Can we have a forum for "older" people with bc?

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  • oldladyblue
    oldladyblue Member Posts: 272
    edited August 2022

    Yes, Mcbaker, maybe it IS pain that wakes me after 5 hours or so in bed, as I always feel achey when I wake up whether it is 5 hours or 7 hours. I just feel so much better emotionally after 7 hours.

    What do you mean off to a friend's clothesline?

    Hope you had a good nap. Maybe I'll have to learn how to nap. I also have nap insomnia, so hard to fall asleep in the daytime.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited August 2022

    I've been "cheating" a bit the past couple of days by popping a Celebrex at bedtime--waking up from 8 solid hours of sleep with my back requiring only minor stretches and my hip/groin behaving itself. Experimenting tonight by skipping the Celebrex to see what happens.

    What keeps me from awakening mid-sleep (other than a dawn tibial cramp or having to temporarily get up and answer the "pee dream:" the one where I keep desperately looking for the rest room that either doesn't exist or whose toilet hss been replaced by a chair) is taking CBD along with my night meds an hour before bedtime and then a CBN capsule literally the last thing I do before getting into bed (where Heidi usually and vocally insists on tucking me in). The CBD (and my Baclofen antispasmodic) makes me sleepy and the CBN lets me stay asleep, without the morning "hangover" that comes with either an indica THC edible, Benadryl/Unisom or a Lyrica. I know it's time for bed when I start yawning and not wanting to finish my late-night posting here--or even nodding off during TV shows. (It also helps that I wear an Always Discreet night pad, in case the "pee dream" lasts awhile). Last night I turned in at 2:30 am; Heidi woke me at 5:30 for another nuzzle-kneading session and I rolled over. to enjoy an unusually pleasant dream..next thing I knew it was noon! (Fortunately, nowhere I had to be, and the gloomy pre-storm skies were good for sleep).

    My dreams, beside the aforementioned pee dream, always seem to involve some form of travel, performance or both. I no longer get the one where I find myself back in high school or even college, the day before a final or term paper in a course for which I'd forgotten I'd registered but needed the credits to graduate.That one always enda with the realization I didn't need a diploma because not only did I already have a college but also a law degree, so I wake up. The travel dream usually begins with preparing to depart for the flight home (from some exotic destination) but realizing I'd never finish packing in time...but when I do get to the airport I barely have time to find the gate and then have physical difficulty climbing into the plane and reaching my seat (which always turns out to be first-class). The performance aspect is usually when I find myself suddenly thrust onatage for a gig nobody told me I had and I have absolutely no idea of a set list. A shrink would have a field day--yearning for yet fear of change, fear of dying, "impostor syndrome," etc. I never get the topless-or-naked-in-public or teeth-falling-out nightmares any more.

    One I sometimes do get is the "sideways elevator" dream, during which I marvel "whoa, how come nobody'd invented this before?" I used to get the one where I was in a luxe high-rise apt. with floor-to-ceiling windows and saw tornadoes approaching from several directions...those stopped once I first encountered an actual twister. The travel dreams I like are the ones where I'm in a city that combines streets & landmarks from a variety of cities where I've not only visited but lived. I can almost construct that mashup-city from memory. It must be how Scott Turow devised the map of the fictional Midwest Kindle County & Kindle City in which his legal-thriller novels are set. "Kindle" seems an amalgam of Chicago, Joliet, Milwaukee & St. Louis.

  • MCBaker
    MCBaker Member Posts: 1,555
    edited August 2022

    Sleeping: relax, blank your mind (stop thinking), don't move. Works really quick for me, usually.

    I, too have a repeating dream that I had forgotten I had signed up for, did not go to class, and did nothing once I had found out about it, which was coming in from all directions. close to the end of the term. The professor had a bad reputation for being irritable and rigid. It was something boring, about the mechanics of writing, which is odd, because as a senior in high school I actually enjoyed diagraming sentences. The not necessary was not a cop-out in this case, because I was an English major.

    Sandy, I have had that dream about high in the sky with tornadoes in Kansas City (and area), where I lived for maybe ten years total.

