in my mind and worries. Pretty silly. Have decided on surgeon. Hip replacement was scheduled for September 14. Then I realized I had to have Covid test 72 hours before and isolate until surgery which meant that I couldn't keep six month MO appointment on the 12th. Very responsive MO changed appointment to August 30. I was able to reschedule surgery for the 12th.I can get the Covid test on the 9th at the same hospital where I am due on the 9th to get yearly mammo and first ultrasound. Freaking out with scanxiety that they will find more BC on Friday and that I will go into hip surgery on Monday knowing BC has returned Tempted to reschedule mammo and ultrasound, but may curse myself for that depending.Confused..
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Mary - those buggies could easily have been Amish buggies. I never even thought of it. Sandy, Gilded Age took over Troy last year. When they came back they’re using Troy, Albany, as well as Cohoes. In Albany some buggy rides through the park and the use of a church on State Street. Probably more, I’m just not aware.
We did our walk this morning and got in about 3 miles. I then had a bunch of errands to do. I dropped of old paint at Sherwin Williams, did a return to Amazon at Whole Foods, and grabbed sone groceries at a different place. Low and behold we got out the mini chain saw to remove crap trees from behind our garage. It’s actually firehouse property that they used to maintain. I noticed the tree growing over the garage roof so we went to town on it. Lots of work, temp says 79 but sun was hot and humidity felt high. Yard waste pick up is tomorrow and I’m hoping they’ll grab this pile without us bagging it. I know I’m a dreamer!
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Judy, glad you were able to reschedule the exam & THR. As to scanxiety, it is exceedingly unlikely that you have mets.
What a difference a day makes! HK and landscaper put down sticky traps & plugged likely mouse holes, and exterminator came and plugged more of them, leaving behind some old-school spring traps. Also sprayed (pet-safe) for creepy-crawlies. Landscaper also removed the "ragweed plantation" next to the garage and installed photoelectric motion-sensor light fixtures on the front porch ceiling and the exterior wall by the deck.
Blue Angels rehearsed this afternoon for the Air & Water Show. My cats are old & deaf enough to have been pretty chill about it, but Leslie & Gordy's dog went nuts--she's gonna have a rough weekend. The Blue Angels will practice again tomorrow.
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Wren, I hope the COVID scare goes away quickly. My aunt is at a nursing home, and they do not have phones. She has never adapted to cellphones, computers, and all that. I think she is all the way up to 1980 in terms of technology but she is all there mentally. She did get an answering machine on her phone at home. So I have a cute popup card to send her, my cousin (twin sister) and hubby will pick it up at her home. My neighbor is still at a nursing home, and he also has never adapted to cellphones. Can they get a clue?
Getting ready to start writing again. They want an autobiography. Sigh. This will be painful. Then sewing and planting kale.
I will be going to the gym (burn 200 calories), but right now my leg is aching. Some of my liver numbers were close to the high range, so I have cut back on the Tylenol. I also need to wax my hands at some point, they have been aching too. So maybe I will go ahead and take some (arthritis formula). A run to the grocery store.
Betrayal, your work schedule is exhausting to even read!
Cindy, we have Amish lanes on our highways all over the place. Hardly a day goes by without seeing one. A local store sells their crafts and furniture.
I ordered a pole with a leash attached that we will install on the seat-post of my trike. Hopefully it will work with my trike.
Off to get dressed, get the bike out, and take Tippy for a ride to the grocery store.
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Good morning. I hear thunder, but it is not yet raining. I hope tp get to the library to return some books. I think early voting is available there, so I will get that out of the way. My friend's husband has a history of bilateral lung transplant and was showing signs of rejection. The started him on steroids, put in a chest tube, stated antibiotics and did some type of surgery. He is currently in ICU. Another friend, my cousin in law, just received news her brother died. It has been an eventful week.
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Keywestfan - glad you have a surgeon and a surgery date. Hopefully you can get the mammogram /ultrasound done your covid test. I hope your scanxiety reduces.
Cindyny - impressed by all your energy. We use to get weed trees growing in our garden in our old house. If DH didn't keep up with them they'd get quite unruly.
