Positive Girls Club

Options
1679111240

Comments

  • Made
    Made Member Posts: 157
    edited March 2007

    Beth love the pictures. I had 2 great positives today - 1 - I slept though the night - no 2am or 3am a wake for the night (course had the roughest night Sunday so...) but it felt so good to wake up to the alarm instead of watching the hours slowing move towards morning and 2 - my chest CT came back clean (they saw some nodules pre op and now I have to be watched) I was so positive that the breast cancer would save my life from the lung cancer in the beginning...I've decided its from gardening - lots of bird feeders so I've self diagnosed myself with histoplasmosis.

  • beth1225
    beth1225 Member Posts: 1,061
    edited March 2007
    Kelly, I don't sleep through the night either and haven't for months. It is 2 AM now as a matter of fact! What was your secret to doing it last night? The last time I slept through I had to take pills and I woke up feeling punch drunk. Yuck.

    Anyway, you guys, it is easy to post pics. I learned from snowmennthongs here on the boards. go to photobucket and set upa free account. Then, download the pic from the computer or a cd. You cna play with it afterwards too to get titles and change its size. Then click on "img", the thord line under the pic. It copies the code for you. Then paste it into the post! It takes a little trial and error but if I can do it anyone can!
  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2007
    Thanks Beth,
    I will play with some at home later this evening....

    Crystal, How much longer do you have to finish your MA???

    Made, I too have issues sleeping but this past few nights I have slept to about an hour before the alarm so Im making progress...do you take tamoxifen??? I have figured out that if I remember to take it with dinner instead of just before bed I have better chances of sleeping for longer periods of time...Congrads on the clear test...I love to hear that a sister has passed her exams ....I meet with my med onco for the first time after finishing rads so will see what happens next...

    Hope everyone has a wonderful day!!!!!

    Jule
  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2007
    Im going to post a day early this week....I dont have anything positive to report on this week so am skipping Friday...

    I just got back from my followup with the medical oncologist on the low potassium issue and he scheduled me for a biopsy with the surgeon on Monday:(....I have had a swollen lymph node in my arm pit since Jan. but they thought it was reaction to rads...rads ended the 14th and it hasnt changed so he doesnt want to wait any longer.

    I hope that you all have many many positives for this week and look forward to reading them...
    Hugs
    Jule
  • 1stlite
    1stlite Member Posts: 23
    edited March 2007
    My positive is that I had my first infusion and it went well. Hope this holds out. I have no headache, but am really tired, probably the ativan. So, it wasn't as big as my mind made it, it was good. So, that's positive.

    jpann - I am glad you have a surgery date. That must be a bummer. At least you are moving forward.
  • beth1225
    beth1225 Member Posts: 1,061
    edited March 2007
    Jule, I do hope and pray it all turns out well. You know we are with you in cyberspace cheering you on. Sending lots of love your way.

    My positives are a little hard-earned today. Wednesday night we came home to fire engines, police cars and an ambulance on the street. My ds came to the front of the house and told us he just stomped out a fire in the backyard. It turned out to be a small brush fire but it burned some of the siding and damaged the A/C compressor. The good thing is Eric only had a little smoke inhilation and was ok according to x-rays and the ER doc. We were lucky to know the dr as he was a classmate of my brother's. They got us in and out, but mostly because they needed the bed! So I guess we are getting some new siding and new bushes that went up in smoke too. But my ds is fine, that is the positive.

    The other is that my best friend, Terri, who had a biopsy done on Monday got the call today, B9!!! Thank you all for your prayers for her. She just has to go for close surveillance now. We all know the drill.

    One more positive...dh is FINALLY going to clean out the shed and put away the Crhistmas stuff! Last year it didn't happen until after Easter so this is an improvement.
  • jacksmom5-2006Oct14
    jacksmom5-2006Oct14 Member Posts: 19
    edited March 2007
    No real positives to report this week either.

    Jule, will keep you in my prayers for good results on Monday.

    Beth, that must have been so frightening, glad that your ds was okay and only minor damage to the house. The weather was nice last weekend so down came the Christmas stuff. I know what you mean though, I usually have to wait until after Easter sometimes longer.

    Charlie,glad your first infusion went well. Hope it stays that way for you.

    Well everyone have a great weekend.

    Sue
  • QueenSansaStark
    QueenSansaStark Member Posts: 207
    edited March 2007
    Jule, I hope you get good results. I'll pray for you.

    Beth, good to hear Eric was OK and damage was minimal!

    Charlie, hope all the infusions are as uneventful as this one was.