    These skirts are silk and synthetics which must be washed gently in pillowcases and line-dried. I don't have a clothesline. I am very busy getting ready for a crafts sale.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2022

    If I keep my eyes open, I see bugs and snakes and intricate
    tiny flowers and cool rocks and nice smiles and beautiful
    architecture and gentle kindness. If I keep my heart young
    I notice great places to play, nice sunsets, cool hideouts,
    neat ice formations, and strange and unusual birds and animals.
    Life is never ordinary. We can make it seem ordinary
    by closing our eyes and hearts to its wonder, but that's not
    life's fault. I prefer to notice the little things and then leave
    them be--never trying to take them with me or preserve
    them--because that's what life's supposed to be, and
    that's what makes me happy and keeps away disappointment.

    tom walsh

  • Nsbrown54
    Nsbrown54 Member Posts: 908
    edited August 2022

    betrayal- you have amazing patience to work through the restoration and rebuilding of your home. Glad you’re seeing the light at the end of a long road.

    Busy day. I had a followup with the surgeon who did my procedure three weeks ago. All is good. And an eye doctor appointment this afternoon. I spoke to my daughter this morning. She’s seeing her OB for weekly appointments now and had a sonogram this morning. All looks good. We’re getting together in two weeks to do some shopping.

    Enjoy your day

  • CindyNY
    CindyNY Member Posts: 1,022
    edited August 2022

    Fitbit says I slept thru the night, no waking up - a first. Probably because I walked 6 miles in Boston! We took the fast ferry out of Provincetown and back. Great day spent at the aquarium and a quick visit to Quincy market, which has changed immensely. All good.

    I never tire of the house restoration story. We’ve all been there at some point, but yours has lasted longer than anything I’ve ever done.

    We’re off to the National Seashore for the day. Enjoy your day!

    image

  • Betrayal
    Betrayal Member Posts: 1,374
    edited August 2022

    cindyny: Lovely photo and the colors of the fish are so brilliant. Reminds me of the salt water tank my DB once had.

    I finally finished the layout of the firepit area today. I used the left over flagstones that were replaced (damaged) when they realigned the patio. Last step is sealing sand which I have but will wait for after first rain to apply. So start to finish, this reflects al little over 2 weeks work of 2-3 hours/day. Flagstones are on sloping end and have enough of a lip to keep the chairs from falling off the edge. DH has to paint the chairs and fire pit before they can go back on.

    From the walkway/natural stone wall construction (done by contractor) we had nearly 1.5 pallets of natural stone left and just about the same for the pavers. Now we have less than half a pallet of each left. So it did take quite a bit of product to construct and I lost count of how many bags of base we used but know it was in excess of 50. As for the sand under base, that was about 12 bags. We have some sand left over but will keep it in case we need to readjust some of the pavers. Funny how what you pictured in your head, and drew on paper can then be actuated through a lot of effort and tons of sweat. DH could not visualize this at all during the process but is pleased with the outcome.

    I am attaching a before picture showing the initial excavation and the finished one from today. What a difference two plus weeks can make. Now I get to reassemble my house once the furniture is back and return to mulching that has been neglected.

    image7/17/22

    image8/4/22

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited August 2022

    Wonderful metamorphosis, Betrayal!

    Second of three appts. today in my "self-care" week. Tues. was my facial, where the esthetician switched my serum from anti-rosacea to fulvic acid. Today, my mani-pedi, with the "glazed donut" (aka "Hailey Bieber") manicure--CND Sea Pearl over Gelish "Call My Blush" pale pink and a deep red iridescent pedi to cover a hematoma I have on one toenail, thanks to stubbing my toe too often. (At least the nail salon owner claims it's a hematoma, not a melanoma--had one on another toenail which eventually fell off when supplanted by a new clear nail that grew in below). Tomorrow I have my color touchup & trim. My new stylist (the salon owner) doesn't have an uninterrupted block of time to add a Brazilian Blowout, but if I wait for him to finish the haircut he has after me, he can do it. But I will ask him if it's worth doing or even advisable--haven't had one since June 2020, when the place reopened after the initial pandemic lockdown.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited August 2022

    Just a question--does anyone else's husband/male significant other (I say "male" because I'm convinced it's a "guy thing") sort of tune out until the last few words of what you're saying? (Those of you whose SOs have dementia are of course exempt from this question). It's been slowly exasperating me for decades, so it's not aging-related. I suspect that many men get lost in thought (even about mundane things they may be doing), only to realize "uh-oh, she's speaking, so I'd better pretend I've been listening, by repeating the last sentence if she asks." That's understandable, as few people have a two-track mind. Lately, he's been saying first that he can't hear me and then that I "swallow" my "words," which nobody else seems to tell me or even politely asks me to repeat more clearly.