Quiet day today. Took a walk around the lake this morning. We're still having comfortable weather in the morning. Nice and sunny. Would like to go over to the museum. They have an outdoor exhibit Origami in the Garden that I'd like to see. It's metal sculptures.
I hope everyone has a healthy and stress free day
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Wrenn: Hope the Covid scare is nothing more than that for your DH and I hope you can figure a way to be able to communicate with him. My DFIL had Alzheimer's and talking on the phone for him was frustrating because he could not realize that there was a person connected to the message. You had to be face to face, so if this is also true for your DH, maybe they can use Zoom?
Petite1: Sorry to hear about your friend's DH as well. Hope they can find a solution.
Cindyny: great job on hacking down those trees.
Keywestfan: Good luck with your surgery. I find I am very anxious pre-surgery but the day of surgery, I am surprisingly very calm. Beats me why.
Today was more weeding with 2 more bags pulled and I think I am done in that section. I had 14 bags of mulch and they have all been laid. Sent DH to Home Depot for 6 more and that should finish this bed. I will transplant pachysandra tomorrow. It was much warmer today so I had to cut it short because I hate when sweat gets in my eyes. I should invest in a sweatband.
We are taking a 2 week trip to the Pacific Northwest on an organized tour with a few days before it starts and a few at the finish that we have booked additional day trips. This is our first trip since March of 2020. We had just returned from a 10 day tour of the Greek Pelopennesus when the world shutdown 2 days later. So it feels strange to have to think about packing, etc. We need the break and the chance to see more of this great country. I have only been to WA and CA so seeing Oregon and spending time in Northern CA will be new experiences.
Hope everyone has a good Friday and weekend.
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One that I especially love:
Self-respect cannot be hunted. It cannot be purchased. It is never for sale. It cannot be fabricated out of public relations. It comes to us when we are alone, in quiet moments, in quiet places, when we suddenly realize that, knowing the good, we have done it; knowing the beautiful, we have served it; knowing the truth, we have spoken it.
Whitney Griswold
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Thinking of all with various needed tests, or those who had any just done. Hope it all goes well. Really normal to feel apprehensions about testing -- more so I think with the seriousness of disease and treatments. Hopeing it all comes out fine. I expect to hear from all of you yrs. and yrs. from now but of course, that means I keep doing well too. My little unterior motive I guess.
Sort of a tough day. I do have my colonoscopy prep FINALLY. Of course, I now have to wait till the next opening which is Sept 12th. Well, that's okay. If all is fine I won't have to have anymore the Dr. said, so just a question of getting through this one, eventually.
Anyway. we had to take Bill, our black retriever to the Dr. a couple days ago. He just wasn't doing well at all. Had lost wt. Turns out his arthritis was acting up. So to put wt. on we are to not limit his diet right now -- he was on a grain free diet for his yeast infection issue and he also is just an 'allergic' dog. So that lead to diahhrea and he was a real mess this morning. We had to get him a huge bath ( thank goodness he has his summer cut ) and cal the Vet to see what she wanted to give him for the loose bowels. Pepto Bismol. I have been cooking chicken breasts for him and he is eating those really well. So for now he is on the chicken diet with a bit of lamb on the side. His steroids should be kicking in and he should start feeling better soon. He has really been laying around and taking it easy which is good for him. Neither of our dogs are young anymore although Mini is smaller and always seems to have more overall energy. She still darts here and there quickly. Her snout has turned mostly white though.
The kids left this afternoon for Florida. They will make a stop in Georgia. My daughter has a good friend who lives there and also her son and his wife ( the ones who recently visited with us here ) are there in their new home. It will be VERY quiet around here which Dh and I are sort of looking forward too. The kids have been with us almost a yr. now and while we are not sure how well our yr. might have gone ( I had the big medical downfall with the open hart surjury ) had they not been here, some of it has been confining a time or two. So we are looking forward so the quiet of coming and going and going and doing for ourselves as we did for yrs. beforehand. The mowing is done and most of the big chores. DSIL's son is here and we can call on him if we need too. Hoping we don't need anything though. Now with no one needing to sleep late from working late I will be able to do things in the house that may be noisy. I've left a number of things and it will definitely be catch-up time for me.