    My positive is that I got the go-ahead to take a shower so now I'm going to go stand under water until I look like a prune. Also, my axillary node dissection only found one more positive node. So - three nodes means I'm still stage II. Whee!
  • Chrysalis
    Chrysalis Member Posts: 59
    edited March 2007
    Hi Positive Girls,

    My positive this week is that I got results from my genetics test, and I am negative for BRCA 1 and 2. I had 2 major risk factors - early onset (40) and Jewish background. Even tho I was dxed almost 7 years ago, I'ved been concerned about my two daughters (11 and 14) and my sister and her daughter. From a medical management standpoint, I've already done everything I would do had it been positive (bilat mast in 2000 and ooph/hyst in 2001), but this is very good for my girls, and it's one less worry I'll have for them (got enough already!).

    Jule, Beth, Charlie and Crystal, good to share your positives with you today. Hope you all have a fantastic weekend!

    Renee
  • PJF42
    PJF42 Member Posts: 24
    edited March 2007
    Hey Jule,
    Keep your chin up and I will keep you in my thoughts and prayers!!
    Sending lots of positive energy!
    Pam
  • PJF42
    PJF42 Member Posts: 24
    edited March 2007
    Hi Positive Ladies,
    It has been a pretty queit week for me. Still feeling pretty good! One positive, it feels like spring is finally here and it is so nice to get outside and do things!
    I hope everyone has a nice weekend and we will meet up next friday, if not before!!

    Pam
  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2007
    Hi Pam,
    Its gonna be a long weekend and then a few days after that for the results, but it sure helps alot to have you all supporting me
  • kative
    kative Member Posts: 11
    edited March 2007
    I'm a little late this week, and while what I'm about to post might at first sound a little depressing, I'm actually looking at it as mostly good news.
    I had to have a little secondary (out-patient) surgery this past Thursday. Some of you might remember that I had a lumpectomy and radiation back in 2003. Anyway, the radiation apparently did damage to my skin (I had NO idea that radiation stuck around so long). The damage to the skin is causing me problems now. I ended up with large blisters under my breast after the mascetomy/ reconstruction. Unfortunately, that area was not healing and was in fact spreading. On top of that, my breast was not draining as it should on it's own after the removal of the drain tubes. That was the biggest lump of fluid filled boob you ever saw, and was quite uncomfortable. Anyway, the surgery was to cut out all the dead skin and re-stitch that, and also re-insert the drain tube. So, the bad news is I had to have this done...The good news is the dead skin area looks SOOO much better and the drained boob is comfortable enough that I am actually grateful for the drain tube.
    Next, my mom went home today. Don't get me wrong, I love my mom to death and am ever so grateful the the help she provided me and my husband during the past few weeks, but I'm ready for some "alone" time...That sounds horrible, doesn't it??? I look at this event a a mostly sad but a teeeennnnyyyy bit happy event (Please don't think ill of me for thinking this way).
    Lastly, a little about myself as I see we are starting to leave little biographies...I'm almost 49 years old, married for 28 years, have 1 daughter who no longer lives at home, and 3 dogs. I live in Minnesota, USA, but really don't like it (again sorry about that Minnesota lovers). I'm originally from Florida (long story), and it's just WAY to cold up here about 8-1/2 months out of the year. I work at an electrical wholesaler. My loves are tatting, which is a form of lace making, genealogy, which is my one true passion, and golf, which is apparently out this year so I'll have lots of time for the genealogy.
    Well, that's about it...sorry this post is so long, but I've killed a couple birds with one stone here. Hope everyone is doing wonderfully and keeping positive.
    Hugs to all, Kathi
  • Made
    Made Member Posts: 157
    edited March 2007
    Jule - will be thinking of you - let us know the minute you hear.

    Kathi - from Florida to Minnesota - that would continue to be weather shock for me for decades (and I'm from Chicago). Glad that you are getting alone time and yes I totally get the relief when Mom leaves - I think its that whole daughter/mother relationship and expect the same from my 2 girls too.

    CrystalCat - that first shower is heavenly isn't it. Were you a prune!! Amazing the things we took for granted. Also congrats on the staging - I bet that's a relief.

    I actually have 3 positives this week
    1)I quit smoking 3 weeks ago Monday and haven't gained any weight
    2)My chest ct came back no changes - next follow up in 4 - 6 months (such a relief)
    3)My BRCA1 and 2 came back negative to it wasn't genetic (not that I thought it was - but in the middle of the night you wake up wondering what you had passed to your girls....)
  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2007
    Wow Kelly, congrats on the cessation of the smokes! I quit smoking in 1988 and I gained a ton of weight! If I could go back in time, I never would have lit that first cigarette, that's for sure! Anyway, you will really enjoy being free from the bondage of cigarettes after a while.

