Canadians in British Columbia

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  • BbyMom
    BbyMom Member Posts: 31
    edited June 2022

    cathy67, no, unfortunately I rarely get results from the techs. I did try but no luck. I'm not getting my results until Monday. It would have been 8 days if I got in on Frday, so one business day later than yours. Hopefully a long wait time = good news! and no more biopsies!

    Sorry to hear about the hormone therapy side effects.Hope the lupron shot works well for you. I'm definitely worried about all these side effects. I was supposed to start this week but delayed it to Sunday night as I have lots going on this weekend. My RO wanted me to be on it for at least a few weeks before our appointment at 6 weeks after the end of rads, so I'll still be ok. (Btw, isn't it strange that this 6-week follow up appointment is a call instead of in-person? I found that strange as I was hoping she'd examine everything to ensure all is healing ok.)

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  • BbyMom
    BbyMom Member Posts: 31
    edited June 2022

    suz45, I LOVE the quote in your signature: Laugh your heart out, dance in the rain, cherish the memories & ignore the pain, love and learn, forget & forgive. Remember you only have one life to Live. I will hold on to this one. Thanks for sharing it with us!

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  • cathy67
    cathy67 Member Posts: 514
    edited June 2022

    bbymom,

    It took me 8 days to get appt, and I believe the report was already there, but we, as patients, cannot get it directly ourselves. .. that is in Canada.

    If it needs biopsy, I think they shall contact you earlier. And furthermore, if it is high suspicion, they shall book biopsy for you right there.. that was what I experienced, the tech person back with biopsy appt, no any explanation. So I think you don't need biopsy, at least. Pray for it.

    Cathy

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  • BbyMom
    BbyMom Member Posts: 31
    edited June 2022

    Hi Cathy, I think you're totally right. That's been my experience thus far as well.

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  • gladis
    gladis Member Posts: 36
    edited June 2022

    Yesterday, while awaiting in the darkened hospital room for the US tech to return - I thought of you Cathy.

    (And furthermore, if it is high suspicion, they shall book biopsy for you right there.. that was what I experienced, the tech person back with biopsy appt, no any explanation.)

    (I read, pray for this strong Canada crew, and rarely have enough courage(? ) to post)

    When the tech didn't return for a long while, I knew...it's bad.

    It was.

    I'm lost...sad,...don't know where to turn...

    this is another cancer, (suspicious due to blood vessel/solid for sarcoma/lymphoma)

    on top of BC and I'm still recovering (mentally not even digested )

    (&I'm still not yet well enough for RT since April's lumpectomy--the consult in Vancouver was for 27 July )

    but I will say-this 'thing' has been with me for a decade.

    Absolutely, under diagnosed. (Long story)

    Even when I showed the article to my surgeon at UBC, he dismissed it as 'rare' (https://pubmed.ncbi.nlm.nih.gov/11079174/)

    (I have every symptom but NO doctor wanted to believe it -->(????)

    My family doctor (TY GOD that I have one in BC. I pray for his health)

    who read the entire published study said

    "Don't worry" "This is rare"

    No doctor -not even the head of Oncology in RI or the famous MG of Boston

    (we can't say names but he's famous and published a main stream medical book)

    could diagnose what CA doctors did yesterday---- in less than 6 ms.

    I'm awaiting a contrast MRI now-

    like Cathy mentioned-if it is bad-you know right away because you have an appt in hand "-D :-(

    It is just my poor husband and me- we are wrecked

    My real name was Swtpoto (everywhere, ebay etc) but here in what looks truly awful

    Glad Is

    in a foreign but beautiful <3 country with this is very scary,

    but having this board -is my rope. I'm glad you are here BC BC

    Thank you for 'listening' this morning.

    Hug,

    me

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  • wrenn
    wrenn Member Posts: 2,707
    edited June 2022

    Hi Gladis, Sorry for what you are enduring. My reading comprehension has taken a nose dive the last couple of years so I am not sure if you had the Bx diagnosing Lymphoma or get an appt for something suspicious? Either way what nightmare on top of the BC.