    When we're out and he has to answer or return a call about or from a patient, he puts his phone on speaker, saying that he can't hear the phone over the noise. (Half the time, I fear there's a HIPAA violation waiting to happen). I gently suggested he try earbuds, but it was tough enough to get him to Bluetooth his phone to his car as it is, and might be a bridge too far to attempt to set his phone up for wireless earbuds (or be too embarrassed to be seen using wired ones). He admitted lately he's been missing departmental meetings at one hospital because they're exclusively on Zoom and he's comfortable only with Microsoft Teams because that's what pops up when he starts his computer.

    He's resisting the idea of hearing aids--not the expense but the time it would take for testing, fitting and fine-tuning. He admitted his sneakers are a bit tight across the toes, but won't take the time to actually go to a shoe store and try some on. It's been over a year since he even tried on clothing in a store--it's up to me to do it all online or pick it up. He won't get a pedicure either, certainly not at a nail salon and not even from a podiatrist colleague at one of his hospitals. (It's not the expense, which Medicare doesn't cover for non-diabetics). At least he goes to the dentist & barber in person.

    Thanks for letting me rant.

  • MCBaker
    MCBaker Member Posts: 1,555
    edited August 2022

    Sandy, have you considered pressuring him to retire? Maybe tell him that if he continues to not address a hearing problem, he could be subject to malpractice claims. Tell him that you are not his personal shopper. He needs to take time to take care of himself, even if that means going parttime. What condition is HIS heart in?

    Just tell him that these are the probable consequences of not taking care of his own needs. Further, he has possibly been traumatized by COVID. He needs time off to recover from that.

    Sorry, blunt truth.

  • Denny123
    Denny123 Member Posts: 1,886
    edited August 2022

    Wow-first time that I saw this. And I have been on here since 2003.

    I am old-73. 20.5 years at Stage 4 MBC de novo. Hi! to everyone.

    Denise

  • petite1
    petite1 Member Posts: 1,791
    edited August 2022

    Sandy, When my DH was doing that, he had ear wax in his ear. He would say "I can hear you. I just don't understand what you are saying."

  • MCBaker
    MCBaker Member Posts: 1,555
    edited August 2022

    petite, I agree with that. Maybe Sandy could suggest that it is only a conductive loss, and therefore hearing aids would not be necessary. Now I can just imagine him bringing an otoscope home and asking you to look into his ears.

    Welcome, denny. Glad to see you in our neighborhood. Especially considering your BC history.

  • Nsbrown54
    Nsbrown54 Member Posts: 908
    edited August 2022

    Love the fire pit betrayal. Thank you for sharing the photos.

    Welcome Denny123.

    I’m the one who use to not listen to my DH or mishear what he and others would say. Been wearing hearing aids for 5 years. It makes a world of difference.

    Running errands this morning and then a doctor appointment. More rain expected, so hopefully I can get this all done before it rains. Enjoy your day.

  • MoCoGram
    MoCoGram Member Posts: 83
    edited August 2022

    Welcome denny123, I've seen you on other forums. I'm also 73.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2022

    Appreciation of life itself, becoming suddenly aware of the miracle
    of being alive, on this planet, can turn what we call ordinary life
    into a miracle. We come awake to such a realization when
    we recognize our connection to a spiritual dimension.

    Dan Wakefield

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2022

    Welcome denny. Glad you found us here. Yes, we have been around for a while. It is a fairly small group so easy to keep up with. Hope you will come often and join in often as well.

    Hmm, I wear hearing aids so hard for me to judge. I think Dh just got inro a habit of feeling like he had all the answers so didn't and often doesn't pay a lot of attention to me. In the mean-time ( after a whole lot of frustrating conversations ) Dh's voice tone is way less making it way harder for me to hear him. I am having difficulty now and having to wait to see the Ear Speciliast to clean out wax in my ears. Even a little bit can have a huge effect. My PCP and others who look in my ear all say they can see past the ear wax that is there. I also feel like age and sinus are making a difference in how my ears expel wax. It has just been a lot harder for me to hear. Not to make a bad pun of a sort, but it waxes and wanes depending.

    Nothing special for today. Threat of rain but it sounds like it will be cooler for awhile. I haven't noticed the heat so mauch lately as the humidity has been much better lately in spite of a couple of days of a lot of rain. Fingers crossed.