    Jule, I'll be thinking of you and the biopsy... hope it's all good news. Your happy, positive attitude always makes me smile!

    Kathi, it sounds like you've really been through it with the damaged skin and fluid buildup and extra surgery. I'm glad it's all taken care of and you're reasonably comfortable now. Hope your complete healing comes quickly.

    Beth, I am sorry to hear you're not sleeping. I was not sleeping for more than 2 or three hours at a stretch after my mastectomy, but I got an X for Ativan and it really helps. Have you tried Tylenol PM or anything? Also, thanks for the tips on uploading pictures to this board. I am going to try one!
    [image]http://image
    My positive for the week.... I feel good and it's a beautiful day. I've had a rough couple of weeks, starting with a failed attempt at putting in a port-a-cath that resulted in about 25 puncture wounds in my chest and neck the day before my first chemo. The Neulasta shot I got the day after chemo (which I must get after each one because I am getting DoseDense) made me have horrendous headaches and then I felt like I had the flu. By the time I was just about over that, it was time to get the port put in again. The second time went well, but there is still the pain, soreness, etc that is normal. Then my white and red blood count was low, so I am on house arrest from that. THEN (LOL) I got a sinus infection. I got an antibiotic called in for that and now I feel pretty good. In the middle of all this, I am getting calls from HR wanting to know when I'll be back at work and I know I'm about to be fired.

    Having done all that whining, I do think things will get better and that everything is going to be okay. The sunshine and warm weather really does give me a great pick me up and look at my beautiful grandbaby!!

    Thanks for listening. LOL

    Miss S
  • AliceJean
    AliceJean Member Posts: 625
    edited March 2007
    Always a day late...
    Today I went to watch my grandkids' swim lessons and got hugged bigtime from all of them, but the 6-yr old boy just would not let go of me, sat on my lap and kissed me and hugged me for like half an hour! It was great. I really needed it too.
  • LisaSDCA
    LisaSDCA Member Posts: 2,230
    edited March 2007
    Jule - I'm so sorry that your lymph node issue has come to this. But they'll take that sucker out and we're all pulling for you. Surely it's just scar tissue from the rads.

    Congratulations on neg. BRCA tests for Kelly and Renee! I know it must be a relief for both you and your families.

    MissS - sorry you have had such an ordeal, but glad you are feeling better on this beautiful day. I have been informed that I no longer have a job to come back to, myself. And I've been at that office nearly 7 years! The federal FMLA doesn't apply because there are fewer than 25 employees.

    My positives (sorry they're a day late)
    My garden is simply bursting with blooms. This morning alone I filled vases with 4 different roses, alstromeria, freesia, scabiosa, lavender, salvia, narcissus, etc. This doesn't even include all the other bushes/vines/trees that are also in bloom - my clematis, brunfelsia, lavetera, climbing roses, nectarine, brugmansia, etc. When I consider how much I've had to neglect my garden due to surgery and chemo and that we've had only a few inches of rain all season - I feel especially blessed that it is still so delightful this Spring. Having fresh flowers on my bedside table, my desk, my dining table, in my bathroom - all just gives me such a lift!

    Okay - so I got carried away. Sorry.

    My other positive is that I still have HAIR! My original goal, when it started seriously shedding on Day #14 was to make it until my onc. appointment on Day #17. I pranced in there saying "Neener, Neener!" because he had told me he could guarantee I'd lose it btwn 14 and 17. Now it is Day #19 and although it isn't nearly as thick as it once was (by about half!), I got a compliment from a neighbor on my 'do last evening. My next goal is to be able to wear HAIR to church tomorrow. Wearing a hat on Easter Sunday will be so much easier because it's almost traditional that many non-hat-wearers will still break one out on Easter Sunday. So I'll fit right in.

    Wishing a great weekend to all my BC sisters!
    Lisa
  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2007
    Lisa,
    I am so sorry you have lost your job. How will you pay for insurance or get by? That is what really worries me! I guess we will all somehow get through this!

    Miss S
  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2007
    Im sorry I havent been too active this past few days with everyones positive but spent the weekend trying to keep myself busy so my mind wouldnt be going to the place I dont want to be again.
    It worked to some degree but Im still scared about this node thing...meet the surgeon about it today but the cruelty of having an appt at 4:30 in the afternoon ofr something like this!!!!!!!!!!!

    I did checking in on you ladies off and on all weekend and it brought smiles to me to read your positives....