    You CAN name doctors on here. :-) Or at least I sure have. Let's test it. My onc is Stephen Chia

    I'm glad you have a family doc. They are scarce. I don't have one but see an amazing NP at the cancer centre in Vancouver. I think you are on the sunshine coast.

    Rambling now but wanted you to know that although many people aren't posting in this mess many are still reading and are keeping you in their pockets. Keep us posted.

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  • cathy67
    cathy67 Member Posts: 514
    edited June 2022

    gladis,

    Sorry to hear what you experienced, diagnosis is complicated while treatment has options, all these create extra mental illness on top of BC. I know.


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  • BbyMom
    BbyMom Member Posts: 31
    edited June 2022

    Hi Gladis, I'm sorry to hear about the suspicious finding and that it wasn't investigated earlier. You're right, no biospy appt is usually good news (my results ended up being ok - monitoring will continue but no biopsy needed). Biopsy just means they need more info and hopefully you get some answers soon and results are not bad. The waiting is the worst thought, I know, plus it sucks that it's on the heal of breast cancer - That is a lot of stress! Hang in there and practice self care... deep breathing, long walks, nutritious food, etc.. Take care and keep us updated!

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  • cathy67
    cathy67 Member Posts: 514
    edited June 2022

    bbymom,

    Glad to know your good news, take break, enjoy summer, and then go for follow up. Mine shall be in October, have not booked yet.

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  • gladis
    gladis Member Posts: 36
    edited June 2022

    Good morning Cathy, bbymom , Wren (co feline lover) "-) and any other 'like me watchers' <3

    I'm super happy for your no worry for now results. I'd take it in a heartbeat!

    Sadly, I am aware of how this biopsy will go,

    I am the one who had to point at this other cancer for my doctors and was 'lucky' one listened and then the others followed.

    Dr Scali (let's see Wrenn "-) is the derm who has pre-diagnosed a sarcoma/lymphoma while we wait for a more detailed look

    -but it's all there in the US and the symptoms😭

    (on the heel of IDC-ugh).

    And while I Knew..

    (I actually reached out to the moderators on this site back in April about this very thing.

    I felt like I might not be able to 'be here with all of you' with so much 'other cancer'

    YET,.it still shocked me.)

    I'm trying to take bbymom's advice and care for myself without thinking, --------what's the point.

    Then, alternating that thinking , -----------with loving the F-word out of every moment.

    (Squeezing my good natured (mostly) Amos to pieces too, poor guy :-D

    image

    Luckily, I found you brave souls right here in my LR

    and have slipped you into my pocket wherever i am

    My three a day gratitude /attitude list

    (ty) my pack of animals that go wherever I go

    and a good man in my life.

    I am going to go write that down on the wall so I can remember. 😉

    Have a better day today -keeping you close in pocket

    Hug,

    me->glad is...

    😊

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  • Pots
    Pots Member Posts: 186
    edited August 2022

    Even though this site isn’t all that active, I thought I should let you know that Margaret Young aka moth passed away at home on Friday August 12,2022. Many of us met Margaret at a BCO members lunch in November 2019 at Cactus Club. She was instrumental in getting us together. It was at that meeting that she mentioned that she was being checked for a progression which sadly was true. She will be sorely missed among the MBC community on BCO, her blog posts were amazing and from the heart about her experience with this dreadful disease, RIP Margaret

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  • wrenn
    wrenn Member Posts: 2,707
    edited August 2022

    Thanks Pots, I was recently looking at photos from that lunch. This is very sad news.

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  • BbyMom
    BbyMom Member Posts: 31
    edited August 2022

    Oh no, I am so sorry to hear about moth. Even in my short time here I saw how active and helpful she was. Incredibly sad. :(

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  • cathy67
    cathy67 Member Posts: 514
    edited August 2022

    pots and others,

    So sad to hear this, I marked her vlog and checked it frequently. I read her last photo on August 9, . back in this tough spring, when I was called for biopsy, I had private conversations with her, and she gave me lots of useful info, care and support.

