Aromatase Inhibitor Therapy Longer Than 10 Years

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sbelizabeth
sbelizabeth Member Posts: 2,889
edited August 2022 in Stage III Breast Cancer

I've been on Femara since July 2012. Ten years last month. I would love to be done with this drug--I can't sleep well, I can't lose weight, I get UTIs every time I ride my bike. My bones have suffered a bit but I'm on a bisphosphonate and it's helping. Femara is my mental safety net. I'm afraid to stop. There's not a lot of research for people who take AIs longer than ten years. Would Olivia Newton John's cancer have recurred if she'd had access to this drug when she was diagnosed in 1992? Should I argue to continue at my next oncology appointment? Anybody have opinions, insights, brilliant thoughts?

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  • Meow13
    Meow13 Member Posts: 4,859
    edited August 2022

    I did 4 years and had enough, still have mild joint pain and trigger finger occasionally. Been off for 6 years, the anastrozole and exemestane really aged me.


    I was diagnosed with one idc and one ilc tumor technically stage 1, but I had a 34 oncodx which is high risk of recurrence. So far so good but still worry alittle.

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  • Newnorm
    Newnorm Member Posts: 100
    edited August 2022

    Hi, I’ve not got anything other than my own opinion and that is I am a strong believer in the placebo effect. So for that reason alone, when the time comes, I’ll be arguing to stay on AI’s for the rest of my life. Good luck

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