    Hugs
    Jule
  • QueenSansaStark
    QueenSansaStark Member Posts: 207
    edited April 2007

    Good luck Jule! Saying a prayer for you and crossing my fingers for something completely B9! *hugs you*

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2007
    had my appt this evening with the surgeon...he said the same thing as the oncologist about the node....I didnt have the biopsy today because he said it was too deep in the arm pit to do in his office...he set me up with surgery on Monday at 8 am...he will take the node out, run it through pathology and if anything shows up he will remove the rest right then and there....
    Im going to still to my original plan like I did when I was first dx'd....hopefully it will work this time too.....I always went into each appt expecting the worse and each time came out with a little less.....
    Thanks for all your thoughts today.
    Jule
  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2007
    Jule,

    I'm sorry this has to go at least one step further. Now you have another wait... the awful waiting. I am keeping positive thoughts for benign!

    I am thinking of you and keeping you in my prayers.

    Miss S
  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2007
    Thank you Miss....
    I keep thinking at least with it being done this way I wont have the wait for the biopsy results and if there is something there it will be gone when I wake up so its not all bad I guess.

    I keep meaning to tell you, your grandson is about the cutest thing!!!!!! I have grandchildren to and enjoy the daylights out of them...

    Jule
  • beth1225
    beth1225 Member Posts: 1,061
    edited April 2007
    Happy Birthday jonimb! What a great positive today!
    image
  • beth1225
    beth1225 Member Posts: 1,061
    edited April 2007
    Just got a couple mid-week positives today. First, I got a wonderful pm from Jule. Thank you again, it brightened my spirits immensely and I cannot believe how caring you are even with all the mishagoss(craziness) that you aer going through. See, another positive, you are learning Yiddish!
    Also, the contractor just came out this morning. He said because the siding is so old, he can't amtch the burned portions when he replaces it. So we are getting new siding. It needed replacing this year anyway because it is peeling. Also, they are going to uprgrade the electric service as part of our coverage. Wow, who knew we would have a fire and who knew it would replace so much that needed doing anyway. And best of all, I don't have to worry about dh climbing a ladder! one down side is Eric, my ds, is having nightmares once in a while. His pediatrician said it will pass. Heck, I have them about fires happening again too. But I take Xanax to get rid of mine, LOL. Ya know, they really should make them as lollipops like they do with Oxycontin.
    BTW, Miss S, your grandson is so adorable. Mine are getting big but I should let you guys see pics of them. If you go to my website (click below) I fianlly got pics psoted there from ds' Bar Mtizvah.
    See you all on Friday.
  • livesstrong
    livesstrong Member Posts: 1,799
    edited April 2007
    Hi,

    I just found out about the PGC from reading one of your posts, Jule. I hope its not to late to join.

    From what I've read here you ladies seem to post your positives for the week on Fridays. What a great idea.

    If you don't mind, I would like to post a couple now.

    I woke up this morning!
    and my hair is really starting to grow!!

    I am having a pretty rough week so thinking of the positives in my life really helps.

    Thanks for letting me join in.

    Valerie
  • 2timer
    2timer Member Posts: 590
    edited April 2007

    I have something postive to report that I am happy about. I had my lumpectomy this past friday and Monday the doctor called me with the Pathology. He said it remained DCIS grade 1. I made him repeat it and today I had them fax me the report. I had 7mm of grade 1 DCIS, nothing invasive and .5 cm margin. I feel deeply blessed but still shaky -- it's only been 2 weeks since initial dx. I feel as if I've been on a rollercoaster and I'm still afraid for some reason but I have the earliest type of breast cancer you can have. On top of that I only had a bandage on my breast -- no wrap. Again, I feel truly blessed and I'm very humble and have all of you in prayers.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2007
    Welcome ...Im glad you came....
    The only requirment is as you said we all meet up here at sometime Friday or Saturday and post our positive for the week....and alot of times some of us cant wait for those days so we post off and on all week so you posting positives today just means you will have to find more for Friday ....
    We are all happy to see new sisters here..
    I look forward to reading all of you positives

    Hugs
    Jule
  • jonimb
    jonimb Member Posts: 900
    edited April 2007
    Thanks Beth....had a great day.

    I went to the Look Good Feel Better yesterday in Calgary, had lots of fun, and received lots of goodies.

    Hope everyone else is having a good week.

    Cheers...& Hugs..


    Joni
  • lisaelder1972
    lisaelder1972 Member Posts: 171
    edited April 2007
    Hi all!Well,I am proud to announce...no more wigs!!!I finally have enough coverage to spike it with wax pomade and it actually looks cute with my big hoop earrings.I do need to color it.I am 4 and half months out of chemo,is that too soon?What products have some you all used for coloring?

    Hugs,
    Lisa

Categories