  • MCBaker
    MCBaker Member Posts: 1,555
    edited August 2022

    I quit smoking about four years ago, and since then, my hearing loss has plateaued. It was a real relief to discover that I had control over that.


  • mistyeyes
    mistyeyes Member Posts: 584
    edited August 2022

    Chisandy- My husband was not catching everything I would say or not hearing it correctly. When I was first diagnosed with cancer, he would go to the doctors appts with me and if I asked him what a doctor said because I did not understand it or didn't catch it he would just say he didn't hear a lot of what the doctor said. He had an appt for cataract surgery evaluation the week after he died. We were going to get that done first before I pushed on the hearing thing. I did have to push it a bit.

  • mistyeyes
    mistyeyes Member Posts: 584
    edited August 2022

    Betrayal - the stone work is wonderful.

  • 1946Taco
    1946Taco Member Posts: 125
    edited August 2022

    In our house, I'm the one who can't understand DH. I will go in for a test but he is the only one I can't hear. He mutters and often has a throaty voice.

    Sandy - I'm surprised that Bob can continue working with so few tech skills. Also sounds like you are doing some enabling, shopping for him, setting up his stuff etc. Like me, you have been married forever so it maybe it is what it is but come in and vent anytime.

    I just got off the CDC site. I had a direct exposure to Covid on Wednesday. Sat next to someone at a bridge table for an hour. She tested positive on Thurs. We were both masked but still makes me anxious. Much to my surprise, CDC says I can do whatever (except recommends masking for 10 days) unless I have symptoms. Supposed to test at 5 days. Seems risky to me, especially living in a age restricted community with most having some kind of co-morbidities. I've chosen to stay home but some of my fellow bridge players were playing again today. Each to her own I guess.

    Happy weekend, everyone!

  • oldladyblue
    oldladyblue Member Posts: 272
    edited August 2022

    Thanks for the sleep tips Chisandy, mcbaker, cindyny, I will see what I can do to switch things up to sleep all night. Made it to 6 hours tonight before waking. I did just notice that the days I get super tired physically out in my yard gardening/digging/etc. are followed by nights that I seem to sleep better. Maybe the truth is that I am strong enough for "real" exercise again i.e. gym or yoga, which I haven't done due to covid rules or cancer treatments or getting covid myself... and I'm no longer sleeping well due to lack of exercise. Funny, I didn't notice that myself, until I read the post about walking around Boston for 6 hours! That photo was lovely! I was in Boston just before Covid started spreading for a schizophrenia research panel (my daughter suffers from it). Lovely, lovely city to walk around in.

    illinoislady, loved that quote, really. I need to do that in life. Sort of goes with the "Thin Slices of Joy" thread on this site. I enjoy those posts too. Gets me looking outside of my too full of thoughts head.

    cardplayer, I need to make an eye appt too, and chisandy YES my husband tunes me out if I talk too long (beyond a sentence or two) as he gets impatient with waiting to understand me. I've shortened down what I say and then end with asking him a question "well... what do you think?".

    betrayal, I might have to try a hardscape project if I EVER get all of the plants I've collected the last few years in pots into the ground. My I guess I am a plant hoarder now. That's what happened when I didn't have to drive to work anymore and started working from home.

    Have a great day all!


  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2022

    As you take a few minutes each day to quiet your mind, you will discover a nice benefit: your everyday, "ordinary" life will begin to seem far more extraordinary. Little things that previously went unnoticed will begin to please you. You'll be more easily satisfied, and happier all around. Rather than focusing on what's wrong with your life, you'll find yourself thinking about and more fully enjoying what's right with your life. The world won't change, but your perception of it will. You'll start to notice the little acts of kindness and caring from other people rather than the negativity and anger.



    Jack Canfield

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2022

    Nothing special planned today -- just catch-up work going on. I am being my in-cocsitent self and seems like it is something I'm going to have to confront on a daily basis if I want to get farther. I want yo get a lot farther so will have to accept that physical input EVERY day will be a must till it is habit again.

    Have some bills to do and have an appt. Monday with the Cardiologist, Dr. Ruben in Marion. Every other appt. she likes to see me and it is a good thing. She can judge where I am and actually listen to my heart while figuring out any medications adjustments I might need. It has been a little awful trying to keep up with med payments to the V.A. since every change means the pharmacy re-starting my prescription all over. Still, even though it is a hassle, it is getting and keeping me on a higher level of wellness so hard to get too upset. I really don't think the first cardiologist I chose would have been so fervent about my heart health.