    Back in year 2019, she introduced me to this thread.

    Dear moth, rip.

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  • koshka1
    koshka1 Member Posts: 678
    edited August 2022

    I was there… I don’t remember who this was…. :(. I can’t put a face to the name.

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  • cathy67
    cathy67 Member Posts: 514
    edited August 2022

    koshka1,

    Search itisjustastage on instagram, that is her account.

    I planned to join 2019 gathering, but did not go, due to fatigue from radiation and busy family activities.

    I missed her so so much these days.

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  • wrenn
    wrenn Member Posts: 2,707
    edited August 2022

    Koshka1, I sent you a PM with photo ofthe 2018 lunch with Moth

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  • Elderberry
    Elderberry Member Posts: 993
    edited August 2022

    wrenn: were you there for the 2019 lunch? I was there and I remember moth, mariane, pots, ilovelife (?) Candy I am sorry you didn't make it.

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  • wrenn
    wrenn Member Posts: 2,707
    edited August 2022

    Elderverry, I went to a get together at Marianelizabeth's house in 2016 (before she moved to Victoria and then in 2018 at Cactus Club in Vancouver. I missed the 2019 lunch.

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  • wrenn
    wrenn Member Posts: 2,707
    edited August 2022

    Here is a link to a memorial for Moth posted on her instagram.

    https://www.forevermissed.com/margaret-kinga-young/about

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  • wrenn
    wrenn Member Posts: 2,707
    edited September 2022

    image

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  • Elderberry
    Elderberry Member Posts: 993
    edited September 2022

    wrenn: I love that drawing. Paddington Bear, a Corgi, Elizabeth all walking away. Did she ever have anything in her black handbag. Tissues. Maybe. Fare for the Tube? Nope.

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  • Sadiesservant
    Sadiesservant Member Posts: 1,995
    edited September 2022

    My mother and I always said it was a hankie. 😊 Recently she confessed it was a marmalade sandwich for emergencies. LOL

    I feel oddly bereft. She’s just always been there…

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  • koshka1
    koshka1 Member Posts: 678
    edited September 2022

    thank you! I remember!

    Are there any get togethers

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  • Elderberry
    Elderberry Member Posts: 993
    edited September 2022

    I would be lovely to meet up my fellow sisters in the Lower Mainland. I am terrible about organizing things like that and we loved our beloved moth who organized past ones. Can we hope for a maskless fall?

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  • BbyMom
    BbyMom Member Posts: 31
    edited September 2022

    I'm new this year so haven't attended any past get togethers but would love to meet you all. I'm in Burnaby but willing to travel (as long as there is parking or near the skytrain) and can meet 6:30pm onwards, if dinner, or any time for during weekends for lunch/brunch. Unfortunately my place is too small to host. Where was the most recent get together?

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  • BbyMom
    BbyMom Member Posts: 31
    edited September 2022

    elderberry and sadieservant, did you see this cute clip that answers the question about the handbag? Super cute... https://www.youtube.com/watch?v=ZZRP70zMHgo

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  • Elderberry
    Elderberry Member Posts: 993
    edited September 2022

    bbymom: we went to the Cactus Club at Broadway at Ash. The street is a total mess now with the Skytrain going on underneath the street. I guess it should be called a subway. Where in Burnaby do you live?

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  • koshka1
    koshka1 Member Posts: 678
    edited September 2022

    Hi! I’ve attended quite a few… either at someone’s house or a restaurant.


    Best thing is to pick a day/time we’ll in advance as in the past ladies came from the island too!

    Thoughts ? I can always help organize…..

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  • BbyMom
    BbyMom Member Posts: 31
    edited September 2022

    I'm in North Burnaby but happy to travel. If ladies come from the island then something along the skytrain route may work well? There is a Cactus Club by the Brentwood Mall skytrain station, along some other restaurants like Joey's, Earl's, and Brown's Social House that are all somewhat similar, but the location isn't too exciting. I'm up for anything and yeah, a date/time well in advance should definitely help with planning. :)

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