Hope you all had a good day.
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We are in the midst of hay fever season, but there's been no locsl allergen count available since Mondsy. In this entire sprawling tri-state metro area (with three distinct microclimates), only one hospital, in a near-west suburb, takes daily pollen & mold counts M-F. Their former allergist, Dr. Leija, who retired at 83, for 40 years went up to the roof every weekday morning at 6am to gather slides from the machine--and he did it from Apr.1-Oct. 15. The new much younger one, Dr. Shah, inexplicably misses days and does it only from Apr. 15-Sep. 15. Even when things go smoothly, the morning after (or during) a rainy spell the counts are "low" or "absent" because the pollen grains & mold spores get washed away. Their Twitter account (which is now the only way you can get the counts, other than our local ABC station's midday meteorologist repeating them), posted on Wed. morning they've been having "technical difficulties" and "hope to be able to resume soon." Meanwhile, everyone's been agonizing whether to test for COVID, despite their symptoms being exactly what they've always been this time of year. I have the "Allergy Plus" app from Pollen.com (affiliated with The Weather Channel), but I have no idea how & from where they're getting their counts--probably an algorithm, because they will predict up to three days ahead based on wind & weather forecasts. It's been "medium-high," 8-8.5 lately--but predicted to fall to "low," 2.5 tomorrow because of expected storms but go back to medium-high on Sunday and high (>10) on Monday. I miss the allergy hotline you could call decades ago--they'd even break the mold spore count down by species of mold. Everything is online-only (worse, social-media or app-only) these days. There aren't even phone directories or 411 calling any more--have to Google or ask Siri or Alexa for a phone number.
Bob managed to finagle this weekend completely off, but work late all the next. (We can never make plans in advance any more--his schedule keeps changing due to that of the doc with whom he trades hospital call, including arcane religious holidays and taking grandkids on vacation, etc,, etc.--but when that guy does work, he works really hard...it cost him a bundle to replace the Bentley that got stolen and maintain the McMansion in a gated suburban community).
Gonna storm most of tomorrow, but our Air & Water Show viewing party tix are for Sun., when it's forecast to clear by 10am. (Hope so, because the facility's building will be closed and "shade tents" are not safe places to be when lightning strikes).
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When we are aware that each moment of each day, each gesture
and step we take, is truly mystical and full of wonder, we will live
our lives with greater thought and care. We will also have greater
respect and appreciation for the lives of others.
Daisaku Ikeda -
We went to see Brandi Carlile play Friday evening in Bethel, NY. She was great! She sang and played for 2 hours, and oh what a voice. We had to drive home from there 2.25 hours, Walked in our back door at 2:12 AM, a long but great night.
The Bethel Woods Center for the Arts is located on the property where Woodstock was held in August 16-18, 1969. And here we were 53 years later loving it! Side story, my partners brother was going to Woodstock in ‘69. He had room in the van for one more. He didn’t take his younger brother, my life partner, instead he took a neighborhood kid. I did mention to him as he stood by the sign that his brother didn’t bring him but I did.
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Life rushes us along and few people are strong enough to stop on their own. Most often, something unforeseen stops us and it is only then we have the time to take a seat at life's kitchen table. To know our own story and tell it. To listen to other people's stories. To remember that the real world is made up of just such stories. Until we stop ourselves or, more often, have been stopped, we hope to put certain of life's events "behind us" and get on with our living. After we stop we see that certain of life's issues will be with us for as long as we live. We will pass through them again and again, each time with a new story, each time with a greater understanding, until they become indistinguishable from our blessings and our wisdom. It's the way life teaches us how to live.
Rachel Naomi Remen -
I saw Brandi Carlile with my DD at the Tower Theater in Upper Darby, PA when she was just launching her career. She was the opening act for Train and the crowd loved her. Have been following her ever since and love to hear her sing The Story. DD remains a fan as well. Love her voice and her range. Lucky you to see her now.
Dog is very confused today and crying. Not sure what is going on with her since each day presents with a new change. This may be her swan song and I am dreading that. She has been such a good dog.
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