    I finally have an appt. with Dr. Ang on Tues. I was referred a long time ago and I nearly gave up. I likely shoudl check on Monday and make sure the original referral is still adequate. He is the one who does colonscopy. Not sure how it will be since I've been on supplemental iron for a long time and still am.

    I have noticed that having skipped three days of sinus meds have left me with something of a raw throat in back, but hope to defeat that since I have my sinus meds again.

    Hope you all have a good Saturday.

  • Nsbrown54
    Nsbrown54 Member Posts: 908
    edited August 2022

    I usually sleep pretty good, but have one or two nights a week where pain wakes me up. Painsomnia.

    Busy morning already. We did our grocery shopping today. Found a really sweet cantaloupe and plan to make spaghetti squash this afternoon. Baseball game starts early afternoon. Tired from our morning walk.

    I'll be away most of tomorrow. Going to a memorial service for a college friend in DC tomorrow. It's about an 80 mile trip one way. She passed away about 2 months ago and the funeral was out of state. The service starts at 10am. It'll be a nice way to celebrate the life of a wonderful person.

    Enjoy your day.

  • MCBaker
    MCBaker Member Posts: 1,555
    edited August 2022

    I didn't sell anything at the crafts sale, but it was fun meeting new people. There are some other ones in November, so it looks like I need to get my red and green game going. I went home early and took a two-hour nap. Tippy was a good boy. I had a neighbor take him for a walk.




  • carolehalston
    carolehalston Member Posts: 6,887
    edited August 2022

    Betrayal, you are "getting there" after much planning and work and dealing with workmen. I hope you enjoy your home and yard when everything is done. Of course, the yard maintenance continues.

    We did not have a great day as vendors at the farmers market. There were crowds of people but a scarcity of buyers for dh's beautiful turned bowls. The most expensive bowls have all sold but we still have a nice selection. A number of people come by and comment on how much they like the bowls they've already bought.

    I displayed some of my creations today on a table. Placemats and crocheted washcloths. I sold one washcloth to a woman who bought it to use as a hot pad. The placemats are hand embroidered and very pretty, if I do say so. A few women stopped to admire them but no buyers. I made everything for the creative pleasure, not with any plan to earn money but it would have been nice to find appreciative new owners.

    We'll set up the next two Saturdays, skip the last Saturday of the month (dh is playing in a golf tournament), and then return for the Saturday of Labor day weekend. At that point the farmers market will largely be over.

    On the subject of sleep, I normally sleep well, 8 or 9 hours, but I have vivid dreams that I often remember when I wake up. When I have a bad night and don't get enough restful sleep, I feel tired and cranky the next day.

  • oldladyblue
    oldladyblue Member Posts: 272
    edited August 2022

    Yeah, it's the tired and cranky that motivates me to try and sleep more. Gosh, I can get cranky.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited August 2022

    My problem is that if I wake up at about 6 hrs. or so to roll over, I get dreams so interesting that I sometimes can sleep past noon if my HK is here. (When she's not here, I have to be up by 10-ish to feed the cats by 11am).

    Every year Bob says he'll retire "next year," but something always happens: first, he didn't want his staff to lose their jobs; then along came the pandemic which put the kibosh on our retirement plans to travel, go to cultural events and great restaurants. Now, I'm afraid that if he retires he will sit home and drink & watch TV (mostly sports) all day unless we can travel again. Yesterday, my 93-yr-old cousin in FL called to say hi--he is a dentist who retired 25 years ago and is bored and lonely. His wife of 70 years passed away at 88 of heart failure and RA; he moved out of the assisted living facility where they had lived and into a seniors' independent-living condo community near his daughter in Parkland. At least he has a girlfriend--who had been their best friend for 50 years and is 83 and still works as a travel consultant. (They went on safari to S. Africa & Namibia last winter). He warned me that as long as Bob can be active, he needs to have meaningful things to do after he retires. Meanwhile, Bob swears he will give up his office and the hospitals at the end of the fiscsl year and work part time at the union health clinic, which has normal daytime business hours, no hospitsl rounds, and great pay--though he'll have to pay his own insurance. He finds that gig (he calls it his "side hustle") extremely rewarding, Maybe he'll finally have the time to shop for himself too.

  • MCBaker
    MCBaker Member Posts: 1,555
    edited August 2022

    Looks like an excellent solution, Sandy.

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